International Development Doesn’t Care About Patient Privacy

Curated on Posted on by Stefaan Verhulst

Yogesh Rajkotia at the Stanford Social Innovation Review: “In 2013, in southern Mozambique, foreign NGO workers searched for a man whom the local health facility reported as diagnosed with HIV. The workers aimed to verify that the health facility did indeed diagnose and treat him. When they could not find him, they asked the village chief for help. Together with an ever-growing crowd of onlookers, the chief led them to the man’s home. After hesitating and denying, he eventually admitted, in front of the crowd, that he had tested positive and received treatment. With his status made public, he now risked facing stigma, discrimination, and social marginalization. The incident undermined both his health and his ability to live a dignified life.

Similar privacy violations were documented in Burkina Faso in 2016, where community workers asked partners, in the presence of each other, to disclose what individual health services they had obtained.

Why was there such a disregard for the privacy and dignity of these citizens?

As it turns out, unbeknownst to these Mozambican and Burkinabé patients, their local health centers were participating in performance-based financing (PBF) programs financed by foreign assistance agencies. Implemented in more than 35 countries, PBF programs offer health workers financial bonuses for delivering priority health interventions. To ensure that providers do not cheat the system, PBF programs often send verifiers to visit patients’ homes to confirm that they have received specific health services. These verifiers are frequently community members (the World Bank callously notes in its “Performance-Based Financing Toolkit” that even “a local soccer club” can play this role), and this practice, known as “patient tracing,” is common among PBF programs. In World Bank-funded PBF programs alone, 19 out of the 25 PBF programs implement patient tracing. Yet the World Bank’s toolkit never mentions patient privacy or confidentiality. In patient tracing, patients’ rights and dignity are secondary to donor objectives.

Patient tracing within PBF programs is just one example of a bigger problem: Privacy violations are pervasive in global health. Some researchers and policymakers have raised privacy concerns about tuberculosis (TB), human immunodeficiency virus (HIV), family planning, post-abortion care, and disease surveillance programs. A study conducted by the Asia-Pacific Network of People Living with HIV/AIDS found that 34 percent of people living with HIV in India, Indonesia, Philippines, and Thailand reported that health workers breached confidentiality. In many programs, sensitive information about people’s sexual and reproductive health, disease status, and other intimate health details are often collected to improve health system effectiveness and efficiency. Usually, households have no way to opt out, nor any control over how heath care programs use, store, and disseminate this data. At the same time, most programs do not have systems to enforce health workers’ non-disclosure of private information.

In societies with strong stigma around certain health topics—especially sexual and reproductive health—the disclosure of confidential patient information can destroy lives. In contexts where HIV is highly stigmatized, people living with HIV are 2.4 times more likely to delay seeking care until they are seriously ill. In addition to stigma’s harmful effects on people’s health, it can limit individuals’ economic opportunities, cause them to be socially marginalized, and erode their psychological wellbeing….(More)”.

Citicafe: conversation-based intelligent platform for citizen engagement

Curated on Posted on by Stefaan Verhulst

Paper by Amol Dumrewal et al in the Proceedings of the ACM India Joint International Conference on Data Science and Management of Data: “Community civic engagement is a new and emerging trend in urban cities driven by the mission of developing responsible citizenship. The recognition of civic potential in every citizen goes a long way in creating sustainable societies. Technology is playing a vital role in helping this mission and over the last couple of years, there have been a plethora of social media avenues to report civic issues. Sites like Twitter, Facebook, and other online portals help citizens to report issues and register complaints. These complaints are analyzed by the public services to help understand and in-turn address these issues. However, once the complaint is registered, often no formal or informal feedback is given back from these sites to the citizens. This de-motivates citizens and may deter them from registering further complaints. In addition, these sites offer no holistic information about a neighborhood to the citizens. It is useful for people to know whether there are similar complaints posted by other people in the same area, the profile of all complaints and a know-how of how and when these complaints will be addressed.

In this paper, we create a conversation-based platform CitiCafe for enhancing citizen engagement front-ended by a virtual agent with a Twitter interface. This platform back-end stores and processes information pertaining to civic complaints in a city. A Twitter based conversation service allows citizens to have a direct correspondence with CitiCafe via “tweets” and direct messages. The platform also helps citizens to (a) report problems and (b) gather information related to civic issues in different neighborhoods. This can also help, in the long run, to develop civic conversations among citizens and also between citizens and public services….(More)”.

The nation that thrived by ‘nudging’ its population

Curated on Posted on by Stefaan Verhulst

Sarah Keating at the BBC: “Singapore has grown from almost nothing in 50 years. And this well-regarded society has been built up, partly, thanks to the power of suggestion….But while Singapore still loves a public campaign, it has moved toward a more nuanced approach of influencing the behaviours of its inhabitants.

