Exploring the role of data in post-Covid recovery


Blog by Eddie Copeland: “…how might we think about exploring the Amplify box in the diagram above? I’d suggest three approaches are likely to emerge:

Image outlines three headings: Specific fixes, new opportunities, generic capabilities

Let’s discuss these in the context of data.

Specific Fixes — A number of urgent data requests have arisen during Covid where it’s been apparent that councils simply don’t have the data they need. One example is how local authorities have needed to distribute business support grants. Many have discovered that while they have good records of local companies on their business rates database, they lack email or bank details for the majority. That makes it incredibly difficult to get payments out promptly. We can and should fix specific issues like this and ensure councils have those details in future.

New Opportunities — A crisis also prompts us to think about how things could be done differently and better. Perhaps the single greatest new opportunity we could aim to realise on a data front would be shifting from static to dynamic (if not real-time) data on a greater range of issues. As public sector staff, from CEOs to front line workers, have sought to respond to the crisis, the limitations of relying on static weekly, monthly or annual figures have been laid bare. As factors such as transport usage, high street activity and use of public spaces become deeply important in understanding the nature of recovery, more dynamic data could make a real difference.

Generic Capabilities — While the first two categories of activity are worth pursuing, I’d argue the single most positive legacy that could come out of a crisis is that we put in place generic capabilities — core foundation stones — that make us better able to respond to whatever comes next. Some of those capabilities will be about what individual councils need to have in place to use data well. However, given that few crises respect local authority boundaries, arguably the most important set of capabilities concern how different organisations can collaborate with data.

Putting in place the foundation stones for data collaboration

For years there has been discussion about the factors that make data collaboration between different public sector bodies hard.

Five stand out.

  1. Technology — some technologies make it hard to get the data out (e.g. lack of APIs); worse, some suppliers charge councils to access their own data.
  2. Data standards — the use of different standards, formats and conventions for recording data, and the lack of common identifiers like Unique Property Reference Numbers (UPRNs) makes it hard to compare, link or match records.
  3. Information Governance (IG) — Ensuring that London’s public sector organisations can use data in a way that’s legal, ethical and secure — in short, worthy of citizens’ trust and confidence — is key. Yet councils’ different approaches to IG can make the process take a long time — sometimes months.
  4. Ways of working — councils’ different processes require and produce different data.
  5. Lack of skills — when data skills are at a premium, councils understandably need staff with data competencies to work predominantly on internal projects, with little time available for collaboration.

There’s a host of reasons why progress to resolve these barriers has been slow. But perhaps the greatest is the perception that the effort required to address them is greater than the reward of doing so…(More)” –

See also Call For Action here

German humanities scholars enlisted to end coronavirus lockdown


David Matthews at THE: “In contrast to other countries, philosophers, historians, theologians and jurists have played a major role advising the state as it seeks to loosen restrictions…

In the struggle against the new coronavirus, humanities academics have entered the fray – in Germany at least.

Arguably to a greater extent than has happened in the UK, France or the US, the country has enlisted the advice of philosophers, historians of science, theologians and jurists as it navigates the delicate ethical balancing act of reopening society while safeguarding the health of the public.

When the German federal government announced a slight loosening of restrictions on 15 April – allowing small shops to open and some children to return to school in May – it had been eagerly awaiting a report written by a 26-strong expert group containing only a minority of natural scientists and barely a handful of virologists and medical specialists.

Instead, this working group from the Leopoldina – Germany’s independent National Academy of Sciences dating back to 1652 – included historians of industrialisation and early Christianity, a specialist on the philosophy of law and several pedagogical experts.

This paucity of virologists earned the group a swipe from Markus Söder, minister-president of badly hit Bavaria, who has led calls in Germany for a tough lockdown (although earlier in the pandemic the Leopoldina did release a report written by more medically focused specialists).

But “the crisis is a complex one, it’s a systemic crisis” and so it needs to be dissected from every angle, argued Jürgen Renn, director of the Max Planck Institute for the History of Science, and one of those who wrote the crucial recommendations.

And Professor Renn – who earlier this year published a book on rethinking science in the Anthropocene – made the argument for green post-virus reconstruction. Urbanisation and deforestation have squashed mankind and wildlife together, making other animal-to-human disease transmissions ever more likely, he argued. “It’s not the only virus waiting out there,” he said.

Germany’s Ethics Council – which traces its roots back to the stem cell debates of the early 2000s and is composed of theologians, jurists, philosophers and other ethical thinkers – also contributed to a report at the end of March, warning that it was up to elected politicians, not scientists, to make the “painful decisions” weighing up the lockdown’s effect on health and its other side-effects….(More)“.

