Citizen-generated evidence for a more sustainable and healthy food system


Research Report by Bill Vorley:  “Evidence generation by and with low-income citizens is particularly important if policy makers are to improve understanding of people’s diets and the food systems they use, in particular the informal economy. The informal food economy is the main route for low-income communities to secure their food, and is an important source of employment, especially for women and youth. The very nature of informality means that the realities of poor people’s lives are often invisible to policymakers. This invisibility is a major factor in exclusion and results in frequent mismatches between policy and local realities. This paper focuses on citizen-generated evidence as a means for defending and improving the food system of the poor. It clearly outlines a range of approaches to citizen-generated evidence including primary data collection and citizen access to and use of existing information….(More)”.

Mapping the economy in real time is almost ‘within our grasp’


Delphine Strauss at the Financial Times: “The goal of mapping economic activity in real time, just as we do for weather or traffic, is “closer than ever to being within our grasp”, according to Andy Haldane, the Bank of England’s chief economist. In recent years, “data has become the new oil . . . and data companies have become the new oil giants”, Mr Haldane told an audience at King’s Business School …

But economics and finance have been “rather reticent about fully embracing this oil-rush”, partly because economists have tended to prefer a deductive approach that puts theory ahead of measurement. This needs to change, he said, because relying too much on either theory or real-world data in isolation can lead to serious mistakes in policymaking — as was seen when the global financial crisis exposed the “empirical fragility” of macroeconomic models.

Parts of the private sector and academia have been far swifter to exploit the vast troves of ever-accumulating data now available — 90 per cent of which has been created in the last two years alone. Massachusetts Institute of Technology’s “Billion Prices Project”, name-checked in Mr Haldane’s speech, now collects enough data from online retailers for its commercial arm to provide daily inflation updates for 22 economies….

The UK’s Office for National Statistics — which has faced heavy criticism over the quality of its data in recent years — is experimenting with “web-scraping” to collect price quotes for food and groceries, for example, and making use of VAT data from small businesses to improve its output-based estimates of gross domestic product. In both cases, the increased sample size and granularity could bring considerable benefits on top of existing surveys, Mr Haldane said.

The BoE itself is trying to make better use of financial data — for example, by using administrative data on owner-occupied mortgages to better understand pricing decisions in the UK housing market. Mr Haldane sees scope to go further with the new data coming on stream on payment, credit and banking flows. …New data sources and techniques could also help policymakers think about human decision-making — which rarely conforms with the rational process assumed in many economic models. Data on music downloads from Spotify, used as an indicator of sentiment, has recently been shown to do at least as well as a standard consumer confidence survey in tracking consumer spending….(More)”.

Prescription drugs that kill: The challenge of identifying deaths in government data


Mike Stucka at Data Driven Journalism: “An editor at The Palm Beach Post printed out hundreds of pages of reports and asked a simple question that turned out to be weirdly complex: How many people were being killed by a prescription drug?

That question relied on version of a report that was soon discontinued by the U.S. Food and Drug Administration. Instead, the agency built a new web site that doesn’t allow exports or the ability to see substantial chunks of the data. So, I went to raw data files that were horribly formatted — and, before the project was over, the FDA had reissued some of those data files and taken most of them offline.

But I didn’t give up hope. Behind the data — known as FAERS, or FDA Adverse Event Reporting System — are more than a decade of data for suspected drug complications of nearly every kind. With multiple drugs in many reports, and multiple versions of many reports, the list of drugs alone comes to some 35 million reports. And it’s a potential gold mine.

How much of a gold mine? For one relatively rare drug, meant only for the worst kind of cancer pain, we found records tying the drug to more than 900 deaths. A salesman had hired a former exotic dancer and a former Playboy model to help sell the drug known as Subsys. He then pushed salesmen to up the dosage, John Pacenti and Holly Baltz found in their package, “Pay To Prescribe? The Fentanyl Scandal.”

FAERS has some serious limitations, but some serious benefits. The data can tell you why a drug was prescribed; it can tell you if a person was hospitalized because of a drug reaction, or killed, or permanently disabled. It can tell you what country the report came from. It’s got the patient age. It’s got the date of reporting. It’s got other drugs involved. Dosage. There’s a ton of useful information.

