Developing Global Norms for Sharing Data and Results during Public Health Emergencies

Curated on Posted on by Stefaan Verhulst

Paper by Kayvon Modjarrad et al in PLOS Med: “…When a new or re-emergent pathogen causes a major outbreak, rapid access to both raw and analysed data or other pertinent research findings becomes critical to developing a rapid and effective public health response. Without the timely exchange of information on clinical, epidemiologic, and molecular features of an infectious disease, informed decisions about appropriate responses cannot be made, particularly those that relate to fielding new interventions or adapting existing ones. Failure to share information in a timely manner can have disastrous public health consequences, leading to unnecessary suffering and death. The 2014–2015 Ebola epidemic in West Africa revealed both successful practices and important deficiencies within existing mechanisms for information sharing. For example, trials of two Ebola vaccine candidates (ChAd3-ZEBOV and rVSV-ZEBOV) benefited greatly from an open collaboration between investigators and institutions in Africa, Europe, and North America . These teams, coordinated by the WHO, were able to generate and exchange critical data for the development of urgently needed, novel vaccines along faster timelines than have ever before been achieved. Similarly, some members of the genome sequencing community made viral sequence data publicly available within days of accessing samples , thus adhering to their profession’s long-established principles of rapid, public release of sequence data in any setting. In contrast, the dissemination of surveillance data early in the epidemic was comparatively slow, and in some cases, the criteria for sharing were unclear.

In recognition of the need to streamline mechanisms of data dissemination—globally and in as close to real-time as possible—the WHO held a consultation in Geneva, Switzerland, on 1–2 September 2015 to advance the development of data sharing norms, specifically in the context of public health emergencies….

preservation of global health requires prioritization of and support for international collaboration. These and other principles were affirmed at the consultation (Table 1) and codified into a consensus statement that was published on the WHO website immediately following the meeting (http://www.who.int/medicines/ebola-treatment/data-sharing_phe/en/). A more comprehensive set of principles and action items was made available in November 2015, including the consensus statement made by the editorial staff of journals that attended the meeting (http://www.who.int/medicines/ebola-treatment/blueprint_phe_data-share-results/en/). The success of prior initiatives to accelerate timelines for reporting clinical trial results has helped build momentum for a broader data sharing agenda. As the quick and transparent dissemination of information is the bedrock of good science and public health practice, it is important that the current trends in data sharing carry over to all matters of acute public health need. Such a global norm would advance the spirit of open collaboration, simplify current mechanisms of information sharing, and potentially save many lives in subsequent outbreaks….(More)”

 

Democracy Reinvented: Participatory Budgeting and Civic Innovation in America

Curated on Posted on by Stefaan Verhulst

Book by Hollie Russon Gilman: “Democracy Reinvented is the first comprehensive academic treatment of participatory budgeting in the United States, situating it within a broader trend of civic technology and innovation. This global phenomenon, which has been called “revolutionary civics in action” by the New York Times, started in Brazil in 1989 but came to America only in 2009.  Participatory budgeting empowers citizens to identify community needs, work with elected officials to craft budget proposals, and vote on how to spend public funds.

Democracy Reinvented places participatory budgeting within the larger discussion of the health of U.S. democracy and focuses on the enabling political and institutional conditions.  Author and former White House policy adviser Hollie Russon Gilman presents theoretical insights, in-depth case studies, and interviews to offer a compelling alternative to the current citizen disaffection and mistrust of government. She offers policy recommendations on how to tap online tools and other technological and civic innovations to promote more inclusive governance.

While most literature tends to focus on institutional changes without solutions, this book suggests practical ways to empower citizens to become change agents. Democracy Reinvented also includes a discussion on the challenges and opportunities that come with using digital tools to re-engage citizens in governance….(More)”

Swipe right to fix the world: can Tinder-like tech match solutions to problems?

Curated on Posted on by Stefaan Verhulst

Beth Noveck in The Guardian: “Increasingly, these technologies of expertise are making it possible for the individual to make searchable lived experience. The New York police department, for example, maintains a database of employee skills. As the social service agency of last resort, the department needs to be able to pinpoint quickly who within the organization has the know how to wrangle a runaway beehive in Brooklyn or sing the national anthem in Queens in Chinese.

In public institutions, especially, it is all too common for individual knowhow to be masked by vague titles like “manager” and “director”. Using software to give organizations insights about the aptitude of employees has the potential to improve effectiveness and efficiency for public good.