COVID-19 Rapid Evidence Review: Exit through the App Store?


“A rapid evidence review of the technical considerations and societal implications of using technology to transition from the COVID-19 crisis” by the Ada Lovelace Institute:  “The review focuses on three technologies in particular: digital contact tracing, symptom tracking apps and immunity certification. It makes pragmatic recommendations to support well-informed policymaking in response to the crisis. It is informed by the input of more than twenty experts drawn from across a wide range of domains, including technology, policy, human rights and data protection, public health and clinical medicine, behavioural science and information systems, philosophy, sociology and anthropology.

The purpose of this review is to open up, rather than close down, an informed and public dialogue on the technical considerations and societal implications of the use of technology to transition from the crisis.

Key findings

There is an absence of evidence to support the immediate national deployment of symptom tracking applications, digital contact tracing applications and digital immunity certificates. While the Government is right to explore non-clinical measures for transition, for national policy to rely on these apps, they would need to be able to:

  1. Represent accurate information about infection or immunity
  2. Demonstrate technical capabilities to support required functions
  3. Address various practical issues for use, including meeting legal tests
  4. Mitigate social risks and protect against exacerbating inequalities and vulnerabilities

At present the evidence does not demonstrate that tools are able to address these four components adequately. We offer detailed evidence, and recommendations for each application in the report summary.

In particular, we recommend that:

  • Effective deployment of technology to support the transition from the crisis will be contingent on public trust and confidence, which can be strengthened through the establishment of two accountability mechanisms:
    • the Group of Advisors on Technology in Emergencies (GATE) to review evidence, advise on design and oversee implementation, similar to the expert group recently established by Canada’s Chief Science Adviser; and
    • an independent oversight mechanism to conduct real-time scrutiny of policy formulation.
  • Clear and comprehensive primary legislation should be advanced to regulate data processing in symptom tracking and digital contact tracing applications. Legislation should impose strict purpose, access and time limitations…(More)”.

EDPB Adopts Guidelines on the Processing of Health Data During COVID-19


Hunton Privacy Blog: “On April 21, 2020, the European Data Protection Board (“EDPB”) adopted Guidelines on the processing of health data for scientific purposes in the context of the COVID-19 pandemic. The aim of the Guidelines is to provide clarity on the most urgent matters relating to health data, such as legal basis for processing, the implementation of adequate safeguards and the exercise of data subject rights.

The Guidelines note that the General Data Protection Regulation (“GDPR”) provides a specific derogation to the prohibition on processing of sensitive data under Article 9, for scientific purposes. With respect to the legal basis for processing, the Guidelines state that consent may be relied on under both Article 6 and the derogation to the prohibition on processing under Article 9 in the context of COVID-19, as long as the requirements for explicit consent are met, and as long as there is no power imbalance that could pressure or disadvantage a reluctant data subject. Researchers should keep in mind that study participants must be able to withdraw their consent at any time. National legislation may also provide an appropriate legal basis for the processing of health data and a derogation to the Article 9 prohibition. Furthermore, national laws may restrict data subject rights, though these restrictions should apply only as is strictly necessary.

In the context of transfers to countries outside the European Economic Area that have not been deemed adequate by the European Commission, the Guidelines note that the “public interest” derogation to the general prohibition on such transfers may be relied on, as well as explicit consent. The Guidelines add, however, that these derogations should only be relied on as a temporary measure and not for repetitive transfers.

The Guidelines highlight the importance of complying with the GDPR’s data protection principles, particularly with respect to transparency. Ideally, notice of processing as part of a research project should be provided to the relevant data subject before the project commences, if data has not been collected directly from the individual, in order to allow the individual to exercise their rights under the GDPR. There may be instances where, considering the number of data subjects, the age of the data and the safeguards in place, it would be impossible or require disproportionate effort to provide notice, in which case researchers may be able to rely on the exemptions set out under Article 14 of the GDPR.

The Guidelines also highlight that processing for scientific purposes is generally not considered incompatible with the purposes for which data is originally collected, assuming that the principles of data minimization, integrity, confidentiality and data protection by design and by default are complied with (See Guidelines)”.

Mobile applications to support contact tracing in the EU’s fight against COVID-19


Common EU Toolbox for Member States by eHealth Network: “Mobile apps have potential to bolster contact tracing strategies to contain and reverse the spread of COVID-19. EU Member States are converging towards effective app solutions that minimise the processing of personal data, and recognise that interoperability between these apps can support public health authorities and support the reopening of the EU’s internal borders.

