Harnessing the feed: social media for mental health information and support 

Curated on Posted on by Stefaan Verhulst

Report by ReachOut: “…highlights how a social media ban could cut young people off from vital mental health support, including finding that 73 per cent of young people in Australia turn to social media when it comes to support for their mental health.

Based on research with over 2000 young people, the report found a range of benefits for young people seeking mental health support via social media (predominantly TikTok, YouTube and Instagram). 66 per cent of young people surveyed reported increased awareness about their mental health because of relevant content they accessed via social media, 47 per said they had looked for information about how to get professional mental health support on social media and 40 per cent said they sought professional support after viewing mental health information on social media. 

Importantly, half of young people with a probable mental health condition said that they were searching for mental health information or support on social media because they don’t have access to professional support. 

However, young people also highlighted a range of concerns about social media via the research. 38 per cent were deeply concerned about harmful mental health content they have come across on platforms and 43 per cent of the young people who sought support online were deeply concerned about the addictive nature of social media.  

The report highlights young people’s calls for social media to be safer. They want: an end to addictive features like infinite scroll, more control over the content they see, better labelling of mental health information from credible sources, better education and more mental health information provided across platforms…(More)”.

Harnessing digital footprint data for population health: a discussion on collaboration, challenges and opportunities in the UK

Curated on Posted on by Stefaan Verhulst

Paper by Romana Burgess et al: “Digital footprint data are inspiring a new era in population health and well-being research. Linking these novel data with other datasets is critical for future research wishing to use these data for the public good. In order to succeed, successful collaboration among industry, academics and policy-makers is vital. Therefore, we discuss the benefits and obstacles for these stakeholder groups in using digital footprint data for research in the UK. We advocate for policy-makers’ inclusion in research efforts, stress the exceptional potential of digital footprint research to impact policy-making and explore the role of industry as data providers, with a focus on shared value, commercial sensitivity, resource requirements and streamlined processes. We underscore the importance of multidisciplinary approaches, consumer trust and ethical considerations in navigating methodological challenges and further call for increased public engagement to enhance societal acceptability. Finally, we discuss how to overcome methodological challenges, such as reproducibility and sharing of learnings, in future collaborations. By adopting a multiperspective approach to outlining the challenges of working with digital footprint data, our contribution helps to ensure that future research can navigate these challenges effectively while remaining reproducible, ethical and impactful…(More)”

Climate and health data website launched

Curated on Posted on by Stefaan Verhulst

Article by Susan Cosier: “A new website of data resources, tools, and training materials that can aid researchers in studying the consequences of climate change on the health of communities nationwide is now available. At the end of July, NIEHS launched the Climate and Health Outcomes Research Data Systems (CHORDS) website, which includes a catalog of environmental and health outcomes data from various government and nongovernmental agencies.

The website provides a few resources of interest, including a catalog of data resources to aid researchers in finding relevant data for their specific research projects; an online training toolkit that provides tutorials and walk-throughs of downloading, integrating, and visualizing health and environmental data; a listing of publications of note on wildfire and health research; and links to existing resources, such as the NIEHS climate change and health glossary and literature portal.

The catalog includes a listing of dozens of data resources provided by different federal and state environmental and health sources. Users can sort the listing based on environmental and health measures of interest — such as specific air pollutants or chemicals — from data providers including NASA and the U.S. Environmental Protection Agency with many more to come…(More)”.

