Via Census/BeSpacific – International Statistical Agencies – links to data from around the world. “The U.S. Census Bureau conducts demographic, economic, and geographic studies of other countries and strengthens statistical development around the world through technical assistance, training, and software products. For over 60 years, the Census Bureau has performed international analytical work and assisted in the collection, processing, analysis, dissemination, and use of statistics with counterpart governments in over 100 countries.”
Rebooting Democracy
, , and at Foreign Policy: “….The next generation of political and economic systems may look very different from the ones we know today.
Some changes along these lines are already happening. Civil society groups, cities, organizations, and government agencies have begun to experiment with a host of innovations that promote decentralization, redundancy, inclusion, and diversity. These include participatory budgeting, where residents of a city democratically choose how public monies are spent. They also include local currency systems, open-source development, open-design, open-data and open-government, public banking, “buy local” campaigns, crowdfunding, and socially responsible business models.
Such innovations are a type of churning on the edges of current systems. But in complex systems, changes at the periphery can cascade to changes at the core. Further, the speed of change is increasing. Consider the telephone, first introduced by Bell in 1876. It took about 75 years to reach adoption by 50 percent of the market. A century later the Internet did the same in about 35 years. We can expect that the next major innovations will be adopted even faster.
Following the examples of the telephone and Internet, it appears likely that the technology of new economic and political decision-making systems will first be adopted by small groups, then spread virally. Indeed, small groups, such as neighborhoods and cities, are among today’s leaders in innovation. The influence of larger bodies, such as big corporations and non-governmental organizations, is also growing steadily as nation states increasingly share their powers, willingly or not.
Changes are evident even within large corporations. Open-source software development has become the norm, for example, and companies as large as Toyota have announced plans to freely share their intellectual property.
While these innovations represent potentially important parts of new political and economic systems, they are only the tip of the iceberg. Systems engineering design could eventually integrate these and other innovations into efficient, user-friendly, scalable, and resilient whole systems. But the need for this kind of innovation is not yet universally acknowledged. In its list of 14 grand challenges for the 21st century, the U.S. National Academy of Engineering addresses many of the problems caused by poor decision making, such as climate change, but not the decision-making systems themselves. The work has only just begun.
…
The development of new options will dramatically alter how democracy is used, adjusted, and exported. Attention will shift toward groups, perhaps at the city/regional level, who wish to apply the flexible tools freely available on the Internet. Future practitioners of democracy will invest more time and resources to understand what communities want and need — helping them adapt designs to make them fit for their purpose — and to build networked systems that beneficially connect diverse groups into larger political and economic structures. In time, when the updates to next-generation political and economic near completion, we might find ourselves more fully embracing the notion “engage local, think global.”…(More)
Ethnography for the Internet: Embedded, Embodied and Everyday
New book by Christine Hine: “The internet has become embedded into our daily lives, no longer an esoteric phenomenon, but instead an unremarkable way of carrying out our interactions with one another. Online and offline are interwoven in everyday experience. Using the internet has become accepted as a way of being present in the world, rather than a means of accessing some discrete virtual domain. Ethnographers of these contemporary Internet-infused societies consequently find themselves facing serious methodological dilemmas: where should they go, what should they do there and how can they acquire robust knowledge about what people do in, through and with the internet?
Innovation spaces: transforming humanitarian practice in the United Nations
Paper by Louise Bloom and Romy Faulkner at the Oxford Refugee Studies Centre: “Since 2009 there has been a growing interest in defining and operationalising innovation for use in the humanitarian context. The increase in scale of new crises, the urbanisation of many displaced populations, and stretched financing for humanitarian assistance are forcing international aid agencies to think and act in new ways. Along with other international humanitarian actors, several United Nations (UN) bodies are engaging with new tools and practices to bring innovation to the forefront of their work. Within these agencies, there has been a growing movement to establish ‘innovation spaces’ or ‘innovation labs’. These labs take different forms – some virtual, others physical – and each is created with its own motivations unique to the context in which it operates. Despite the variation, there is a growing trend in the UN system, and more broadly in the international humanitarian community, to create labs as a way to engage in and facilitate innovation practice. This research seeks to understand the way in which innovation labs across several UN agencies are being used to foster new ways of operating within the UN’s bureaucratic structures. We ask four key questions: What form do innovation labs in UN agencies take? What motivated their initiation? What are their aims and objectives? What impact have they had and how is the impact being measured? As innovation practice gains momentum, we reflect on the future of innovation spaces as a way to foster innovation within the UN system. We conclude with six key recommendations….(More)”
Open Government Guide
Reporters Committee for Freedom of the Press: “The Open Government Guide is a complete compendium of information on every state’s open records and open meetings laws. Each state’s section is arranged according to a standard outline, making it easy to compare laws in various states. If you’re a new user of this guide, be sure to read the Introductory Note and User’s Guide.
Please note: These guides cover state laws. We also have a separate Federal Open Government Guide.”
