COVID-19 response and data protection law in the EU and US

Curated on Posted on by Stefaan Verhulst

Article by Cathy Cosgrove: “Managing the COVID-19 outbreak and stopping its spread is now a global challenge. In addition to the significant health and medical responses underway around the world, governments and public health officials are focused on how to monitor, understand and prevent the spread of the virus. Data protection and privacy laws, including the EU General Data Protection Regulation and various U.S. laws, are informing these responses.

One major response to limiting the spread of infection is contact tracing, which is the practice of identifying and monitoring anyone who may have come into contact with an infected person. Employers and educational institutions are also imposing travel restrictions, instituting self-quarantine policies, limiting visitors, and considering whether to require medical examinations. These responses necessarily involve obtaining and potentially sharing personal information, including data about an individual’s health, travel, personal contacts, and employment. For example, in the U.S., the Centers for Disease Control and Prevention has asked airlines for the name, date of birth, address, phone number and email address for passengers on certain flights. 

As IAPP Editorial Director Jedidiah Bracy, CIPP, explored in his piece on balancing personal privacy with public interest last week, this collection and processing of personal data is creating substantial discussion about what data protection limitations may be required or appropriate. Even China — which is using AI and big data to manage the outbreak — has issued guidance recognizing the need to limit the collection of data and its use during this public health crisis….(More)”.

Social tipping dynamics for stabilizing Earth’s climate by 2050

Curated on Posted on by Stefaan Verhulst

Paper by Ilona M. Otto et al: “…In this paper, we examine a number of potential “social tipping elements” (STEs) for decarbonization that represent specific subdomains of the planetary social-economic system. Tipping of these subsystems could be triggered by “social tipping interventions” (STIs) that could contribute to rapid transition of the world system into a state of net zero anthropogenic greenhouse gas emissions. The results reported in this study are based on an online expert survey, an expert workshop, and an extensive literature review (SI Appendix).

Our results complement the existing shared socioeconomic pathways (SSPs) that are used alongside the representative concentration pathways (RCPs) to analyze the feedbacks between climate change and socioeconomic factors, such as world population growth, economic development, and technological progress. Our results could be useful for exploring possible transformative pathways leading to scenarios that reach net zero emissions by 2050.

…Various types of tipping processes can be differentiated in the literature. Many authors refer to critical thresholds , a notion closely related to the metaphor of a “butterfly effect”. Other processes related to tipping dynamics include metamorphosis, where a rapid loss of structures of one sort occurs simultaneously with the development of new structures, as well as cascades driven by positive feedbacks in processes occurring simultaneously at smaller scales.

The social tipping dynamics of interest for this study are typically manifested as spreading processes in complex social networks of behaviors, opinions, knowledge, technologies, and social norms, including spreading processes of structural change and reorganization. These spreading processes resemble contagious dynamics observed in epidemiology that spread through social networks. Once triggered, such processes can be irreversible and difficult to stop. Similar contagious dynamics have been observed in human behavior, for example in assaultive violence, participation in social movements, or health-related behaviors and traits, such as smoking or obesity..(More)”.

Data-driven models of governance across borders: Datafication from the local to the global

Curated on Posted on by Stefaan Verhulst

Payal Arora and Hallam Stevens at First Monday: “This special issue looks closely at contemporary data systems in diverse global contexts and through this set of papers, highlights the struggles we face as we negotiate efficiency and innovation with universal human rights and social inclusion. The studies presented in these essays are situated in diverse models of policy-making, governance, and/or activism across borders. Attention to big data governance in western contexts has tended to highlight how data increases state and corporate surveillance of citizens, affecting rights to privacy. By moving beyond Euro-American borders — to places such as Africa, India, China, and Singapore — we show here how data regimes are motivated and understood on very different terms….(More)”.

Freedom in the World 2020 – A Leaderless Struggle for Democracy

Curated on Posted on by Stefaan Verhulst

Report by Freedom House: “Democracy and pluralism are under assault. Dictators are toiling to stamp out the last vestiges of domestic dissent and spread their harmful influence to new corners of the world. At the same time, many freely elected leaders are dramatically narrowing their concerns to a blinkered interpretation of the national interest. In fact, such leaders—including the chief executives of the United States and India, the world’s two largest democracies—are increasingly willing to break down institutional safeguards and disregard the rights of critics and minorities as they pursue their populist agendas. As a result of these and other trends, Freedom House found that 2019 was the 14th consecutive year of decline in global freedom.