Already an accelerating practice in the private sector, where managers want granular evidence of hard skills not readily apparent from transcripts, this year the World Bank created its own expert network called SkillFinder to index the talents of its 27,000 employees, consultants and alumni. With the launch of SkillFinder, the bank is just beginning to explore how to use the tool to better organize its human capital to achieve the bank’s mission of eradicating poverty.

Giving people outside as well as inside institutions opportunities to share their knowledge could save time, financial resources and even lives. Take the example of PulsePoint, a smartphone app created by the fire department of San Ramon, California. Now used by 1400 communities across the United States, PulsePoint matches those with a specific skill, namely CPR training, with dramatic results.

By tapping into a feed of the 911 calls, PulsePoint sends a text message “CPR Needed!” to those registered members of the public – off-duty doctors, nurses, police and trained amateurs – near the victim. Effective bystander CPR immediately administered can potentially double or triple the victim’s chance of survival. By augmenting traditional government first response,  Pulsepoint’s matching has already helped over 7,000 victims.

Employers can accelerate this process by going beyond merely asking employees for HR information and, instead, begin to catalog systematically the unique skills of the individuals within their organization. Many employers are anyway turning to new technology to match employees (and would-be employees) with the right skills to available jobs. How easily they could develop and share databases with public information about who has what experience while at the same time protecting the privacy of personal information….(More)”

This Is How Visualizing Open Data Can Help Save Lives

Curated on Posted on by Stefaan Verhulst

Alexander Howard at the Huffington Post: “Cities are increasingly releasing data that they can use to make life better for their residents online — enabling journalists and researchers to better inform the public.

Los Angeles, for example, has analyzed data about injuries and deaths on its streets and published it online. Now people can check its conclusions and understand why LA’s public department prioritizes certain intersections.

The impact from these kinds of investments can lead directly to saving lives and preventing injuries. The work is part of a broader effort around the world to make cities safer.

Like New York City, San Francisco and Portland, Oregon, Los Angeles has adopted Sweden’s “Vision Zero” program as part of its strategy for eliminating traffic deaths. California led the nation in bicycle deaths in 2014.

At visionzero.lacity.org, you can see that the City of Los Angeles is using data visualization to identify the locations of “high injury networks,” or the 6 percent of intersections that account for 65 percent of the severe injuries in the area.

CITY OF LOS ANGELES

The work is the result of LA’s partnership with University of South California graduate students. As a result of these analyses, the Los Angeles Police Department has been cracking down on jaywalking near the University of Southern California.

Abhi Nemani, the former chief data officer for LA, explained why the city needed to “go back to school” for help.

“In resource-constrained environments — the environment most cities find themselves in these days — you often have to beg, borrow, and steal innovation; particularly so, when it comes to in-demand resources such as data science expertise,” he told the Huffington Post.

“That’s why in Los Angeles, we opted to lean on the community for support: both the growing local tech sector and the expansive academic base. The academic community, in particular, was eager to collaborate with the city. In fact, most — if not all — local institutions reached out to me at some point asking to partner on a data science project with their graduate students.”

The City of Los Angeles is now working with another member of its tech sector toeliminate traffic deaths. DataScience, based in Culver City, California, received $22 million dollars in funding in December to make predictive insights for customers.

“The City of Los Angeles is very data-driven,” DataScience CEO Ian Swanson told HuffPost. “I commend Mayor Eric Garcetti and the City of Los Angeles on the openness, transparency, and availability of city data initiatives, like Vision Zero, put the City of Los Angeles‘ data into action and improve life in this great city.”

DataScience created an interactive online map showing the locations of collisions involving bicycles across the city….(More)”

50 states, 50 public records stories

Curated on Posted on by Stefaan Verhulst

 at Poynter: “I try to feature journalists who are telling important stories using public records. For my final column of 2015, I wanted to do something big and decided to find public records stories from all 50 states (plus, a bonus: Washington, D.C.).

This is not meant to be a “best of” list. It’s simply a collection of public records stories from the past year that intrigued me. I found many of the stories by searching the National Freedom of Information Coalition’s website, as well as Investigative Reporters & Editors.…check out my list of public records stories from around the country and see what records journalists are requesting.  It’s full of great story ideas:

Alabama

Auburn spent $1.67 million on Outback Bowl trip

(Montgomery Advertiser)

Auburn spent more than $1.6 million on its Outback Bowl trip, according to the Institutional Bowl Expense report summary submitted to the NCAA and released in response to a Freedom of Information Act request.

