Abandoned: the human cost of neurotechnology failure

Curated on Posted on by Stefaan Verhulst

Article by Liam Drew: “…Hundreds of thousands of people benefit from implanted neurotechnology every day. Among the most common devices are spinal-cord stimulators, first commercialized in 1968, that help to ease chronic pain. Cochlear implants that provide a sense of hearing, and deep-brain stimulation (DBS) systems that quell the debilitating tremor of Parkinson’s disease, are also established therapies.

Encouraged by these successes, and buoyed by advances in computing and engineering, researchers are trying to develop evermore sophisticated devices for numerous other neurological and psychiatric conditions. Rather than simply stimulating the brain, spinal cord or peripheral nerves, some devices now monitor and respond to neural activity.

For example, in 2013, the US Food and Drug Administration approved a closed-loop system for people with epilepsy. The device detects signs of neural activity that could indicate a seizure and stimulates the brain to suppress it. Some researchers are aiming to treat depression by creating analogous devices that can track signals related to mood. And systems that allow people who have quadriplegia to control computers and prosthetic limbs using only their thoughts are also in development and attracting substantial funding.

The market for neurotechnology is predicted to expand by around 75% by 2026, to US$17.1 billion. But as commercial investment grows, so too do the instances of neurotechnology companies giving up on products or going out of business, abandoning the people who have come to depend on their devices.

Shortly after the demise of ATI, a company called Nuvectra, which was based in Plano, Texas, filed for bankruptcy in 2019. Its device — a new kind of spinal-cord stimulator for chronic pain — had been implanted in at least 3,000 people. In 2020, artificial-vision company Second Sight, in Sylmar, California, laid off most of its workforce, ending support for the 350 or so people who were using its much heralded retinal implant to see. And in June, another manufacturer of spinal-cord stimulators — Stimwave in Pompano Beach, Florida — filed for bankruptcy. The firm has been bought by a credit-management company and is now embroiled in a legal battle with its former chief executive. Thousands of people with the stimulator, and their physicians, are watching on in the hope that the company will continue to operate.

When the makers of implanted devices go under, the implants themselves are typically left in place — surgery to remove them is often too expensive or risky, or simply deemed unnecessary. But without ongoing technical support from the manufacturer, it is only a matter of time before the programming needs to be adjusted or a snagged wire or depleted battery renders the implant unusable.

People are then left searching for another way to manage their condition, but with the added difficulty of a non-functional implant that can be an obstacle both to medical imaging and future implants. For some people, including Möllmann-Bohle, no clear alternative exists.

“It’s a systemic problem,” says Jennifer French, executive director of Neurotech Network, a patient advocacy and support organization in St. Petersburg, Florida. “It goes all the way back to clinical trials, and I don’t think it’s received enough attention.”…(More)”.

Beyond Measure: The Hidden History of Measurement from Cubits to Quantum Constants

Curated on Posted on by Stefaan Verhulst

Book by James Vincent: “From the cubit to the kilogram, the humble inch to the speed of light, measurement is a powerful tool that humans invented to make sense of the world. In this revelatory work of science and social history, James Vincent dives into its hidden world, taking readers from ancient Egypt, where measuring the annual depth of the Nile was an essential task, to the intellectual origins of the metric system in the French Revolution, and from the surprisingly animated rivalry between metric and imperial, to our current age of the “quantified self.” At every turn, Vincent is keenly attuned to the political consequences of measurement, exploring how it has also been used as a tool for oppression and control.

Beyond Measure reveals how measurement is not only deeply entwined with our experience of the world, but also how its history encompasses and shapes the human quest for knowledge…(More)”.

Citizen assemblies and the challenges of democratic equality

Curated on Posted on by Stefaan Verhulst

Article by Annabelle Lever: “…Creating a citizens’ assembly that truly reflects society as a whole isn’t so simple, however. In particular, only a very small percentage of those invited to participate actually agree to do so. According to a 2017 study published European Journal of Political Research, the precise percentage depends on how large, complex and time-consuming the process is likely to be. It ranges from 4% for larger, more onerous assemblies to 30% in a couple of exceptional cases, and averaging out at 15% across all countries and all forms of assembly. As a consequence, the formal equality of opportunity that unweighted lotteries promise tends to result in assemblies skewed to the socially advantaged, the partisan, and those most confident in their practical and cognitive abilities, whatever the reality.

