Ireland Opens E-Health Open Data Portal


Adi Gaskell at HuffPost: “… an open data portal has been launched by eHealth Ireland.  The portal aims to bring together some 300 different open data sources into one place, making it easier to find data from across the Irish Health Sector.

The portal includes data from a range of sources, including statistics on hospital day and inpatient cases, waiting list statistics and information around key new digital initiatives.

Open data

The resource features datasets from both the Department of Health and HealthLink, so the team believe that the data is of the highest quality, and also compliant with the Open Health Data Policy.  This ensures that the approach taken with the release of data is consistent and in accordance with national and international guidelines.

“I am delighted to welcome the launch of the eHealth Ireland Open Data Portal today. The aim of Open Data is twofold; on the one hand facilitating transparency of the Public Sector and on the other providing a valuable resource that can drive innovation. The availability of Open Data can empower citizens and support clinicians, care providers, and researchers make better decisions, spur new innovations and identify efficiencies while ensuring that personal data remains confidential,” Richard Corbridge, CIO at the Health Service Executive says.

Data from both HealthLink and the National Treatment Purchase Fund (NTPF) will be uploaded to the portal each month, with new datasets due to be added on a regular basis….

The project follows a number of clearly defined Open Health Data Principles that are designed to support the health service in the provision of better patient care and in the support of new innovations in the sector, all whilst ensuring that patient data is secured and governed appropriately…(More)”.

Journal tries crowdsourcing peer reviews, sees excellent results


Chris Lee at ArsTechnica: “Peer review is supposed to act as a sanity check on science. A few learned scientists take a look at your work, and if it withstands their objective and entirely neutral scrutiny, a journal will happily publish your work. As those links indicate, however, there are some issues with peer review as it is currently practiced. Recently, Benjamin List, a researcher and journal editor in Germany, and his graduate assistant, Denis Höfler, have come up with a genius idea for improving matters: something called selected crowd-sourced peer review….

My central point: peer review is burdensome and sometimes barely functional. So how do we improve it? The main way is to experiment with different approaches to the reviewing process, which many journals have tried, albeit with limited success. Post-publication peer review, when scientists look over papers after they’ve been published, is also an option but depends on community engagement.

But if your paper is uninteresting, no one will comment on it after it is published. Pre-publication peer review is the only moment where we can be certain that someone will read the paper.

So, List (an editor for Synlett) and Höfler recruited 100 referees. For their trial, a forum-style commenting system was set up that allowed referees to comment anonymously on submitted papers but also on each other’s comments as well. To provide a comparison, the papers that went through this process also went through the traditional peer review process. The authors and editors compared comments and (subjectively) evaluated the pros and cons. The 100-person crowd of researchers was deemed the more effective of the two.

The editors found that it took a bit more time to read and collate all the comments into a reviewers’ report. But it was still faster, which the authors loved. Typically, it took the crowd just a few days to complete their review, which compares very nicely to the usual four to six weeks of the traditional route (I’ve had papers languish for six months in peer review). And, perhaps most important, the responses were more substantive and useful compared to the typical two-to-four-person review.

So far, List has not published the trial results formally. Despite that, Synlett is moving to the new system for all its papers.

Why does crowdsourcing work?

Here we get back to something more editorial. I’d suggest that there is a physical analog to traditional peer review, called noise. Noise is not just a constant background that must be overcome. Noise is also generated by the very process that creates a signal. The difference is how the amplitude of noise grows compared to the amplitude of signal. For very low-amplitude signals, all you measure is noise, while for very high-intensity signals, the noise is vanishingly small compared to the signal, even though it’s huge compared to the noise of the low-amplitude signal.

Our esteemed peers, I would argue, are somewhat random in their response, but weighted toward objectivity. Using this inappropriate physics model, a review conducted by four reviewers can be expected (on average) to contain two responses that are, basically, noise. By contrast, a review by 100 reviewers may only have 10 responses that are noise. Overall, a substantial improvement. So, adding the responses of a large number of peers together should produce a better picture of a scientific paper’s strengths and weaknesses.

Didn’t I just say that reviewers are overloaded? Doesn’t it seem that this will make the problem worse?

Well, no, as it turns out. When this approach was tested (with consent) on papers submitted to Synlett, it was discovered that review times went way down—from weeks to days. And authors reported getting more useful comments from their reviewers….(More)”.

