Secure app could enable people to vote from their smartphone

Curated on Posted on by Stefaan Verhulst

Springwise: “There has been a lot of talk about the outdated nature of voting infrastructures. Citizens can now shop, bank and date online, but are still required to visit a polling station in person to participate in democratic votes. Harvard start-up Voatz hopes to change that with their secure, global mobile voting and campaigning platform.

Voatz could enable members of the public to cast their vote, participate in opinion polls and make campaign donations from their smartphone during elections in the not too distant future. Voters would be required to undergo comprehensive identity verification and use a biometric-enabled smartphone in order to participate in the remote, electronic voting. Voatz hope the technology can help to make voting more simple and accessible using familiar technology…(More)”

The big medical data miss: challenges in establishing an open medical resource

Curated on Posted on by Stefaan Verhulst

Eric J. Topol in Nature: ” I call for an international open medical resource to provide a database for every individual’s genomic, metabolomic, microbiomic, epigenomic and clinical information. This resource is needed in order to facilitate genetic diagnoses and transform medical care.

“We are each, in effect, one-person clinical trials”

Laurie Becklund was a noted journalist who died in February 2015 at age 66 from breast cancer. Soon thereafter, the Los Angeles Times published her op-ed entitled “As I lay dying” (Ref. 1). She lamented, “We are each, in effect, one-person clinical trials. Yet the knowledge generated from those trials will die with us because there is no comprehensive database of metastatic breast cancer patients, their characteristics and what treatments did and didn’t help them”. She went on to assert that, in the era of big data, the lack of such a resource is “criminal”, and she is absolutely right….

Around the same time of this important op-ed, the MIT Technology Review published their issue entitled “10 Breakthrough Technologies 2015” and on the list was the “Internet of DNA” (Ref. 2). While we are often reminded that the world we live in is becoming the “Internet of Things”, I have not seen this terminology applied to DNA before. The article on the “Internet of DNA” decried, “the unfolding calamity in genomics is that a great deal of life-saving information, though already collected, is inaccessible”. It called for a global network of millions of genomes and cited theMatchmaker Exchange as a frontrunner. For this international initiative, a growing number of research and clinical teams have come together to pool and exchange phenotypic and genotypic data for individual patients with rare disorders, in order to share this information and assist in the molecular diagnosis of individuals with rare diseases….

an Internet of DNA — or what I have referred to as a massive, open, online medicine resource (MOOM) — would help to quickly identify the genetic cause of the disorder4 and, in the process of doing so, precious guidance for prevention, if necessary, would become available for such families who are currently left in the lurch as to their risk of suddenly dying.

So why aren’t such MOOMs being assembled? ….

There has also been much discussion related to privacy concerns that patients might be unwilling to participate in a massive medical information resource. However, multiple global consumer surveys have shown that more than 80% of individuals are ready to share their medical data provided that they are anonymized and their privacy maximally assured4. Indeed, just 24 hours into Apple’s ResearchKit initiative, a smartphone-based medical research programme, there were tens of thousand of patients with Parkinson disease, asthma or heart disease who had signed on. Some individuals are even willing to be “open source” — that is, to make their genetic and clinical data fully available with free access online, without any assurance of privacy. This willingness is seen by the participants in the recently launched Open Humans initiative. Along with the Personal Genome Project, Go Viral and American Gut have joined in this initiative. Still, studies suggest that most individuals would only agree to be medical research participants if their identities would not be attainable. Unfortunately, to date, little has been done to protect individual medical privacy, for which there are both promising new data protection technological approaches4 and the need for additional governmental legislation.