This first iteration of a common EU toolbox, developed urgently and collaboratively by the e-Health Network with the support of the European Commission, provides a practical guide for Member States. The common approach aims to exploit the latest privacy-enhancing technological solutions that enable at-risk individuals to be contacted and, if necessarily, to be tested as quickly as possible, regardless of where she is and the app she is using. It explains the essential requirements for national apps, namely that they be:

  • voluntary;
  • approved by the national health authority;
  • privacy-preserving – personal data is securely encrypted; and
  • dismantled as soon as no longer needed.

The added value of these apps is that they can record contacts that a person may not notice or remember. These requirements on how to record contacts and notify individuals are anchored in accepted epidemiological guidance, and reflect best practice on cybersecurity, and accessibility. They cover how to prevent the appearance of potentially harmful unapproved apps, success criteria and collectively monitoring the effectiveness of the apps, and the outline of a communications strategy to engage with stakeholders and the people affected by these initiatives.

Work will continue urgently to develop further and implement the toolbox, as set out in the Commission Recommendation of 8 April, including addressing other types of apps and the use of mobility data for modelling to understand the spread of the disease and exit from the crisis….(More)”.

From insight network to open policy practice: practical experiences


Paper by Jouni T. Tuomisto, Mikko V. Pohjola & Teemu J. Rintala: “Evidence-informed decision-making and better use of scientific information in societal decisions has been an area of development for decades but is still topical. Decision support work can be viewed from the perspective of information collection, synthesis and flow between decision-makers, experts and stakeholders. Open policy practice is a coherent set of methods for such work. It has been developed and utilised mostly in Finnish and European contexts.

The evaluation revealed that methods and online tools work as expected, as demonstrated by the assessments and policy support processes conducted. The approach improves the availability of information and especially of relevant details. Experts are ambivalent about the acceptability of openness – it is an important scientific principle, but it goes against many current research and decision-making practices. However, co-creation and openness are megatrends that are changing science, decision-making and the society at large. Against many experts’ fears, open participation has not caused problems in performing high-quality assessments. On the contrary, a key challenge is to motivate and help more experts, decision-makers and citizens to participate and share their views. Many methods within open policy practice have also been widely used in other contexts.

Open policy practice proved to be a useful and coherent set of methods. It guided policy processes toward a more collaborative approach, whose purpose was wider understanding rather than winning a debate. There is potential for merging open policy practice with other open science and open decision process tools. Active facilitation, community building and improving the user-friendliness of the tools were identified as key solutions for improving the usability of the method in the future….(More)”.

The significance of algorithmic selection for everyday life: The Case of Switzerland


University of Zurich: “This project empirically investigates the significance of automated algorithmic selection (AS) applications on the Internet for everyday life in Switzerland. It is the first countrywide, representative empirical study in the emerging interdisciplinary field of critical algorithm studies which assesses growing social, economic and political implications of algorithms in various life domains. The project is based on an innovative mix of methods comprising qualitative interviews and a representative Swiss online survey, combined with a passive metering (tracking) of Internet use.

  • Latzer, Michael / Festic, Noemi / Kappeler, Kiran (2020): Use and Assigned Relevance of Algorithmic-Selection Applications in Switzerland. Report 1 from the Project: The Significance of Algorithmic Selection for Everyday Life: The Case of Switzerland. Zurich: University of Zurich. http://mediachange.ch/research/algosig [forthcoming]
  • Latzer, Michael / Festic, Noemi / Kappeler, Kiran (2020): Awareness of Algorithmic Selection and Attitudes in Switzerland. Report 2 from the Project: The Significance of Algorithmic Selection for Everyday Life: The Case of Switzerland. Zurich: University of Zurich. http://mediachange.ch/research/algosig [forthcoming]
  • Latzer, Michael / Festic, Noemi / Kappeler, Kiran (2020): Awareness of Risks Related to Algorithmic Selection in Switzerland. Report 3 from the Project: The Significance of Algorithmic Selection for Everyday Life: The Case of Switzerland. Zurich: University of Zurich. http://mediachange.ch/research/algosig [forthcoming]
  • Latzer, Michael / Festic, Noemi / Kappeler, Kiran (2020): Coping Practices Related to Algorithmic Selection in Switzerland. Report 4 from the Project: The Significance of Algorithmic Selection for Everyday Life: The Case of Switzerland. Zurich: University of Zurich. http://mediachange.ch/research/algosig [forthcoming]…(More)”.