Now the bad stuff: There may be multiple reports for each actual case, as well as multiple versions of a single “case” ID….(More)”

Citizenship and democratic production


Article by Mara Balestrini and Valeria Right in Open Democracy: “In the last decades we have seen how the concept of innovation has changed, as not only the ecosystem of innovation-producing agents, but also the ways in which innovation is produced have expanded. The concept of producer-innovation, for example, where companies innovate on the basis of self-generated ideas, has been superseded by the concept of user-innovation, where innovation originates from the observation of the consumers’ needs, and then by the concept of consumer-innovation, where consumers enhanced by the new technologies are themselves able to create their own products. Innovation-related business models have changed too. We now talk about not only patent-protected innovation, but also open innovation and even free innovation, where open knowledge sharing plays a key role.

A similar evolution has taken place in the field of the smart city. While the first smart city models prioritized technology left in the hands of experts as a key factor for solving urban problems, more recent initiatives such as Sharing City (Seoul), Co-city (Bologna), or Fab City (Barcelona) focus on citizen participation, open data economics and collaborative-distributed processes as catalysts for innovative solutions to urban challenges. These initiatives could prompt a new wave in the design of more inclusive and sustainable cities by challenging existing power structures, amplifying the range of solutions to urban problems and, possibly, creating value on a larger scale.

In a context of economic austerity and massive urbanization, public administrations are acknowledging the need to seek innovative alternatives to increasing urban demands. Meanwhile, citizens, harnessing the potential of technologies – many of them accessible through open licenses – are putting their creative capacity into practice and contributing to a wave of innovation that could reinvent even the most established sectors.

Contributive production

The virtuous combination of citizen participation and abilities, digital technologies, and open and collaborative strategies is catalyzing innovation in all areas. Citizen innovation encompasses everything, from work and housing to food and health. The scope of work, for example, is potentially affected by the new processes of manufacturing and production on an individual scale: citizens can now produce small and large objects (new capacity), thanks to easy access to new technologies such as 3D printers (new element); they can also take advantage of new intellectual property licenses by adapting innovations from others and freely sharing their own (new rule) in response to a wide range of needs.

Along these lines, between 2015 and 2016, the city of Bristol launched a citizen innovation program aimed at solving problems related to the state of rented homes, which produced solutions through citizen participation and the use of sensors and open data. Citizens designed and produced themselves temperature and humidity sensors – using open hardware (Raspberry Pi), 3D printers and laser cutters – to combat problems related to home damp. These sensors, placed in the homes, allowed to map the scale of the problem, to differentiate between condensation and humidity, and thus to understand if the problem was due to structural failures of the buildings or to bad habits of the tenants. Through the inclusion of affected citizens, the community felt empowered to contribute ideas towards solutions to its problems, together with the landlords and the City Council.

A similar process is currently being undertaken in Amsterdam, Barcelona and Pristina under the umbrella of the Making Sense Project. In this case, citizens affected by environmental issues are producing their own sensors and urban devices to collect open data about the city and organizing collective action and awareness interventions….

Digital social innovation is disrupting the field of health too. There are different manifestations of these processes. First, platforms such as DataDonors or PatientsLikeMe show that there is an increasing citizen participation in biomedical research through the donation of their own health data…. projects such as OpenCare in Milan and mobile applications like Good Sam show how citizens can organize themselves to provide medical services that otherwise would be very costly or at a scale and granularity that the public sector could hardly afford….

The production processes of these products and services force us to think about their political implications and the role of public institutions, as they question the cities’ existing participation and contribution rules. In times of sociopolitical turbulence and austerity plans such as these, there is a need to design and test new approaches to civic participation, production and management which can strengthen democracy, add value and take into account the aspirations, emotional intelligence and agency of both individuals and communities.

In order for the new wave of citizen production to generate social capital, inclusive innovation and well-being, it is necessary to ensure that all citizens, particularly those from less-represented communities, are empowered to contribute and participate in the design of cities-for-all. It is therefore essential to develop programs to increase citizen access to the new technologies and the acquisition of the knowhow and skills needed to use and transform them….(More)

This piece is an excerpt from an original article published as part of the eBook El ecosistema de la Democracia Abierta.

If, When and How Blockchain Technologies Can Provide Civic Change


By Stefaan G. Verhulst and Andrew Young

The hype surrounding the potential of blockchain technologies– the distributed ledger technology (DLT) undergirding cryptocurrencies like Bitcoin – to transform the way industries and sectors operate and exchange records is reaching a fever pitch.

Gartner Hype Cycle

Source: Top Trends in the Gartner Hype Cycle for Emerging Technologies, 2017

Governments and civil society have now also joined the quest and are actively exploring the potential of DLTs to create transformative social change. Experiments are underway to leverage blockchain technologies to address major societal challenges – from homelessness in New York City to the Rohyingya crisis in Myanmar to government corruption around the world. At the same time, a growing backlash to the newest ‘shiny object’ in the technology for good space is gaining ground.   

