Narrowing the data gap: World Bank and Microsoft commit to unlocking better development outcomes for persons with disabilities

Curated on Posted on by Stefaan Verhulst

Blog by Charlotte Vuyiswa McClain-Nhlapo, and Jenny Lay-Flurrie: “Across the world, persons with disabilities remain invisible in the global development agenda. One key reason is because of variances in the availability and use of disability-disaggregated data across organizations and borders.  

While it is estimated that one billion people, or 15 percent of the world’s population, have a disability – more data is needed to understand the true scale of the living conditions and development outcomes for persons with disabilities, and to get clarity on the degree to which persons with disabilities continue to be underserved.  

This reality is a part of what the World Bank calls the disability divide – the gap in societal inclusion for persons with disabilities in all stages of development programs, including education, employment and digital inclusion. The COVID-19 pandemic has exacerbated this risk and exposed some of the existing inequalities faced on a regular basis. 

Many governments around the world use census data to understand a country’s socioeconomic situation and to allocate resources or consider policy to address the needs of its citizens. While every country is on their own journey to leverage data to inform policy and development outcomes, there is an opportunity to bring data on disability together for the global public good, so that groups can more accurately prioritize disability inclusion within global efforts.  

In response to this challenge, the World Bank and Microsoft, in collaboration with the Disability Data Initiative at Fordham University, are partnering to expand both access to and the use of demographics and statistics data to ensure representation of disability, particularly in low- and middle-income countries. The goal of this effort is to develop a public facing, online “disability data hub” to offer information on persons with disabilities across populations, geographies and development indicators.  

Principles for the development of the hub include:  

  • Engaging with the disability community to inform the creation of the hub and its offerings. 
  • Aligning with the United Nations Sustainable Development Goals, which require countries to disaggregate data by disability by 2030. 
  • Taking a holistic approach to data collection on disabilities, including collating and aggregating multiple data sources, such as national household surveys and censuses. 
  • Providing a user-friendly and accessible interface for a wide range of users. 
  • Offering data analysis and accessible visualization tools. 
  • Serving as a knowledge repository by publishing trends and country profiles, offering trainings and capacity building materials and linking to relevant partner resources on disability data disaggregation…(More)”.

Better Data Sharing for Benefits Delivery

Curated on Posted on by Stefaan Verhulst

Article by Chris Sadler and Claire Park: “Robust federal assistance programs and social services are essential to a thriving society. This is especially the case as people continue to contend with the fallout from the COVID-19 pandemic, which jeopardized livelihoods and put millions out of employment. Government benefits at the federal, state, and local level help people across the country pay for food, housing, health care, and other basic living expenses. But more work is required at the federal level to ensure that these benefits reach everyone in need. For instance, the historic $1.2 trillion Infrastructure Investment and Jobs Act signed into law last year included a $14.2 billion program called the Affordable Connectivity Program (ACP) to help qualifying low-income households pay for internet service. While the program is off to a strong start, improved data sharing between federal agencies, state and local governments, and institutions can leverage existing data from other benefits programs to streamline eligibility processes and ensure those who qualify receive the benefit. Expanding data sharing for benefits eligibility also aligns with one of the goals in the recent executive order to advance racial equity.

We discuss how data sharing could be improved, as well as other steps that the federal government can take to maximize the impact of this benefit on the digital divide. The solutions outlined here can be applied to both current and future programs that help people find housing, prepare children for school, and ensure everyone has enough to eat…(More)”.

The modern malaise of innovation: overwhelm, complexity, and herding cats

Curated on Posted on by Stefaan Verhulst

Blog by Lucy Mason: “But the modern world is too complicated to innovate alone. Coming up with the idea is the easy bit: developing and implementing it inevitably involves navigating complex and choppy waters: multiple people, funding routes, personal agendas, legal complexity, and strategic fuzziness. All too often, great ideas fail to become reality not because the idea wouldn’t work, but because everything in the ecosystem seems (accidentally) designed to prevent it from working.

Given that innovation is a key Government priority, and so many organisations and people are dedicated to make it happen (such as Innovate UK), this lack of success seems odd. The problem does not lie with the R&D base: despite relative underinvestment by the UK Government the UK punches well above its weight in world-leading R&D. Being an entrepreneur is of course, hard work, high risk and prone to failure even for the most dedicated individuals. But are there particular features which inhibit how innovation is developed, scaled, implemented, and adopted in the UK? I would argue there are three key factors at play: overwhelm (too much), complexity (too vague), and ‘herding cats’ (too hard)…(More)”.