Utilizing big data without domain knowledge impacts public health decision-making

Curated on Posted on by Stefaan Verhulst

Paper by Miao Zhang, Salman Rahman, Vishwali Mhasawade and Rumi Chunara: “…New data sources and AI methods for extracting information are increasingly abundant and relevant to decision-making across societal applications. A notable example is street view imagery, available in over 100 countries, and purported to inform built environment interventions (e.g., adding sidewalks) for community health outcomes. However, biases can arise when decision-making does not account for data robustness or relies on spurious correlations. To investigate this risk, we analyzed 2.02 million Google Street View (GSV) images alongside health, demographic, and socioeconomic data from New York City. Findings demonstrate robustness challenges; built environment characteristics inferred from GSV labels at the intracity level often do not align with ground truth. Moreover, as average individual-level behavior of physical inactivity significantly mediates the impact of built environment features by census tract, intervention on features measured by GSV would be misestimated without proper model specification and consideration of this mediation mechanism. Using a causal framework accounting for these mediators, we determined that intervening by improving 10% of samples in the two lowest tertiles of physical inactivity would lead to a 4.17 (95% CI 3.84–4.55) or 17.2 (95% CI 14.4–21.3) times greater decrease in the prevalence of obesity or diabetes, respectively, compared to the same proportional intervention on the number of crosswalks by census tract. This study highlights critical issues of robustness and model specification in using emergent data sources, showing the data may not measure what is intended, and ignoring mediators can result in biased intervention effect estimates…(More)”

Collaboration in Healthcare: Implications of Data Sharing for Secondary Use in the European Union

Curated on Posted on by Stefaan Verhulst

Paper by Fanni Kertesz: “The European healthcare sector is transforming toward patient-centred and value-based healthcare delivery. The European Health Data Space (EHDS) Regulation aims to unlock the potential of health data by establishing a single market for its primary and secondary use. This paper examines the legal challenges associated with the secondary use of health data within the EHDS and offers recommendations for improvement. Key issues include the compatibility between the EHDS and the General Data Protection Regulation (GDPR), barriers to cross-border data sharing, and intellectual property concerns. Resolving these challenges is essential for realising the full potential of health data and advancing healthcare research and innovation within the EU…(More)”.

Using internet search data as part of medical research

Curated on Posted on by Stefaan Verhulst

Blog by Susan Thomas and Matthew Thompson: “…In the UK, almost 50 million health-related searches are made using Google per year. Globally there are 100s of millions of health-related searches every day. And, of course, people are doing these searches in real-time, looking for answers to their concerns in the moment. It’s also possible that, even if people aren’t noticing and searching about changes to their health, their behaviour is changing. Maybe they are searching more at night because they are having difficulty sleeping or maybe they are spending more (or less) time online. Maybe an individual’s search history could actually be really useful for researchers. This realisation has led medical researchers to start to explore whether individuals’ online search activity could help provide those subtle, almost unnoticeable signals that point to the beginning of a serious illness.

Our recent review found 23 studies have been published so far that have done exactly this. These studies suggest that online search activity among people later diagnosed with a variety of conditions ranging from pancreatic cancer and stroke to mood disorders, was different to people who did not have one of these conditions.

One of these studies was published by researchers at Imperial College London, who used online search activity to identify signals of women with gynaecological malignancies. They found that women with malignant (e.g. ovarian cancer) and benign conditions had different search patterns, up to two months prior to a GP referral. 

Pause for a moment, and think about what this could mean. Ovarian cancer is one of the most devastating cancers women get. It’s desperately hard to detect early – and yet there are signals of this cancer visible in women’s internet searches months before diagnosis?…(More)”.

Relational ethics in health care automation

Curated on Posted on by Stefaan Verhulst

Paper by Frances Shaw and Anthony McCosker: “Despite the transformative potential of automation and clinical decision support technology in health care, there is growing urgency for more nuanced approaches to ethics. Relational ethics is an approach that can guide the responsible use of a range of automated decision-making systems including the use of generative artificial intelligence and large language models as they affect health care relationships. 

There is an urgent need for sector-wide training and scrutiny regarding the effects of automation using relational ethics touchstones, such as patient-centred health care, informed consent, patient autonomy, shared decision-making, empathy and the politics of care.

The purpose of this review is to offer a provocation for health care practitioners, managers and policy makers to consider the use automated tools in practice settings and examine how these tools might affect relationships and hence care outcomes…(More)”.