At this year’s The Impacts of Civic Technology Conference (TICTeC), organized by mySociety in Lisbon, the GovLab’s Stefaan Verhulst and Andrew Young joined the Engine Room’s Nicole Anand, the Natural Resource Governance Institute’s Anders Pedersen, and ITS-Rio’s Marco Konopacki to consider whether or not Blockchain can truly deliver on its promise for creating civic change.

For the GovLab’s contribution to the panel, we shared early findings from our Blockchange: Blockchain for Social Change initiative. Blockchange, funded by the Rockefeller Foundation, seeks to develop a deeper understanding of the promise and practice of DLTs tin addressing public problems – with a particular focus on the lack, the role and the establishment of trusted identities – through a set of detailed case-studies. Such insights may help us develop operational guidelines on when blockchain technology may be appropriate and what design principles should guide the future use of DLTs for good.

Our presentation covered four key areas (Full presentation here):

  1. The evolving package of attributes present in Blockchain technologies: on-going experimentation, development and investment has lead to the realization that there is no one blockchain technology. Rather there are several variations of attributes that provide for different technological scenarios. Some of these attributes remain foundational -– such as immutability, (guaranteed) integrity, and distributed resilience – while others have evolved as optional including disintermediation, transparency, and accessibility. By focusing on the attributes we can transcend the noise that is emerging from having too many well funded start-ups that seek to pitch their package of attributes as the solution;Attributes of DLT
  2. The three varieties of Blockchain for social change use cases: Most of the pilots and use cases where DLTs are being used to improve society and people’s lives can be categorized along three varieties of applications:
    • Track and Trace applications. For instance: 
      1. Versiart creates verifiable, digital certificates for art and collectibles which helps buyers ensure each piece’s provenance.
      2. Grassroots Cooperative along with Heifer USA created a blockchain-powered app that allows every package of chicken marketed and sold by Grassroots to be traced on the Ethereum blockchain.
      3. Everledger works with stakeholders across the diamond supply chain to track diamonds from mine to store.
      4. Ripe is working with Sweetgreen to use blockchain and IoT sensors to track crop growth, yielding higher-quality produce and providing better information for farmers, food distributors, restaurants, and consumers.    
    • Smart Contracting applications. For instance:
      1. In Indonesia, Carbon Conservation and Dappbase have created smart contracts that will distribute rewards to villages that can prove the successful reduction of incidences of forest fires.
      2. Alice has built Ethereum-based smart contracts for a donation project that supports 15 homeless people in London. The smart contracts ensure donations are released only when pre-determined project goals are met.
      3. Bext360 utilizes smart contracts to pay coffee farmers fairly and immediately based on a price determined through weighing and analyzing beans by the Bext360 machine at the source.  
    • Identity applications. For instance:
      1. The State of Illinois is working with Evernym to digitize birth certificates, thus giving individuals a digital identity from birth.
      2. BanQu creates an economic passport for previously unbanked populations by using blockchain to record economic and financial transactions, purchase goods, and prove their existence in global supply chains.
      3. In 2015, AID:Tech piloted a project working with Syrian refugees in Lebanon to distribute over 500 donor aid cards that were tied to non-forgeable identities.
      4. uPort provides digital identities for residents of Zug, Switzerland to use for governmental services.

Three Blockchange applications

  1. The promise of trusted Identity: the potential to establish a trusted identity turns out to be foundational for using blockchain technologies for social change. At the same time identity emerges from a process (involving, for instance, provisioning, authentication, administration, authorization and auditing) and it is key to assess at what stage of the ID lifecycle DLTs provide an advantage vis-a-vis other ID technologies; and how the maturity of the blockchain technology toward addressing the ID challenge. 

ID Lifecycle and DLT

  1. Finally, we seek to translate current findings into
    • Operational conditions that can enable the public and civic sector at-large to determine when “to blockchain” including:
      • The need for a clear problem definition (as opposed to certain situations where DLT solutions are in search of a problem);
      • The presence of information asymmetries and high transaction costs incentivize change. (“The Market of Lemons” problem);
      • The availability of (high quality) digital records;
      • The lack of availability of credible and alternative disclosure technologies;
      • Deficiency (or efficiency) of (trusted) intermediaries in the space.
    • Design principles that can increase the likelihood of societal benefit when using Blockchain for identity projects (see picture) .

Design Principles

In the coming months, we will continue to share our findings from the Blockchange project in a number of forms – including a series of case studies, additional presentations and infographics, and an operational field guide for designing and implementing Blockchain projects to address challenges across the identity lifecycle.