Community Digital Storytelling for Collective Intelligence: towards a Storytelling Cycle of Trust


Sarah Copeland and Aldo de Moor in AI & SOCIETY: “Digital storytelling has become a popular method for curating community, organisational, and individual narratives. Since its beginnings over 20 years ago, projects have sprung up across the globe, where authentic voice is found in the narration of lived experiences. Contributing to a Collective Intelligence for the Common Good, the authors of this paper ask how shared stories can bring impetus to community groups to help identify what they seek to change, and how digital storytelling can be effectively implemented in community partnership projects to enable authentic voices to be carried to other stakeholders in society. The Community Digital Storytelling (CDST) method is introduced as a means for addressing community-of-place issues. There are five stages to this method: preparation, story telling, story digitisation, digital story sense-making, and digital story sharing. Additionally, a Storytelling Cycle of Trust framework is proposed. We identify four trust dimensions as being imperative foundations in implementing community digital media interventions for the common good: legitimacy, authenticity, synergy, and commons. This framework is concerned with increasing the impact that everyday stories can have on society; it is an engine driving prolonged storytelling. From this perspective, we consider the ability to scale up the scope and benefit of stories in civic contexts. To illustrate this framework, we use experiences from the CDST workshop in northern Britain and compare this with a social innovation project in the southern Netherlands….(More)”.

The Tech Revolution That’s Changing How We Measure Poverty


Alvin Etang Ndip at the Worldbank: “The world has an ambitious goal to end extreme poverty by 2030. But, without good poverty data, it is impossible to know whether we are making progress, or whether programs and policies are reaching those who are the most in need.

Countries, often in partnership with the World Bank Group and other agencies, measure poverty and wellbeing using household surveys that help give policymakers a sense of who the poor are, where they live, and what is holding back their progress. Once a paper-and-pencil exercise, technology is beginning to revolutionize the field of household data collection, and the World Bank is tapping into this potential to produce more and better poverty data….

“Technology can be harnessed in three different ways,” says Utz Pape, an economist with the World Bank. “It can help improve data quality of existing surveys, it can help to increase the frequency of data collection to complement traditional household surveys, and can also open up new avenues of data collection methods to improve our understanding of people’s behaviors.”

As technology is changing the field of data collection, researchers are continuing to find new ways to build on the power of mobile phones and tablets.

The World Bank’s Pulse of South Sudan initiative, for example, takes tablet-based data collection a step further. In addition to conducting the household survey, the enumerators also record a short, personalized testimonial with the people they are interviewing, revealing a first-person account of the situation on the ground. Such testimonials allow users to put a human face on data and statistics, giving a fuller picture of the country’s experience.

Real-time data through mobile phones

At the same time, more and more countries are generating real-time data through high-frequency surveys, capitalizing on the proliferation of mobile phones around the world. The World Bank’s Listening to Africa (L2A) initiative has piloted the use of mobile phones to regularly collect information on living conditions. The approach combines face-to-face surveys with follow-up mobile phone interviews to collect data that allows to monitor well-being.

The initiative hands out mobile phones and solar chargers to all respondents. To minimize the risk of people dropping out, the respondents are given credit top-ups to stay in the program. From monitoring health care facilities in Tanzania to collecting data on frequency of power outages in Togo, the initiative has been rolled out in six countries and has been used to collect data on a wide range of areas. …

Technology-driven data collection efforts haven’t been restricted to the Africa region alone. In fact, the approach was piloted early in Peru and Honduras with the Listening 2 LAC program. In Europe and Central Asia, the World Bank has rolled out the Listening to Tajikistan program, which was designed to monitor the impact of the Russian economic slowdown in 2014 and 2015. Initially a six-month pilot, the initiative has now been in operation for 29 months, and a partnership with UNICEF and JICA has ensured that data collection can continue for the next 12 months. Given the volume of data, the team is currently working to create a multidimensional fragility index, where one can monitor a set of well-being indicators – ranging from food security to quality jobs and public services – on a monthly basis…

There are other initiatives, such as in Mexico where the World Bank and its partners are using satellite imagery and survey data to estimate how many people live below the poverty line down to the municipal level, or guiding data collectors using satellite images to pick a representative sample for the Somali High Frequency Survey. However, despite the innovation, these initiatives are not intended to replace traditional household surveys, which still form the backbone of measuring poverty. When better integrated, they can prove to be a formidable set of tools for data collection to provide the best evidence possible to policymakers….(More)”

E-residency and blockchain


Clare Sullivan and Eric Burger in Computer Law & Security Review: “In December 2014, Estonia became the first nation to open its digital borders to enable anyone, anywhere in the world to apply to become an e-Resident. Estonian e-Residency is essentially a commercial initiative. The e-ID issued to Estonian e-Residents enables commercial activities with the public and private sectors. It does not provide citizenship in its traditional sense, and the e-ID provided to e-Residents is not a travel document. However, in many ways it is an international ‘passport’ to the virtual world. E-Residency is a profound change and the recent announcement that the Estonian government is now partnering with Bitnation to offer a public notary service to Estonian e-Residents based on blockchain technology is of significance. The application of blockchain to e-Residency has the potential to fundamentally change the way identity information is controlled and authenticated. This paper examines the legal, policy, and technical implications of this development….(More)”.