This leaves us with perhaps the major obstacle that is holding back the development of MOOMs — researchers. Even with big, team science research projects culling together hundreds of investigators and institutions throughout the world, such as the Global Alliance for Genomics and Health (GA4GH), the data obtained clinically are just as Laurie Becklund asserted in her op-ed — “one-person clinical trials” (Ref. 1). While undertaking the construction of a MOOM is a huge endeavour, there is little motivation for researchers to take on this task, as this currently offers no academic credit and has no funding source. But the transformative potential of MOOMs to improve medical care is extraordinary. Rather than having the knowledge die with each of us, the time has come to take down the walls of academic medical centres and health-care systems around the world, and create a global knowledge medical resource that leverages each individual’s information to help one another…(More)”

How Digital Transparency Became a Force of Nature

Curated on Posted on by Stefaan Verhulst

Daniel C. Dennett and Deb Roy in Scientific American: “More than half a billion years ago a spectacularly creative burst of biological innovation called the Cambrian explosion occurred. In a geologic “instant” of several million years, organisms developed strikingly new body shapes, new organs, and new predation strategies and defenses against them. Evolutionary biologists disagree about what triggered this prodigious wave of novelty, but a particularly compelling hypothesis, advanced by University of Oxford zoologist Andrew Parker, is that light was the trigger. Parker proposes that around 543 million years ago, the chemistry of the shallow oceans and the atmosphere suddenly changed to become much more transparent. At the time, all animal life was confined to the oceans, and as soon as the daylight flooded in, eyesight became the best trick in the sea. As eyes rapidly evolved, so did the behaviors and equipment that responded to them.

Whereas before all perception was proximal — by contact or by sensed differences in chemical concentration or pressure waves — now animals could identify and track things at a distance. Predators could home in on their prey; prey could see the predators coming and take evasive action. Locomotion is a slow and stupid business until you have eyes to guide you, and eyes are useless if you cannot engage in locomotion, so perception and action evolved together in an arms race. This arms race drove much of the basic diversification of the tree of life we have today.

Parker’s hypothesis about the Cambrian explosion provides an excellent parallel for understanding a new, seemingly unrelated phenomenon: the spread of digital technology. Although advances in communications technology have transformed our world many times in the past — the invention of writing signaled the end of prehistory; the printing press sent waves of change through all the major institutions of society — digital technology could have a greater impact than anything that has come before. It will enhance the powers of some individuals and organizations while subverting the powers of others, creating both opportunities and risks that could scarcely have been imagined a generation ago.

Through social media, the Internet has put global-scale communications tools in the hands of individuals. A wild new frontier has burst open. Services such as YouTube, Facebook, Twitter, Tumblr, Instagram, WhatsApp and SnapChat generate new media on a par with the telephone or television — and the speed with which these media are emerging is truly disruptive. It took decades for engineers to develop and deploy telephone and television networks, so organizations had some time to adapt. Today a social-media service can be developed in weeks, and hundreds of millions of people can be using it within months. This intense pace of innovation gives organizations no time to adapt to one medium before the arrival of the next.

The tremendous change in our world triggered by this media inundation can be summed up in a word: transparency. We can now see further, faster, and more cheaply and easily than ever before — and we can be seen. And you and I can see that everyone can see what we see, in a recursive hall of mirrors of mutual knowledge that both enables and hobbles. The age-old game of hide-and-seek that has shaped all life on the planet has suddenly shifted its playing field, its equipment and its rules. The players who cannot adjust will not last long.

The impact on our organizations and institutions will be profound. Governments, armies, churches, universities, banks and companies all evolved to thrive in a relatively murky epistemological environment, in which most knowledge was local, secrets were easily kept, and individuals were, if not blind, myopic. When these organizations suddenly find themselves exposed to daylight, they quickly discover that they can no longer rely on old methods; they must respond to the new transparency or go extinct. Just as a living cell needs an effective membrane to protect its internal machinery from the vicissitudes of the outside world, so human organizations need a protective interface between their internal affairs and the public world, and the old interfaces are losing their effectiveness….(More at Medium)”

Beta Release of the NETmundial Solutions Map

Curated on Posted on by Stefaan Verhulst

“…the GovLab is pleased to announce the beta release of the NETmundial Solutions Map for further public comment (from April 1 -May 1, 2015). The release is the culmination of a 6-month engagement and development strategy to ensure that the tool reflects input from a diverse set of global stakeholders. The NETmundial Solutions Map is co-developed by the GovLab and Second Rise, and is facilitated by the Internet Corporation for Assigned Names and Numbers (ICANN).