Alaska

KMXT sues Kodiak City for documents in police brutality case

(KMXT)

The public radio station filed suit against the City of Kodiak to get records from police after three officers handcuffed and pepper-sprayed a man with autism.

Arizona

Legislature redacts, delays and denies access to messages

(Arizona Capitol Times)

The newspaper requested electronic messages sent among top state elected officials of both parties and their top staff. But getting access to those messages was difficult.

Arkansas

Some question email deletion policies

(Arkansas News)

After the state treasurer’s office instituted a policy requiring employees to delete all emails after 30 days, critics questioned whether it was necessary and whether it was consistent with the spirit of open government.

California

Collapsed I-10 bridge given an A rating just last year

(The Desert Sun)

After a bridge collapsed on Interstate 10, the newspaper reviewed Federal Highway Administration data and found that the bridge had been given an “A” rating and one of the highest possible flood safety ratings.

Colorado

Students accuse CU-Boulder of delaying release of debate documents

(Daily Camera)

University of Colorado students accused administrators of dragging their feet on an open records request the students filed to get letters, emails and documents related to the Republican presidential debate held on campus….(More)”

What Citizens Can Teach Civil Servants About Open Government

Curated on Posted on by Stefaan Verhulst

 and  in Governing: “An open government is one that is transparent, participatory and collaborative. But moving from traditional government operating behind closed doors to more open institutions, where civil servants work together with citizens to create policies and solve problems, demands new skills and sensibilities.

As more and more American public-sector leaders embrace the concept of openness as a positive force for governmental effectiveness, they would do well to look toward Brazil’s largest city, where an unusual experiment was just launched: an effort to use a variation on crowdsourcing to retrain Sao Paulo’s 150,000 civil servants. It’s described as the world’s largest open-government training program.

The program, known as Agents of Open Government – part of a wider city initiative called “Sao Paulo Aberta” (Open Sao Paulo) — aims to teach through peer-to-peer learning, where government employees learn from citizens. Twenty-four citizen-led courses that began last month are aimed not only at government employees and elected community representatives but also at social activists and the general population.

Sao Paolo is betting on the radical notion that learning can happen outside of formal civil-service training colleges. This initiative reflects a growing global trend toward recognizing that institutions can become smarter — more effective and efficient — by making use of the skills and experience of those outside of government.

Officials hope to have 25,000 participants over the course of the coming year. To encourage public employees’ participation, city workers who attend the courses gain credits in the municipal evaluation system that allow them to get pay raises….(More)”

To reduce economic inequality, do we need better democracy?

Curated on Posted on by Stefaan Verhulst

Matt Leighninger at Public Agenda: “When people have a say in the decisions that affect their lives, they will be better off economically as well as politically.

This idea has intrigued community development experts, foundation executives, public officials and academic researchers for many years. It has also animated some of the work people and governments are undertaking to address inequality, both in the United States and (especially) in the Global South.

But can a participatory democracy lead to greater economic opportunity? We are just beginning to amass evidence that this idea is true, understand how and why it works, and figure out how to make it happen better and faster.

Over the last two decades we have witnessed a quiet revolution in how governments and other institutions engage the public. Public officials, technologists, engagement practitioners, community organizers and other leaders have developed hundreds of projects, processes, tools and apps that boost engagement.

While they differ in many ways, these strategies and resources have one common thread: they treat citizens like adults rather than the clients (or children) of the state. They give people chances to connect, learn, deliberate, make recommendations, vote on budget or policy decisions, take action to solve public problems or all of the above. The principles behind these practices embody and enable greater political equality.

This wave of experimentation has produced inspiring outcomes in cities all over the world, but it has been particularly productive in Brazil and other parts of the Global South, where engagement has been built into the way that many cities operate. In these places, it is increasingly clear that when people have a legitimate voice in the institutions that govern their communities, and when they have support through various kinds of social and political networks, their economic fortunes improve.

The best-documented cases come from cities in Brazil, where Participatory Budgeting and other forms of engagement have been built into a much more robust “civic infrastructure” than we have in most American cities. In other words, people in these places have a wider variety of ways to participate on a broader range of issues and decisions. Their chances for engagement include online opportunities as well as face-to-face meetings. Many are social events as much as political ones: people participate because they get to see their neighbors and feel like they are part of a community, in addition to being able to weigh in on a public decision.

In these cities, the gap between rich and poor has narrowed, much more so than in similar cities without vibrant local democracies. In addition, governments are more likely to complete planned projects; public finances are better managed and less prone to corruption; people exhibit increased trust in public institutions and are more likely to pay their taxes; public expenditures are more likely to benefit low-income people; public health outcomes, such as the rate of infant mortality, have improved; and poverty has been reduced.