The GovLab, in collaboration with the National Resource Governance Institute, is also delighted to announce a new initiative aimed at taking stock of the promise, practice and challenge of the use of Blockchain in the extractives sector. The project is focused in particular on DLTs as they relate to beneficial ownership, licensing and contracting transparency, and commodity trading transparency. This fall, we will share a collection of Blockchain for extractives case studies, as well as a report summarizing if, when, and how Blockchain can provide value across the extractives decision chain.

If you are interested in collaborating on our work to increase our understanding of Blockchain’s real potential for social change, or if you have any feedback on this presentation of early findings, please contact blockchange@thegovlab.org.

 

Redefining ‘impact’ so research can help real people right away, even before becoming a journal article


Perhaps nowhere is impact of greater importance than in my own fields of ecology and conservation science. Researchers often conduct this work with the explicit goal of contributing to the restoration and long-term survival of the species or ecosystem in question. For instance, research on an endangered plant can help to address the threats facing it.

But scientific impact is a very tricky concept. Science is a process of inquiry; it’s often impossible to know what the outcomes will be at the start. Researchers are asked to imagine potential impacts of their work. And people who live and work in the places where the research is conducted may have different ideas about what impact means.

In collaboration with several Bolivian colleagues, I studied perceptions of research and its impact in a highly biodiverse area in the Bolivian Amazon. We found that researchers – both foreign-based and Bolivian – and people living and working in the area had different hopes and expectations about what ecological research could help them accomplish…

Eighty-three percent of researchers queried told us their work had implications for management at community, regional and national levels rather than at the international level. For example, knowing the approximate populations of local primate species can be important for communities who rely on the animals for food and ecotourism.

But the scale of relevance didn’t necessarily dictate how researchers actually disseminated the results of their work. Rather, we found that the strongest predictor of how and with whom a researcher shared their work was whether they were based at a foreign or national institution. Foreign-based researchers had extremely low levels of local, regional or even national dissemination. However, they were more likely than national researchers to publish their findings in the international literature….

Rather than impact being addressed at the end of research, societal impacts can be part of the first stages of a study. For example, people living in the region where data is to be collected might have insight into the research questions being investigated; scientists need to build in time and plan ways to ask them. Ecological fieldwork presents many opportunities for knowledge exchange, new ideas and even friendships between different groups. Researchers can take steps to engage more directly with community life, such as by taking a few hours to teach local school kids about their research….(More)”.

How open contracting helped fix Colombia’s biggest school meal program


Open Contracting Stories: “In the early hours of the morning, in an industrial area of Colombia’s capital, Bogotá, a warehouse hums with workers, their faces barely visible under white masks and hair nets. The walls are stacked with colored plastic crates. Filled with various fruit, cereals, drinks, and desserts, they will be packed into refrigerated trucks and delivered to public schools all over Bogotá before most children have settled in for their first classes. A similar operation is underway in five other warehouses across the city, as part of a $170 million program to ensure fresh, nutritious food reaches more than 800,000 hungry students between the age of four and 18 every day.

Food delivery and its quality have not always been so streamlined in the past. High poverty rates in the city mean that many children consume their main meal for the day at school. And getting those refreshments to the schools at over 700 locations each day is a huge logistical challenge. With a population of nearly nine million inhabitants, Bogotá is one of the largest cities in Latin America and one of the most traffic congested cities in the world.

Then there’s the notorious inefficiency and corruption in the provision of school meals across Colombia. Suppliers throughout the country have regularly been accused of failing to deliver food or inflating prices in scandalsthat made national headlines. In the city of Cartagena, chicken breasts sent to schools cost four times the amount as those at markets and the children reportedly never received 30 million meals. In the Amazonas region, an investigation by the Comptroller General found the price of a food contract was inflated by more than 297 million pesos (US$100,000), including pasta purchased at more than three times the market rate….

The solution, based on the pilot and these conversations, was to divide the process in two to cut out the middlemen and reduce transaction costs. The first part was sourcing the food. The second was to organize the assembly and distribution of the snacks to every school.

Suppliers are now commissioned by participating in a tender for a framework agreement that sets the general conditions and price caps, while quantities and final prices are established when a purchase is needed.

“In a normal contract, we say, for example, ‘you will give me five apples and they will cost 100.’ In a framework agreement, we say ‘you will provide me apples for one year at a maximum price of X’, and each time we put up a purchase order, we have several suppliers and capped prices. So they bid on purchase orders when needed,” explains Penagos.