Nudging the population isn’t uniquely Singaporean; more than 150 governments across the globe have tried nudging as a better choice. A medical centre in Qatar, for example, managed to increase the uptake of diabetes screening by offering to test people during Ramadan. People were fasting anyway so the hassle of having to not eat before your testing was removed. It was convenient and timely, two key components to a successful nudge.

Towns in Iceland, India and China have trialed ‘floating zebra crossings’ – 3D optical illusions which make the crossings look like they are floating above the ground designed to urge drivers to slow down. And in order to get people to pay their taxes in the UK, people were sent a letter saying that the majority of taxpayers pay their taxes on time which has had very positive results. Using social norms make people want to conform.

In Singapore some of the nudges you come across are remarkably simple. Rubbish bins are placed away from bus stops to separate smokers from other bus users. Utility bills display how your energy consumption compares to your neighbours. Outdoor gyms have been built near the entrances and exits of HDB estates so they are easy to use, available and prominent enough to consistently remind you. Train stations have green and red arrows on the platform indicating where you should stand so as to speed up the alighting process. If you opt to travel at off-peak times (before 0700), your fare is reduced.

And with six out of 10 Singaporeans eating at food courts four or more times a week, getting people to eat healthier is also a priority. As well as the Healthier Dining Programme, some places make it cheaper to take the healthy option. If you’re determined to eat that Fried Bee Hoon at Khoo Teck Puat Hospital, for example, you’re going to have to pay more for it.

The National Steps Challenge, which encourages participants to get exercising using free step counters in exchange for cash and prizes, has been so successful that the programme name has been trademarked. This form of gamifying is one of the more successful ways of engaging users in achieving objectives. Massive queues to collect the free fitness tracker demonstrated the programme’s popularity.

And it’s not just in tangible ways that nudges are being rolled out. Citizens pay into a mandatory savings programme called the Central Provident Fund at a high rate. This can be accessed for healthcare, housing and pensions as a way to get people to save long-term because evidence has shown that people are too short-sighted when it comes to financing their future

And as the government looks to increase the population 30% by 2030, the city-state’s ageing population and declining birth rate is a problem. The Baby Bonus Scheme goes some way to encouraging parents to have more children by offering cash incentives. Introduced in 2001, the scheme means that all Singapore citizens who have a baby get a cash gift as well as a money into a Child Development Account (CDA) which can be used to pay for childcare and healthcare. The more children you have, the more money you get – since March 2016 you get a cash gift of $8,000 SGD (£4,340) for your first child and up to $10,000 (£5,430) for the third and any subsequent children, as well as money into your CDA.

So do people like being nudged? Is there any cultural difference in the way people react to being swayed toward a ‘better’ choice or behaviour? Given the breadth of the international use of behavioural insights, there is relatively little research done into whether people are happy about it….(More)”.

The End of the End of History?

Curated on Posted on by Stefaan Verhulst

Introduction to Special Issue of The Hedgehog Review: “Although Francis Fukuyama never said the triumph of liberal democracy was inevitable, his qualified declaration of the “the end of history” captured the optimistic, sometimes naive tenor of the early post-Cold War era. But how quickly that confidence faded! Unmistakable signs of history’s resumption began to appear less than two decades after the fall of the Berlin Wall. In its 2008 annual report on political rights and civil liberties around the world, the democracy watchdog Freedom House took troubled note of the reversal of progress in a number of key countries in South Asia, the Middle East, Africa, and the former Soviet space.

This “profoundly disturbing deterioration,” as Freedom House put it, has continued, and not only in countries with fragile democratic institutions. The most recent survey found that “in 2016 it was established democracies—countries rated Free in the report’s ranking system—that dominated the list of countries suffering setbacks.” The report’s authors went on glumly to note that the US election of 2016 “raised fears of a foreign policy divorced from America’s traditional strategic commitments to democracy, human rights, and the rules-based international order that it helped to construct beginning in 1945.” And if this were not enough, they pointed to a growing “nexus” of mutual support between authoritarian regimes and populist movements in both weak and strong liberal democracies.

It would be somewhat reassuring to think the United States is the “exceptional nation” resisting the tide. But President Donald J. Trump’s casual, sometimes caustic, disdain for democratic norms and his inexplicable coziness with Vladimir Putin and lesser authoritarians have raised concerns in America and abroad, particularly among traditional allies.

Disturbing as the behavior of the forty-fifth president is, honesty compels us to recognize that Trump’s presidency is less the cause of America’s democracy woes than the product of them. Surveys and studies, including The Vanishing Center of American Democracy, published by the Institute for Advanced Studies in Culture last year, reveal a steady decline in Americans’ confidence in their political institutions as well as various other bulwarks of a liberal and civil society. A declining faith in democratic norms has only exacerbated the culture war divisions of the last four decades, divisions that have in turn been intensified by what some call a new class war between “credentialed” elites and (mostly) white lower-income earners who see their fortunes declining. And as many have noted, democratic norms are bound to suffer when there are no shared conceptions of truth or objectivity, and when all products of journalism are dismissed, from one partisan angle or another, as “fake news.”