 

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The tool seeks to support innovation in global governance toward a more distributed Internet Governance approach. It is designed to enable information sharing and collaboration across Internet governance issues. It will serve as a repository of information that links issues, actors, solutions and resources, and help users understand the current landscape of Internet governance.

Today, information about internet governance is scattered and hard to find. At the same time we need more coordination and collaboration to address specific issues. The Map seeks to facilitate a more collaborative and distributed way of solving Internet governance issues by providing users with a baseline of what responses already exist and who is working on what — Stefaan Verhulst, Co-Founder and Chief of Research and Development of the GovLab.

..This beta version of the NETmundial Solutions Map seeks to explore how to map the Internet governance landscape in a useful and sustainable way. Future revisions will continue to be guided by community feedback.

To this end, we welcome your comments on the following (period runs till May 1st):

  • What do you feel works well in the map?
  • What needs improving?
  • How can the map help you in your work?
  • Would you want to be part of the next version as a content provider?”

Thinking Ahead – Essays on Big Data, Digital Revolution, and Participatory Market Society

Curated on Posted on by Stefaan Verhulst

New book by Dirk Helbing: “The rapidly progressing digital revolution is now touching the foundations of the governance of societal structures. Humans are on the verge of evolving from consumers to prosumers, and old, entrenched theories – in particular sociological and economic ones – are falling prey to these rapid developments. The original assumptions on which they are based are being questioned. Each year we produce as much data as in the entire human history – can we possibly create a global crystal ball to predict our future and to optimally govern our world? Do we need wide-scale surveillance to understand and manage the increasingly complex systems we are constructing, or would bottom-up approaches such as self-regulating systems be a better solution to creating a more innovative, more successful, more resilient, and ultimately happier society? Working at the interface of complexity theory, quantitative sociology and Big Data-driven risk and knowledge management, the author advocates the establishment of new participatory systems in our digital society to enhance coordination, reduce conflict and, above all, reduce the “tragedies of the commons,” resulting from the methods now used in political, economic and management decision-making….(More)”

The International Handbook Of Public Administration And Governance

Curated on Posted on by Stefaan Verhulst

New book edited by Andrew Massey and Karen Johnston: “…Handbook explores key questions around the ways in which public administration and governance challenges can be addressed by governments in an increasingly globalized world. World-leading experts explore contemporary issues of government and governance, as well as the relationship between civil society and the political class. The insights offered will allow policy makers and officials to explore options for policy making in a new and informed way.

Adopting global perspectives of governance and public sector management, the Handbook includes scrutiny of current issues such as: public policy capacity, wicked policy problems, public sector reforms, the challenges of globalization and complexity management. Practitioners and scholars of public administration deliver a range of perspectives on the abiding wicked issues and challenges to delivering public services, and the way that delivery is structured. The Handbook uniquely provides international coverage of perspectives from Africa, Asia, North and South America, Europe and Australia.

Practitioners and scholars of public administration, public policy, public sector management and international relations will learn a great deal from this Handbook about the issues and structures of government and governance in an increasingly complex world. (Full table of contents)… (More).”

Rebooting Democracy

Curated on Posted on by Stefaan Verhulst

 John Boik, Lorenzo Fioramonti, and Gary Milante at Foreign Policy: “….The next generation of political and economic systems may look very different from the ones we know today.

Some changes along these lines are already happening. Civil society groups, cities, organizations, and government agencies have begun to experiment with a host of innovations that promote decentralization, redundancy, inclusion, and diversity. These include participatory budgeting, where residents of a city democratically choose how public monies are spent. They also include local currency systems, open-source development, open-design, open-data and open-government, public banking, “buy local” campaigns, crowdfunding, and socially responsible business models.

Such innovations are a type of churning on the edges of current systems. But in complex systems, changes at the periphery can cascade to changes at the core. Further, the speed of change is increasing. Consider the telephone, first introduced by Bell in 1876. It took about 75 years to reach adoption by 50 percent of the market. A century later the Internet did the same in about 35 years. We can expect that the next major innovations will be adopted even faster.

