Taking [A]part: The Politics and Aesthetics of Participation in Experience-Centered Design

Curated on Posted on by Stefaan Verhulst

Book by John McCarthy and Peter Wright: “…consider a series of boundary-pushing research projects in human-computer interaction (HCI) in which the design of digital technology is used to inquire into participative experience. McCarthy and Wright view all of these projects—which range from the public and performative to the private and interpersonal—through the critical lens of participation. Taking participation, in all its variety, as the generative and critical concept allows them to examine the projects as a part of a coherent, responsive movement, allied with other emerging movements in DIY culture and participatory art. Their investigation leads them to rethink such traditional HCI categories as designer and user, maker and developer, researcher and participant, characterizing these relationships instead as mutually responsive and dialogical.

McCarthy and Wright explore four genres of participation—understanding the other, building relationships, belonging in community, and participating in publics—and they examine participatory projects that exemplify each genre. These include the Humanaquarium, a participatory musical performance; the Personhood project, in which a researcher and a couple explored the experience of living with dementia; the Prayer Companion project, which developed a technology to inform the prayer life of cloistered nuns; and the development of social media to support participatory publics in settings that range from reality game show fans to on-line deliberative democracies…(More)”

Illuminating Lived Experience

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Lab Note from the Sydney Policy Lab: “The lived experiences of people involved in care – from informal and formal care workers to the people they support – is foundational to the Australia Cares project. To learn from the ways people with lived experience are included in co-design and research methods, the Sydney Policy Lab initiated reflective research that has resulted in a Lab Note on Illuminating Lived Experience (pdf, 1MB).

Through a series of interviews, dialogues and collaborative writing processes, co-authors explored tensions between different approaches and core concepts underpinning lived experience methods and shared examples of those methods in practice.

Illuminating Lived Experience poses questions that may help guide researchers and policymakers seeking to engage people with lived experience and three core principles we believe are required for such engagements.

The Lab Note aims to encourage researchers to be creative in the ways co-design and lived experience are approached while being true to the critical roots of participatory methodologies. Rather than prescribing methods, the principles and practices developed are offered as a guide – a starting point for play…(More)”

The Essential Principle for Appropriate Data Policy of Citizen Science Projects

Curated on Posted on by Stefaan Verhulst

Chapter by Takeshi Osawa: “Citizen science is one of new paradigms of science. This concept features various project forms, participants, and motivations and implies the need for attention to ethical issues for every participant, which frequently includes nonacademics. In this chapter, I address ethical issues associated with citizen science projects that focus on the data treatment rule and demonstrate a concept on appropriate data policy for these projects. First, I demonstrate that citizen science projects tend to include different types of collaboration, which may lead to certain conflicts among participants in terms of data sharing. Second, I propose an idea that could integrate different types of collaboration according to the theory transcend. Third, I take a case of a citizen science project through which transcend occurred and elucidate the difference between ordinal research and citizen science projects, specifically in terms of the goals of these projects and the goals and motivations of participants, which may change. Finally, I proposed one conceptual idea on how the principal investigator (PI) of a citizen science project can establish data policy after assessing the rights of participants. The basic idea is the division and organization of the data policy in a hierarchy for the project and for the participants. Data policy is one of the important items for establishing the appropriate methods for citizen science as new style of science. As such, practice and framing related to data policy must be carefully monitored and reflected on…(More)”.

Enrolling Citizens: A Primer on Archetypes of Democratic Engagement with AI

Curated on Posted on by Stefaan Verhulst

Paper by Wanheng Hu and Ranjit Singh: “In response to rapid advances in artificial intelligence, lawmakers, regulators, academics, and technologists alike are sifting through technical jargon and marketing hype as they take on the challenge of safeguarding citizens from the technology’s potential harms while maximizing their access to its benefits. A common feature of these efforts is including citizens throughout the stages of AI development and governance. Yet doing so is impossible without a clear vision of what citizens ideally should do. This primer takes up this imperative and asks: What approaches can ensure that citizens have meaningful involvement in the development of AI, and how do these approaches envision the role of a “good citizen”?