Is it time to declare the end of the end of history, as we tentatively suggest in the title to this issue’s theme? More fundamentally, is there something deeply flawed in what many people have long believed was the crowning achievement of the Enlightenment: not merely the idea of governments of, for, and by the people but states undergirded by commitments to personal and civil liberties. Are we witnessing the exhaustion of the once-vital liberal tradition that supported our politics, both its progressive and conservative strands, and which made politics a (relatively) civil enterprise, and compromise a desirable outcome of that enterprise?

The contributors to this issue propose widely differing answers to these questions. But all agree that the questions are urgent and the stakes are high, not only for America and other liberal democracies but also for the relatively stable global order that emerged after World War II, an order built on faith in the universal worth of liberal principles….(More)”.

A Really Bad Blockchain Idea: Digital Identity Cards for Rohingya Refugees

Curated on Posted on by Stefaan Verhulst

Wayan Vota at ICTworks: “The Rohingya Project claims to be a grassroots initiative that will empower Rohingya refugees with a blockchain-leveraged financial ecosystem tied to digital identity cards….

What Could Possibly Go Wrong?

Concerns about Rohingya data collection are not new, so Linda Raftree‘s Facebook post about blockchain for biometrics started a spirited discussion on this escalation of techno-utopia. Several people put forth great points about the Rohingya Project’s potential failings. For me, there were four key questions originating in the discussion that we should all be debating:

1. Who Determines Ethnicity?

Ethnicity isn’t a scientific way to categorize humans. Ethnic groups are based on human constructs such as common ancestry, language, society, culture, or nationality. Who are the Rohingya Project to be the ones determining who is Rohingya or not? And what is this rigorous assessment they have that will do what science cannot?

Might it be better not to perpetuate the very divisions that cause these issues? Or at the very least, let people self-determine their own ethnicity.

2. Why Digitally Identify Refugees?

Let’s say that we could group a people based on objective metrics. Should we? Especially if that group is persecuted where it currently lives and in many of its surrounding countries? Wouldn’t making a list of who is persecuted be a handy reference for those who seek to persecute more?

Instead, shouldn’t we focus on changing the mindset of the persecutors and stop the persecution?

3. Why Blockchain for Biometrics?

How could linking a highly persecuted people’s biometric information, such as fingerprints, iris scans, and photographs, to a public, universal, and immutable distributed ledger be a good thing?

Might it be highly irresponsible to digitize all that information? Couldn’t that data be used by nefarious actors to perpetuate new and worse exploitation of Rohingya? India has already lost Aadhaar data and the Equafax lost Americans’ data. How will the small, lightly funded Rohingya Project do better?

Could it be possible that old-fashioned paper forms are a better solution than digital identity cards? Maybe laminate them for greater durability, but paper identity cards can be hidden, even destroyed if needed, to conceal information that could be used against the owner.

4. Why Experiment on the Powerless?

Rohingya refugees already suffer from massive power imbalances, and now they’ll be asked to give up their digital privacy, and use experimental technology, as part of an NGO’s experiment, in order to get needed services.

Its not like they’ll have the agency to say no. They are homeless, often penniless refugees, who will probably have no realistic way to opt-out of digital identity cards, even if they don’t want to be experimented on while they flee persecution….(More)”

Can a reality TV show discourage corruption?

Curated on Posted on by Stefaan Verhulst

The Economist: “The timing could not have been better. In the same week as two civil servants in Nigeria appeared in court for embezzling funds earmarked for International Anti-Corruption Day, the finalists of “Integrity Idol” were announced. In this reality television show, honest civil servants working in corrupt countries compete for glory, fame and, occasionally, a live chicken. The show is a hit: over 10m people have watched it and more than 400,000 have cast their votes in favour of their Integrity Idols.

“Integrity Idol” started in Nepal in 2014 and has since spread to Pakistan, Mali, Liberia, Nigeria and South Africa. Five finalists, vetted by a panel of judges, are chosen to be interviewed. They explain why they deserve the prize. “I come to work late. My boss could ask ‘Why are you late?’ (…) I say I slept a little longer. Say it the way it is! Face the consequences!” one nominee exhorts.

It is not always easy to find good contestants. The Nigerian nomination period was extended because of the poor quality of entrants. “People were nominating their auntie because she gave them money,” says Odeh Friday, who runs the campaign. Others thought they qualified because they came to work on time. One policeman was surprised by his nomination because, he explained, he was involved in shady contracts. Another nominee resigned after he realised that background checks might dig up old dirt.