Each food item has several suppliers under this new framework agreement. So if one supplier can’t fulfill the purchase order or has a logistical issue, another supplier can take over. This prevents a situation where suppliers have so much bargaining power that they can set their own prices and conditions knowing that the administration can’t refuse because it would mean the children don’t receive the food.

The purchase orders are filled each month on the government’s online marketplace, with the details of the order published for the public to see which supplier won…

Sharing information with the public, parents and potential suppliers was an important part of the plan, too. Details about how the meals were procured became available on a public online platform for all to see, in a way that was easy to understand.

Through a public awareness campaign, Angulo, the education secretary, told the public about the faults in the market that the secretariat had detected. They had changed the process of public contracting to be more transparent….(More).

Inside the Jordan refugee camp that runs on blockchain


Russ Juskalian at MIT Tech Review: “…Though Bassam may not know it, his visit to the supermarket involves one of the first uses of blockchain for humanitarian aid. By letting a machine scan his iris, he confirmed his identity on a traditional United Nations database, queried a family account kept on a variant of the Ethereum blockchain by the World Food Programme (WFP), and settled his bill without opening his wallet.

Started in early 2017, Building Blocks, as the program is known, helps the WFP distribute cash-for-food aid to over 100,000 Syrian refugees in Jordan. By the end of this year, the program will cover all 500,000 refugees in the country. If the project succeeds, it could eventually speed the adoption of blockchain technologies at sister UN agencies and beyond.

Building Blocks was born of a need to save money. The WFP  helps feed 80 million people around the globe, but since 2009 the organization has shifted from delivering food to transferring money to people who need food. This approach could feed more people, improve local economies, and increase transparency. But it also introduces a notable point of inefficiency: working with local or regional banks. For the WFP, which transferred over $1.3 billion in such benefits in 2017 (about 30 percent of its total aid), transaction and other fees are money that could have gone to millions of meals. Early results of the blockchain program touted a 98 percent reduction in such fees.

And if the man behind the project, WFP executive Houman Haddad, has his way, the blockchain-based program will do far more than save money. It will tackle a central problem in any humanitarian crisis: how do you get people without government identity documents or a bank account into a financial and legal system where those things are prerequisites to getting a job and living a secure life?

Haddad imagines Bassam one day walking out of Zaatari with a so-called digital wallet, filled with his camp transaction history, his government ID, and access to financial accounts, all linked through a blockchain-based identity system. With such a wallet, when Bassam left the camp he could much more easily enter the world economy. He would have a place for an employer to deposit his pay, for a mainstream bank to see his credit history, and for a border or immigration agent to check his identity, which would be attested to by the UN, the Jordanian government, and possibly even his neighbors….

But because Building Blocks runs on a small, permissioned blockchain, the project’s scope and impact are narrow. So narrow that some critics say it’s a gimmick and the WFP could just as easily use a traditional database. Haddad acknowledges that—“Of course we could do all of what we’re doing today without using blockchain,” he says. But, he adds, “my personal view is that the eventual end goal is digital ID, and beneficiaries must own and control their data.”

Other critics say blockchains are too new for humanitarian use. Plus, it’s ethically risky to experiment with vulnerable populations, says Zara Rahman, a researcher based in Berlin at the Engine Room, a nonprofit group that supports social-change organizations in using technology and data. After all, the bulk collection of identifying information and biometrics has historically been a disaster for people on the run….(More)”.

Selected Readings on Data Responsibility, Refugees and Migration


By Kezia Paladina, Alexandra Shaw, Michelle Winowatan, Stefaan Verhulst, and Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of Data Collaboration for Migration was originally published in 2018.

Special thanks to Paul Currion whose data responsibility literature review gave us a headstart when developing the below. (Check out his article listed below on Refugee Identity)

The collection below is also meant to complement our article in the Stanford Social Innovation Review on Data Collaboration for Migration where we emphasize the need for a Data Responsibility Framework moving forward.

From climate change to politics to finance, there is growing recognition that some of the most intractable problems of our era are information problems. In recent years, the ongoing refugee crisis has increased the call for new data-driven approaches to address the many challenges and opportunities arising from migration. While data – including data from the private sector – holds significant potential value for informing analysis and targeted international and humanitarian response to (forced) migration, decision-makers often lack an actionable understanding of if, when and how data could be collected, processed, stored, analyzed, used, and shared in a responsible manner.

Data responsibility – including the responsibility to protect data and shield its subjects from harms, and the responsibility to leverage and share data when it can provide public value – is an emerging field seeking to go beyond just privacy concerns. The forced migration arena has a number of particularly important issues impacting responsible data approaches, including the risks of leveraging data regarding individuals fleeing a hostile or repressive government.

