Designing Data Trusts. Why We Need to Test Consumer Data Trusts Now


Policy Brief by Aline Blankertz: “Data about individuals, about their preferences and behaviors, has become an increasingly important resource for companies, public agencies, and research institutions. Consumers carry the burden of having to decide which data about them is shared for which purpose. They want to make sure that data about them is not used to infer intimate details of their private life or to pursue other undesirable purposes. At the same time, they want to benefit from personalized products and innovation driven by the same data. The complexity of how data is collected and used overwhelms consumers, many of whom wearily accept privacy policies and lose trust that those who gain effective control over the data will use it for the consumers’ benefit.

At the same time, a few large companies accumulate and lock in vast amounts of data that enable them to use insights across markets and across consumers. In Europe, the General Data Protection Regulation (GDPR) has given data rights to consumers to assert their interests vis-a-vis those companies, but it gives consumers neither enough information nor enough power to make themselves heard. Other organizations, especially small businesses or start-ups, do not have access to the data (unless individual consumers laboriously exercise their right to portability), which often inhibits competition and innovation. Governments across Europe would like to tackle the challenge of reconciling productive data use with privacy. In recent months, data trusts have emerged as a promising solution to enable data-sharing for the benefit of consumers.

The concept has been endorsed by a broad range of stakeholders, including privacy advocates, companies and expert commissions. In Germany, for example, the data ethics commission and the commission competition law 4.0 have recommended further exploring data trusts, and the government is incorporating the concept into its data strategy.

There is no common understanding yet what consumer data trusts are and what they do. In order for them to address the problems mentioned, it is helpful to use as a working definition: consumer data trusts are intermediaries that aggregate consumers’ interests and represent them vis-à-vis data-using organizations. Data trusts use more technical and legal expertise, as well as greater bargaining power, to negotiate with organizations on the conditions of data use to achieve better outcomes than those that individual consumers can achieve. To achieve their consumer-oriented mission, data trusts should be able to assign access rights, audit data practices, and support enforcement. They may or may not need to hold data…(More)”.

Centre for Applied Data Ethics Strategy – Enabling ethically appropriate research and statistics for the public good


Foreword by Professor Sir Ian Diamond: “I am delighted to introduce the UK Statistics Authority’s new Centre for Applied Data Ethics which we committed to establishing in the UK Statistics Authority’s five-year strategy published last year. Being able to show that researchers, statisticians and analysts have not only considered how they can use data but also how they should use data from an ethical perspective is vital to ensuring public acceptability around the use of data for research and statistical purposes. For this reason, I believe that it is important that as the UK’s national statistical institute, we play a lead role in providing statisticians, researchers and analysts with applied sources of advice, guidance and other tools to help them ensure they use data in ethically appropriate ways. I have therefore established the UK Statistics Authority’s Centre for Applied Data Ethics with the aim of being recognised as world-leaders in the practical application of data ethics for statistics and research.

The new Centre will build on the excellent work of the National Statistician’s Data Ethics Advisory Committee that will continue to provide me with valuable independent data ethics advice and assurance about the collection and use of data for research and statistics.

The significant role the analytical community across Government and beyond has played in informing the response to the ongoing Covid-19 pandemic highlights the importance of using data in new ways to produce timely statistics, research and analysis to inform the important policy questions of the day. Demonstrating how we apply the principles of good data ethics is an important part of this and is a key enabler, and safeguard, to unlock the power of data for better research and statistics for the public good. By focussing our efforts on providing practical data ethics support and guidance to researchers collecting and using data, the Centre for Applied Data Ethics will help the UK Statistics Authority to meet its strategic objectives of producing statistics for the public good to inform the UK, improve lives and build for the future….(More)”.

Mini-Publics and the Wider Public: The Perceived Legitimacy of Randomly Selecting Citizen Representatives


Paper by James Pow: “There are two important dimensions to the membership of mini-publics that are distinct from the membership of conventional representative institutions: the selection mechanism (sortition) and the profile of the body’s eligible membership (‘ordinary’ citizens). This article examines the effects of these design features on perceived legitimacy. A survey experiment in the deeply divided context of Northern Ireland finds no evidence that variation in mini-public selection features has an overall effect on perceived legitimacy, but there are important individual-level differences….(More)”.