 

Our digital journey: moving to electronic questionnaires


Jason Bradbury at the Office for National Statistics (UK): “Earlier this year we shared news about the Retail Sales Inquiry (RSI) – the monthly national survey of shops and shopping –  moving to digital data collection. ONS is transforming the way it collects data, improving the speed and quality of the information while reducing the burden on respondents. The past six months has seen a significant expansion of our digital survey availability. In January 5,000 retailers were invited to sign-up for an account giving them the option to send us their data  for one of our business surveys digitally.

Electronic questionnaires

The take-up of the electronic questionnaire (eQ) was incredible with over 80% of respondents choosing to supply their information for the RSI online. Overt the last six months, we have continued to see the appetite for online completion grow. Each month, an average of 300 new businesses opt to return their Retail Sales data digitally with many eager to move to digital methods for the other surveys they are required to complete….

Moving data collection from the phone and paper to online has been a huge success delivering improved quality, an ‘easy  to access’ online experience and when thinking about the impact this change could  have had on our core function as a statistical body, I am delighted to share that we have not witnessed any statistical issues and all of outputs have been compiled and produced as normal.

Put simply, the easier it is for someone to complete our surveys, the more likely they are to take the time to provide more detailed accurate data. It is worth noting that once a business has an account with ONS they often send back data to us quicker. The earlier and more detailed responses allow us more time to quality assure (QA) the information and reduce the need to re-contact the businesses.

Our digital journey

The digital world is a fast paced and an ever changing environment. We have found it challenging to match this pace in both our team’s skill base and our digital service. We are in the process of up-skilling our teams and updating our data collection service and infrastructure. This will enable us to improve our data collection service and move even more surveys online….(More)”

Design Thinking for the Greater Good


New Book by Jeanne Liedtka, Randy Salzman, and Daisy Azer:  “Facing especially wicked problems, social sector organizations are searching for powerful new methods to understand and address them. Design Thinking for the Greater Good goes in depth on both the how of using new tools and the why. As a way to reframe problems, ideate solutions, and iterate toward better answers, design thinking is already well established in the commercial world. Through ten stories of struggles and successes in fields such as health care, education, agriculture, transportation, social services, and security, the authors show how collaborative creativity can shake up even the most entrenched bureaucracies—and provide a practical roadmap for readers to implement these tools.

The design thinkers Jeanne Liedtka, Randy Salzman, and Daisy Azer explore how major agencies like the Department of Health and Human Services and the Transportation and Security Administration in the United States, as well as organizations in Canada, Australia, and the United Kingdom, have instituted principles of design thinking. In each case, these groups have used the tools of design thinking to reduce risk, manage change, use resources more effectively, bridge the communication gap between parties, and manage the competing demands of diverse stakeholders. Along the way, they have improved the quality of their products and enhanced the experiences of those they serve. These strategies are accessible to analytical and creative types alike, and their benefits extend throughout an organization. This book will help today’s leaders and thinkers implement these practices in their own pursuit of creative solutions that are both innovative and achievable….(More)”.

Innovation@DFID: Crowdsourcing New Ideas at the UK’s Department for International Development


Paper by Anke Schwittay and Paul Braund: “Over the last decade, traditional development institutions have joined market-based actors in embracing inclusive innovation to ensure the sector’s relevance and impacts. In 2014, the UK’s Department for International Development’s (DFID) Innovation Hub launched Amplify as its own flagship initiative. The programme, which is managed by IDEO, a Silicon Valley-based design consultancy, aims to crowdsource new ideas to various development challenges from a broad and diverse group of actors, including poor people themselves. By examining the direction, diversity and distribution of Amplify’s work, we argue that while development innovation can generate more inclusive practices, its transformative potential is constrained by broader developmental logics and policy regimes….(More)”

America is not a true democracy. But it could be with the help of technology


Nicole Softness at Quartz: “Many Americans aren’t aware they don’t live in a direct democracy. But with a little digital assistance, they could be….Once completely cut off from the global community, Estonia is now considered a world leader for its efforts to integrate technology with government administration. While standing in line for coffee, you could file your tax return, confirm sensitive personal medical information, and register a new company in just a few swipes, all on Estonia’s free wifi.

