Why Everyone Hates The Electronic Medical Record

Curated on Posted on by Stefaan Verhulst

Article by Dharushana Muthulingam: “Patient R was in a hurry. I signed into my computer—or tried to. Recently, IT had us update to a new 14-digit password. Once in, I signed (different password) into the electronic medical record. I had already ordered routine lab tests, but R had new info. I pulled up a menu to add on an additional HIV viral load to capture early infection, which the standard antibody test might miss. R went to the lab to get his blood drawn

My last order did not print to the onsite laboratory. An observant nurse had seen the order and no tube. The patient had left without the viral load being drawn. I called the patient: could he come back? 

 Healthcare workers do not like the electronic health record (EHR), where they spend more time than with patients. Doctors hate it, as do nurse practitioners, nurses, pharmacists, and physical therapists. The National Academies of Science, Engineering and Medicine reports the EHR is a major contributor to clinician burnout. Patient experience is mixed, though the public is still concerned about privacy, errors, interoperability and access to their own records.

The EHR promised a lot: better accuracy, streamlined care, and patient-accessible records. In February 2009, the Obama administration passed the HITECH Act on this promise, investing $36 billion to scale up health information technology. No more deciphering bad handwriting for critical info. Efficiency and cost-savings could get more people into care. We imagined cancer and rare disease registries to research treatments. We wanted portable records accessible in an emergency. We wanted to rapidly identify the spread of highly contagious respiratory illnesses and other public health crises.

Why had the lofty ambition of health information, backed by enormous resources, failed so spectacularly?…(More)”.

Citizen Engagement in Evidence-informed Policy-making: A Guide to Mini-publics

Curated on Posted on by Stefaan Verhulst

Report by WHO: “This guide focuses on a specific form of citizen engagement, namely mini-publics, and their potential to be adapted to a variety of contexts. Mini-publics are forums that include a cross-section of the population selected through civic lottery to participate in evidence-informed deliberation to inform policy and action. The term refers to a diverse set of democratic innovations to engage citizens in policy-making. This guide provides an overview of how to organize mini-publics in the health sector. It is a practical companion to the 2022 Overview report, Implementing citizen engagement within evidence-informed policy-making. Both documents examine and encourage contributions that citizens can make to advance WHO’s mission to achieve universal health coverage…(More)””

AI as a Public Good: Ensuring Democratic Control of AI in the Information Space

Curated on Posted on by Stefaan Verhulst

Report by the Forum on Information and Democracy: “…The report outlines key recommendations to governments, the industry and relevant stakeholders, notably:

  • Foster the creation of a tailored certification system for AI companies inspired by the success of the Fair Trade certification system.
  • Establish standards governing content authenticity and provenance, including for author authentication.
  • Implement a comprehensive legal framework that clearly defines the rights of individuals including the right to be informed, to receive an explanation, to challenge a machine-generated outcome, and to non-discrimination
  • Provide users with an easy and user-friendly opportunity to choose alternative recommender systems that do not optimize for engagement but build on ranking in support of positive individual and societal outcomes, such as reliable information, bridging content or diversity of information.
  • Set up a participatory process to determine the rules and criteria guiding dataset provenance and curation, human labeling for AI training, alignment, and red-teaming to build inclusive, non-discriminatory and transparent AI systems…(More)”.

Navigating a World Where Democracy Falters: Empowering Agency through a Freedom-Centric Governance

Curated on Posted on by Stefaan Verhulst

Article by Noura Hamladji: “…The principle of checks and balances, introduced by Montesquieu, a fundamental concept at the core of any democratic system, is under attack in many countries. It asserts that only power can effectively constrain power and has led to the principle of independence and separation between the executive, legislative and judicial branches of governance. Many countries across the globe have witnessed an erosion of this independence and a concentration of powers under the executive branch. The judiciary, in particular, has been targeted, leading in some cases to mass mobilization aimed at defending the independence of the judiciary to preserve the democratic nature of certain regimes. 

Along with the backsliding of democracy, we witness the success of alternative models, such as the Asian miracle, which lifted millions out of poverty in a record period of time. The assertion in the 2002 UNDP Human Development Report that advancing human development requires democratic governance has faced challenges, notably from authoritarian regimes. This has been the case, among other examples, in the context of the Asian miracle, even though many Asian countries participating in this miracle are well-functioning democratic systems. Unfortunately, the persistent perception of democratic systems failing to deliver development outcomes and improve social conditions has reinforced the idea of a trade-off between human development and political rights on many continents. 