“Integrity Idol” claims to steer clear of politics. Elected officials may not be nominated. Nor, in some countries, may people in the army. Even so, the show delivers a punch in the face to crooked politicians and their cronies, sometimes just by its timing: in Liberia last year, it aired while presidential elections were embroiled in fraud investigations.

It is difficult to know what impact the show is having, though the Massachusetts Institute of Technology has begun to measure it. Change may be gradual. Gareth Newham at the Institute of Security Studies in South Africa thinks its greatest contribution will be in changing attitudes. “Too many young people believe that you can only get a job if you belong to the [ruling party]. What has been missing is a focus on the ordinary people who do good work.”…(More)”.

They Are Watching You—and Everything Else on the Planet

Curated on Posted on by Stefaan Verhulst

Cover article by Robert Draper for Special Issue of the National Geographic: “Technology and our increasing demand for security have put us all under surveillance. Is privacy becoming just a memory?…

In 1949, amid the specter of European authoritarianism, the British novelist George Orwell published his dystopian masterpiece 1984, with its grim admonition: “Big Brother is watching you.” As unsettling as this notion may have been, “watching” was a quaintly circumscribed undertaking back then. That very year, 1949, an American company released the first commercially available CCTV system. Two years later, in 1951, Kodak introduced its Brownie portable movie camera to an awestruck public.

Today more than 2.5 trillion images are shared or stored on the Internet annually—to say nothing of the billions more photographs and videos people keep to themselves. By 2020, one telecommunications company estimates, 6.1 billion people will have phones with picture-taking capabilities. Meanwhile, in a single year an estimated 106 million new surveillance cameras are sold. More than three million ATMs around the planet stare back at their customers. Tens of thousands of cameras known as automatic number plate recognition devices, or ANPRs, hover over roadways—to catch speeding motorists or parking violators but also, in the case of the United Kingdom, to track the comings and goings of suspected criminals. The untallied but growing number of people wearing body cameras now includes not just police but also hospital workers and others who aren’t law enforcement officers. Proliferating as well are personal monitoring devices—dash cams, cyclist helmet cameras to record collisions, doorbells equipped with lenses to catch package thieves—that are fast becoming a part of many a city dweller’s everyday arsenal. Even less quantifiable, but far more vexing, are the billions of images of unsuspecting citizens captured by facial-recognition technology and stored in law enforcement and private-sector databases over which our control is practically nonexistent.

Those are merely the “watching” devices that we’re capable of seeing. Presently the skies are cluttered with drones—2.5 million of which were purchased in 2016 by American hobbyists and businesses. That figure doesn’t include the fleet of unmanned aerial vehicles used by the U.S. government not only to bomb terrorists in Yemen but also to help stop illegal immigrants entering from Mexico, monitor hurricane flooding in Texas, and catch cattle thieves in North Dakota. Nor does it include the many thousands of airborne spying devices employed by other countries—among them Russia, China, Iran, and North Korea.

We’re being watched from the heavens as well. More than 1,700 satellites monitor our planet. From a distance of about 300 miles, some of them can discern a herd of buffalo or the stages of a forest fire. From outer space, a camera clicks and a detailed image of the block where we work can be acquired by a total stranger….

This is—to lift the title from another British futurist, Aldous Huxley—our brave new world. That we can see it coming is cold comfort since, as Carnegie Mellon University professor of information technology Alessandro Acquisti says, “in the cat-and-mouse game of privacy protection, the data subject is always the weaker side of the game.” Simply submitting to the game is a dispiriting proposition. But to actively seek to protect one’s privacy can be even more demoralizing. University of Texas American studies professor Randolph Lewis writes in his new book, Under Surveillance: Being Watched in Modern America, “Surveillance is often exhausting to those who really feel its undertow: it overwhelms with its constant badgering, its omnipresent mysteries, its endless tabulations of movements, purchases, potentialities.”

The desire for privacy, Acquisti says, “is a universal trait among humans, across cultures and across time. You find evidence of it in ancient Rome, ancient Greece, in the Bible, in the Quran. What’s worrisome is that if all of us at an individual level suffer from the loss of privacy, society as a whole may realize its value only after we’ve lost it for good.”…(More)”.

The World’s Biggest Biometric Database Keeps Leaking People’s Data

Curated on Posted on by Stefaan Verhulst

Rohith Jyothish at FastCompany: “India’s national scheme holds the personal data of more than 1.13 billion citizens and residents of India within a unique ID system branded as Aadhaar, which means “foundation” in Hindi. But as more and more evidence reveals that the government is not keeping this information private, the actual foundation of the system appears shaky at best.

On January 4, 2018, The Tribune of India, a news outlet based out of Chandigarh, created a firestorm when it reported that people were selling access to Aadhaar data on WhatsApp, for alarmingly low prices….

The Aadhaar unique identification number ties together several pieces of a person’s demographic and biometric information, including their photograph, fingerprints, home address, and other personal information. This information is all stored in a centralized database, which is then made accessible to a long list of government agencies who can access that information in administrating public services.