To create an assembly that is more descriptively representative of the population – or one that looks more like us – several approaches are used. One is to have an initial phase of unweighted selection followed by a second phase that uses weighted lotteries. Another is to use stratified sampling or forms of stratification from the beginning.

For the Climate Assembly UK, organisers sent out 20% of its 30,000 letters of invitation to people randomly selected from the lowest-income postcodes, and then used random stratified sampling by computer to select 110 participants from all the people who were over 16 and free on the relevant dates.

Because citizen assemblies are very small compared to the population as a whole – France’s Convention for the Climate was made up of just 150 people – the descriptively representative character of the assembly can occur on only a few dimensions. Organisers must therefore decide what population characteristics the assembly should embody and in what proportion. Randomisation thus does not preclude difficult moral, political and scientific choices about the assembly to be constructed, any more than it precludes voluntariness or self-selection…(More)”.

How to think about policy in a polycrisis

Curated on Posted on by Stefaan Verhulst

Article by Martin Wolf: “Welcome to the “polycrisis” — a world in which, as historian Adam Tooze says, “economic and non-economic shocks” are entangled “all the way down”. We have an inflation shock that emanates from the disruptions caused by a pandemic, the policy responses to that pandemic and an energy shock caused by a war. That war in turn is related to the breakdown in relations among great powers. Slow growth, rising inequality and over-reliance on credit have undermined political stability in many high-income democracies. The credit boom led to a great financial crisis whose outcome included a decade of ultra-low interest rates and so even more financial fragility worldwide. Adding to these stresses is the threat of climate change.

It is indeed convenient to think about the world in intellectual silos, focusing in turn on macroeconomics, finance, politics, social change, politics, disease and the environment, to the exclusion of the others. In a reasonably stable world, this may even work well. The alternative of thinking about the interactions among these aspects of experience is also too hard. But sometimes, as now, it becomes inescapable.

It is not just theoretically true that everything depends on everything else. It is a truth we can no longer ignore in practice. As my colleague Gillian Tett often warns, silos are perilous. We have to think systemically. Economists have to recognise how the economy is interconnected with other forces. Navigating today’s storms compels us to develop a wider understanding.

This is not an argument against detailed analysis of individual elements in the picture. Economists should still look carefully at the things they know about, because they are both complex and important in themselves. Thus the data and analysis in the OECD’s latest Economic Outlook continue to be both invaluable and illuminating. But, inevitably, they also omit vital aspects….(More)”.

Smart city planning must work for both private business and public citizens

Curated on Posted on by Stefaan Verhulst

Article by Neil Britto; Suparno Banerjee and Constanza Movsichoff: “The challenges associated with the design, development and maintenance of digital urban infrastructure are substantial and have to balance the needs and incentives of both public and private stakeholders. While proofs of concepts and test-beds have been tried and are often successful, scaling these to city scale has been challenging for a number of reasons:

  • Scope. There is too often a focus on solutions that address narrow aspects of the city’s needs.
  • Capital requirements. Many cities do not have adequate capital for deploying solutions at scale and might struggle to attract investment from the private sector.
  • Procurement. Procurement models favor vendor-buyer relationships as opposed to multi-year, multi-enterprise, complex partnerships.
  • Time scales. Some of the most pressing challenges that cities face will need multiple years to address. These complex journeys need partnerships that can withstand the pressures of time, budgets and expectations.
  • Data. A nuanced understanding of public concern over data sourcing and use can be critical for a successful public-private collaboration. These dynamics contribute to the unique challenges and opportunities for smart city public-private collaborations that range from intelligent street lighting to broadband access.

In recognition of these challenges, the World Economic Forum’s G20 Global Smart Cities Alliance assembled a taskforce to look for best practices and model policies in the area of public-private collaborations in 2021. That taskforce, comprised of experts and officers from cities, companies and institutions deeply involved in smart city projects, compiled case studies, insights and feedback from across the sector. As members of that taskforce, we are happy to provide a distillation of these resources in the form of our new Primer for Smart City Public Private Collaborations…(More)”.

