What Happens to Your Sensitive Data When a Data Broker Goes Bankrupt?

Curated on Posted on by Stefaan Verhulst

Article by Jon Keegan: “In 2021, a company specializing in collecting and selling location data called Near bragged that it was “The World’s Largest Dataset of People’s Behavior in the Real-World,” with data representing “1.6B people across 44 countries.” Last year the company went public with a valuation of $1 billion (via a SPAC). Seven months later it filed for bankruptcy and has agreed to sell the company.

But for the “1.6B people” that Near said its data represents, the important question is: What happens to Near’s mountain of location data? Any company could gain access to it through purchasing the company’s assets.

The prospect of this data, including Near’s collection of location data from sensitive locations such as abortion clinics, being sold off in bankruptcy has raised alarms in Congress. Last week, Sen. Ron Wyden wrote the Federal Trade Commission (FTC) urging the agency to “protect consumers and investors from the outrageous conduct” of Near, citing his office’s investigation into the India-based company. 

Wyden’s letter also urged the FTC “to intervene in Near’s bankruptcy proceedings to ensure that all location and device data held by Near about Americans is promptly destroyed and is not sold off, including to another data broker.” The FTC took such an action in 2010 to block the use of 11 years worth of subscriber personal data during the bankruptcy proceedings of the XY Magazine, which was oriented to young gay men. The agency requested that the data be destroyed to prevent its misuse.

Wyden’s investigation was spurred by a May 2023 Wall Street Journal report that Near had licensed location data to the anti-abortion group Veritas Society so it could target ads to visitors of Planned Parenthood clinics and attempt to dissuade women from seeking abortions. Wyden’s investigation revealed that the group’s geofencing campaign focused on 600 Planned Parenthood clinics in 48 states. The Journal also revealed that Near had been selling its location data to the Department of Defense and intelligence agencies...(More)”.

Why Everyone Hates The Electronic Medical Record

Curated on Posted on by Stefaan Verhulst

Article by Dharushana Muthulingam: “Patient R was in a hurry. I signed into my computer—or tried to. Recently, IT had us update to a new 14-digit password. Once in, I signed (different password) into the electronic medical record. I had already ordered routine lab tests, but R had new info. I pulled up a menu to add on an additional HIV viral load to capture early infection, which the standard antibody test might miss. R went to the lab to get his blood drawn

My last order did not print to the onsite laboratory. An observant nurse had seen the order and no tube. The patient had left without the viral load being drawn. I called the patient: could he come back? 

 Healthcare workers do not like the electronic health record (EHR), where they spend more time than with patients. Doctors hate it, as do nurse practitioners, nurses, pharmacists, and physical therapists. The National Academies of Science, Engineering and Medicine reports the EHR is a major contributor to clinician burnout. Patient experience is mixed, though the public is still concerned about privacy, errors, interoperability and access to their own records.

The EHR promised a lot: better accuracy, streamlined care, and patient-accessible records. In February 2009, the Obama administration passed the HITECH Act on this promise, investing $36 billion to scale up health information technology. No more deciphering bad handwriting for critical info. Efficiency and cost-savings could get more people into care. We imagined cancer and rare disease registries to research treatments. We wanted portable records accessible in an emergency. We wanted to rapidly identify the spread of highly contagious respiratory illnesses and other public health crises.

Why had the lofty ambition of health information, backed by enormous resources, failed so spectacularly?…(More)”.

Public sector capacity matters, but what is it?

Curated on Posted on by Stefaan Verhulst

Blog by Rainer Kattel, Marriana Mazzucato, Rosie Collington, Fernando Fernandez-Monge, Iacopo Gronchi, Ruth Puttick: “As governments turn increasingly to public sector innovations, challenges, missions and transformative policy initiatives, the need to understand and develop public sector capacities is ever more important. In IIPP’s project with Bloomberg Philanthropies to develop a Public Sector Capabilities Index, we propose to define public sector capacities through three inter-connected layers: state capacities, organisational capabilities, and dynamic capabilities of the public organisations.

