Covid-19 Changed How the World Does Science, Together

Curated on Posted on by Stefaan Verhulst

Matt Apuzzo and David D. Kirkpatrick at The New York Times: “…Normal imperatives like academic credit have been set aside. Online repositories make studies available months ahead of journals. Researchers have identified and shared hundreds of viral genome sequences. More than 200 clinical trials have been launched, bringing together hospitals and laboratories around the globe.

“I never hear scientists — true scientists, good quality scientists — speak in terms of nationality,” said Dr. Francesco Perrone, who is leading a coronavirus clinical trial in Italy. “My nation, your nation. My language, your language. My geographic location, your geographic location. This is something that is really distant from true top-level scientists.”

On a recent morning, for example, scientists at the University of Pittsburgh discovered that a ferret exposed to Covid-19 particles had developed a high fever — a potential advance toward animal vaccine testing. Under ordinary circumstances, they would have started work on an academic journal article.

“But you know what? There is going to be plenty of time to get papers published,” said Paul Duprex, a virologist leading the university’s vaccine research. Within two hours, he said, he had shared the findings with scientists around the world on a World Health Organization conference call. “It is pretty cool, right? You cut the crap, for lack of a better word, and you get to be part of a global enterprise.”…

Several scientists said the closest comparison to this moment might be the height of the AIDS epidemic in the 1990s, when scientists and doctors locked arms to combat the disease. But today’s technology and the pace of information-sharing dwarfs what was possible three decades ago.

As a practical matter, medical scientists today have little choice but to study the coronavirus if they want to work at all. Most other laboratory research has been put on hold because of social distancing, lockdowns or work-from-home restrictions.

The pandemic is also eroding the secrecy that pervades academic medical research, said Dr. Ryan Carroll, a Harvard Medical professor who is involved in the coronavirus trial there. Big, exclusive research can lead to grants, promotions and tenure, so scientists often work in secret, suspiciously hoarding data from potential competitors, he said.

“The ability to work collaboratively, setting aside your personal academic progress, is occurring right now because it’s a matter of survival,” he said….(More)”.

Data & Policy

Curated on Posted on by Stefaan Verhulst

“Data & Policy, an open-access journal exploring the potential of data science for governance and public decision-making, published its first cluster of peer-reviewed articles last week.

The articles include three contributions specifically concerned with data protection by design:

·       Gefion Theurmer and colleagues (University of Southampton) distinguish between data trusts and other data sharing mechanisms and discuss the need for workflows with data protection at their core;

·       Swee Leng Harris (King’s College London) explores Data Protection Impact Assessments as a framework for helping us know whether government use of data is legal, transparent and upholds human rights;

·       Giorgia Bincoletto’s (University of Bologna) study investigates data protection concerns arising from cross-border interoperability of Electronic Health Record systems in the European Union;

Also published, research by Jacqueline Lam and colleagues (University of Cambridge; Hong Kong University) on how fine-grained data from satellites and other sources can help us understand environmental inequality and socio-economic disparities in China, and this also reflects upon the importance of safeguarding data privacy and security. See also the blogs this week on the potential of Data Collaboratives for COVID-19 by Editor-in-Chief Stefaan Verhulst (the GovLab) and how COVID-19 exposes a widening data divide for the Global South, by Stefania Milan (University of Amsterdam) and Emiliano Treré (University of Cardiff).

Data & Policy is an open access, peer-reviewed venue for contributions that consider how systems of policy and data relate to one another. Read the 5 ways you can contribute to Data & Policy and contact [email protected] with any questions….(More)”.

Citizen input matters in the fight against COVID-19

Curated on Posted on by Stefaan Verhulst

Britt Lake at FeedbackLabs: “When the Ebola crisis hit West Africa in 2015, one of the first responses was to build large field hospitals to treat the rapidly growing number of Ebola patients. As Paul Richards explains, “These were seen as the safest option. But they were shunned by families, because so few patients came out alive.” Aid workers vocally opposed local customs like burial rituals that contributed to the spread of the virus, which caused tension with communities. Ebola-affected communities insisted that some of their methods had proven effective in lowering case numbers before outside help arrived. When government and aid agencies came in and delivered their own messages, locals felt that their expertise had been ignored. Distrust spread, as did a sense that the response pitted local knowledge against global experts. And the virus continued to spread. 

The same is true now. Today there are more than 1 million confirmed cases of COVID-19 worldwide. The virus has spread to every country and territory in the world, leaving virtually no one unaffected. The pandemic is exacerbating inequities in employment, education, access to healthcare and food, and workers’ rights even as it raises new challenges. Everyone is looking for answers to address their needs and anxieties while also collectively realizing that this pandemic and our responses to it will irrevocably shape the future.