Experts warn of privacy risk as US uses GPS to fight coronavirus spread


Alex Hern at The Guardian: “A transatlantic divide on how to use location data to fight coronavirus risks highlights the lack of safeguards for Americans’ personal data, academics and data scientists have warned.

The US Centers for Disease Control and Prevention (CDC) has turned to data provided by the mobile advertising industry to analyse population movements in the midst of the pandemic.

Owing to a lack of systematic privacy protections in the US, data collected by advertising companies is often extremely detailed: companies with access to GPS location data, such as weather apps or some e-commerce sites, have been known to sell that data on for ad targeting purposes. That data provides much more granular information on the location and movement of individuals than the mobile network data received by the UK government from carriers including O2 and BT.

While both datasets track individuals at the collection level, GPS data is accurate to within five metres, according to Yves-Alexandre de Montjoye, a data scientist at Imperial College, while mobile network data is accurate to 0.1km² in city centres and much less in less dense areas – the difference between locating an individual to their street and to a specific room in their home…

But, warns de Montjoye, such data is never truly anonymous. “The original data is pseudonymised, yet it is quite easy to reidentify someone. Knowing where someone was is enough to reidentify them 95% of the time, using mobile phone data. So there’s the privacy concern: you need to process the pseudonymised data, but the pseudonymised data can be reidentified. Most of the time, if done properly, the aggregates are aggregated, and cannot be de-anonymised.”

The data scientist points to successful attempts to use location data in tracking outbreaks of malaria in Kenya or dengue in Pakistan as proof that location data has use in these situations, but warns that trust will be hurt if data collected for modelling purposes is then “surreptitiously used to crack down on individuals not respecting quarantines or kept and used for unrelated purposes”….(More)”.

Data Protection under SARS-CoV-2


GDPR Hub: “The sudden outbreak of cases of COVID-19-afflictions (“Corona-Virus”), which was declared a pandemic by the WHO affects data protection in various ways. Different data protection authorities published guidelines for employers and other parties involved in the processing of data related to the Corona-Virus (read more below).

The Corona-Virus has also given cause to the use of different technologies based on data collection and other data processing activities by the EU/EEA member states and private companies. These processing activities mostly focus on preventing and slowing the further spreading of the Corona-Virus and on monitoring the citizens’ abidance with governmental measures such as quarantine. Some of them are based on anonymous or anonymized data (like for statistics or movement patterns), but some proposals also revolved around personalized tracking.

At the moment, it is not easy to figure out, which processing activities are actually supposed to be conducted and which are only rumors. This page will therefore be adapted once certain processing activities have been confirmed. For now, this article does not assess the lawfulness of particular processing activities, but rather outlines the general conditions for data processing in connection with the Corona-Virus.

It must be noted that several activities – such as monitoring, if citizens comply with quarantine and stay indoors by watching at mobile phone locations – can be done without having to use personal data under Article 4(1) GDPR, if all necessary information can be derived from anonymised data. The GDPR does not apply to activities that only rely on anonymised data….(More)”.

Deliberative Mini-Publics as a Response to Populist Democratic Backsliding


Chapter by Oran Doyle and Rachael Walsh: “Populisms come in different forms, but all involve a political rhetoric that invokes the will of a unitary people to combat perceived constraints, whether economic, legal, or technocratic. In this chapter, our focus is democratic backsliding aided by populist rhetoric. Some have suggested deliberative democracy as a means to combat this form of populism. Deliberative democracy encourages and facilitates both consultation and contestation, emphasizing plurality of voices, the legitimacy of disagreement, and the imperative of reasoned persuasion. Its participatory and inclusive character has the potential to undermine the credibility of populists’ claims to speak for a unitary people. Ireland has been widely referenced in constitutionalism’s deliberative turn, given its recent integration of deliberative mini-publics into the constitutional amendment process.

Reviewing the Irish experience, we suggest that deliberative mini-publics are unlikely to reverse democratic backsliding. Populist rhetoric is fueled by the very measures intended to combat democratic backsliding: enhanced constitutional constraints merely illustrate how the will of the people is being thwarted. The virtues of Ireland’s experiment in deliberative democracy — citizen participation, integration with representative democracy, deliberation, balanced information, expertise — have all been criticized in ways that are at least consistent with populist narratives. The failure of such narratives to take hold in Ireland, we suggest, may be due to a political system that is already resistant to populist rhetoric, as well as a tradition of participatory constitutionalism. The experiment with deliberative mini-publics may have strengthened Ireland’s constitutional culture by reinforcing anti-populist features. But it cannot be assumed that this experience would be replicated in larger countries polarized along political, ethnic, or religious lines….(More)”.