Fostering trustworthy data sharing: Establishing data foundations in practice


Paper by Sophie Stalla-Bourdillon, Laura Carmichael and Alexsis Wintour: “Independent data stewardship remains a core component of good data governance practice. Yet, there is a need for more robust independent data stewardship models that are able to oversee data-driven, multi-party data sharing, usage and re-usage, which can better incorporate citizen representation, especially in relation to personal data. We propose that data foundations—inspired by Channel Islands’ foundations laws—provide a workable model for good data governance not only in the Channel Islands, but also elsewhere. A key advantage of this model—in addition to leveraging existing legislation and building on established precedent—is the statutory role of the guardian that is a unique requirement in the Channel Islands, and when interpreted in a data governance model provides the independent data steward. The principal purpose for this paper, therefore, is to demonstrate why data foundations are well suited to the needs of data sharing initiatives. We further examine how data foundations could be established in practice—and provide key design principles that should be used to guide the design and development of any data foundation….(More)”.

The Legal Limits of Direct Democracy


Book edited by Daniel Moeckli, Anna Forgács, and Henri Ibi: “With the rise of direct-democratic instruments, the relationship between popular sovereignty and the rule of law is set to become one of the defining political issues of our time. This important and timely book provides an in-depth analysis of the limits imposed on referendums and citizens’ initiatives, as well as of systems of reviewing compliance with these limits, in 11 European states.

Chapters explore and lay the scientific basis for answering crucial questions such as ‘Where should the legal limits of direct democracy be drawn?’ and ‘Who should review compliance with these limits?’ Providing a comparative analysis of the different issues in the selected countries, the book draws out key similarities and differences, as well as an assessment of the law and the practice at national levels when judged against the international standards contained in the Venice Commission’s Guidelines on the Holding of Referendums.

Presenting an up-to-date analysis of the relationship between popular sovereignty and the rule of law, The Legal Limits of Direct Democracy will be a key resource for scholars and students in comparative and constitutional law and political science. It will also be beneficial to policy-makers and practitioners in parliaments, governments and election commissions, and experts working for international organisations….(More)”.

Politics and Open Science: How the European Open Science Cloud Became Reality (the Untold Story)


Jean-Claude Burgelman at Data Intelligence: “This article will document how the European Open Science Cloud (EOSC) emerged as one of the key policy intentions to foster Open Science (OS) in Europe. It will describe some of the typical, non-rational roadblocks on the way to implement EOSC. The article will also argue that the only way Europe can take care of its research data in a way that fits the European specificities fully, is by supporting EOSC.

It is fair to say—note the word FAIR here—that realizing the European Open Science Cloud (EOSC) is now part and parcel of the European Data Science (DS) policy. In particular since EOSC will be from 2021 in the hands of the independent EOSC Association and thus potentially way out of the so-called “Brussels Bubble”.

This article will document the whole story of how EOSC emerged in this “bubble” as one of the policy intentions to foster Open Science (OS) in Europe. In addition, it will describe some of the typical, non-rational roadblocks on the way to implement EOSC. The article will also argue that the only way Europe can take care of its research data in a way that fits the European specificities fully, is by supporting EOSC….(More)”

How a Google Street View image of your house predicts your risk of a car accident


MIT Technology Review: “Google Street View has become a surprisingly useful way to learn about the world without stepping into it. People use it to plan journeys, to explore holiday destinations, and to virtually stalk friends and enemies alike.

But researchers have found more insidious uses. In 2017 a team of researchers used the images to study the distribution of car types in the US and then used that data to determine the demographic makeup of the country. It turns out that the car you drive is a surprisingly reliable proxy for your income level, your education, your occupation, and even the way you vote in elections.

Street view of houses in Poland

Now a different group has gone even further. Łukasz Kidziński at Stanford University in California and Kinga Kita-Wojciechowska at the University of Warsaw in Poland have used Street View images of people’s houses to determine how likely they are to be involved in a car accident. That’s valuable information that an insurance company could use to set premiums.

The result raises important questions about the way personal information can leak from seemingly innocent data sets and whether organizations should be able to use it for commercial purposes.

Insurance data

The researchers’ method is straightforward. They began with a data set of 20,000 records of people who had taken out car insurance in Poland between 2013 and 2015. These were randomly selected from the database of an undisclosed insurance company.

Each record included the address of the policyholder and the number of damage claims he or she made during the 2013–’15 period. The insurer also shared its own prediction of future claims, calculated using its state-of-the-art risk model that takes into account the policyholder’s zip code and the driver’s age, sex, claim history, and so on.