Although centralizing this information could increase efficiency, it also creates a highly vulnerable situation in which one simple breach could result in millions of India’s residents’ data becoming exposed.

The Annual Report 2015-16 of the Ministry of Electronics and Information Technology speaks of a facility called DBT Seeding Data Viewer (DSDV) that “permits the departments/agencies to view the demographic details of Aadhaar holder.”

According to @databaazi, DSDV logins allowed third parties to access Aadhaar data (without UID holder’s consent) from a white-listed IP address. This meant that anyone with the right IP address could access the system.

This design flaw puts personal details of millions of Aadhaar holders at risk of broad exposure, in clear violation of the Aadhaar Act.…(More)”.

Satellites Predict a Cholera Outbreak Weeks in Advance

Curated on Posted on by Stefaan Verhulst

Sarah Derouin at Scientific American: “Orbiting satellites can warn us of bad weather and help us navigate to that new taco joint. Scientists are also using data satellites to solve a worldwide problem: predicting cholera outbreaks.

Cholera infects millions of people each year, leading to thousands of deaths. Often communities do not realize an epidemic is underway until infected individuals swarm hospitals. Advanced warning for impending epidemics could help health workers prepare for the onslaught—stockpiling rehydration supplies, medicines and vaccines—which can save lives and quell the disease’s spread. Back in May 2017 a team of scientists used satellite information to assess whether an outbreak would occur in Yemen, and they ended up predicting an outburst that spread across the country in June….

At the American Geophysical Union annual meeting in December, Jutla presented the group’s prediction model of cholera for Yemen. The team used a handful of satellites to monitor temperatures, water storage, precipitation and land around the country. By processing that information in algorithms they developed, the team predicted areas most at risk for an outbreak over the upcoming month.

Weeks later an epidemic occurred that closely resembled what the model had predicted. “It was something we did not expect,” Jutla says, because they had built the algorithms—and calibrated and validated them—on data from the Bengal Delta in southern Asia as well as parts of Africa. They were unable to go into war-torn Yemen directly, however. For those reasons, the team had not informed Yemen officials of the predicted June outbreak….(More).”

Selected Readings on Data, Gender, and Mobility

Curated on Posted on by Michelle Winowatan

By Michelle Winowatan, Andrew Young, and Stefaan Verhulst

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of data, gender, and mobility was originally published in 2017.

This edition of the Selected Readings was  developed as part of an ongoing project at the GovLab, supported by Data2X, in collaboration with UNICEF, DigitalGlobe, IDS (UDD/Telefonica R&D), and the ISI Foundation, to establish a data collaborative to analyze unequal access to urban transportation for women and girls in Chile. We thank all our partners for their suggestions to the below curation – in particular Leo Ferres at IDS who got us started with this collection; Ciro Cattuto and Michele Tizzoni from the ISI Foundation; and Bapu Vaitla at Data2X for their pointers to the growing data and mobility literature. 

Introduction

Daily mobility is key for gender equity. Access to transportation contributes to women’s agency and independence. The ability to move from place to place safely and efficiently can allow women to access education, work, and the public domain more generally. Yet, mobility is not just a means to access various opportunities. It is also a means to enter the public domain.

Women’s mobility is a multi-layered challenge
Women’s daily mobility, however, is often hampered by social, cultural, infrastructural, and technical barriers. Cultural bias, for instance, limits women mobility in a way that women are confined to an area with close proximity to their house due to society’s double standard on women to be homemakers. From an infrastructural perspective, public transportation mostly only accommodates home-to-work trips, when in reality women often make more complex trips with stops, for example, at the market, school, healthcare provider – sometimes called “trip chaining.” From a safety perspective, women tend to avoid making trips in certain areas and/or at certain time, due to a constant risk of being sexually harassed on public places. Women are also pushed toward more expensive transportation – such as taking a cab instead of a bus or train – based on safety concerns.

The growing importance of (new sources of) data
Researchers are increasingly experimenting with ways to address these interdependent problems through the analysis of diverse datasets, often collected by private sector businesses and other non-governmental entities. Gender-disaggregated mobile phone records, geospatial data, satellite imagery, and social media data, to name a few, are providing evidence-based insight into gender and mobility concerns. Such data collaboratives – the exchange of data across sectors to create public value – can help governments, international organizations, and other public sector entities in the move toward more inclusive urban and transportation planning, and the promotion of gender equity.
The below curated set of readings seek to focus on the following areas:

  1. Insights on how data can inform gender empowerment initiatives,
  2. Emergent research into the capacity of new data sources – like call detail records (CDRs) and satellite imagery – to increase our understanding of human mobility patterns, and
  3. Publications exploring data-driven policy for gender equity in mobility.

Readings are listed in alphabetical order.