How to get to the core of democracy

Curated on Posted on by Stefaan Verhulst

Blog by Toralf Stark, Norma Osterberg-Kaufmann and Christoph Mohamad-Klotzbach: “…Many criticisms of conceptions of democracy are directed more at the institutional design than at its normative underpinnings. These include such things as the concept of representativeness. We propose focussing more on the normative foundations assessed by the different institutional frameworks than discussing the institutional frameworks themselves. We develop a new concept, which we call the ‘core principle of democracy’. By doing so, we address the conceptual and methodological puzzles theoretically and empirically. Thus, we embrace a paradigm shift.

Collecting data is ultimately meaningless if we do not find ways to assess, summarise and theorise it. Kei Nishiyama argued we must ‘shift our attention away from the concept of democracy and towards concepts of democracy’. By the term concept we, in line with Nishiyama, are following Rawls. Rawls claimed that ‘the concept of democracy refers to a single, common principle that transcends differences and on which everyone agrees’. In contrast with this, ‘ideas of democracy (…) refer to different, sometimes contested ideas based on a common concept’. This is what Laurence Whitehead calls the ‘timeless essence of democracy’….

Democracy is a latent construct and, by nature, not directly observable. Nevertheless, we are searching for indicators and empirically observable characteristics we can assign to democratic conceptions. However, by focusing only on specific patterns of institutions, only sometimes derived from theoretical considerations, we block our view of its multiple meanings. Thus, we’ve no choice but to search behind the scenes for the underlying ‘core’ principle the institutions serve.

The singular core principle that all concepts of democracy seek to realise is political self-efficacy…(More)”.

Political self-efficacy
Source: authors’ own compilation

10 learnings from considering AI Ethics through global perspectives

Curated on Posted on by Stefaan Verhulst

Blog by Sampriti Saxena and Stefaan G. Verhulst: “Artificial Intelligence (AI) technologies have the potential to solve the world’s biggest challenges. However, they also come with certain risks to individuals and groups. As these technologies become more prevalent around the world, we need to consider the ethical ramifications of AI use to identify and rectify potential harms. Equally, we need to consider the various associated issues from a global perspective, not assuming that a single approach will satisfy different cultural and societal expectations.

In February 2021, The Governance Lab (The GovLab), the NYU Tandon School of Engineering, the Global AI Ethics Consortium (GAIEC), the Center for Responsible AI @ NYU (R/AI), and the Technical University of Munich’s (TUM) Institute for Ethics in Artificial Intelligence (IEAI) launched AI Ethics: Global Perspectives. …A year and a half later, the course has grown to 38 modules, contributed by 40 faculty members representing over 20 countries. Our conversations with faculty members and our experiences with the course modules have yielded a wealth of knowledge about AI ethics. In keeping with the values of openness and transparency that underlie the course, we summarized these insights into ten learnings to share with a broader audience. In what follows, we outline our key lessons from experts around the world.

Our Ten Learnings:

  1. Broaden the Conversation
  2. The Public as a Stakeholder
  3. Centering Diversity and Inclusion in Ethics
  4. Building Effective Systems of Accountability
  5. Establishing Trust
  6. Ask the Right Questions
  7. The Role of Independent Research
  8. Humans at the Center
  9. Our Shared Responsibility
  10. The Challenge and Potential for a Global Framework…(More)”.

It’s in Everyone’s Interest to Sustain our Open Digital Future

Curated on Posted on by Stefaan Verhulst

Article by Govind Shivkumar and Alex Krasodomski-Jones: “…Omidyar Network was proud to support the creation of “The Open Road,” a new report by our partners at Demos that vividly highlights the many dangers facing open infrastructure — and lays out a clear and achievable path to securing its sustainable future. In short, the report urges philanthropies to take concrete steps, with significant funding, to bolster open-source software and open standards, and the people who keep the infrastructure working.