The Healing Power of Your Own Medical Data
in the New York Times: “Steven Keating’s doctors and medical experts view him as a citizen of the future.
A scan of his brain eight years ago revealed a slight abnormality — nothing to worry about, he was told, but worth monitoring. And monitor he did, reading and studying about brain structure, function and wayward cells, and obtaining a follow-up scan in 2010, which showed no trouble.
But he knew from his research that his abnormality was near the brain’s olfactory center. So when he started smelling whiffs of vinegar last summer, he suspected they might be “smell seizures.”
He pushed doctors to conduct an M.R.I., and three weeks later, surgeons in Boston removed a cancerous tumor the size of a tennis ball from his brain.
At every stage, Mr. Keating, a 26-year-old doctoral student at the Massachusetts Institute of Technology’s Media Lab, has pushed and prodded to get his medical information, collecting an estimated 70 gigabytes of his own patient data by now. His case points to what medical experts say could be gained if patients had full and easier access to their medical information. Better-informed patients, they say, are more likely to take better care of themselves, comply with prescription drug regimens and even detect early-warning signals of illness, as Mr. Keating did.
“Today he is a big exception, but he is also a glimpse of what people will want: more and more information,” said Dr. David W. Bates, chief innovation officer at Brigham and Women’s Hospital.
Some of the most advanced medical centers are starting to make medical information more available to patients. Brigham and Women’s, where Mr. Keating had his surgery, is part of the Partners HealthCare Group, which now has 500,000 patients with web access to some of the information in their health records including conditions, medications and test results.
Other medical groups are beginning to allow patients online access to the notes taken by physicians about them, in an initiative called OpenNotes. In a yearlong evaluation project at medical groups in three states, more than two-thirds of the patients reported having a better understanding of their health and medical conditions, adopting healthier habits and taking their medications as prescribed more regularly.
The medical groups with OpenNotes programs include Beth Israel Deaconess Medical Center in Boston, Geisinger Health System in Pennsylvania, Harborview Medical Center in Seattle, the Mayo Clinic, the Cleveland Clinic and the Veterans Affairs department. By now, nearly five million patients in America have been given online access to their notes.
As an articulate young scientist who had studied his condition, Mr. Keating had a big advantage over most patients in obtaining his data. He knew what information to request, spoke the language of medicine and did not need help. The information he collected includes the video of his 10-hour surgery, dozens of medical images, genetic sequencing data and 300 pages of clinical documents. Much of it is on his website, and he has made his medical data available for research….
Opening data to patients raises questions. Will worried patients inundate physicians with time-consuming questions? Will sharing patient data add to legal risks? One detail in the yearlong study of OpenNotes underlines doctors’ concerns; 105 primary physicians completed the study, but 143 declined to participate.
Still, the experience of the doctors in the evaluation seemed reassuring. Only 3 percent said they spent more time answering patient questions outside of visits. Yet knowing that patients could read the notes, one-fifth of the physicians said they changed the way they wrote about certain conditions, like substance abuse and obesity.
Evidence of the benefit to individuals from sharing information rests mainly on a few studies so far. For example, 55 percent of the members of the epilepsy community on PatientsLikeMe, a patient network, reported that sharing information and experiences with others helped them learn about seizures, and 27 percent said it helped them be more adherent to their medications.
Mr. Keating has no doubts. “Data can heal,” he said. “There is a huge healing power to patients understanding and seeing the effects of treatments and medications.”
Health information, by its very nature, is personal. So even when names and other identifiers are stripped off, sharing personal health data more freely with patients, health care providers and researchers raises thorny privacy issues.
Mr. Keating says he is a strong believer in privacy, but he personally believes that the benefits outweigh the risks — and whether to share data or not should be an individual’s choice and an individual responsibility.
Not everyone, surely, would be as comfortable as Mr. Keating is sharing all his medical information. But he says he believes that people will increasingly want access to their medical data and will share it, especially younger people reared on social networks and smartphones.
“This is what the next generation, which lives on data, is going to want,” Mr. Keating said….(More)”
We, the government
“Davied van Berlo has published a new book about the role of government in the network society. It has not yet been published in English but can be downloaded in Dutch at boek.ambtenaar20.nl.
The Civil Servant 2.0 book is available 
in English.”
About “We, the government”:
“The network society. Everybody’s talking about it, but what does it really mean? What effect does the networking age in society have on government? The public good is no longer just a government issue but a cocreation between government and society. However, what will this collaboration look like and will we be able to execute political goals in such a networked society?
In his third book Davied van Berlo, writer of Civil Servant 2.0 and Civil Servant 2.0 beta, explores the role of government in the network society. “We, the government” gives a new perspective on the working of government and offers civil servants and public officials a hand in shaping their new role in society.”…
Davied has used parts of his new book in the presentation he gave to the Dutch chapter of the Internet Society, see the video. Below the video an english version of the Prezi is available….(More)”
Public interest models: a powerful tool for the advocacy agenda
Johnny West at Open Oil: “Open financial models can clearly put analysis into a genuinely independent public space, and also trigger a rise in public understanding which could enrich the governance debate in many countries.
