Paper by Jaime Bernal: “Enabling private sector trust stands as a critical policy challenge for the success of the EU Data Governance Act and Data Act in promoting data sharing to address societal challenges. This paper attributes the widespread trust deficit to the unmanageable uncertainty that arises from businesses’ limited usage control to protect their interests in the face of unacceptable perceived risks. For example, a firm may hesitate to share its data with others in case it is leaked and falls into the hands of business competitors. To illustrate this impasse, competition, privacy, and reputational risks are introduced, respectively, in the context of three suboptimal approaches to data sharing: data marketplaces, data collaboratives, and data philanthropy. The paper proceeds by analyzing seven trust-enabling mechanisms comprised of technological, legal, and organizational elements to balance trust, risk, and control and assessing their capacity to operate in a fair, equitable, and transparent manner. Finally, the paper examines the regulatory context in the EU and the advantages and limitations of voluntary and mandatory data sharing, concluding that an approach that effectively balances the two should be pursued…(More)”.
The Art of Uncertainty
Book by David Spiegelhalter: “We live in a world where uncertainty is inevitable. How should we deal with what we don’t know? And what role do chance, luck and coincidence play in our lives?
David Spiegelhalter has spent his career dissecting data in order to understand risks and assess the chances of what might happen in the future. In The Art of Uncertainty, he gives readers a window onto how we can all do this better.
In engaging, crystal-clear prose, he takes us through the principles of probability, showing how it can help us think more analytically about everything from medical advice to pandemics and climate change forecasts, and explores how we can update our beliefs about the future in the face of constantly changing experience. Along the way, he explains why roughly 40% of football results come down to luck rather than talent, how the National Risk Register assesses near-term risks to the United Kingdom, and why we can be so confident that two properly shuffled packs of cards have never, ever been in the exact same order.
Drawing on a wide range of captivating real-world examples, this is an essential guide to navigating uncertainty while also having the humility to admit what we do not know…(More)”.
Collaboration in Healthcare: Implications of Data Sharing for Secondary Use in the European Union
Paper by Fanni Kertesz: “The European healthcare sector is transforming toward patient-centred and value-based healthcare delivery. The European Health Data Space (EHDS) Regulation aims to unlock the potential of health data by establishing a single market for its primary and secondary use. This paper examines the legal challenges associated with the secondary use of health data within the EHDS and offers recommendations for improvement. Key issues include the compatibility between the EHDS and the General Data Protection Regulation (GDPR), barriers to cross-border data sharing, and intellectual property concerns. Resolving these challenges is essential for realising the full potential of health data and advancing healthcare research and innovation within the EU…(More)”.
Definitions, digital, and distance: on AI and policymaking
Article by Gavin Freeguard: “Our first question is less, ‘to what extent can AI improve public policymaking?’, but ‘what is currently wrong with policymaking?’, and then, ‘is AI able to help?’.
Ask those in and around policymaking about the problems and you’ll get a list likely to include:
- the practice not having changed in decades (or centuries)
- it being an opaque ‘dark art’ with little transparency
- defaulting to easily accessible stakeholders and evidence
- a separation between policy and delivery (and digital and other disciplines), and failure to recognise the need for agility and feedback as opposed to distinct stages
- the challenges in measuring or evaluating the impact of policy interventions and understanding what works, with a lack of awareness, let alone sharing, of case studies elsewhere
- difficulties in sharing data
- the siloed nature of government complicating cross-departmental working
- policy asks often being dictated by politics, with electoral cycles leading to short-termism, ministerial churn changing priorities and personal style, events prompting rushed reactions, or political priorities dictating ‘policy-based evidence making’
- a rush to answers before understanding the problem
- definitional issues about what policy actually is making it hard to get a hold of or develop professional expertise.
If we’re defining ‘policy’ and the problem, we also need to define ‘AI’, or at least acknowledge that we are not only talking about new, shiny generative AI, but a world of other techniques for automating processes and analysing data that have been used in government for years.