The primer highlights three major approaches to involving citizens in AI — AI literacy, AI governance, and participatory AI — each of them premised on the importance of enrolling citizens but envisioning different roles for citizens to play. While recognizing that it is largely impossible to come up with a universal standard for building AI in the public interest, and that all approaches will remain local and situated, this primer invites a critical reflection on the underlying assumptions about technology, democracy, and citizenship that ground how we think about the ethics and role of public(s) in large-scale sociotechnical change. ..(More)”.

Embracing the Social in Social Science

Curated on Posted on by Stefaan Verhulst

Article by Jay Lloyd: “In a world where science is inextricably intermixed with society, the social sciences are essential to building trust in the scientific enterprise.

To begin thinking about why all the sciences should embrace the social in social science, I would like to start with cupcakes.

In my research, context is a recurring theme, so let me give you some context for cupcakes as metaphor. A few months ago, when I was asked to respond to an article in this magazine, I wrote: “In the production of science, social scientists can often feel like sprinkles on a cupcake: not essential. Social science is not the egg, the flour, or the sugar. Sprinkles are neither in the batter, nor do they see the oven. Sprinkles are a late addition. No matter the stylistic or aesthetic impact, they never alter the substance of the ‘cake’ in the cupcake.”

In writing these sentences, I was, and still am, hopeful that all kinds of future scientific research will make social science a key component of the scientific “batter” and bake social scientific knowledge, skill, and expertise into twenty-first-century scientific “cupcakes.”

But there are tensions and power differentials in the ways interdisciplinary science can be done. Most importantly, the formation of questions itself is a site of power. The questions we as a society ask science to address both reflect and create the values and power dynamics of social systems, whether the scientific disciplines recognize this influence or not. And some of those knowledge systems do not embrace the importance of insights from the social sciences because many institutions of science work hard to insulate the practice of science from the contingencies of society.

Moving forward, how do we, as researchers, develop questions that not only welcome intellectual variety within the sciences but also embrace the diversity represented in societies? As science continues to more powerfully blend, overlap, and intermix with society, embracing what social science can bring to the entire scientific enterprise is necessary. In order to accomplish these important goals, social concerns must be a key ingredient of the whole cupcake—not an afterthought, or decoration, but among the first thoughts…(More)”

Multi-disciplinary Perspectives on Citizen Science—Synthesizing Five Paradigms of Citizen Involvement

Curated on Posted on by Stefaan Verhulst

Paper by Susanne Beck, Dilek Fraisl, Marion Poetz and Henry Sauermann: “Research on Open Innovation in Science (OIS) investigates how open and collaborative practices influence the scientific and societal impact of research. Since 2019, the OIS Research Conference has brought together scholars and practitioners from diverse backgrounds to discuss OIS research and case examples. In this meeting report, we describe four session formats that have allowed our multi-disciplinary community to have productive discussions around opportunities and challenges related to citizen involvement in research. However, these sessions also highlight the need for a better understanding of the underlying rationales of citizen involvement in an increasingly diverse project landscape. Building on the discussions at the 2023 and prior editions of the conference, we outline a conceptual framework of five crowd paradigms and present an associated tool that can aid in understanding how citizen involvement in particular projects can help advance science. We illustrate this tool using cases presented at the 2023 conference, and discuss how it can facilitate discussions at future conferences as well as guide future research and practice in citizen science…(More)”.

World-first data storage infrastructure solution built by Iwi Māori, for Iwi Māori

Curated on Posted on by Stefaan Verhulst

Media release: “Te Kāhui Raraunga Charitable Trust (TKR) is on a mission to provide a data storage solution like no other in the pursuit of mana motuhake when it comes to data and the digital future. The concept of the network’s purpose is encapsulated in its name, Te Pā Tūwatawata.

And after six months of testing, the pilot phase has proven so successful, TKR expects Te Pā Tūwatawata to go live in early 2025.

The kaupapa involves the development of a distributed storage network to enable iwi, hapū and whānau Māori to collect, store, protect, access and control their own data.

Unlike other data storage solutions here and around the world, the servers used to connect the network will be based at the heart of where the data comes from – on marae, inside Māori organisations, or at other relevant iwi locations.

Three locations have been in the testing phase since late 2023, with the final network set to open with eight locations around the motu.

TKR Chairman, Rāhui Papa says the project is not only a world-first, but significantly embraces core concepts like kotahitanga – through sharing and scaling; and rangatiratanga – by giving iwi and hapū the power to control and make decisions over their own data.