The connection between democratic innovation and greater economic equity raises many questions ripe for research:….(More)”

Digilantism: An Analysis of Crowdsourcing and the Boston Marathon Bombings

Curated on Posted on by Stefaan Verhulst

Paper by Johnny Nhan et al: “This paper explores the aftermath of the Boston Marathon bombing incident and how members of the general public, through the online community Reddit, attempted to provide assistance to law enforcement through conducting their own parallel investigations. As we document through an analysis of user posts, Reddit members shared information about the investigation, searched for information that would identify the perpetrators and, in some cases, drew on their own expert knowledge to uncover clues concerning key aspects of the attack. Although it is the case that the Reddit cyber-sleuths’ did not ultimately solve this case, or provide significant assistance to the police investigation, their actions suggest the potential role the public could play within security networks….(More)”

OpenAI won’t benefit humanity without data-sharing

Curated on Posted on by Stefaan Verhulst

 at the Guardian: “There is a common misconception about what drives the digital-intelligence revolution. People seem to have the idea that artificial intelligence researchers are directly programming an intelligence; telling it what to do and how to react. There is also the belief that when we interact with this intelligence we are processed by an “algorithm” – one that is subject to the whims of the designer and encodes his or her prejudices.

OpenAI, a new non-profit artificial intelligence company that was founded on Friday, wants to develop digital intelligence that will benefit humanity. By sharing its sentient algorithms with all, the venture, backed by a host of Silicon Valley billionaires, including Elon Musk and Peter Thiel, wants to avoid theexistential risks associated with the technology.

OpenAI’s launch announcement was timed to coincide with this year’s Neural Information Processing Systems conference: the main academic outlet for scientific advances in machine learning, which I chaired. Machine learning is the technology that underpins the new generation of AI breakthroughs.

One of OpenAI’s main ideas is to collaborate openly, publishing code and papers. This is admirable and the wider community is already excited by what the company could achieve.

OpenAI is not the first company to target digital intelligence, and certainly not the first to publish code and papers. Both Facebook and Google have already shared code. They were also present at the same conference. All three companies hosted parties with open bars, aiming to entice the latest and brightest minds.

However, the way machine learning works means that making algorithms available isn’t necessarily as useful as one might think. A machine- learning algorithm is subtly different from popular perception.

Just as in baking we don’t have control over how the cake will emerge from the oven, in machine learning we don’t control every decision that the computer will make. In machine learning the quality of the ingredients, the quality of the data provided, has a massive impact on the intelligence that is produced.

For intelligent decision-making the recipe needs to be carefully applied to the data: this is the process we refer to as learning. The result is the combination of our data and the recipe. We need both to make predictions.

By sharing their algorithms, Facebook and Google are merely sharing the recipe. Someone has to provide the eggs and flour and provide the baking facilities (which in Google and Facebook’s case are vast data-computation facilities, often located near hydroelectric power stations for cheaper electricity).

So even before they start, an open question for OpenAI is how will it ensure it has access to the data on the necessary scale to make progress?…(More)”

The Moral Failure of Computer Scientists

Curated on Posted on by Stefaan Verhulst

Kaveh Waddell at the Atlantic: “Computer scientists and cryptographers occupy some of the ivory tower’s highest floors. Among academics, their work is prestigious and celebrated. To the average observer, much of it is too technical to comprehend. The field’s problems can sometimes seem remote from reality.

But computer science has quite a bit to do with reality. Its practitioners devise the surveillance systems that watch over nearly every space, public or otherwise—and they design the tools that allow for privacy in the digital realm. Computer science is political, by its very nature.

That’s at least according to Phillip Rogaway, a professor of computer science at the University of California, Davis, who has helped create some of the most important tools that secure the Internet today. Last week, Rogaway took his case directly to a roomful of cryptographers at a conference in Auckland, New Zealand. He accused them of a moral failure: By allowing the government to construct a massive surveillance apparatus, the field had abused the public trust. Rogaway said the scientists had a duty to pursue social good in their work.
He likened the danger posed by modern governments’ growing surveillance capabilities to the threat of nuclear warfare in the 1950s, and called upon scientists to step up and speak out today, as they did then.

I spoke to Rogaway about why cryptographers fail to see their work in moral terms, and the emerging link between encryption and terrorism in the national conversation. A transcript of our conversation appears below, lightly edited for concision and clarity….(More)”