The gap between setbacks and gains widened compared with 2018, as individuals in 64 countries experienced deterioration in their political rights and civil liberties while those in just 37 experienced improvements. The negative pattern affected all regime types, but the impact was most visible near the top and the bottom of the scale. More than half of the countries that were rated Free or Not Free in 2009 have suffered a net decline in the past decade…The unchecked brutality of autocratic regimes and the ethical decay of democratic powers are combining to make the world increasingly hostile to fresh demands for better governance. A striking number of new citizen protest movements have emerged over the past year, reflecting the inexhaustible and universal desire for fundamental rights. However, these movements have in many cases confronted deeply entrenched interests that are able to endure considerable pressure and are willing to use deadly force to maintain power…(More)”.

Beyond Randomized Controlled Trials

Curated on Posted on by Stefaan Verhulst

Iqbal Dhaliwal, John Floretta & Sam Friedlander at SSIR: “…In its post-Nobel phase, one of J-PAL’s priorities is to unleash the treasure troves of big digital data in the hands of governments, nonprofits, and private firms. Primary data collection is by far the most time-, money-, and labor-intensive component of the vast majority of experiments that evaluate social policies. Randomized evaluations have been constrained by simple numbers: Some questions are just too big or expensive to answer. Leveraging administrative data has the potential to dramatically expand the types of questions we can ask and the experiments we can run, as well as implement quicker, less expensive, larger, and more reliable RCTs, an invaluable opportunity to scale up evidence-informed policymaking massively without dramatically increasing evaluation budgets.

Although administrative data hasn’t always been of the highest quality, recent advances have significantly increased the reliability and accuracy of GPS coordinates, biometrics, and digital methods of collection. But despite good intentions, many implementers—governments, businesses, and big NGOs—aren’t currently using the data they already collect on program participants and outcomes to improve anti-poverty programs and policies. This may be because they aren’t aware of its potential, don’t have the in-house technical capacity necessary to create use and privacy guidelines or analyze the data, or don’t have established partnerships with researchers who can collaborate to design innovative programs and run rigorous experiments to determine which are the most impactful. 

At J-PAL, we are leveraging this opportunity through a new global research initiative we are calling the “Innovations in Data and Experiments for Action” Initiative (IDEA). IDEA supports implementers to make their administrative data accessible, analyze it to improve decision-making, and partner with researchers in using this data to design innovative programs, evaluate impact through RCTs, and scale up successful ideas. IDEA will also build the capacity of governments and NGOs to conduct these types of activities with their own data in the future….(More)”.

The Future of Democracy in Europe: Technology and the Evolution of Representation

Curated on Posted on by Stefaan Verhulst

Report by Chatham House: “There is a widespread sense that liberal democracy is in crisis, but little consensus exists on the specific nature and causes of the crisis. In particular, there are three prisms through which the crisis is usually seen: the rise of ‘populism’, ‘democratic deconsolidation’, and a ‘hollowing out’ of democracy. Each reflects normative assumptions about democracy.

The exact role of digital technology in the crisis is disputed. Despite the widely held perception that social media is undermining democracy, the evidence for this is limited. Over the longer term, the further development of digital technology could undermine the fundamental preconditions for democracy – though the pace and breadth of technological change make predictions about its future impact difficult.

Democracy functions in different ways in different European countries, with political systems on the continent ranging from ‘majoritarian democracies’ such as the UK to ‘consensual democracies’ such as Belgium and Switzerland. However, no type seems to be immune from the crisis. The political systems of EU member states also interact in diverse ways with the EU’s own structure, which is problematic for representative democracy as conventionally understood, but difficult to reform.

Political parties, central to the model of representative democracy that emerged in the late 18th century, have long seemed to be in decline. Recently there have been some signs of a reversal of this trend, with the emergence of parties that have used digital technology in innovative ways to reconnect with citizens. Traditional parties can learn from these new ‘digital parties’.

Recent years have also seen a proliferation of experiments in direct and deliberative democracy. There is a need for more experimentation in these alternative forms of democracy, and for further evaluation of how they can be integrated into the existing institutions and processes of representative democracy at the local, regional, national and EU levels.

We should not think of democracy in a static way – that is, as a system that can be perfected once and for all and then simply maintained and defended against threats. Democracy has continually evolved and now needs to evolve further. The solution to the crisis will not be to attempt to limit democracy in response to pressure from ‘populism’ but to deepen it further as part of a ‘democratization of democracy’….(More)”.

Open peer-review platform for COVID-19 preprints

Curated on Posted on by Stefaan Verhulst

Michael A. Johansson & Daniela Saderi in Nature: “The public call for rapid sharing of research data relevant to the COVID-19 outbreak (see go.nature.com/2t1lyp6) is driving an unprecedented surge in (unrefereed) preprints. To help pinpoint the most important research, we have launched Outbreak Science Rapid PREreview, with support from the London-based charity Wellcome. This is an open-source platform for rapid review of preprints related to emerging outbreaks (see https://outbreaksci.prereview.org).

