Afyanet

Curated on Posted on by Stefaan Verhulst

About: “Afyanet is a voluntary, non-profit network of National Health Institutes and Research Centers seeking to leverage crowdsourced health data for disease surveillance and forecasting. Participation in AfyaNet for countries is free.

We aim to use technology and digital solutions to radically enhance how traditional disease surveillance systems function and the ways we can model epidemics.

Our vision is to create a common framework to collect standardized real-time data from the general population, allowing countries to leapfrog existing hurdles in disease surveillance and information sharing.

Our solution is an Early Warning System for Health based on participatory data gathering. A common, real-time framework for disease collection will help countries identify and forecast outbreaks faster and more effectively.

Crowdsourced data is gathered directly from citizens, then aggregated, anonymized, and processed in a cloud-based data lake. Our high-performance computing architecture analyzes the data and creates valuable disease spread models, which in turn provide alerts and notifications to participating countries and helps public health authorities make evidence-based decisions….(More)”

Empowered Data Societies: A Human-Centric Approach to Data Relationships

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World Economic Forum: “Despite ever-increasing supply and demand, data often remains siloed and unavailable to those who seek to use it to benefit people, communities and society.

In this whitepaper, the World Economic Forum and the City of Helsinki propose a new, human-centric approach to making data better available. By prioritizing the values, needs and expectations of people, policy-makers can drive meaningful actions with positive outcomes for society while maintaining the utmost respect for the people who are part of it.

This paper provides frameworks, insights, and best practices for public sector employees and elected officials –from mayors and ministers to data scientists and service developers –to adapt and build systems that use data in responsible and innovative ways….(More)”.

Future of e-Government: An integrated conceptual framework

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Paper by Suresh Malodia, Amandeep Dhi, Mahima Mishra and Zeeshan Ahmed Bhatti: “The information and hyper-connectivity revolutions have caused significant disruptions in citizens’ interactions with governments all over the world. Failures in implementing e-government interventions suggest the lack of an integrated approach in understanding e-government as a discipline. In this study, we present an overarching and integrated conceptual framework of e-government grounded in robust qualitative research to describe the factors that must be integrated to implement e-government successfully. Drawing insights from 168 in-depth interviews conducted with multiple stakeholders in India, this study defines e-government as a multidimensional construct with customer orientation, channel orientation and technology orientation as its antecedents. Building on customer orientation and relationship marketing theories, this study proposes that the most significant factor impacting success in implementing e-government projects is citizen orientation, followed by channel orientation and technology orientation. The study also identifies the digital divide, economic growth and political stability as moderators of e-government. Furthermore, the study proposes the tangible and intangible outcomes of e-government with perceived privacy and shared understanding as moderating conditions. Finally, the study presents relevant theoretical and practical implications with future research directions….(More)”.

Participatory data stewardship

Curated on Posted on by Stefaan Verhulst

Report by the Ada Lovelace Institute: “Well-managed data can support organisations, researchers, governments and corporations to conduct lifesaving health research, reduce environmental harms and produce societal value for individuals and communities. But these benefits are often overshadowed by harms, as current practices in data collection, storage, sharing and use have led to high-profile misuses of personal data, data breaches and sharing scandals.

These range from the backlash to Care.Data, to the response to Cambridge Analytica and Facebook’s collection and use of data for political advertising. These cumulative scandals have resulted in ‘tenuous’ public trust in data sharing, which entrenches public concern about data and impedes its use in the public interest. To reverse this trend, what is needed is increased legitimacy, and increased trustworthiness, of data and AI use.

This report proposes a ‘framework for participatory data stewardship’, which rejects practices of data collection, storage, sharing and use in ways that are opaque or seek to manipulate people, in favour of practices that empower people to help inform, shape and – in some instances – govern their own data.

As a critical component of good data governance, it proposes data stewardship as the responsible use, collection and management of data in a participatory and rights-preserving way, informed by values and engaging with questions of fairness.

Drawing extensively from Sherry Arnstein’s ‘ladder of citizen participation’ and its more recent adaptation into a spectrum, this new framework is based on an analysis of over 100 case studies of different methods of participatory data stewardship. It demonstrates ways that people can gain increasing levels of control and agency over their data – from being informed about what is happening to data about themselves, through to being empowered to take responsibility for exercising and actively managing decisions about data governance….(More)”.

The Innovation Project: Can advanced data science methods be a game-change for data sharing?

Curated on Posted on by Stefaan Verhulst

Report by JIPS (Joint Internal Displacement Profiling Service): “Much has changed in the humanitarian data landscape in the last decade and not primarily with the arrival of big data and artificial intelligence. Mostly, the changes are due to increased capacity and resources to collect more data quicker, leading to the professionalisation of information management as a domain of work. Larger amounts of data are becoming available in a more predictable way. We believe that as the field has progressed in filling critical data gaps, the problem is not the availability of data, but the curation and sharing of that data between actors as well as the use of that data to its full potential.

In 2018, JIPS embarked on an innovation journey to explore the potential of state-of-the-art technologies to incentivise data sharing and collaboration. This report covers the first phase of the innovation project and launches a series of articles in which we will share more about the innovation journey itself, discuss safe data sharing and collaboration, and look at the prototype we developed – made possible by the UNHCR Innovation Fund.

We argue that by making data and insights safe and secure to share between stakeholders, it will allow for a more efficient use of available data, reduce the resources needed to collect new data, strengthen collaboration and foster a culture of trust in the evidence-informed protection of people in displacement and crises.