Community consent: neither a ceiling nor a floor

Curated on Posted on by Stefaan Verhulst

Article by Jasmine McNealy: “The 23andMe breach and the Golden State Killer case are two of the more “flashy” cases, but questions of consent, especially the consent of all of those affected by biodata collection and analysis in more mundane or routine health and medical research projects, are just as important. The communities of people affected have expectations about their privacy and the possible impacts of inferences that could be made about them in data processing systems. Researchers must, then, acquire community consent when attempting to work with networked biodata. 

Several benefits of community consent exist, especially for marginalized and vulnerable populations. These benefits include:

  • Ensuring that information about the research project spreads throughout the community,
  • Removing potential barriers that might be created by resistance from community members,
  • Alleviating the possible concerns of individuals about the perspectives of community leaders, and 
  • Allowing the recruitment of participants using methods most salient to the community.

But community consent does not replace individual consent and limits exist for both community and individual consent. Therefore, within the context of a biorepository, understanding whether community consent might be a ceiling or a floor requires examining governance and autonomy…(More)”.

Precision public health in the era of genomics and big data

Curated on Posted on by Stefaan Verhulst

Paper by Megan C. Roberts et al: “Precision public health (PPH) considers the interplay between genetics, lifestyle and the environment to improve disease prevention, diagnosis and treatment on a population level—thereby delivering the right interventions to the right populations at the right time. In this Review, we explore the concept of PPH as the next generation of public health. We discuss the historical context of using individual-level data in public health interventions and examine recent advancements in how data from human and pathogen genomics and social, behavioral and environmental research, as well as artificial intelligence, have transformed public health. Real-world examples of PPH are discussed, emphasizing how these approaches are becoming a mainstay in public health, as well as outstanding challenges in their development, implementation and sustainability. Data sciences, ethical, legal and social implications research, capacity building, equity research and implementation science will have a crucial role in realizing the potential for ‘precision’ to enhance traditional public health approaches…(More)”.

AI: a transformative force in maternal healthcare

Curated on Posted on by Stefaan Verhulst

Article by Afifa Waheed: “Artificial intelligence (AI) and robotics have enormous potential in healthcare and are quickly shifting the landscape – emerging as a transformative force. They offer a new dimension to the way healthcare professionals approach disease diagnosis, treatment and monitoring. AI is being used in healthcare to help diagnose patients, for drug discovery and development, to improve physician-patient communication, to transcribe voluminous medical documents, and to analyse genomics and genetics. Labs are conducting research work faster than ever before, work that otherwise would have taken decades without the assistance of AI. AI-driven research in life sciences has included applications looking to address broad-based areas, such as diabetes, cancer, chronic kidney disease and maternal health.

In addition to increasing the knowledge of access to postnatal and neonatal care, AI can predict the risk of adverse events in antenatal and postnatal women and their neonatal care. It can be trained to identify those at risk of adverse events, by using patients’ health information such as nutrition status, age, existing health conditions and lifestyle factors. 

AI can further be used to improve access to women located in rural areas with a lack of trained professionals – AI-enabled ultrasound can assist front-line workers with image interpretation for a comprehensive set of obstetrics measurements, increasing quality access to early foetal ultrasound scans. The use of AI assistants and chatbots can also improve pregnant mothers’ experience by helping them find available physicians, schedule appointments and even answer some patient questions…

Many healthcare professionals I have spoken to emphasised that pre-existing conditions such as high blood pressure that leads to preeclampsia, iron deficiency, cardiovascular disease, age-related issues for those over 35, various other existing health conditions, and failure in the progress of labour that might lead to Caesarean (C-section), could all cause maternal deaths. Training AI models to detect these diseases early on and accurately for women could prove to be beneficial. AI algorithms can leverage advanced algorithms, machine learning (ML) techniques, and predictive models to enhance decision-making, optimise healthcare delivery, and ultimately improve patient outcomes in foeto-maternal health…(More)”.