These reviews comprise responses to short, yes-or-no questions, with optional commenting. The questions are designed to capture structured, high-level input on the importance and quality of the research, which can be aggregated across several reviews. Scientists who have ORCID IDs can submit their reviews as they read the preprints (currently limited to the medRxiv, bioRxiv and arXiv repositories). The reviews are open and can be submitted anonymously.

Outbreaks of pathogens such as the SARS-CoV-2 coronavirus that is responsible for COVID-19 move fast and can affect anyone. Research to support outbreak response needs to be fast and open, too, as do mechanisms to review outbreak-related research. Help other scientists, as well as the media, journals and public-health officials, to find the most important COVID-19 preprints now….(More)”.

Car Data Facts

Curated on Posted on by Stefaan Verhulst

About: “Welcome to CarDataFacts.eu! This website provides a fact-based overview on everything related to the sharing of vehicle-generated data with third parties. Through a series of educational infographics, this website answers the most common questions about access to car data in a clear and simple way.

CarDataFacts.eu also addresses consumer concerns about sharing data in a safe and a secure way, as well as explaining some of the complex and technical terminology surrounding the debate.

CarDataFacts.eu is brought to you by ACEA, the European Automobile Manufacturers’ Association, which represents the 15 Europe-based car, van, truck and bus makers….(More)”.

Many Tech Experts Say Digital Disruption Will Hurt Democracy

Curated on Posted on by Stefaan Verhulst

Lee Rainie and Janna Anderson at Pew Research Center: “The years of almost unfettered enthusiasm about the benefits of the internet have been followed by a period of techlash as users worry about the actors who exploit the speed, reach and complexity of the internet for harmful purposes. Over the past four years – a time of the Brexit decision in the United Kingdom, the American presidential election and a variety of other elections – the digital disruption of democracy has been a leading concern.

The hunt for remedies is at an early stage. Resistance to American-based big tech firms is increasingly evident, and some tech pioneers have joined the chorus. Governments are actively investigating technology firms, and some tech firms themselves are requesting government regulation. Additionally, nonprofit organizations and foundations are directing resources toward finding the best strategies for coping with the harmful effects of disruption. For example, the Knight Foundation announced in 2019 that it is awarding $50 million in grants to encourage the development of a new field of research centered on technology’s impact on democracy.

In light of this furor, Pew Research Center and Elon University’s Imagining the Internet Center canvassed technology experts in the summer of 2019 to gain their insights about the potential future effects of people’s use of technology on democracy….

The main themes found in an analysis of the experts’ comments are outlined in the next two tables….(More)”.

Crowdsourcing data to mitigate epidemics

Curated on Posted on by Stefaan Verhulst

Gabriel M Leung and Kathy Leung at The Lancet: “Coronavirus disease 2019 (COVID-19) has spread with unprecedented speed and scale since the first zoonotic event that introduced the causative virus—severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2)—into humans, probably during November, 2019, according to phylogenetic analyses suggesting the most recent common ancestor of the sequenced genomes emerged between Oct 23, and Dec 16, 2019. The reported cumulative number of confirmed patients worldwide already exceeds 70 000 in almost 30 countries and territories as of Feb 19, 2020, although that the actual number of infections is likely to far outnumber this case count.

During any novel emerging epidemic, let alone one with such magnitude and speed of global spread, a first task is to put together a line list of suspected, probable, and confirmed individuals on the basis of working criteria of the respective case definitions. This line list would allow for quick preliminary assessment of epidemic growth and potential for spread, evidence-based determination of the period of quarantine and isolation, and monitoring of efficiency of detection of potential cases. Frequent refreshing of the line list would further enable real-time updates as more clinical, epidemiological, and virological (including genetic) knowledge become available as the outbreak progresses….

We surveyed different and varied sources of possible line lists for COVID-19 (appendix pp 1–4). A bottleneck remains in carefully collating as much relevant data as possible, sifting through and verifying these data, extracting intelligence to forecast and inform outbreak strategies, and thereafter repeating this process in iterative cycles to monitor and evaluate progress. A possible methodological breakthrough would be to develop and validate algorithms for automated bots to search through cyberspaces of all sorts, by text mining and natural language processing (in languages not limited to English) to expedite these processes.In this era of smartphone and their accompanying applications, the authorities are required to combat not only the epidemic per se, but perhaps an even more sinister outbreak of fake news and false rumours, a so-called infodemic…(More)”.