We selected the readings based upon their focus (gender and/or mobility related); scope and representativeness (going beyond one project or context); type of data used (such as CDRs and satellite imagery); and date of publication.

Annotated Reading List

Data and Gender

Blumenstock, Joshua, and Nathan Eagle. Mobile Divides: Gender, Socioeconomic Status, and Mobile Phone Use in Rwanda. ACM Press, 2010.

  • Using traditional survey and mobile phone operator data, this study analyzes gender and socioeconomic divides in mobile phone use in Rwanda, where it is found that the use of mobile phones is significantly more prevalent in men and the higher class.
  • The study also shows the differences in the way men and women use phones, for example: women are more likely to use a shared phone than men.
  • The authors frame their findings around gender and economic inequality in the country to the end of providing pointers for government action.

Bosco, Claudio, et al. Mapping Indicators of Female Welfare at High Spatial Resolution. WorldPop and Flowminder, 2015.

  • This report focuses on early adolescence in girls, which often comes with higher risk of violence, fewer economic opportunity, and restrictions on mobility. Significant data gaps, methodological and ethical issues surrounding data collection for girls also create barriers for policymakers to create evidence-based policy to address those issues.
  • The authors analyze geolocated household survey data, using statistical models and validation techniques, and creates high-resolution maps of various sex-disaggregated indicators, such as nutrition level, access to contraception, and literacy, to better inform local policy making processes.
  • Further, it identifies the gender data gap and issues surrounding gender data collection, and provides arguments for why having a comprehensive data can help create better policy and contribute to the achievements of the Sustainable Development Goals (SDGs).

Buvinic, Mayra, Rebecca Furst-Nichols, and Gayatri Koolwal. Mapping Gender Data Gaps. Data2X, 2014.

  • This study identifies gaps in gender data in developing countries on health, education, economic opportunities, political participation, and human security issues.
  • It recommends ways to close the gender data gap through censuses and micro-level surveys, service and administrative records, and emphasizes how “big data” in particular can fill the missing data that will be able to measure the progress of women and girls well being. The authors argue that dentifying these gaps is key to advancing gender equality and women’s empowerment, one of the SDGs.

Catalyzing Inclusive FInancial System: Chile’s Commitment to Women’s Data. Data2X, 2014.

  • This article analyzes global and national data in the banking sector to fill the gap of sex-disaggregated data in Chile. The purpose of the study is to describe the difference in spending behavior and priorities between women and men, identify the challenges for women in accessing financial services, and create policies that promote women inclusion in Chile.

Ready to Measure: Twenty Indicators for Monitoring SDG Gender Targets. Open Data Watch and Data2X, 2016.

  • Using readily available data this study identifies 20 SDG indicators related to gender issues that can serve as a baseline measurement for advancing gender equality, such as percentage of women aged 20-24 who were married or in a union before age 18 (child marriage), proportion of seats held by women in national parliament, and share of women among mobile telephone owners, among others.

Ready to Measure Phase II: Indicators Available to Monitor SDG Gender Targets. Open Data Watch and Data2X, 2017.

  • The Phase II paper is an extension of the Ready to Measure Phase I above. Where Phase I identifies the readily available data to measure women and girls well-being, Phase II provides informations on how to access and summarizes insights from this data.
  • Phase II elaborates the insights about data gathered from ready to measure indicators and finds that although underlying data to measure indicators of women and girls’ wellbeing is readily available in most cases, it is typically not sex-disaggregated.
  • Over one in five – 53 out of 232 – SDG indicators specifically refer to women and girls. However, further analysis from this study reveals that at least 34 more indicators should be disaggregated by sex. For instance, there should be 15 more sex-disaggregated indicators for SDG number 3: “Ensure healthy lives and promote well-being for all at all ages.”
  • The report recommends national statistical agencies to take the lead and assert additional effort to fill the data gap by utilizing tools such as the statistical model to fill the current gender data gap for each of the SDGs.

Reed, Philip J., Muhammad Raza Khan, and Joshua Blumenstock. Observing gender dynamics and disparities with mobile phone metadata. International Conference on Information and Communication Technologies and Development (ICTD), 2016.

  • The study analyzes mobile phone logs of millions of Pakistani residents to explore whether there is a difference in mobile phone usage behavior between male and female and determine the extent to which gender inequality is reflected in mobile phone usage.
  • It utilizes mobile phone data to analyze the pattern of usage behavior between genders, and socioeconomic and demographic data obtained from census and advocacy groups to assess the state of gender equality in each region in Pakistan.
  • One of its findings is a strong positive correlation between proportion of female mobile phone users and education score.

Stehlé, Juliette, et al. Gender homophily from spatial behavior in a primary school: A sociometric study. 2013.