Science in Negotiation

Curated on Posted on by Stefaan Verhulst

Book by Jessica Espey on “The Role of Scientific Evidence in Shaping the United Nations Sustainable Development Goals, 2012-2015”: “This book explores the role of scientific evidence within United Nations (UN) deliberation by examining the negotiation of the Sustainable Development Goals (SDGs), endorsed by Member States in 2015. Using the SDGs as a case study, this book addresses a key gap in our understanding of the role of evidence in contemporary international policy-making. It is structured around three overarching questions: (1) how does scientific evidence influence multilateral policy development within the UN General Assembly? (2) how did evidence shape the goals and targets that constitute the SDGs?; and (3) how did institutional arrangements and non-state actor engagements mediate the evidence-to-policy process in the development of the SDGs? The ultimate intention is to tease out lessons on global policy-making and to understand the influence of different evidence inputs and institutional factors in shaping outcomes.

To understand the value afforded to scientific evidence within multilateral deliberation, a conceptual framework is provided drawing upon literature from policy studies and political science, including recent theories of evidence-informed policy-making and new institutionalism. It posits that the success or failure of evidence informing global political processes rests upon the representation and access of scientific stakeholders, levels of community organisation, the framing and presentation of evidence, and time, including the duration over which evidence and key conceptual ideas are presented. Cutting across the discussion is the fundamental question of whose evidence counts and how expertise is defined? The framework is tested with specific reference to three themes that were prominent during the SDG negotiation process; public health (articulated in SDG 3), urban sustainability (articulated in SDG 11), and data and information systems (which were a cross-cutting theme of the dialogue). Within each, scientific communities had specific demands and through an exploration of key literature, including evidence inputs and UN documentation, as well as through key informant interviews, the translation of these scientific ideas into policy priorities is uncovered…(More)”.

Operationalizing Digital Self Determination

Curated on Posted on by Stefaan Verhulst

Paper by Stefaan G. Verhulst: “We live in an era of datafication, one in which life is increasingly quantified and transformed into intelligence for private or public benefit. When used responsibly, this offers new opportunities for public good. However, three key forms of asymmetry currently limit this potential, especially for already vulnerable and marginalized groups: data asymmetries, information asymmetries, and agency asymmetries. These asymmetries limit human potential, both in a practical and psychological sense, leading to feelings of disempowerment and eroding public trust in technology. Existing methods to limit asymmetries (e.g., consent) as well as some alternatives under consideration (data ownership, collective ownership, personal information management systems) have limitations to adequately address the challenges at hand. A new principle and practice of digital self-determination (DSD) is therefore required.
DSD is based on existing concepts of self-determination, as articulated in sources as varied as Kantian philosophy and the 1966 International Covenant on Economic, Social and Cultural Rights. Updated for the digital age, DSD contains several key characteristics, including the fact that it has both an individual and collective dimension; is designed to especially benefit vulnerable and marginalized groups; and is context-specific (yet also enforceable). Operationalizing DSD in this (and other) contexts so as to maximize the potential of data while limiting its harms requires a number of steps. In particular, a responsible operationalization of DSD would consider four key prongs or categories of action: processes, people and organizations, policies, and products and technologies…(More)”.

Reconceptualizing Democratic Innovation

Curated on Posted on by Stefaan Verhulst

Paper by Cristina Flesher Fominaya: “Democratic innovation is one way the multiple crises of democracy can be addressed. The literature on democratic innovation has yet to adequately interrogate the role of social movements, and more specifically the movement of democratic imaginaries, in innovation, nor has it considered the specific mechanisms through which movements translate democratic imaginaries and practices into innovation. This article provides a preliminary roadmap for methodological and conceptual innovation in our understanding of the role of social movements in democratic innovation. It introduces the concept of democratic innovation repertoires and argues that: a) we need to broaden our conceptualization and analysis of democratic innovation to encompass the role of social movements; and b) we need to understand how the relationship between democratic movement imaginaries and the praxis that movements develop in their quest to “save” or strengthen democracy can shape democratic innovation beyond movement arenas after mobilizing “events” have passed…(More)”.