The question that Kidziński and Kita-Wojciechowska investigated is whether they could make a more accurate prediction using a Google Street View image of the policyholder’s house….(More)”.

Mechanisms of power inscription into IT governance: Lessons from two national digital identity systems


Paper by Rony Medaglia, Ben Eaton, Jonas Hedman, and Edgar A. Whitley: “Establishing IT governance arrangements is a deeply political process, where relationships of power play a crucial role. While the importance of power relationships is widely acknowledged in IS literature, specific mechanisms whereby the consequences of power relationships affect IT governance arrangements are still under‐researched. This study investigates the way power relationships are inscribed in the governance of digital identity systems in Denmark and the United Kingdom, where public and private actors are involved. Drawing on the theoretical lens of circuits of power, we contribute to research on the role of power in IT governance by identifying two distinct mechanisms of power inscription into IT governance: power cultivation and power limitation….(More)“.

Monitoring the R-Citizen in the Time of Coronavirus


Paper by John Flood and Monique Lewis: “The COVID pandemic has overwhelmed many countries in their attempts at tracking and tracing people infected with the disease. Our paper examines how tracking and tracing is done looking at manual and technological means. It raises the issues around efficiency and privacy, etc. The paper investigates more closely the approaches taken by two countries, namely Taiwan and the UK. It shows how tracking and tracing can be handled sensitively and openly compared to the bungled attempts of the UK that have led to the greatest number of dead in Europe. The key messages are that all communications around tracking and tracing need to open, clear, without confusion and delivered by those closest to the communities receiving the messages.This occurred in Taiwan but in the UK the central government chose to close out local government and other local resources. The highly centralised dirigiste approach of the government alienated much of the population who came to distrust government. As local government was later brought into the COVID fold the messaging improved. Taiwan always remained open in its communications, even allowing citizens to participate in improving the technology around COVID. Taiwan learnt from its earlier experiences with SARS, whereas the UK ignored its pandemic planning exercises from earlier years and even experimented with crude ideas of herd immunity by letting the disease rip through the population–an idea soon abandoned.

We also derive a new type of citizen from the pandemic, namely the R citizen. This unfortunate archetype is both a blessing and a curse. If the citizen scores over 1 the disease accelerates and the R citizen is chastised, whereas if the citizen declines to zero it disappears but receives no plaudits for their behaviour. The R citizen can neither exist or die, rather like Schrödinger’s cat. R citizens are of course datafied individuals who are assemblages of data and are treated as distinct from humans. We argue they cannot be so distinguished without rendering them inhuman. This is as much a moral category as it is a scientific one….(More)”.

Governance models for redistribution of data value


Essay by Maria Savona: “The growth of interest in personal data has been unprecedented. Issues of privacy violation, power abuse, practices of electoral behaviour manipulation unveiled in the Cambridge Analytica scandal, and a sense of imminent impingement of our democracies are at the forefront of policy debates. Yet, these concerns seem to overlook the issue of concentration of equity value (stemming from data value, which I use interchangeably here) that underpins the current structure of big tech business models. Whilst these quasi-monopolies own the digital infrastructure, they do not own the personal data that provide the raw material for data analytics. 

The European Commission has been at the forefront of global action to promote convergence of the governance of data (privacy), including, but not limited to, the General Data Protection Regulation (GDPR) (European Commission 2016), enforced in May 2018. Attempts to enforce similar regulations are emerging around the world, including the California Consumer Privacy Act, which came into effect on 1 January 2020. Notwithstanding greater awareness among citizens around the use of their data, companies find that complying with GDPR is, at best, a useless nuisance. 

Data have been seen as ‘innovation investment’ since the beginning of the 1990s. The first edition of the Oslo Manual, the OECD’s international guidelines for collecting and using data on innovation in firms, dates back to 19921 and included the collection of databases on employee best practices as innovation investments. Data are also measured as an ‘intangible asset’ (Corrado et al. 2009 was one of the pioneering studies). What has changed over the last decade? The scale of data generation today is such that its management and control might have already gone well beyond the capacity of the very tech giants we are all feeding. Concerns around data governance and data privacy might be too little and too late. 

In this column, I argue that economists have failed twice: first, to predict the massive concentration of data value in the hands of large platforms; and second, to account for the complexity of the political economy aspects of data accumulation. Based on a pair of recent papers (Savona 2019a, 2019b), I systematise recent research and propose a novel data rights approach to redistribute data value whilst not undermining the range of ethical, legal, and governance challenges that this poses….(More)”.