The paper first defines the problem and outlines the processes through which data is currently shared among the humanitarian community. It explores questions such as: what are the existing data sharing methods and technologies? Which ones constitute a feasible option for humanitarian and development organisations? How can different actors share and collaborate on datasets without impairing confidentiality and exposing them to disclosure threats?…(More)”.

Building a Responsible Open Data Ecosystem: Mobility Data & COVID-19

Curated on Posted on by Stefaan Verhulst

Blog by Anna Livaccari: “Over the last year and a half, COVID-19 has changed the way people move, work, shop, and live. The pandemic has necessitated new data-sharing initiatives to understand new patterns of movement, analyze the spread of COVID-19, and inform research and decision-making. Earlier this year, Cuebiq collaborated with the Open Data Institute (ODI) and NYU’s The GovLab to explore the efficacy of these new initiatives. 

The ODI is a non-profit organization that brings together commercial and non-commercial organizations and governments to address global issues as well as advise on how data can be used for positive social good. As part of a larger project titled “COVID-19: Building an open and trustworthy data ecosystem,” the ODI published a new report with Cuebiq and The GovLab, an action research center at NYU’s Tandon School of Engineering that has pioneered the concept of data collaboratives and runs the data stewards network among other initiatives to advance data-driven decision making in the public interest. This report, “The Use of Mobility Data for Responding to the COVID-19 Pandemic,” specifically addresses key enablers and obstacles to the successful sharing of mobility data between public and private organizations during the pandemic….

Since early 2020, researchers and policy makers have been eager to understand the impact of COVID-19. With the help of mobility data, organizations from different sectors were able to answer some of the most pressing questions regarding the pandemic: questions about policy decisions, mass-communication strategies, and overall socioeconomic impact. Mobility data can be applied to specific use cases and can help answer complex questions, a fact that The GovLab discusses in its short-form mobility data brief. Understanding exactly how organizations employ mobility data can also improve how institutions operate post-pandemic and make data collaboration as a whole more responsible, sustainable, and systemic.

Cuebiq and the GovLab identified 51 projects where mobility data was used for pandemic response, and then selected five case studies to analyze further. The report defines mobility data, the ethics surrounding it, and the lessons learned for the future….(More)”.

Co-Develop: Digital Public Infrastructure for an Equitable Recovery

Curated on Posted on by Stefaan Verhulst

A report by The Rockefeller Foundation: “Digital systems that accomplish basic, society-wide functions played a critical role in the response to the Covid-19 pandemic, enabling both public health and social protection measures. The pandemic has shown the value of these systems, but it has also revealed how they are non-existent or weak in far too many places.

As we build back better, we have an unprecedented opportunity to build digital public infrastructure that promotes inclusion, human rights, and progress toward global goals. This report outlines an agenda for international cooperation on digital public infrastructure to guide future investments and expansion of this critical tool.

6 Key Areas for International Cooperation on Digital Public Infrastructure

  1. A vision for digital public infrastructure as a whole, backed by practice, research, and evaluation.
  2. A global commons based on digital public goods.
  3. Safeguards for inclusion, trust, competition, security, and privacy.
  4. Tools that use data in digital public infrastructure for public value and private empowerment.
  5. Private and public capacity, particularly in implementing countries.
  6. Silo-busting, built-for-purpose coordinating, funding, and financing….(More)”.

Citizen science—discovering (new) solutions to wicked problems

Curated on Posted on by Stefaan Verhulst

Paper by Ian R. Hodgkinson, Sahar Mousavi & Paul Hughes: “The article explores the role citizen science can play in discovering new solutions to pressing wicked problems. Using illustrations of citizen science projects to show how and where citizens have been fundamental in creating solutions and driving change, the article calls for wider recognition and use of citizen science in public administration and management research. For wider utilization of citizens’ active co-participation in research design, delivery and dissemination, the article presents a set of citizen science pathways….(More)”.

Custodians of the Internet

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Book by Tarleton Gillespie on “Platforms, Content Moderation, and the Hidden Decisions That Shape Social Media…Most users want their Twitter feed, Facebook page, and YouTube comments to be free of harassment and porn. Whether faced with “fake news” or livestreamed violence, “content moderators”—who censor or promote user-posted content—have never been more important. This is especially true when the tools that social media platforms use to curb trolling, ban hate speech, and censor pornography can also silence the speech you need to hear.

In this revealing and nuanced exploration, award-winning sociologist and cultural observer Tarleton Gillespie provides an overview of current social media practices and explains the underlying rationales for how, when, and why these policies are enforced. In doing so, Gillespie highlights that content moderation receives too little public scrutiny even as it is shapes social norms and creates consequences for public discourse, cultural production, and the fabric of society. Based on interviews with content moderators, creators, and consumers, this accessible, timely book is a must-read for anyone who’s ever clicked “like” or “retweet.”…(More)”.

World Public Sector Report 2021

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UN-DESA: “Five years after the start of the implementation of the 2030 Agenda, governance issues remain at the forefront. The COVID-19 pandemic has highlighted even more the importance of national institutions for the achievement of the SDGs. The World Public Sector Report 2021 focuses on three dimensions of institutional change at the national level. First, it documents changes in institutional arrangements for SDG implementation since 2015. Second, it assesses the development, performance, strengths and weaknesses of follow-up and review systems for the SDGs. Third, it examines efforts made by governments and other stakeholders to enhance the capacity of public servants to implement the SDGs. Based on in-depth examination of institutional arrangements for SDG implementation in a sample of 24 countries in all regions, the report aims to draw attention to the institutional dimension of SDG implementation and provide lessons for national policymakers in this regard. The report also takes stock of the impacts of the COVID-19 pandemic on national institutions and their implications for delivering on the 2030 Agenda….(More)”.