What makes this possible without the risk of fraud? Digital trust. Using a technology called blockchain, which verifies online communications and transactions at every step (and essentially eliminates the possibility of online fraud), Estonian leadership has moved the majority of citizenship processes online. Startups have now created new channels for democratic participation, like Rahvaalgatus, an online crowdsourcing platform that allows users to discuss and digitally vote on policy proposals submitted to the Estonian parliament.

Brazil has also utilized this trust quite valiantly. The country’s constitution, passed in 1988, legislated that signatures from 1% of a population could force the Brazilian leadership to recognize any signed document as an official draft bill and vote. Until recently, the notion of getting sufficient signatures on paper would have been laughable: that’s just over 2 million physical signatures. However, votes can now be cast online, which makes gathering digital signatures all the more easy. As a result, Brazilians now have more control over the legislature being brought before parliament.

 Blockchain technology creates an immutable record of signatures tied to the identities of voters. Again, blockchain technology is key here, as it creates an immutable record of signatures tied to the identities of voters. The government knows which voters are legitimate citizens, and citizens can be sure their votes remain accurate. When Brazilians are able to participate in this manner, their democracy shifts towards the sort of “direct” democracy that, until now, seemed logistically impossible in modern society.

Australian citizens have engaged in a slightly different experiment, dubbed “Government 2.0.” In March 2016, technology experts convened a new political party called Flux, which they describe as “democracy for the information age.” The party platform argues that bureaucracy stymies key government functions, which cannot process the requisite information required to govern.

If elected to government, members of Flux would vote on bills scheduled to appear before parliament based on the digital ballots of the supporters who voted them in. Voters could choose to participate in casting their vote for that bill themselves, or transfer their votes to trusted experts. Flux representatives in parliament would then cast their votes 100% based on the results of these member participants. (They are yet to win any seats in government, however.)

These solutions show us that bureaucratic boundaries no longer have to limit our access to a true democracy. The technology is here to make direct democracy the reality that the Greeks once imagined.

More so, increasing democratic participation will have positive ripple effects beyond participation in a direct democracy: Informed voting is the gateway to more active civic engagement and a more informed electorate, all of which raises the level of debate in a political environment desperately in need of participation….(More)”

Crowdsourcing Expertise to Increase Congressional Capacity


Austin Seaborn at Beeck Center: “Members of Congress have close connections with their districts, and information arising from local organizations, such as professional groups, academia, industry as well as constituents with relevant expertise (like retirees, veterans or students) is highly valuable to them.  Today, congressional staff capacity is at a historic low, while at the same time, constituents in districts are often well equipped to address the underlying policy questions that Congress seeks to solve….

In meetings we have had with House and Senate staffers, they repeatedly express both the difficulty managing their substantial area-specific work loads and their interest in finding ways to substantively engage constituents to find good nuggets of information to help them in their roles as policymakers. At the same time, constituents are demanding more transparency and dialogue from their elected representatives. In many cases, our project brings these two together. It allows Members to tap the expertise in their districts while at the same time creating an avenue for constituents to contribute their knowledge and area expertise to the legislative process. It’s a win for constituents and a win for Member of Congress and their staffs.

It is important to note that the United States lags behind other democracies in experimenting with more inclusive methods during the policymaking process. In the United Kingdom, for example, the UK Parliament has experimented with a variety of new digital tools to engage with constituents. These methods range from Twitter hashtags, which are now quite common given the rise in social media use by governments and elected officials, to a variety of web forums on a variety of platforms. Since June of 2015, they have also been doing digital debates, where questions from the general public are crowdsourced and later integrated into a parliamentary debate by the Member of Parliament leading the debate. Estonia, South Africa, Taiwan, France also…notable examples.

One promising new development we hope to explore more thoroughly is the U.S. Library of Congress’s recently announced legislative data App Challenge. This competition is distinct from the many hackathons that have been held on behalf of Congress in the past, in that this challenge seeks new methods not only to innovate, but also to integrate and legislate. In his announcement, the Library’s Chief Information Officer, Bernard A. Barton, Jr., stated, “An informed citizenry is better able to participate in our democracy, and this is a very real opportunity to contribute to a better understanding of the work being done in Washington.  It may even provide insights for the people doing the work around the clock, both on the Hill, and in state and district offices.  Your innovation and integration may ultimately benefit the way our elected officials legislate for our future.” We believe these sorts of new methods will play a crucial role in the future of engaging citizens in their democracies….(More)”.