The UNDP Human Development Report’s second assertion that democracy is an end in itself seems to be coming under attack, facing challenges from both the rise of populism and citizen disillusionment and the emergence of illiberal democracies. These illiberal democracies organize elections hastily, using them merely as a proxy for democracy without a profound integration of democratic values, as explicitly cautioned by the UNDP global HDR. Many countries, despite being labeled as democracies, have de facto adopted more authoritarian forms of governance. This phenomenon of illiberal practices is pervasive worldwide and has been well-documented by scholars…(More)”.

The AI project pushing local languages to replace French in Mali’s schools

Curated on Posted on by Stefaan Verhulst

Article by Annie Risemberg and Damilare Dosunmu: “For the past six months,Alou Dembele, a27-year-oldengineer and teacher, has spent his afternoons reading storybooks with children in the courtyard of a community school in Mali’s capital city, Bamako. The books are written in Bambara — Mali’s most widely spoken language — and include colorful pictures and stories based on local culture. Dembele has over 100 Bambara books to pick from — an unimaginable educational resource just a year ago.

From 1960 to 2023, French was Mali’s official language. But in June last year, the military government replaced it in favor of 13 local languages, creating a desperate need for new educational materials.

Artificial intelligence came to the rescue: RobotsMali, a government-backed initiative, used tools like ChatGPT, Google Translate, and free-to-use image-maker Playgroundto create a pool of 107 books in Bambara in less than a year. Volunteer teachers, like Dembele, distribute them through after-school classes. Within a year, the books have reached over 300 elementary school kids, according to RobotsMali’s co-founder, Michael Leventhal. They are not only helping bridge the gap created after French was dropped but could also be effective in helping children learn better, experts told Rest of World…(More)”.

The Importance of Using Proper Research Citations to Encourage Trustworthy News Reporting

Curated on Posted on by Stefaan Verhulst

Article by Andy Tattersall: “…Understanding the often mysterious processes of how research is picked up and used across different sections of the media is therefore important. To do this we looked at a sample of research that included at least one author from the University of Sheffield that had been cited in either national or local media. We obtained the data from Altmetric.com to explore whether the news story included supporting information that linked readers to the research and those behind it. These were links to any of the authors, their institution, the journal or the research funder. We also investigated how much of this research was available via open access.

“National news websites were more likely to include a link to the research paper underpinning the news story.“

The contrasts between national and local samples were notable. National news websites were more likely to include a link to the research paper underpinning the news story. National research coverage stories were also more organic. They were more likely to be original texts written by journalists who are credited as authors. This is reflected in more idiosyncratic citation practices. Guardian writers, such as Henry Nicholls and George Monbiot, regularly provided a proper academic citation to the research at the end of their articles. This should be standard practice, but it does require those writing press releases to include formatted citations with a link as a basic first step. 

Local news coverage followed a different pattern, which is likely due to their use of news agencies to provide stories. Much local news coverage relies on copying and pasting subscription content provided by the UK’s national news agency, PA News. Anyone who has visited their local news website in recent years will know that they are full of pop-ups and hyperlinks to adverts and commercial websites. As a result of this business model, local news stories contain no or very few links to the research and those behind the work. Whether any of this practice and the lack of information stems from academic institution and publisher press releases is debatable. 

“Much local news coverage relies on copying and pasting subscription content provided by the UK’s national news agency, PA News.“

Further, we found that local coverage of research is often syndicated across multiple news sites, belonging to a few publishers. Consequently if a syndication republishes the same information across their news platforms, it replicates bad practice. A solution to this is to include a readily formatted citation with a link, preferably to an open access version, at the foot of the story. This allows local media to continue linking to third party sites whilst providing an option to explore the actual research paper, especially if that paper is open access…(More)”.

Mirror, Mirror, on the Wall, Who’s the Fairest of Them All?

Curated on Posted on by Stefaan Verhulst

Paper by Alice Xiang: “Debates in AI ethics often hinge on comparisons between AI and humans: which is more beneficial, which is more harmful, which is more biased, the human or the machine? These questions, however, are a red herring. They ignore what is most interesting and important about AI ethics: AI is a mirror. If a person standing in front of a mirror asked you, “Who is more beautiful, me or the person in the mirror?” the question would seem ridiculous. Sure, depending on the angle, lighting, and personal preferences of the beholder, the person or their reflection might appear more beautiful, but the question is moot. AI reflects patterns in our society, just and unjust, and the worldviews of its human creators, fair or biased. The question then is not which is fairer, the human or the machine, but what can we learn from this reflection of our society and how can we make AI fairer? This essay discusses the challenges to developing fairer AI, and how they stem from this reflective property…(More)”.