It would be easy for us in the public sector to turn inwards for solutions on how to respond effectively to the pandemic and its aftermath. It’s comfortable to focus on perspectives from our own teams when we feel a heightened sense of urgency, and decisions must be made on a dime. However, it would be a mistake not to consider input from the communities we serve – alongside expert knowledge – when determining how we support them through this crisis. 

COVID-19 affects everyone on earth, and it won’t be possible to craft equitable responses that meet people’s needs around the globe unless we listen to what would work best to address those challenges and support homegrown solutions that are already working. Effective communication of public health information, for instance, is central to controlling the spread of COVID-19. By listening to communities, we can better understand what communication methods work for them and can do a better job getting those messages across in a way that resonates with diverse communities. And to face the looming economic crisis that COVID-19 is precipitating, we will need to engage in real dialogue with people about their priorities and the way they want to see society rebuilt….(More)”.

The Concept of Function Creep

Curated on Posted on by Stefaan Verhulst

Paper by Bert-Jaap Koops: “Function creep – the expansion of a system or technology beyond its original purposes – is a well-known phenomenon in STS, technology regulation, and surveillance studies. Correction: it is a well-referenced phenomenon. Yearly, hundreds of publications use the term to criticise developments in technology regulation and data governance. But why function creep is problematic, and why authors call system expansion ‘function creep’ rather than ‘innovation’, is underresearched. If the core problem is unknown, we can hardly identify suitable responses; therefore, we first need to understand what the concept actually refers to.

Surprisingly, no-one has ever written a paper about the concept itself. This paper fills that gap in the literature, by analysing and defining ‘function creep’. This creates conceptual clarity that can help structure future debates and address function creep concerns. First, I analyse what ‘function creep’ refers to, through semiotic analysis of the term and its role in discourse. Second, I discuss concepts that share family resemblances, including other ‘creep’ concepts and many theoretical notions from STS, economics, sociology, public policy, law, and discourse theory. Function creep can be situated in the nexus of reverse adaptation and self-augmentation of technology, incrementalism and disruption in policy and innovation, policy spillovers, ratchet effects, transformative use, and slippery slope argumentation.

Based on this, function creep can be defined as *an imperceptibly transformative and therewith contestable change in a data-processing system’s proper activity*. What distinguishes function creep from innovation is that it denotes some qualitative change in functionality that causes concern not only because of the change itself, but also because the change is insufficiently acknowledged as transformative and therefore requiring discussion. Argumentation theory illuminates how the pejorative ‘function creep’ functions in debates: it makes visible that what looks like linear change is actually non-linear, and simultaneously calls for much-needed debate about this qualitative change…(More)”.

Birth of Intelligence: From RNA to Artificial Intelligence

Curated on Posted on by Stefaan Verhulst

Book by Daeyeol Lee: “What is intelligence? How did it begin and evolve to human intelligence? Does a high level of biological intelligence require a complex brain? Can man-made machines be truly intelligent? Is AI fundamentally different from human intelligence? In Birth of Intelligence, distinguished neuroscientist Daeyeol Lee tackles these pressing fundamental issues. To better prepare for future society and its technology, including how the use of AI will impact our lives, it is essential to understand the biological root and limits of human intelligence. After systematically reviewing biological and computational underpinnings of decision making and intelligent behaviors, Birth of Intelligence proposes that true intelligence requires life…(More)”.

The potential of Data Collaboratives for COVID19

Curated on Posted on by Stefaan Verhulst

Blog post by Stefaan Verhulst: “We live in almost unimaginable times. The spread of COVID-19 is a human tragedy and global crisis that will impact our communities for many years to come. The social and economic costs are huge and mounting, and they are already contributing to a global slowdown. Every day, the emerging pandemic reveals new vulnerabilities in various aspects of our economic, political and social lives. These include our vastly overstretched public health services, our dysfunctional political climate, and our fragile global supply chains and financial markets.

The unfolding crisis is also making shortcomings clear in another area: the way we re-use data responsibly. Although this aspect of the crisis has been less remarked upon than other, more obvious failures, those who work with data—and who have seen its potential to impact the public good—understand that we have failed to create the necessary governance and institutional structures that would allow us to harness data responsibly to halt or at least limit this pandemic. A recent article in Stat, an online journal dedicated to health news, characterized the COVID-19 outbreak as “a once-in-a-century evidence fiasco.” The article continues: 

“At a time when everyone needs better information, […] we lack reliable evidence on how many people have been infected with SARS-CoV-2 or who continue to become infected. Better information is needed to guide decisions and actions of monumental significance and to monitor their impact.” 