Following the examples of the telephone and Internet, it appears likely that the technology of new economic and political decision-making systems will first be adopted by small groups, then spread virally. Indeed, small groups, such as neighborhoods and cities, are among today’s leaders in innovation. The influence of larger bodies, such as big corporations and non-governmental organizations, is also growing steadily as nation states increasingly share their powers, willingly or not.

Changes are evident even within large corporations. Open-source software development has become the norm, for example, and companies as large as Toyota have announced plans to freely share their intellectual property.

While these innovations represent potentially important parts of new political and economic systems, they are only the tip of the iceberg. Systems engineering design could eventually integrate these and other innovations into efficient, user-friendly, scalable, and resilient whole systems. But the need for this kind of innovation is not yet universally acknowledged. In its list of 14 grand challenges for the 21st century, the U.S. National Academy of Engineering addresses many of the problems caused by poor decision making, such as climate change, but not the decision-making systems themselves. The work has only just begun.

…

The development of new options will dramatically alter how democracy is used, adjusted, and exported. Attention will shift toward groups, perhaps at the city/regional level, who wish to apply the flexible tools freely available on the Internet. Future practitioners of democracy will invest more time and resources to understand what communities want and need — helping them adapt designs to make them fit for their purpose — and to build networked systems that beneficially connect diverse groups into larger political and economic structures. In time, when the updates to next-generation political and economic near completion, we might find ourselves more fully embracing the notion “engage local, think global.”…(More)

Public interest models: a powerful tool for the advocacy agenda

Curated on Posted on by Stefaan Verhulst

at Open Oil: “Open financial models can clearly put analysis into a genuinely independent public space, and also trigger a rise in public understanding which could enrich the governance debate in many countries.

But there is a third function public models can serve: that of advocacy for targeted disclosure of information.

The stress here is on “targeted”. A lot of transparency debates are generic – the need to disclose data as a matter of principle.

It is striking that as the transparency agenda has advanced, and won many battles, so has a debate about whether it is contributing to an increase in accountability. As Paul Collier said: “transparency has to lead to accountability otherwise we’re just ticking loads of boxes”.

We need all these campaigns to continue, and we need to pursue maximum disclosure. Because while transparency does not guarantee accountability, it is its essential prerequisite. Necessary but not sufficient.

But here’s where modeling can help to provide some examples of how data can be used, in a very specific way, to advance accountability.

Let’s take the example of an oil project in Africa. A financial model has to deal with uncertainty and so provides three scenarios for future production and prices, which all have a radical impact on the revenues the government could expect to see. That’s unavoidable. Under the “God, Exxon and everyone else” principle, future price and to some extent production are hard to foresee.

But then there is a second layer of uncertainty caused specifically by the model having to use public domain data. The company, and the government if it exercised its rights of access to information, does not face this second layer because it has access to real data, whereas the public interest model must use estimates and extrapulations. These can be justified, written out and explained – they can be well-informed guesses, in other words, and in the blog on the analytical power of public models, we argue that you can still arrive at useful analysis and conclusions despite this handicap.

Nevertheless, they are guesses. And unlike the first layer of uncertainty, relating to future prices and the ever-changing global market, this second layer can be directly addressed by information the government already has to hand – or could get under its contractual right of access to information….(More)”

Eight ways to make government more experimental

Curated on Posted on by Stefaan Verhulst
Jonathan Breckon et al at NESTA: “When the banners and bunting have been tidied away after the May election, and a new bunch of ministers sit at their Whitehall desks, could they embrace a more experimental approach to government?

Such an approach requires a degree of humility.  Facing up to the fact that we don’t have all the answers for the next five years.  We need to test things out, evaluate new ways of doing things with the best of social science, and grow what works.  And drop policies that fail.

