Responsible Data Toolkit

Curated on Posted on by Stefaan Verhulst

Andrew Young at The GovLab: “The GovLab and UNICEF, as part of the Responsible Data for Children initiative (RD4C), are pleased to share a set of user-friendly tools to support organizations and practitioners seeking to operationalize the RD4C Principles. These principles—Purpose-Driven, People-Centric, Participatory, Protective of Children’s Rights, Proportional, Professionally Accountable, and Prevention of Harms Across the Data Lifecycle—are especially important in the current moment, as actors around the world are taking a data-driven approach to the fight against COVID-19.

The initial components of the RD4C Toolkit are:

The RD4C Data Ecosystem Mapping Tool intends to help users to identify the systems generating data about children and the key components of those systems. After using this tool, users will be positioned to understand the breadth of data they generate and hold about children; assess data systems’ redundancies or gaps; identify opportunities for responsible data use; and achieve other insights.

The RD4C Decision Provenance Mapping methodology provides a way for actors designing or assessing data investments for children to identify key decision points and determine which internal and external parties influence those decision points. This distillation can help users to pinpoint any gaps and develop strategies for improving decision-making processes and advancing more professionally accountable data practices.

The RD4C Opportunity and Risk Diagnostic provides organizations with a way to take stock of the RD4C principles and how they might be realized as an organization reviews a data project or system. The high-level questions and prompts below are intended to help users identify areas in need of attention and to strategize next steps for ensuring more responsible handling of data for and about children across their organization.

Finally, the Data for Children Collaborative with UNICEF developed an Ethical Assessment that “forms part of [their] safe data ecosystem, alongside data management and data protection policies and practices.” The tool reflects the RD4C Principles and aims to “provide an opportunity for project teams to reflect on the material consequences of their actions, and how their work will have real impacts on children’s lives.

RD4C launched in October 2019 with the release of the RD4C Synthesis Report, Selected Readings, and the RD4C Principles. Last month we published the The RD4C Case Studies, which analyze data systems deployed in diverse country environments, with a focus on their alignment with the RD4C Principles. The case studies are: Romania’s The Aurora Project, Childline Kenya, and Afghanistan’s Nutrition Online Database.

To learn more about Responsible Data for Children, visit rd4c.org or contact rd4c [at] thegovlab.org. To join the RD4C conversation and be alerted to future releases, subscribe at this link.”

Continuity in Legislatures Amid COVID-19

Curated on Posted on by Stefaan Verhulst

Blog by Sam DeJohn, Anirudh Dinesh, and Dane Gambrell: “As COVID-19 changes how we work, governments everywhere are experimenting with new ways to adapt and continue legislative operations under current physical restrictions. From city councils to state legislatures and national parliaments, more public servants are embracing and advocating for the use of new technologies to convene, deliberate, and vote.

On April 20th, GovLab published an initial overview of such efforts in the latest edition of the CrowdLaw Communique. As the United States Congress wrestles with the question of whether to allow remote voting, the GovLab has compiled an update on those international and state legislatures that are the furthest ahead with the use of new technology to continue operations.

NORTH AMERICA

In the US, On April 16, over 60 former members of Congress participated in a “Mock Remote Hearing” exercise to test the viability of online proceedings during the COVID-19 pandemic.

In Kentucky, when they last met on April 1, that State’s House of Representatives adopted new rules allowing lawmakers to vote remotely by sending in photos of a ballot to designated managers on the House Floor.” (WFPL). Lawmakers have also altered voting procedures to limit the number of lawmakers on the House floor. Members will vote in groups of 25 and may vote by paper ballot (NCSL).

New Jersey lawmakers made history on March 25 when members of the General Assembly called into a conference line to cast their votes remotely on several bills related to the coronavirus pandemic. NJ lawmakers moved 12 bills that day via remote voting.

On the west coast of the United States, the city council of Kirkland, Washington, recently held its first virtual city council meeting. Many cities and counties in California have also begun holding their meetings via Zoom.

As compiled by the National Council of State Legislatures, states that have changed rules — many just in the past few weeks — to allow full committee action and/or remote voting include: Iowa, Kentucky, Minnesota, New Jersey, North Carolina, Utah, and Vermont. Other states have specifically said they are seriously considering allowing remote action, including New Hampshire, New Mexico, New York, and Wyoming.