“Iwi Māori Data sovereignty is at the heart of everything we do at TKR. As the world becomes more and more digital, we must adapt and be prepared to create our own infrastructure and empower our people with the know-how and skills to use it,” says Mr Papa.

Kirikowhai Mikaere, Lead Technician for the Data ILG and Te Kāhui Raraunga says traditionally, data centres are located in big warehouses, completely isolated from the source of the data and the people and whenua who have connection to it.

“With this kaupapa, we’re housing the data where it belongs, under the safe protection of the people that it means the most to. Additionally, with Te Pā Tūwatawata being located on-shore and owned by us, it meets the principles of Iwi Māori Data Sovereignty at the highest levels,” says Ms Mikaere…(More)”.

Handbook of Public Participation in Impact Assessment

Curated on Posted on by Stefaan Verhulst

Book edited by Tanya Burdett and A. John Sinclair: “… provides a clear overview of how to achieve meaningful public participation in impact assessment (IA). It explores conceptual elements, including the democratic core of public participation in IA, as well as practical challenges, such as data sharing, with diverse perspectives from 39 leading academics and practitioners.

Critically examining how different engagement frameworks have evolved over time, this Handbook underlines the ways in which tokenistic approaches and wider planning and approvals structures challenge the implementation of meaningful public participation. Contributing authors discuss the impact of international agreements, legislation and regulatory regimes, and review commonly used professional association frameworks such as the International Association for Public Participation core values for practice. They demonstrate through case studies what meaningful public participation looks like in diverse regional contexts, addressing the intentions of being purposeful, inclusive, transformative and proactive. By emphasising the strength of community engagement, the Handbook argues that public participation in IA can contribute to enhanced democracy and sustainability for all…(More)”.

Using ChatGPT to Facilitate Truly Informed Medical Consent

Curated on Posted on by Stefaan Verhulst

Paper by Fatima N. Mirza: “Informed consent is integral to the practice of medicine. Most informed consent documents are written at a reading level that surpasses the reading comprehension level of the average American. Large language models, a type of artificial intelligence (AI) with the ability to summarize and revise content, present a novel opportunity to make the language used in consent forms more accessible to the average American and thus, improve the quality of informed consent. In this study, we present the experience of the largest health care system in the state of Rhode Island in implementing AI to improve the readability of informed consent documents, highlighting one tangible application for emerging AI in the clinical setting…(More)”.

Using Artificial Intelligence to Accelerate Collective Intelligence

Curated on Posted on by Stefaan Verhulst

Paper by Róbert Bjarnason, Dane Gambrell and Joshua Lanthier-Welch: “In an era characterized by rapid societal changes and complex challenges, institutions’ traditional methods of problem-solving in the public sector are increasingly proving inadequate. In this study, we present an innovative and effective model for how institutions can use artificial intelligence to enable groups of people to generate effective solutions to urgent problems more efficiently. We describe a proven collective intelligence method, called Smarter Crowdsourcing, which is designed to channel the collective intelligence of those with expertise about a problem into actionable solutions through crowdsourcing. Then we introduce Policy Synth, an innovative toolkit which leverages AI to make the Smarter Crowdsourcing problem-solving approach both more scalable, more effective and more efficient. Policy Synth is crafted using a human-centric approach, recognizing that AI is a tool to enhance human intelligence and creativity, not replace it. Based on a real-world case study comparing the results of expert crowdsourcing alone with expert sourcing supported by Policy Synth AI agents, we conclude that Smarter Crowdsourcing with Policy Synth presents an effective model for integrating the collective wisdom of human experts and the computational power of AI to enhance and scale up public problem-solving processes.

The potential for artificial intelligence to enhance the performance of groups of people has been a topic of great interest among scholars of collective intelligence. Though many AI toolkits exist, they too often are not fitted to the needs of institutions and policymakers. While many existing approaches view AI as a tool to make crowdsourcing and deliberative processes better and more efficient, Policy Synth goes a step further, recognizing that AI can also be used to synthesize the findings from engagements together with research to develop evidence-based solutions and policies. This study contributes significantly to the fields of collective intelligence, public problem-solving, and AI. The study offers practical tools and insights for institutions looking to engage communities effectively in addressing urgent societal challenges…(More)”