In this edition of the GovLab’s Selected Readings series, we examine the emerging literature on the data responsibility approaches in the refugee and forced migration space – part of an ongoing series focused on Data Responsibiltiy. The below reading list features annotated readings related to the Policy and Practice of data responsibility for refugees, and the specific responsibility challenges regarding Identity and Biometrics.

Data Responsibility and Refugees – Policy and Practice

International Organization for Migration (IOM) (2010) IOM Data Protection Manual. Geneva: IOM.

  • This IOM manual includes 13 data protection principles related to the following activities: lawful and fair collection, specified and legitimate purpose, data quality, consent, transfer to third parties, confidentiality, access and transparency, data security, retention and personal data, application of the principles, ownership of personal data, oversight, compliance and internal remedies (and exceptions).
  • For each principle, the IOM manual features targeted data protection guidelines, and templates and checklists are included to help foster practical application.

Norwegian Refugee Council (NRC) Internal Displacement Monitoring Centre / OCHA (eds.) (2008) Guidance on Profiling Internally Displaced Persons. Geneva: Inter-Agency Standing Committee.

  • This NRC document contains guidelines on gathering better data on Internally Displaced Persons (IDPs), based on country context.
  • IDP profile is defined as number of displaced persons, location, causes of displacement, patterns of displacement, and humanitarian needs among others.
  • It further states that collecting IDPs data is challenging and the current condition of IDPs data are hampering assistance programs.
  • Chapter I of the document explores the rationale for IDP profiling. Chapter II describes the who aspect of profiling: who IDPs are and common pitfalls in distinguishing them from other population groups. Chapter III describes the different methodologies that can be used in different contexts and suggesting some of the advantages and disadvantages of each, what kind of information is needed and when it is appropriate to profile.

United Nations High Commissioner for Refugees (UNHCR). Model agreement on the sharing of personal data with Governments in the context of hand-over of the refugee status determination process. Geneva: UNHCR.

  • This document from UNHCR provides a template of agreement guiding the sharing of data between a national government and UNHCR. The model agreement’s guidance is aimed at protecting the privacy and confidentiality of individual data while promoting improvements to service delivery for refugees.

United Nations High Commissioner for Refugees (UNHCR) (2015). Policy on the Protection of Personal Data of Persons of Concern to UNHCR. Geneva: UNHCR.

  • This policy outlines the rules and principles regarding the processing of personal data of persons engaged by UNHCR with the purpose of ensuring that the practice is consistent with UNGA’s regulation of computerized personal data files that was established to protect individuals’ data and privacy.
  • UNHCR require its personnel to apply the following principles when processing personal data: (i) Legitimate and fair processing (ii) Purpose specification (iii) Necessity and proportionality (iv) Accuracy (v) Respect for the rights of the data subject (vi) Confidentiality (vii) Security (viii) Accountability and supervision.

United Nations High Commissioner for Refugees (UNHCR) (2015) Privacy Impact Assessment of UNHCR Cash Based Interventions.

  • This impact assessment focuses on privacy issues related to financial assistance for refugees in the form of cash transfers. For international organizations like UNHCR to determine eligibility for cash assistance, data “aggregation, profiling, and social sorting techniques,” are often needed, leading a need for a responsible data approach.
  • This Privacy Impact Assessment (PIA) aims to identify the privacy risks posed by their program and seek to enhance safeguards that can mitigate those risks.
  • Key issues raised in the PIA involves the challenge of ensuring that individuals’ data will not be used for purposes other than those initially specified.

Data Responsibility in Identity and Biometrics

Bohlin, A. (2008) “Protection at the Cost of Privacy? A Study of the Biometric Registration of Refugees.” Lund: Faculty of Law of the University of Lund.

  • This 2008 study focuses on the systematic biometric registration of refugees conducted by UNHCR in refugee camps around the world, to understand whether enhancing the registration mechanism of refugees contributes to their protection and guarantee of human rights, or whether refugee registration exposes people to invasions of privacy.
  • Bohlin found that, at the time, UNHCR failed to put a proper safeguards in the case of data dissemination, exposing the refugees data to the risk of being misused. She goes on to suggest data protection regulations that could be put in place in order to protect refugees’ privacy.

Currion, Paul. (2018) “The Refugee Identity.” Medium.

  • Developed as part of a DFID-funded initiative, this essay considers Data Requirements for Service Delivery within Refugee Camps, with a particular focus on refugee identity.
  • Among other findings, Currion finds that since “the digitisation of aid has already begun…aid agencies must therefore pay more attention to the way in which identity systems affect the lives and livelihoods of the forcibly displaced, both positively and negatively.”
  • Currion argues that a Responsible Data approach, as opposed to a process defined by a Data Minimization principle, provides “useful guidelines,” but notes that data responsibility “still needs to be translated into organisational policy, then into institutional processes, and finally into operational practice.”