    • This paper seeks to understand homophily, a human behavior characterizes by interaction with peers who have similarities in “physical attributes to tastes or political opinions”. Further, it seeks to identify the magnitude of influence, a type of homophily has to social structures.
    • Focusing on gender interaction among primary school aged children in France, this paper collects data from wearable devices from 200 children in the period of 2 days and measure the physical proximity and duration of the interaction among those children in the playground.
  • It finds that interaction patterns are significantly determined by grade and class structure of the school. Meaning that children belonging to the same class have most interactions, and that lower grades usually do not interact with higher grades.
  • From a gender lens, this study finds that mixed-gender interaction lasts shorter relative to same-gender interaction. In addition, interaction among girls is also longer compared to interaction among boys. These indicate that the children in this school tend to have stronger relationships within their own gender, or what the study calls gender homophily. It further finds that gender homophily is apparent in all classes.

Data and Mobility

Bengtsson, Linus, et al. Using Mobile Phone Data to Predict the Spatial Spread of Cholera. Flowminder, 2015.

  • This study seeks to predict the 2010 cholera epidemic in Haiti using 2.9 million anonymous mobile phone SIM cards and reported cases of Cholera from the Haitian Directorate of Health, where 78 study areas were analyzed in the period of October 16 – December 16, 2010.
  • From this dataset, the study creates a mobility matrix that indicates mobile phone movement from one study area to another and combines that with the number of reported case of cholera in the study areas to calculate the infectious pressure level of those areas.
  • The main finding of its analysis shows that the outbreak risk of a study area correlates positively with the infectious pressure level, where an infectious pressure of over 22 results in an outbreak within 7 days. Further, it finds that the infectious pressure level can inform the sensitivity and specificity of the outbreak prediction.
  • It hopes to improve infectious disease containment by identifying areas with highest risks of outbreaks.

Calabrese, Francesco, et al. Understanding Individual Mobility Patterns from Urban Sensing Data: A Mobile Phone Trace Example. SENSEable City Lab, MIT, 2012.

  • This study compares mobile phone data and odometer readings from annual safety inspections to characterize individual mobility and vehicular mobility in the Boston Metropolitan Area, measured by the average daily total trip length of mobile phone users and average daily Vehicular Kilometers Traveled (VKT).
  • The study found that, “accessibility to work and non-work destinations are the two most important factors in explaining the regional variations in individual and vehicular mobility, while the impacts of populations density and land use mix on both mobility measures are insignificant.” Further, “a well-connected street network is negatively associated with daily vehicular total trip length.”
  • This study demonstrates the potential for mobile phone data to provide useful and updatable information on individual mobility patterns to inform transportation and mobility research.

Campos-Cordobés, Sergio, et al. “Chapter 5 – Big Data in Road Transport and Mobility Research.” Intelligent Vehicles. Edited by Felipe Jiménez. Butterworth-Heinemann, 2018.

  • This study outlines a number of techniques and data sources – such as geolocation information, mobile phone data, and social network observation – that could be leveraged to predict human mobility.
  • The authors also provide a number of examples of real-world applications of big data to address transportation and mobility problems, such as transport demand modeling, short-term traffic prediction, and route planning.

Lin, Miao, and Wen-Jing Hsu. Mining GPS Data for Mobility Patterns: A Survey. Pervasive and Mobile Computing vol. 12,, 2014.

  • This study surveys the current field of research using high resolution positioning data (GPS) to capture mobility patterns.
  • The survey focuses on analyses related to frequently visited locations, modes of transportation, trajectory patterns, and placed-based activities. The authors find “high regularity” in human mobility patterns despite high levels of variation among the mobility areas covered by individuals.

Phithakkitnukoon, Santi, Zbigniew Smoreda, and Patrick Olivier. Socio-Geography of Human Mobility: A Study Using Longitudinal Mobile Phone Data. PLoS ONE, 2012.

  • This study used a year’s call logs and location data of approximately one million mobile phone users in Portugal to analyze the association between individuals’ mobility and their social networks.
  • It measures and analyze travel scope (locations visited) and geo-social radius (distance from friends, family, and acquaintances) to determine the association.
  • It finds that 80% of places visited are within 20 km of an individual’s nearest social ties’ location and it rises to 90% at 45 km radius. Further, as population density increases, distance between individuals and their social networks decreases.
  • The findings in this study demonstrates how mobile phone data can provide insights to “the socio-geography of human mobility”.

Semanjski, Ivana, and Sidharta Gautama. Crowdsourcing Mobility Insights – Reflection of Attitude Based Segments on High Resolution Mobility Behaviour Data. vol. 71, Transportation Research, 2016.

  • Using cellphone data, this study maps attitudinal segments that explain how age, gender, occupation, household size, income, and car ownership influence an individual’s mobility patterns. This type of segment analysis is seen as particularly useful for targeted messaging.
  • The authors argue that these time- and space-specific insights could also provide value for government officials and policymakers, by, for example, allowing for evidence-based transportation pricing options and public sector advertising campaign placement.