It doesn’t have to be this way, and these data challenges are not an excuse for inaction. As we explain in what follows, there is ample evidence that the re-use of data can help mitigate health pandemics. A robust (if somewhat unsystematized) body of knowledge could direct policymakers and others in their efforts. In the second part of this article, we outline eight steps that key stakeholders can and should take to better re-use data in the fight against COVID-19. In particular, we argue that more responsible data stewardship and increased use of data collaboratives are critical….(More)”. 

Mobile phone data and COVID-19: Missing an opportunity?

Curated on Posted on by Stefaan Verhulst

Paper by Nuria Oliver, et al: “This paper describes how mobile phone data can guide government and public health authorities in determining the best course of action to control the COVID-19 pandemic and in assessing the effectiveness of control measures such as physical distancing. It identifies key gaps and reasons why this kind of data is only scarcely used, although their value in similar epidemics has proven in a number of use cases. It presents ways to overcome these gaps and key recommendations for urgent action, most notably the establishment of mixed expert groups on national and regional level, and the inclusion and support of governments and public authorities early on. It is authored by a group of experienced data scientists, epidemiologists, demographers and representatives of mobile network operators who jointly put their work at the service of the global effort to combat the COVID-19 pandemic….(More)”.

Urgently Needed for Policy Guidance: An Operational Tool for Monitoring the COVID-19 Pandemic

Curated on Posted on by Stefaan Verhulst

Paper by Stephane Luchini et al:” The radical uncertainty around the current COVID19 pandemics requires that governments around the world should be able to track in real time not only how the virus spreads but, most importantly, what policies are effective in keeping the spread of the disease under check. To improve the quality of health decision-making, we argue that it is necessary to monitor and compare acceleration/deceleration of confirmed cases over health policy responses, across countries. To do so, we provide a simple mathematical tool to estimate the convexity/concavity of trends in epidemiological surveillance data. Had it been applied at the onset of the crisis, it would have offered more opportunities to measure the impact of the policies undertaken in different Asian countries, and to allow European and North-American governments to draw quicker lessons from these Asian experiences when making policy decisions. Our tool can be especially useful as the epidemic is currently extending to lower-income African and South American countries, some of which have weaker health systems….(More)”.

Coronavirus Innovation Map

Curated on Posted on by Stefaan Verhulst

“The Coronavirus Innovation Map is a platform of hundreds of innovations and solutions from around the world that help people cope and adapt to life amid the coronavirus pandemic, and to connect innovators.

The CoronaVirus Innovation Map is a visualized global database that is mapping the innovations related to tackling coronavirus in various fields such as diagnostics, treatment, lifestyle changes, etc., on a geographical scale….

Our goal with the Coronavirus Innovation Map is to build a crowdsourced resource that maps hundreds of innovations and solutions globally that help people cope and adapt to life amid the coronavirus, and to connect innovators.

This platform is a database for innovators to know who the other players are and where the projects or startups are located allowing them to connect and create solutions in this field. Policymakers will also be able to efficiently look for viable solutions in one place.

You may use the map to browse initiatives in specific locations (type a city or country in the search box), or choose a category wherein you would like to find a solution….(More)”

Doctors Turn to Social Media to Develop Covid-19 Treatments in Real Time

Curated on Posted on by Stefaan Verhulst

Michael Smith and Michelle Fay Cortez at Bloomberg: “There is a classic process for treating respiratory problems: First, give the patient an oxygen mask, or slide a small tube into the nose to provide an extra jolt of oxygen. If that’s not enough, use a “Bi-Pap” machine, which pushes air into the lungs more forcefully. If that fails, move to a ventilator, which takes over the patient’s breathing.

But these procedures tend to fail With Covid-19 patients. Physicians found that by the time they reached that last step, it was often too late; the patient was already dying.

In past pandemics like the 2003 global SARS outbreak, doctors sought answers to such mysteries from colleagues in hospital lounges or maybe penned articles for medical journals. It could take weeks or months for news of a breakthrough to reach the broader community.

For Covid-19, a kind of medical hive mind is on the case. By the tens of thousands, doctors are joining specialized social media groups to develop answers in real time. One of them, a Facebook group called the PMG COVID19 Subgroup, has 30,000 members worldwide….

Doctors are trying to fill an information void online. Sabry, an emergency-room doctor in two hospitals outside Los Angeles, found that the 70,000-strong, Physician Moms Group she started five years ago on Facebook was so overwhelmed by coronavirus threads that she created the Covid-19 offshoot. So many doctors tried to join the new subgroup that Facebook’s click-to-join code broke. Some 10,000 doctors waited in line as the social media company’s engineers devised a fix.

She’s not alone. The topic also consumed two Facebook groups started by Dr. Nisha Mehta, a 38-year-old radiologist from Charlotte, North Carolina. The 54,000-member Physician Side Gigs, intended for business discussions, and an 11,000-person group called Physician Community for more general topics, are also all coronavirus, all the time, with thousands waiting to join…(More)”.