Farraj, A. (2010) “Refugees and the Biometric Future: The Impact of Biometrics on Refugees and Asylum Seekers.” Colum. Hum. Rts. L. Rev. 42 (2010): 891.

  • This article argues that biometrics help refugees and asylum seekers establish their identity, which is important for ensuring the protection of their rights and service delivery.
  • However, Farraj also describes several risks related to biometrics, such as, misidentification and misuse of data, leading to a need for proper approaches for the collection, storage, and utilization of the biometric information by government, international organizations, or other parties.  

GSMA (2017) Landscape Report: Mobile Money, Humanitarian Cash Transfers and Displaced Populations. London: GSMA.

  • This paper from GSMA seeks to evaluate how mobile technology can be helpful in refugee registration, cross-organizational data sharing, and service delivery processes.
  • One of its assessments is that the use of mobile money in a humanitarian context depends on the supporting regulatory environment that contributes to unlocking the true potential of mobile money. The examples include extension of SIM dormancy period to anticipate infrequent cash disbursements, ensuring that persons without identification are able to use the mobile money services, and so on.
  • Additionally, GMSA argues that mobile money will be most successful when there is an ecosystem to support other financial services such as remittances, airtime top-ups, savings, and bill payments. These services will be especially helpful in including displaced populations in development.

GSMA (2017) Refugees and Identity: Considerations for mobile-enabled registration and aid delivery. London: GSMA.

  • This paper emphasizes the importance of registration in the context of humanitarian emergency, because being registered and having a document that proves this registration is key in acquiring services and assistance.
  • Studying cases of Kenya and Iraq, the report concludes by providing three recommendations to improve mobile data collection and registration processes: 1) establish more flexible KYC for mobile money because where refugees are not able to meet existing requirements; 2) encourage interoperability and data sharing to avoid fragmented and duplicative registration management; and 3) build partnership and collaboration among governments, humanitarian organizations, and multinational corporations.

Jacobsen, Katja Lindskov (2015) “Experimentation in Humanitarian Locations: UNHCR and Biometric Registration of Afghan Refugees.” Security Dialogue, Vol 46 No. 2: 144–164.

  • In this article, Jacobsen studies the biometric registration of Afghan refugees, and considers how “humanitarian refugee biometrics produces digital refugees at risk of exposure to new forms of intrusion and insecurity.”

Jacobsen, Katja Lindskov (2017) “On Humanitarian Refugee Biometrics and New Forms of Intervention.” Journal of Intervention and Statebuilding, 1–23.

  • This article traces the evolution of the use of biometrics at the Office of the United Nations High Commissioner for Refugees (UNHCR) – moving from a few early pilot projects (in the early-to-mid-2000s) to the emergence of a policy in which biometric registration is considered a ‘strategic decision’.

Manby, Bronwen (2016) “Identification in the Context of Forced Displacement.” Washington DC: World Bank Group. Accessed August 21, 2017.

  • In this paper, Bronwen describes the consequences of not having an identity in a situation of forced displacement. It prevents displaced population from getting various services and creates higher chance of exploitation. It also lowers the effectiveness of humanitarian actions, as lacking identity prevents humanitarian organizations from delivering their services to the displaced populations.
  • Lack of identity can be both the consequence and and cause of forced displacement. People who have no identity can be considered illegal and risk being deported. At the same time, conflicts that lead to displacement can also result in loss of ID during travel.
  • The paper identifies different stakeholders and their interest in the case of identity and forced displacement, and finds that the biggest challenge for providing identity to refugees is the politics of identification and nationality.
  • Manby concludes that in order to address this challenge, there needs to be more effective coordination among governments, international organizations, and the private sector to come up with an alternative of providing identification and services to the displaced persons. She also argues that it is essential to ensure that national identification becomes a universal practice for states.

McClure, D. and Menchi, B. (2015). Challenges and the State of Play of Interoperability in Cash Transfer Programming. Geneva: UNHCR/World Vision International.

  • This report reviews the elements that contribute to the interoperability design for Cash Transfer Programming (CTP). The design framework offered here maps out these various features and also looks at the state of the problem and the state of play through a variety of use cases.
  • The study considers the current state of play and provides insights about the ways to address the multi-dimensionality of interoperability measures in increasingly complex ecosystems.     