Silveira, Lucas M., et al. MobHet: Predicting Human Mobility using Heterogeneous Data Sources. vol. 95, Computer Communications , 2016.

  • This study explores the potential of using data from multiple sources (e.g., Twitter and Foursquare), in addition to GPS data, to provide a more accurate prediction of human mobility. This heterogenous data captures popularity of different locations, frequency of visits to those locations, and the relationships among people who are moving around the target area. The authors’ initial experimentation finds that the combination of these sources of data are demonstrated to be more accurate in identifying human mobility patterns.

Wilson, Robin, et al. Rapid and Near Real-Time Assessments of Population Displacement Using Mobile Phone Data Following Disasters: The 2015 Nepal Earthquake. PLOS Current Disasters, 2016.

  • Utilizing call detail records of 12 million mobile phone users in Nepal, this study seeks spatio-temporal details of the population after the earthquake on April 25, 2015.
  • It seeks to answer the problem of slow and ineffective disaster response, by capturing near real-time displacement pattern provided by mobile phone call detail records, in order to inform humanitarian agencies on where to distribute their assistance. The preliminary results of this study were available nine days after the earthquake.
  • This project relies on the foundational cooperation with mobile phone operator, who supplied the de-identified data from 12 million users, before the earthquake.
  • The study finds that shortly after the earthquake there was an anomalous population movement out of the Kathmandu Valley, the most impacted area, to surrounding areas. The study estimates 390,000 people above normal had left the valley.

Data, Gender and Mobility

Althoff, Tim, et al. “Large-Scale Physical Activity Data Reveal Worldwide Activity Inequality.” Nature, 2017.

  • This study’s analysis of worldwide physical activity is built on a dataset containing 68 million days of physical activity of 717,527 people collected through their smartphone accelerometers.
  • The authors find a significant reduction in female activity levels in cities with high active inequality, where high active inequality is associated with low city walkability – walkability indicators include pedestrian facilities (city block length, intersection density, etc.) and amenities (shops, parks, etc.).
  • Further, they find that high active inequality is associated with high levels of inactivity-related health problems, like obesity.

Borker, Girija. “Safety First: Street Harassment and Women’s Educational Choices in India.” Stop Street Harassment, 2017.

  • Using data collected from SafetiPin, an application that allows user to mark an area on a map as safe or not, and Safecity, another application that lets users share their experience of harassment in public places, the researcher analyzes the safety of travel routes surrounding different colleges in India and their effect on women’s college choices.
  • The study finds that women are willing to go to a lower ranked college in order to avoid higher risk of street harassment. Women who choose the best college from their set of options, spend an average of $250 more each year to access safer modes of transportation.

Frias-Martinez, Vanessa, Enrique Frias-Martinez, and Nuria Oliver. A Gender-Centric Analysis of Calling Behavior in a Developing Economy Using Call Detail Records. Association for the Advancement of Articial Intelligence, 2010.

  • Using encrypted Call Detail Records (CDRs) of 10,000 participants in a developing economy, this study analyzes the behavioral, social, and mobility variables to determine the gender of a mobile phone user, and finds that there is a difference in behavioral and social variables in mobile phone use between female and male.
  • It finds that women have higher usage of phone in terms of number of calls made, call duration, and call expenses compared to men. Women also have bigger social network, meaning that the number of unique phone numbers that contact or get contacted is larger. It finds no statistically significant difference in terms of distance made between calls in men and women.
  • Frias-Martinez et al recommends to take these findings into consideration when designing a cellphone based service.

Psylla, Ioanna, Piotr Sapiezynski, Enys Mones, Sune Lehmann. “The role of gender in social network organization.” PLoS ONE 12, December 20, 2017.

  • Using a large dataset of high resolution data collected through mobile phones, as well as detailed questionnaires, this report studies gender differences in a large cohort. The researchers consider mobility behavior and individual personality traits among a group of more than 800 university students.
  • Analyzing mobility data, they find both that women visit more unique locations over time, and that they have more homogeneous time distribution over their visited locations than men, indicating the time commitment of women is more widely spread across places.

Vaitla, Bapu. Big Data and the Well-Being of Women and Girls: Applications on the Social Scientific Frontier. Data2X, Apr. 2017.

  • In this study, the researchers use geospatial data, credit card and cell phone information, and social media posts to identify problems–such as malnutrition, education, access to healthcare, mental health–facing women and girls in developing countries.
  • From the credit card and cell phone data in particular, the report finds that analyzing patterns of women’s spending and mobility can provide useful insight into Latin American women’s “economic lifestyles.”
  • Based on this analysis, Vaitla recommends that various untraditional big data be used to fill gaps in conventional data sources to address the common issues of invisibility of women and girls’ data in institutional databases.