The idea that governments should be able to design and deliver effective policies has existed ever since we had governments. A quick search in Google’s Ngram viewer shows that the use of state capacity in published books has experienced exponential growth since the late 1980s. It is, however, not a coincidence that focus on state and public sector capacities more broadly emerges in the shadow of new public management and neoliberal governance and policy reforms. Rather than understanding governance as a collaborative effort between all sectors, these reforms gave normative preference to business practices. Increasing focus on public sector capacity as a concept should thus be understood as an attempt to rebalance our understanding of how change happens in societies — through cross-sectoral co-creation — and as an effort to build the muscles in public organisations to work together to tackle socio-economic challenges.

We propose to define public sector capacities through three inter-connected layers: state capacities, organizational routines, and dynamic capabilities of the public organisations…(More)”.

The Radical How

Curated on Posted on by Stefaan Verhulst

Report by Public Digital: “…We believe in the old adage about making the most of a crisis. We think the constraints facing the next government provide an unmissable opportunity to change how government works for the better.

Any mission-focused government should be well equipped to define, from day one, what outcomes it wants to bring about.

But radically changing what the government does is only part of the challenge. We also need to change how government does things. The usual methods, we argue in this paper, are too prone to failure and delay.

There’s a different approach to public service organisation, one based on multidisciplinary teams, starting with citizen needs, and scaling iteratively by testing assumptions. We’ve been arguing in favour of it for years now, and the more it gets used, the more we see success and timely delivery.

We think taking a new approach makes it possible to shift government from an organisation of programmes and projects, to one of missions and services. It offers even constrained administrations an opportunity to improve their chances of delivering outcomes, reducing risk, saving money, and rebuilding public trust…(More)”.

The AI project pushing local languages to replace French in Mali’s schools

Curated on Posted on by Stefaan Verhulst

Article by Annie Risemberg and Damilare Dosunmu: “For the past six months,Alou Dembele, a27-year-oldengineer and teacher, has spent his afternoons reading storybooks with children in the courtyard of a community school in Mali’s capital city, Bamako. The books are written in Bambara — Mali’s most widely spoken language — and include colorful pictures and stories based on local culture. Dembele has over 100 Bambara books to pick from — an unimaginable educational resource just a year ago.

From 1960 to 2023, French was Mali’s official language. But in June last year, the military government replaced it in favor of 13 local languages, creating a desperate need for new educational materials.

Artificial intelligence came to the rescue: RobotsMali, a government-backed initiative, used tools like ChatGPT, Google Translate, and free-to-use image-maker Playgroundto create a pool of 107 books in Bambara in less than a year. Volunteer teachers, like Dembele, distribute them through after-school classes. Within a year, the books have reached over 300 elementary school kids, according to RobotsMali’s co-founder, Michael Leventhal. They are not only helping bridge the gap created after French was dropped but could also be effective in helping children learn better, experts told Rest of World…(More)”.

The Importance of Using Proper Research Citations to Encourage Trustworthy News Reporting

Curated on Posted on by Stefaan Verhulst

Article by Andy Tattersall: “…Understanding the often mysterious processes of how research is picked up and used across different sections of the media is therefore important. To do this we looked at a sample of research that included at least one author from the University of Sheffield that had been cited in either national or local media. We obtained the data from Altmetric.com to explore whether the news story included supporting information that linked readers to the research and those behind it. These were links to any of the authors, their institution, the journal or the research funder. We also investigated how much of this research was available via open access.

“National news websites were more likely to include a link to the research paper underpinning the news story.“

The contrasts between national and local samples were notable. National news websites were more likely to include a link to the research paper underpinning the news story. National research coverage stories were also more organic. They were more likely to be original texts written by journalists who are credited as authors. This is reflected in more idiosyncratic citation practices. Guardian writers, such as Henry Nicholls and George Monbiot, regularly provided a proper academic citation to the research at the end of their articles. This should be standard practice, but it does require those writing press releases to include formatted citations with a link as a basic first step. 

Local news coverage followed a different pattern, which is likely due to their use of news agencies to provide stories. Much local news coverage relies on copying and pasting subscription content provided by the UK’s national news agency, PA News. Anyone who has visited their local news website in recent years will know that they are full of pop-ups and hyperlinks to adverts and commercial websites. As a result of this business model, local news stories contain no or very few links to the research and those behind the work. Whether any of this practice and the lack of information stems from academic institution and publisher press releases is debatable. 