But how best to go about it?  Here are our 8 ways to make it a reality:

  1. Make failure OK. A more benign attitude to risk is central to experimentation.  As a 2003 Cabinet Office review entitled Trying it Out said, a pilot that reveals a policy to be flawed should be ‘viewed as a success rather than a failure, having potentially helped to avert a potentially larger political and/or financial embarrassment’. Pilots are particularly important in fast moving areas such as technology to try promising fresh ideas in real-time. Our ‘Visible Classroom’ pilot tried an innovative approach to teacher CPD developed from technology for television subtitling.
  2. Avoid making policies that are set in stone.  Allowing policy to be more project–based, flexible and time-limited could encourage room for manoeuvre, according to a previous Nesta report State of Uncertainty; Innovation policy through experimentation.  The Department for Work and Pensions’ Employment Retention and Advancement pilot scheme to help people back to work was designed to influence the shape of legislation. It allowed for amendments and learning as it was rolled out.  We need more policy experiments like this.
  3. Work with the grain of current policy environment. Experimenters need to be opportunists. We need to be nimble and flexible. Ready to seize windows of opportunity to  experiment. Some services have to be rolled out in stages due to budget constraints. This offers opportunities to try things out before going national. For instance, The Mexican Oportunidades anti-poverty experiments which eventually reached 5.8 million households in all Mexican states, had to be trialled first in a handful of areas. Greater devolution is creating a patchwork of different policy priorities, funding and delivery models – so-called ‘natural experiments’. Let’s seize the opportunity to deliberately test and compare across different jurisdictions. What about a trial of basic income in Northern Ireland, for example, along the lines of recent Finnish proposals, or universal free childcare in Scotland?
  4. Experiments need the most robust and appropriate evaluation methods such as, if appropriate, Randomised Controlled Trials. Other methods, such as qualitative research may be needed to pry open the ‘black box’ of policies – to learn about why and how things are working. Civil servants should use the government trial advice panel as a source of expertise when setting up experiments.
  5. Grow the public debate about the importance of experimentation. Facebook had to apologise after a global backlash to psychological experiments on their 689,000 users web-users. Approval by ethics committees – normal practice for trials in hospitals and universities – is essential, but we can’t just rely on experts. We need a dedicated public understanding of experimentation programmes, perhaps run by Evidence Matters or Ask for Evidence campaigns at Sense about Science. Taking part in an experiment in itself can be a learning opportunity creating  an appetite amongt the public, something we have found from running an RCT with schools.
  6. Create ‘Skunkworks’ institutions. New or improved institutional structures within government can also help with experimentation.   The Behavioural Insights Team, located in Nesta,  operates a classic ‘skunkworks’ model, semi-detached from day-to-day bureaucracy. The nine UK What Works Centres help try things out semi-detached from central power, such as the The Education Endowment Foundation who source innovations widely from across the public and private sectors- including Nesta-  rather than generating ideas exclusively in house or in government.
  7. Find low-cost ways to experiment. People sometimes worry that trials are expensive and complicated.  This does not have to be the case. Experiments to encourage organ donation by the Government Digital Service and Behavioural Insights Team involved an estimated cost of £20,000.  This was because the digital experiments didn’t involve setting up expensive new interventions – just changing messages on  web pages for existing services. Some programmes do, however, need significant funding to evaluate and budgets need to be found for it. A memo from the White House Office for Management and Budget has asked for new Government schemes seeking funding to allocate a proportion of their budgets to ‘randomized controlled trials or carefully designed quasi-experimental techniques’.
  8. Be bold. A criticism of some experiments is that they only deal with the margins of policy and delivery. Government officials and researchers should set up more ambitious experiments on nationally important big-ticket issues, from counter-terrorism to innovation in jobs and housing….(More)

World Justice Project (WJP) Open Government Index

Curated on Posted on by Stefaan Verhulst

“The World Justice Project (WJP) Open Government Index™ provides scores and rankings on four dimensions of government openness: publicized laws and government data, right to information, civic participation, and complaint mechanisms (full descriptions below). Scores are based on responses to household surveys and in-country expert questionnaires collected for the WJP Rule of Law Index. The WJP Open Government Index 2015 covers a total of 102 countries and jurisdictions.

This index is the product of two years of development, consultation, and vetting with policy makers, civil society groups, and academics from several countries. It is our hope that over time this diagnostic tool will help identify strengths and weaknesses in countries under review and encourage policy choices that enhance openness, promote effective public oversight, and increase collaboration amongst public and private sectors.