NRC / International Human Rights Clinic (2016). Securing Status: Syrian refugees and the documentation of legal status, identity, and family relationships in Jordan.

  • This report examines Syrian refugees’ attempts to obtain identity cards and other forms of legally recognized documentation (mainly, Ministry of Interior Service Cards, or “new MoI cards”) in Jordan through the state’s Urban Verification Exercise (“UVE”). These MoI cards are significant because they allow Syrians to live outside of refugee camps and move freely about Jordan.
  • The text reviews the acquirement processes and the subsequent challenges and consequences that refugees face when unable to obtain documentation. Refugees can encounter issues ranging from lack of access to basic services to arrest, detention, forced relocation to camps and refoulement.  
  • Seventy-two Syrian refugee families in Jordan were interviewed in 2016 for this report and their experiences with obtaining MoI cards varied widely.

Office of Internal Oversight Services (2015). Audit of the operations in Jordan for the Office of the United Nations High Commissioner for Refugees. Report 2015/049. New York: UN.

  • This report documents the January 1, 2012 – March 31, 2014 audit of Jordanian operations, which is intended to ensure the effectiveness of the UNHCR Representation in the state.
  • The main goals of the Regional Response Plan for Syrian refugees included relieving the pressure on Jordanian services and resources while still maintaining protection for refugees.
  • The audit results concluded that the Representation was initially unsatisfactory, and the OIOS suggested several recommendations according to the two key controls which the Representation acknowledged. Those recommendations included:
    • Project management:
      • Providing training to staff involved in financial verification of partners supervise management
      • Revising standard operating procedure on cash based interventions
      • Establishing ways to ensure that appropriate criteria for payment of all types of costs to partners’ staff are included in partnership agreements
    • Regulatory framework:
      • Preparing annual need-based procurement plan and establishing adequate management oversight processes
      • Creating procedures for the assessment of renovation work in progress and issuing written change orders
      • Protecting data and ensuring timely consultation with the UNHCR Division of Financial and Administrative Management

UNHCR/WFP (2015). Joint Inspection of the Biometrics Identification System for Food Distribution in Kenya. Geneva: UNHCR/WFP.

  • This report outlines the partnership between the WFP and UNHCR in its effort to promote its biometric identification checking system to support food distribution in the Dadaab and Kakuma refugee camps in Kenya.
  • Both entities conducted a joint inspection mission in March 2015 and was considered an effective tool and a model for other country operations.
  • Still, 11 recommendations are proposed and responded to in this text to further improve the efficiency of the biometric system, including real-time evaluation of impact, need for automatic alerts, documentation of best practices, among others.

What Do State Chief Data Officers Do?


Kil Huh and Sallyann Bergh at the Pew Charitable Trust: ” In 2017, Hurricane Harvey heaped destruction on the state of Texas. With maximum wind speeds clocked at nearly 135 miles per hour, and a record rainfall of more than 60 inches  that resulted in 3 to 4 feet of water flooding Houston’s metro area, the state is still recovering from the storm’s devastation.  Harvey is among the most expensive U.S. hurricanes on record.

As the storm made landfall, Texas government agencies mapped affected areas in real time to help first responders identify the most vulnerable citizens and places. The state’s Geographic Information Systems (GIS) group shared numerous map updates that informed law enforcement and other government agencies of the hardest hit areas, which enabled the efficient delivery of food, water, and other critical supplies. The group also helped identify safe, dry, “lily pad” areas where helicopters could land, ascertained the best evacuation routes, mapped areas where people were most critically in need of rescue, and analyzed the status of flooded schools to estimate reopenings. Additionally, mapping service data prompted the Sabine River Authority of Texas to dam its pump station before the flooding occurred—which averted $2 million in property losses.

Data from multiple state agencies, used to launch the Google Imagery Project in 2015, made this storm response possible. Furthermore, a crucial element of the state’s preparation was the hiring of a state data coordinator, a job known as chief data officer (CDO) in other states. These positions play a key role in advancing the quality of data used as a strategic asset to support more effective program investments. CDOs create data-driven solutions for intermittent issues like hurricanes and traffic events, as well as for chronic problems like poverty.

In February 2018, The Pew Charitable Trusts’ project on data as a strategic asset published a 50-state report, “How States Use Data to Inform Decisions,” which explores the five key actions that promote data-driven decision-making in states: planning ahead, building capacity, sharing data, analyzing data to create meaningful information, and sustaining data efforts to enhance their capabilities. CDOs have helped states implement these steps to support more data-informed decision-making, and states are increasingly acknowledging the important role this position plays in governance efforts….(More)”.