So is ‘AI’ able to help? It could support us to make better use of a wider range of data more quickly; but it could privilege that which is easier to measure, strip data of vital context, and embed biases and historical assumptions. It could ‘make decisions more transparent (perhaps through capturing digital records of the process behind them, or by visualising the data that underpins a decision)’; or make them more opaque with ‘black-box’ algorithms, and distract from overcoming the very human cultural problems around greater openness. It could help synthesise submissions or generate ideas to brainstorm; or fail to compensate for deficiencies in underlying government knowledge infrastructure, and generate gibberish. It could be a tempting silver bullet for better policy; or it could paper over the cracks, while underlying technical, organisational and cultural plumbing goes unfixed. It could have real value in some areas, or cause harms in others…(More)”.
Geographies of missing data: Spatializing counterdata production against feminicide
Paper by Catherine D’Ignazio et al: “Feminicide is the gender-related killing of cisgender and transgender women and girls. It reflects patriarchal and racialized systems of oppression and reveals how territories and socio-economic landscapes configure everyday gender-related violence. In recent decades, many grassroots data production initiatives have emerged with the aim of monitoring this extreme but invisibilized phenomenon. We bridge scholarship in feminist and information geographies with data feminism to examine the ways in which space, broadly defined, shapes the counterdata production strategies of feminicide data activists. Drawing on a qualitative study of 33 monitoring efforts led by civil society organizations across 15 countries, primarily in Latin America, we provide a conceptual framework for examining the spatial dimensions of data activism. We show how there are striking transnational patterns related to where feminicide goes unrecorded, resulting in geographies of missing data. In response to these omissions, activists deploy multiple spatialized strategies to make these geographies visible, to situate and contextualize each case of feminicide, to reclaim databases as spaces for memory and witnessing, and to build transnational networks of solidarity. In this sense, we argue that data activism about feminicide constitutes a space of resistance and resignification of everyday forms of gender-related violence…(More)”.
On Slicks and Satellites: An Open Source Guide to Marine Oil Spill Detection
Article by Wim Zwijnenburg: “The sheer scale of ocean oil pollution is staggering. In Europe, a suspected 3,000 major illegal oil dumps take place annually, with an estimated release of between 15,000 and 60,000 tonnes of oil ending up in the North Sea. In the Mediterranean, figures provided by the Regional Marine Pollution Emergency Response Centre estimate there are 1,500 to 2,000 oil spills every year.
The impact of any single oil spill on a marine or coastal ecosystem can be devastating and long-lasting. Animals such as birds, turtles, dolphins and otters can suffer from ingesting or inhaling oil, as well as getting stuck in the slick. The loss of water and soil quality can be toxic to both flora and fauna. Heavy metals enter the food chain, poisoning everything from plankton to shellfish, which in turn affects the livelihoods of coastal communities dependent on fishing and tourism.
However, with a wealth of open source earth observation tools at our fingertips, during such environmental disasters it’s possible for us to identify and monitor these spills, highlight at-risk areas, and even hold perpetrators accountable. …
There are several different types of remote sensing sensors we can use for collecting data about the Earth’s surface. In this article we’ll focus on two: optical and radar sensors.
Optical imagery captures the broad light spectrum reflected from the Earth, also known as passive remote sensing. In contrast, Synthetic Aperture Radar (SAR) uses active remote sensing, sending radio waves down to the Earth’s surface and capturing them as they are reflected back. Any change in the reflection can indicate a change on ground, which can then be investigated. For more background, see Bellingcat contributor Ollie Ballinger’s Remote Sensing for OSINT Guide…(More)”.