Critical Ignoring as a Core Competence for Digital Citizens

Curated on Posted on by Stefaan Verhulst

Paper by Anastasia Kozyreva, et al: “Low-quality and misleading information online can hijack people’s attention, often by evoking curiosity, outrage, or anger. Resisting certain types of information and actors online requires people to adopt new mental habits that help them avoid being tempted by attention-grabbing and potentially harmful content. We argue that digital information literacy must include the competence of critical ignoring—choosing what to ignore and where to invest one’s limited attentional capacities. We review three types of cognitive strategies for implementing critical ignoring: self-nudging, in which one ignores temptations by removing them from one’s digital environments; lateral reading, in which one vets information by leaving the source and verifying its credibility elsewhere online; and the do-not-feed-the-trolls heuristic, which advises one to not reward malicious actors with attention. We argue that these strategies implementing critical ignoring should be part of school curricula on digital information literacy. Teaching the competence of critical ignoring requires a paradigm shift in educators’ thinking, from a sole focus on the power and promise of paying close attention to an additional emphasis on the power of ignoring. Encouraging students and other online users to embrace critical ignoring can empower them to shield themselves from the excesses, traps, and information disorders of today’s attention economy…(More)”.

The Ethics of Automated Warfare and Artificial Intelligence

Curated on Posted on by Stefaan Verhulst

Essay series introduced by Bessma Momani, Aaron Shull and Jean-François Bélanger: “…begins with a piece written by Alex Wilner titled “AI and the Future of Deterrence: Promises and Pitfalls.” Wilner looks at the issue of deterrence and provides an account of the various ways AI may impact our understanding and framing of deterrence theory and its practice in the coming decades. He discusses how different countries have expressed diverging views over the degree of AI autonomy that should be permitted in a conflict situation — as those more willing to cut humans out of the decision-making loop could gain a strategic advantage. Wilner’s essay emphasizes that differences in states’ technological capability are large, and this will hinder interoperability among allies, while diverging views on regulation and ethical standards make global governance efforts even more challenging.

Looking to the future of non-state use of drones as an example, the weapon technology transfer from nation-state to non-state actors can help us to understand how next-generation technologies may also slip into the hands of unsavoury characters such as terrorists, criminal gangs or militant groups. The effectiveness of Ukrainian drone strikes against the much larger Russian army should serve as a warning to Western militaries, suggests James Rogers in his essay “The Third Drone Age: Visions Out to 2040.” This is a technology that can level the field by asymmetrically advantaging conventionally weaker forces. The increased diffusion of drone technology enhances the likelihood that future wars will also be drone wars, whether these drones are autonomous systems or not. This technology, in the hands of non-state actors, implies future Western missions against, say, insurgent or guerilla forces will be more difficult.

Data is the fuel that powers AI and the broader digital transformation of war. In her essay “Civilian Data in Cyber Conflict: Legal and Geostrategic Considerations,” Eleonore Pauwels discusses how offensive cyber operations are aiming to alter the very data sets of other actors to undermine adversaries — whether through targeting centralized biometric facilities or individuals’ DNA sequence in genomic analysis databases, or injecting fallacious data into satellite imagery used in situational awareness. Drawing on the implications of international humanitarian law, Pauwels argues that adversarial data manipulation constitutes another form of “grey zone” operation that falls below a threshold of armed conflict. She evaluates the challenges associated with adversarial data manipulation, given that there is no internationally agreed upon definition of what constitutes cyberattacks or cyber hostilities within international humanitarian law (IHL).

In “AI and the Actual International Humanitarian Law Accountability Gap,” Rebecca Crootoff argues that technologies can complicate legal analysis by introducing geographic, temporal and agency distance between a human’s decision and its effects. This makes it more difficult to hold an individual or state accountable for unlawful harmful acts. But in addition to this added complexity surrounding legal accountability, novel military technologies are bringing an existing accountability gap in IHL into sharper focus: the relative lack of legal accountability for unintended civilian harm. These unintentional acts can be catastrophic, but technically within the confines of international law, which highlights the need for new accountability mechanisms to better protect civilians.

Some assert that the deployment of autonomous weapon systems can strengthen compliance with IHL by limiting the kinetic devastation of collateral damage, but AI’s fragility and apparent capacity to behave in unexpected ways poses new and unexpected risks. In “Autonomous Weapons: The False Promise of Civilian Protection,” Branka Marijan opines that AI will likely not surpass human judgment for many decades, if ever, suggesting that there need to be regulations mandating a certain level of human control over weapon systems. The export of weapon systems to states willing to deploy them on a looser chain-of-command leash should be monitored…(More)”.