EUROPE

In the European Union, Parliament is temporarily allowing remote participation to avoid spreading COVID-19 (Library of Congress). With regard to voting, all members, even those participating in person, will receive a ballot sent by email to their official email address. The ballot, which must contain the name and vote of the MP in a readable form and the MP’s signature, must be returned from their official email address to the committee or plenary services in order to be counted. The ballot must be received in the dedicated official European Parliament mailbox by the time the vote is closed.

In Spain, MPs have been casting votes using the Congress’s intranet system, which has been in place since 2012. Rather than voting in real time, voting is typically open for a two-hour period before the session to vote for the alternative or amendment proposals and for a two-hour period following the session in which the proposals are debated to vote the final text….(More)”.

How ‘Social Distancing’ Can Get Lost in Translation

Curated on Posted on by Stefaan Verhulst

Ruth Michaelson at the Smithsonian Magazine: “…Even as tongue-in-cheek phrases like “avoiding the Rona” abound on American social media, to say nothing of the rapper Cardi B’s enunciation of “coronavirus,” other terms like “social distancing,” or “lockdown,” have quickly entered our daily vocabulary.

But what these terms mean in different countries (or regions or cities within regions, in Wuhan’s case) is a question of translation as well as interpretation. Communities around the world remain under government-enforced lockdown to prevent the spread of COVID-19, but few have understood “stay at home,” or liu-zai-jia-li in Mandarin, to mean precisely the same thing. The concept of social distancing, normally indicating a need to avoid contact with others, can mean anything from avoiding public transport to the World Health Organization’s recommendation to “maintain at least one metre distance,” from those who are coughing or sneezing. In one Florida county, officials explained the guideline by suggesting to residents they stay “one alligator” away from each other.

The way that terms like “social distancing,” are adopted across languages provides a way to understand how countries across the globe are coping with the COVID-19 threat. For instance, the Mandarin Chinese translation of “social distancing”, or ju-li-yuan-dian, is interpreted differently in Wuhan dialect, explains Jin. “Instead of ‘keep a distance,’ Wuhan dialect literally translates this as ‘send far away.’”

Through these small shifts in language, says Jin, “people in Wuhan expose their feelings about their own suffering.”

In Sweden, meanwhile, has currently registered more than 16,000 cases of COVID-19, the highest incidence rate in Scandinavia. The government has taken an unusually lax approach to enforcing its pandemic mitigation policies, placing the emphasis on citizens to self-police, perhaps to ill effect. While Swedes do use terms like social distancing, or rather the noun socialt avstånd, these are accompanied by other ideas that are more popular in Sweden. “Herd immunity or flockimmunitet is a very big word around here,” says Jan Pedersen, director of the Institute for Interpreting and Translation Studies at Stockholm University.

“Sweden is famous for being a very consensus driven society, and this applies here as well,” he says. “There’s a great deal of talk about trust.” In this case, he explained, citizens have trust – tillit – in the authorities to make good choices and so choose to take personligt ansvar, or personal responsibility.

Pedersen has also noticed some new language developing as a result. “The word recommendation, rekommendationer, in Sweden has taken on much stronger force,” he said. “Recommendation used to be a recommendation, what you could do or not. Now it’s slightly stronger … We would use words like obey with laws, but now here you obey a recommendation, lyda rekommendationer.”…(More)”.

Digital tools against COVID-19: Framing the ethical challenges and how to address them

Curated on Posted on by Stefaan Verhulst

Paper by Urs Gasser et al: “Data collection and processing via digital public health technologies are being promoted worldwide by governments and private companies as strategic remedies for mitigating the COVID-19 pandemic and loosening lockdown measures. However, the ethical and legal boundaries of deploying digital tools for disease surveillance and control purposes are unclear, and a rapidly evolving debate has emerged globally around the promises and risks of mobilizing digital tools for public health. To help scientists and policymakers navigate technological and ethical uncertainty, we present a typology of the primary digital public health applications currently in use. Namely: proximity and contact tracing, symptom monitoring, quarantine control, and flow modeling. For each, we discuss context-specific risks, cross-sectional issues, and ethical concerns. Finally, in recognition of the need for practical guidance, we propose a navigation aid for policymakers made up of ten steps for the ethical use of digital public health tools….(More)”.

Can We Track COVID-19 and Protect Privacy at the Same Time?