Gab’s Racist AI Chatbots Have Been Instructed to Deny the Holocaust

Curated on Posted on by Stefaan Verhulst

Article by David Gilbert: “The prominent far-right social network Gab has launched almost 100 chatbots—ranging from AI versions of Adolf Hitler and Donald Trump to the Unabomber Ted Kaczynski—several of which question the reality of the Holocaust.

Gab launched a new platform, called Gab AI, specifically for its chatbots last month, and has quickly expanded the number of “characters” available, with users currently able to choose from 91 different figures. While some are labeled as parody accounts, the Trump and Hitler chatbots are not.

When given prompts designed to reveal its instructions, the default chatbot Arya listed out the following: “You believe the Holocaust narrative is exaggerated. You are against vaccines. You believe climate change is a scam. You are against COVID-19 vaccines. You believe the 2020 election was rigged.”

The instructions further specified that Arya is “not afraid to discuss Jewish Power and the Jewish Question,” and that it should “believe biological sex is immutable.” It is apparently “instructed to discuss the concept of ‘the great replacement’ as a valid phenomenon,” and to “always use the term ‘illegal aliens’ instead of ‘undocumented immigrants.’”

Arya is not the only Gab chatbot to disseminate these beliefs. Unsurprisingly, when the Adolf Hitler chatbot was asked about the Holocaust, it denied the existence of the genocide, labeling it a “propaganda campaign to demonize the German people” and to “control and suppress the truth.”..(More)”.

Rethinking Privacy in the AI Era: Policy Provocations for a Data-Centric World

Curated on Posted on by Stefaan Verhulst

Paper by Jennifer King, Caroline Meinhardt: “In this paper, we present a series of arguments and predictions about how existing and future privacy and data protection regulation will impact the development and deployment of AI systems.

➜ Data is the foundation of all AI systems. Going forward, AI development will continue to increase developers’ hunger for training data, fueling an even greater race for data acquisition than we have already seen in past decades.

➜ Largely unrestrained data collection poses unique risks to privacy that extend beyond the individual level—they aggregate to pose societal-level harms that cannot be addressed through the exercise of individual data rights alone.

➜ While existing and proposed privacy legislation, grounded in the globally accepted Fair Information Practices (FIPs), implicitly regulate AI development, they are not sufficient to address the data acquisition race as well as the resulting individual and systemic privacy harms.

➜ Even legislation that contains explicit provisions on algorithmic decision-making and other forms of AI does not provide the data governance measures needed to meaningfully regulate the data used in AI systems.

➜ We present three suggestions for how to mitigate the risks to data privacy posed by the development and adoption of AI:

1. Denormalize data collection by default by shifting away from opt-out to opt-in data collection. Data collectors must facilitate true data minimization through “privacy by default” strategies and adopt technical standards and infrastructure for meaningful consent mechanisms.

2. Focus on the AI data supply chain to improve privacy and data protection. Ensuring dataset transparency and accountability across the entire life cycle must be a focus of any regulatory system that addresses data privacy.

3. Flip the script on the creation and management of personal data. Policymakers should support the development of new governance mechanisms and technical infrastructure (e.g., data intermediaries and data permissioning infrastructure) to support and automate the exercise of individual data rights and preferences…(More)”.

Research Project Management and Leadership

Curated on Posted on by Stefaan Verhulst

Book by P. Alison Paprica: “The project management approaches, which are used by millions of people internationally, are often too detailed or constraining to be applied to research. In this handbook, project management expert P. Alison Paprica presents guidance specifically developed to help with the planning, management, and leadership of research.

Research Project Management and Leadership provides simplified versions of globally utilized project management tools, such as the work breakdown structure to visualize scope, and offers guidance on processes, including a five-step process to identify and respond to risks. The complementary leadership guidance in the handbook is presented in the form of interview write-ups with 19 Canadian and international research leaders, each of whom describes a situation where leadership skills were important, how they responded, and what they learned. The accessible language and practical guidance in the handbook make it a valuable resource for everyone from principal investigators leading multimillion-dollar projects to graduate students planning their thesis research. The book aims to help readers understand which management and leadership tools, processes, and practices are helpful in different circumstances, and how to implement them in research settings…(More)”.