DAOs of Collective Intelligence? Unraveling the Complexity of Blockchain Governance in Decentralized Autonomous Organizations
Paper by Mark C. Ballandies, Dino Carpentras, and Evangelos Pournaras: “Decentralized autonomous organizations (DAOs) have transformed organizational structures by shifting from traditional hierarchical control to decentralized approaches, leveraging blockchain and cryptoeconomics. Despite managing significant funds and building global networks, DAOs face challenges like declining participation, increasing centralization, and inabilities to adapt to changing environments, which stifle innovation. This paper explores DAOs as complex systems and applies complexity science to explain their inefficiencies. In particular, we discuss DAO challenges, their complex nature, and introduce the self-organization mechanisms of collective intelligence, digital democracy, and adaptation. By applying these mechansims to improve DAO design and construction, a practical design framework for DAOs is created. This contribution lays a foundation for future research at the intersection of complexity science and DAOs…(More)”.
New AI standards group wants to make data scraping opt-in
Article by Kate Knibbs: “The first wave of major generative AI tools largely were trained on “publicly available” data—basically, anything and everything that could be scraped from the Internet. Now, sources of training data are increasingly restricting access and pushing for licensing agreements. With the hunt for additional data sources intensifying, new licensing startups have emerged to keep the source material flowing.
The Dataset Providers Alliance, a trade group formed this summer, wants to make the AI industry more standardized and fair. To that end, it has just released a position paper outlining its stances on major AI-related issues. The alliance is made up of seven AI licensing companies, including music copyright-management firm Rightsify, Japanese stock-photo marketplace Pixta, and generative-AI copyright-licensing startup Calliope Networks. (At least five new members will be announced in the fall.)
The DPA advocates for an opt-in system, meaning that data can be used only after consent is explicitly given by creators and rights holders. This represents a significant departure from the way most major AI companies operate. Some have developed their own opt-out systems, which put the burden on data owners to pull their work on a case-by-case basis. Others offer no opt-outs whatsoever…(More)”.
Building LLMs for the social sector: Emerging pain points
Blog by Edmund Korley: “…One of the sprint’s main tracks focused on using LLMs to enhance the impact and scale of chat services in the social sector.
Six organizations participated, with operations spanning Africa and India. Bandhu empowers India’s blue-collar workers and migrants by connecting them to jobs and affordable housing, helping them take control of their livelihoods and future stability. Digital Green enhances rural farmers’ agency with AI-driven insights to improve agricultural productivity and livelihoods. Jacaranda Health provides mothers in sub-Saharan Africa with essential information and support to improve maternal and newborn health outcomes. Kabakoo equips youth in Francophone Africa with digital skills, fostering self-reliance and economic independence. Noora Health teaches Indian patients and caregivers critical health skills, enhancing their ability to manage care. Udhyam provides micro-entrepreneurs’ with education, mentorship, and financial support to build sustainable businesses.
These organizations demonstrate diverse ways one can boost human agency: they help people in underserved communities take control of their lives, make more informed choices, and build better futures – and they are piloting AI interventions to scale these efforts…(More)”.
Using internet search data as part of medical research
Blog by Susan Thomas and Matthew Thompson: “…In the UK, almost 50 million health-related searches are made using Google per year. Globally there are 100s of millions of health-related searches every day. And, of course, people are doing these searches in real-time, looking for answers to their concerns in the moment. It’s also possible that, even if people aren’t noticing and searching about changes to their health, their behaviour is changing. Maybe they are searching more at night because they are having difficulty sleeping or maybe they are spending more (or less) time online. Maybe an individual’s search history could actually be really useful for researchers. This realisation has led medical researchers to start to explore whether individuals’ online search activity could help provide those subtle, almost unnoticeable signals that point to the beginning of a serious illness.
Our recent review found 23 studies have been published so far that have done exactly this. These studies suggest that online search activity among people later diagnosed with a variety of conditions ranging from pancreatic cancer and stroke to mood disorders, was different to people who did not have one of these conditions.
One of these studies was published by researchers at Imperial College London, who used online search activity to identify signals of women with gynaecological malignancies. They found that women with malignant (e.g. ovarian cancer) and benign conditions had different search patterns, up to two months prior to a GP referral.
Pause for a moment, and think about what this could mean. Ovarian cancer is one of the most devastating cancers women get. It’s desperately hard to detect early – and yet there are signals of this cancer visible in women’s internet searches months before diagnosis?…(More)”.