Curated on Posted on by Stefaan Verhulst

Sue Halpern at the New Yorker: “…Location data are the bread and butter of “ad tech.” They let marketers know you recently shopped for running shoes, are trying to lose weight, and have an abiding affection for kettle corn. Apps on cell phones emit a constant trail of longitude and latitude readings, making it possible to follow consumers through time and space. Location data are often triangulated with other, seemingly innocuous slivers of personal information—so many, in fact, that a number of data brokers claim to have around five thousand data points on almost every American. It’s a lucrative business—by at least one estimate, the data-brokerage industry is worth two hundred billion dollars. Though the data are often anonymized, a number of studies have shown that they can be easily unmasked to reveal identities—names, addresses, phone numbers, and any number of intimacies.

As Buckee knew, public-health surveillance, which serves the community at large, has always bumped up against privacy, which protects the individual. But, in the past, public-health surveillance was typically conducted by contract tracing, with health-care workers privately interviewing individuals to determine their health status and trace their movements. It was labor-intensive, painstaking, memory-dependent work, and, because of that, it was inherently limited in scope and often incomplete or inefficient. (At the start of the pandemic, there were only twenty-two hundred contact tracers in the country.)

Digital technologies, which work at scale, instantly provide detailed information culled from security cameras, license-plate readers, biometric scans, drones, G.P.S. devices, cell-phone towers, Internet searches, and commercial transactions. They can be useful for public-health surveillance in the same way that they facilitate all kinds of spying by governments, businesses, and malign actors. South Korea, which reported its first covid-19 case a month after the United States, has achieved dramatically lower rates of infection and mortality by tracking citizens with the virus via their phones, car G.P.S. systems, credit-card transactions, and public cameras, in addition to a robust disease-testing program. Israel enlisted Shin Bet, its secret police, to repurpose its terrorist-tracking protocols.  China programmed government-installed cameras to point at infected people’s doorways to monitor their movements….(More)”.

How to Make the Perfect Citizen? Lessons from China’s Model of Social Credit System

Curated on Posted on by Stefaan Verhulst

Paper by Liav Orgad and Wessel Reijers: “The COVID19 crisis has triggered a new wave of digitalization of the lives of citizens. To counter the devastating effects of the virus, states and corporations are experimenting with systems that trace citizens as an integral part of public life. In China, a comprehensive sociotechnical system of citizenship governance has already in force with the implementation of the Social Credit System—a technology-driven project that aims to assess, evaluate, and steer the behavior of Chinese citizens.

After presenting social credit systems in China’s public and private sectors (Part I), the article provides normative standards to distinguish the Chinese system from comparable Western systems (Part II). It then shows the manner in which civic virtue is instrumentalized in China, both in content (“what” it is) and in form (“how” to cultivate it) (Part III), and claims that social credit systems represent a new form of citizenship governance, “cybernetic citizenship,” which implements different conceptions of state power, civic virtue, and human rights (Part V). On the whole, the article demonstrates how the Chinese Social Credit System redefines the institution of citizenship and warns against similar patterns that are mushrooming in the West.

The article makes three contributions: empirically, it presents China’s Social Credit Systems and reveals their data sources, criteria used, rating methods, and attached sanctions and rewards. Comparatively, it shows that, paradoxically, China’s Social Credit System is not fundamentally different than credit systems in Western societies, yet indicates four points of divergence: scope, authority, regulation, and regime. Normatively, it claims that China’s Social Credit System creates a form of cybernetic citizenship governance, which redefines the essence of citizenship….(More)”

Doctors are using AI to triage covid-19 patients. The tools may be here to stay

Curated on Posted on by Stefaan Verhulst

Karen Hao at MIT Technology Review: “The pandemic, in other words, has turned into a gateway for AI adoption in health care—bringing both opportunity and risk. On the one hand, it is pushing doctors and hospitals to fast-track promising new technologies. On the other, this accelerated process could allow unvetted tools to bypass regulatory processes, putting patients in harm’s way.

“At a high level, artificial intelligence in health care is very exciting,” says Chris Longhurst, the chief information officer at UC San Diego Health. “But health care is one of those industries where there are a lot of factors that come into play. A change in the system can have potentially fatal unintended consequences.”