“Much local news coverage relies on copying and pasting subscription content provided by the UK’s national news agency, PA News.“

Further, we found that local coverage of research is often syndicated across multiple news sites, belonging to a few publishers. Consequently if a syndication republishes the same information across their news platforms, it replicates bad practice. A solution to this is to include a readily formatted citation with a link, preferably to an open access version, at the foot of the story. This allows local media to continue linking to third party sites whilst providing an option to explore the actual research paper, especially if that paper is open access…(More)”.

Mirror, Mirror, on the Wall, Who’s the Fairest of Them All?

Curated on Posted on by Stefaan Verhulst

Paper by Alice Xiang: “Debates in AI ethics often hinge on comparisons between AI and humans: which is more beneficial, which is more harmful, which is more biased, the human or the machine? These questions, however, are a red herring. They ignore what is most interesting and important about AI ethics: AI is a mirror. If a person standing in front of a mirror asked you, “Who is more beautiful, me or the person in the mirror?” the question would seem ridiculous. Sure, depending on the angle, lighting, and personal preferences of the beholder, the person or their reflection might appear more beautiful, but the question is moot. AI reflects patterns in our society, just and unjust, and the worldviews of its human creators, fair or biased. The question then is not which is fairer, the human or the machine, but what can we learn from this reflection of our society and how can we make AI fairer? This essay discusses the challenges to developing fairer AI, and how they stem from this reflective property…(More)”.

Research Project Management and Leadership

Curated on Posted on by Stefaan Verhulst

Book by P. Alison Paprica: “The project management approaches, which are used by millions of people internationally, are often too detailed or constraining to be applied to research. In this handbook, project management expert P. Alison Paprica presents guidance specifically developed to help with the planning, management, and leadership of research.

Research Project Management and Leadership provides simplified versions of globally utilized project management tools, such as the work breakdown structure to visualize scope, and offers guidance on processes, including a five-step process to identify and respond to risks. The complementary leadership guidance in the handbook is presented in the form of interview write-ups with 19 Canadian and international research leaders, each of whom describes a situation where leadership skills were important, how they responded, and what they learned. The accessible language and practical guidance in the handbook make it a valuable resource for everyone from principal investigators leading multimillion-dollar projects to graduate students planning their thesis research. The book aims to help readers understand which management and leadership tools, processes, and practices are helpful in different circumstances, and how to implement them in research settings…(More)”.

i.AI Consultation Analyser

Curated on Posted on by Stefaan Verhulst

New Tool by AI.Gov.UK: “Public consultations are a critical part of the process of making laws, but analysing consultation responses is complex and very time consuming. Working with the No10 data science team (10DS), the Incubator for Artificial Intelligence (i.AI) is developing a tool to make the process of analysing public responses to government consultations faster and fairer.

The Analyser uses AI and data science techniques to automatically extract patterns and themes from the responses, and turns them into dashboards for policy makers.

The goal is for computers to do what they are best at: finding patterns and analysing large amounts of data. That means humans are free to do the work of understanding those patterns.

Screenshot showing donut chart for those who agree or disagree, and a bar chart showing popularity of prevalent themes

Government runs 700-800 consultations a year on matters of importance to the public. Some are very small, but a large consultation might attract hundreds of thousands of written responses.

A consultation attracting 30,000 responses requires a team of around 25 analysts for 3 months to analyse the data and write the report. And it’s not unheard of to get double that number

If we can apply automation in a way that is fair, effective and accountable, we could save most of that £80m…(More)”

Participatory democracy in the EU should be strengthened with a Standing Citizens’ Assembly

Curated on Posted on by Stefaan Verhulst

Article by James Mackay and Kalypso Nicolaïdis: “EU citizens have multiple participatory instruments at their disposal, from the right to petition the European Parliament (EP) to the European Citizen’s Initiative (ECI), from the European Commission’s public online consultation and Citizens’ Dialogues to the role of the European Ombudsman as an advocate for the public vis-à-vis the EU institutions.

While these mechanisms are broadly welcome they have – unfortunately – remained too timid and largely ineffective in bolstering bottom-up participation. They tend to involve experts and organised interest groups rather than ordinary citizens. They don’t encourage debates on non-experts’ policy preferences and are executed too often at the discretion of the political elites to  justify pre-existing policy decisions.

In short, they feel more like consultative mechanisms than significant democratic innovations. That’s why the EU should be bold and demonstrate its democratic leadership by institutionalising its newly-created Citizens’ Panels into a Standing Citizens’ Assembly with rotating membership chosen by lot and renewed on a regular basis…(More)”.