But there is a third function public models can serve: that of advocacy for targeted disclosure of information.
The stress here is on “targeted”. A lot of transparency debates are generic – the need to disclose data as a matter of principle.
It is striking that as the transparency agenda has advanced, and won many battles, so has a debate about whether it is contributing to an increase in accountability. As Paul Collier said: “transparency has to lead to accountability otherwise we’re just ticking loads of boxes”.
We need all these campaigns to continue, and we need to pursue maximum disclosure. Because while transparency does not guarantee accountability, it is its essential prerequisite. Necessary but not sufficient.
But here’s where modeling can help to provide some examples of how data can be used, in a very specific way, to advance accountability.
Let’s take the example of an oil project in Africa. A financial model has to deal with uncertainty and so provides three scenarios for future production and prices, which all have a radical impact on the revenues the government could expect to see. That’s unavoidable. Under the “God, Exxon and everyone else” principle, future price and to some extent production are hard to foresee.
But then there is a second layer of uncertainty caused specifically by the model having to use public domain data. The company, and the government if it exercised its rights of access to information, does not face this second layer because it has access to real data, whereas the public interest model must use estimates and extrapulations. These can be justified, written out and explained – they can be well-informed guesses, in other words, and in the blog on the analytical power of public models, we argue that you can still arrive at useful analysis and conclusions despite this handicap.
Nevertheless, they are guesses. And unlike the first layer of uncertainty, relating to future prices and the ever-changing global market, this second layer can be directly addressed by information the government already has to hand – or could get under its contractual right of access to information….(More)”
Sensor Law
Paper by Sandra Braman: “For over two decades, information policy-making for human society has been increasingly supplemented, supplanted, and/or superceded by machinic decision-making; over three decades since legal decision-making has been explicitly put in place to serve machinic rather than social systems; and over four decades since designers of the Internet took the position that they were serving non-human (machinic, or daemon) users in addition to humans. As the “Internet of Things” becomes more and more of a reality, these developments increasingly shape the nature of governance itself. This paper’s discussion of contemporary trends in these diverse modes of human-computer interaction at the system level — interactions between social systems and technological systems — introduces the changing nature of the law as a sociotechnical problem in itself. In such an environment, technological innovations are often also legal innovations, and legal developments require socio-technical analysis as well as social, legal, political, and cultural approaches.
Examples of areas in which sensors are already receiving legal attention are rife. A non-comprehensive listing includes privacy concerns beginning but not ending with those raised by sensors embedded in phones and geolocation devices, which are the most widely discussed and those of which the public is most aware. Sensor issues arise in environmental law, health law, marine law, intellectual property law, and as they are raised by new technologies in use for national security purposes that include those confidence- and security-building measures intended for peacekeeping. They are raised by liability issues for objects that range from cars to ovens. And sensor issues are at the core of concerns about “telemetric policing,” as that is coming into use not only in North America and Europe, but in societies such as that of Brazil as well.
Sensors are involved in every stage of legal processes, from identification of persons of interest to determination of judgments and consequences of judgments. Their use significantly alters the historically-developed distinction among types of decision-making meant to come into use at different stages of the process, raising new questions about when, and how, human decision-making needs to dominate and when, and how, technological innovation might need to be shaped by the needs of social rather than human systems.
This paper will focus on the legal dimensions of sensors used in ubiquitous embedded computing….(More)”
#SocialCivics and the architecture of participation
at Radar: “It was big news recently that former Twitter executive Jason Goldman is joining the White House to head up a new office of Digital Strategy.
In his post, Jason asked for advice, posted anywhere, using the hashtag #socialcivics. I decided to do a writeup, as he asked, to share my ideas and to spark further conversation.
Briefly, Jason’s mission, on behalf of the White House, is to create new tools and processes for civic engagement, so that all of us are working more effectively together to build a nation that works for everyone, not just for the few with privileged access.
One of the key ideas I have to offer is something that years ago, in the context of open source software, I called “the architecture of participation.” I wrote:
[Open source software projects] that have built large development communities have done so because they have a modular architecture that allows easy participation by independent or loosely coordinated developers … The Web, however, took the idea of participation to a new level because it opened that participation not just to software developers, but to all users of the system.
Modularity depends on standards — formal or informal expectations about behavior and interfaces — and interoperability. To take an example that is not from software, consider that our most competitive, participatory industries all feature devices made from standardized parts. Whether you’re talking automobiles or personal computers or cell phones, a rich ecosystem of suppliers is possible only because we agreed that the threads on bolts and nuts should be a certain size, that electronic parts should be interchangeable, and that complex, custom assemblies should be kept to a minimum. Even large systems depend on small modular parts, but the fewer modular parts a system has, the more expensive it is, and generally, it can be modified and improved by far fewer people….(More)”