Before the pandemic, health-care AI was already a booming area of research. Deep learning, in particular, has demonstrated impressive results for analyzing medical images to identify diseases like breast and lung cancer or glaucoma at least as accurately as human specialists. Studies have also shown the potential of using computer vision to monitor elderly people in their homes and patients in intensive care units.

But there have been significant obstacles to translating that research into real-world applications. Privacy concerns make it challenging to collect enough data for training algorithms; issues related to bias and generalizability make regulators cautious to grant approvals. Even for applications that do get certified, hospitals rightly have their own intensive vetting procedures and established protocols. “Physicians, like everybody else—we’re all creatures of habit,” says Albert Hsiao, a radiologist at UCSD Health who is now trialing his own covid detection algorithm based on chest x-rays. “We don’t change unless we’re forced to change.”

As a result, AI has been slow to gain a foothold. “It feels like there’s something there; there are a lot of papers that show a lot of promise,” said Andrew Ng, a leading AI practitioner, in a recent webinar on its applications in medicine. But “it’s not yet as widely deployed as we wish.”…

In addition to the speed of evaluation, Durand identifies something else that may have encouraged hospitals to adopt AI during the pandemic: they are thinking about how to prepare for the inevitable staff shortages that will arise after the crisis. Traumatic events like a pandemic are often followed by an exodus of doctors and nurses. “Some doctors may want to change their way of life,” he says. “What’s coming, we don’t know.”…(More)”

Reweaving the social fabric after the crisis

Curated on Posted on by Stefaan Verhulst

Andy Haldane at the Financial Times: “Yet one source of capital, as in past pandemics, is bucking these trends: social capital. This typically refers to the network of relationships across communities that support and strengthen societies. From surveys, we know that people greatly value these networks, even though social capital itself is rarely assigned a monetary value.

The social distancing policies enacted across the world to curb the spread of Covid-19 might have been expected to weaken social networks and damage social capital. In fact, the opposite has happened. People have maintained physical distance while pursuing social togetherness. Existing networks have been strengthened and new ones ­created, often digitally. Even as other capital has crumbled, the stock of social capital has risen, acting as a counter­cyclical stabiliser across communities. We see this daily on our doorsteps through small acts of neighbourly kindness.

We see it in the activities of community groups, charities and philanthropic movements, whose work has risen in importance and prominence. And we see it too in the vastly increased numbers of people volunteering to help. Before the crisis struck, the global volunteer corps numbered a staggering 1bn people. Since then, more people than ever have signed up for civic service, including 750,000 volunteers who are supporting the UK National Health Service. They are the often-invisible army helping fight this invisible enemy.

This same pattern appeared during past periods of societal stress, from pandemics to wars. Then, as now, faith and community groups provided the glue bonding societies together. During the 19th century, the societal stresses arising from the Industrial Revolution — homelessness, family separation, loneliness — were the catalyst for the emergence of the charitable sector.

The economic and social progress that followed the Industrial Revolution came courtesy of a three-way partnership among the private, public and social sectors. The private sector provided the innovative spark; the state provided insurance to the incomes, jobs and health of citizens; and the social sector provided the support network to cope with disruption to lives and livelihoods. Back then, social capital (every bit as much as human, financial and physical capital) provided the foundations on which capitalism was built….(More)”.

Crowdsourcing a crisis response for COVID-19 in oncology

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Aakash Desai et al in Nature Medicine: “Crowdsourcing efforts are currently underway to collect and analyze data from patients with cancer who are affected by the COVID-19 pandemic. These community-led initiatives will fill key knowledge gaps to tackle crucial clinical questions on the complexities of infection with the causative coronavirus SARS-Cov-2 in the large, heterogeneous group of vulnerable patients with cancer…(More)”

Congress in Crisis: How Legislatures are Continuing to Meet during the Pandemic

Curated on Posted on by Stefaan Verhulst

The GovLab: “In response to the COVID-19 pandemic, legislatures at the national, state and local level are adapting to keep the lawmaking process going while minimizing the need for face-to-face meetings. While some have simply lowered quorum thresholds or reduced the number of sessions while continuing to meet in person, others are trialing more ambitious remote participation systems where lawmakers convene, deliberate, and vote virtually. Still others have used shift as an opportunity to create mechanisms for greater civic engagement.

For a short overview of how legislatures in Brazil, Chile, France, and other countries are using technology to convene, deliberate and vote remotely, see the GovLab’s short video, Continuity of Congress.”