The value of open-source code and the movement behind it

Everything from hospitals and banks to social media and messaging platforms run on open-source software; that is, mostly free “source code” that anyone can inspect, modify, and enhance to build their own digital applications. In complement, open standards — like HTML, a common way of coding a website — help facilitate interoperability and data exchanges between different products or services. Both of these “encourage a decentralized community of developers to collaborate on projects and jointly benefit from the resulting software”.

A secure, open technology system is immensely valuable to companies and governments. It facilitates connections between their technologies and other systems, which increases the value of their tools; it is easy to adopt and make changes; and it avoids the pitfalls of reinventing the wheel or reinvesting resources. Because of that vast flexibility, developers and engineers can innovate for the user’s needs faster and more cost-effectively, giving the public a meaningful choice of which interconnected apps, devices, technologies they want to use.

“More openness means more innovation. More transparency means more scrutiny, which means fewer overlooked security vulnerabilities. Openness favors the development of ‘good technology,’ which embeds privacy, security, and other protections in its design.”

The challenges facing open infrastructure

The ecosystem is vast and acutely vulnerable. Period catastrophes like the Heartbleed bug which was exposed in 2014, and later security flaws, such as log4shell and log4J, threatened millions of digital applications worldwide. Other weaknesses are simply the result of neglect and lack of proper investment and upkeep. When security vulnerabilities cause cracks in the infrastructure, allowing malicious actors to wreak havoc, the startled world briefly takes notice…(More)”

The Intersection of Data, Equity, and City Governments

Curated on Posted on by Stefaan Verhulst

Blog by Yuki Mitsuda: “The Open Data Policy Lab’s City Incubator program was established in September 2021 to help realize the Third Wave of Open Data at the subnational level by building data capacity among city intrapreneurs. In its first iteration, the program supported innovators from ten cities around the world to better use data to address the opportunities and challenges they face.

Reflecting on the six-month program, the work enabled participants to meet the needs of their cities and the people within them. They also revealed shared themes across cities — common challenges and issues that defined urban, data-driven work in the 21st century. This blog explores one of the emerging themes we saw from participants in the City Incubator program: the intersection of equity, data, and city governments…

Three of our city incubator participants designed their data innovations around the ways cities and citizens can use data to measure and improve equity. 

  • Jennifer Bodnarchuk, a Senior Data Scientist at the Innovation & Technology Department in the City of Winnipeg, for example, led the development of a Diversity Dashboard that quantified and visualized their municipal government’s workforce representation. The tool can be used to measure the level of diversity represented in city-wide employment to move towards equitable hiring in the public sector. 
  • Henry Xavier Hernandez, the Chief Information Officer at the Information Technology Department in Guayaquil, Ecuador, and his team leveraged the City Incubator to develop Citizen 360, a public market analysis platform that helps businesses, organizations, and individuals identify economic opportunities in the city. This tool can aid small business owners from all backgrounds who are navigating the journey of starting a new business.
  • Andrea Calderon led Albuquerque’s Equity Index, which helps evaluate the reach of city service distribution with the goal of increasing municipal investment in pockets of the city where equitable city service provision has not yet been achieved. Albuquerque’s Equity Index work entailed assessing air quality in the city through the framework of cumulative impacts, which measures “exposures, public health, or environmental effects from the combined emissions in a geographic area” in pursuit of environmental justice…(More)”.

Democracy: by design and on the move

Curated on Posted on by Stefaan Verhulst

Essay by Erica Dorn and Federico Vaz: “We live in an era of hyper-mobility, marked by the mass movement of people virtually, trans-locally, and globally. More people are on the move than ever before in human history. Today, dispersed across the globe, there are between 272 million and one billion migrants. More than 15 million people worldwide live without nationality, and an even larger number of people live undocumented.

Much like James C. Scott, it can be tempting to think that the state has always seemed to be the enemy of ‘people who move around‘. For the kinetic elite, borders are thresholds of access. Meanwhile, for a growing number of displaced people, borders represent inhumane exclusion.

More than 15 million people worldwide live without nationality, and an even larger number of people live undocumented

Current democratic structures designed to be representative of the people cannot adapt to the increasing number of people on the move. As a result, an overwhelming gap exists between the rapidly changing reality of democracies made up of ineligible voters, and the need for inclusive participation in the democratic process.

In the US, several cities, including New York, have taken measures to pass non-citizen voting policies. These promote the inclusion of more residents in local elections. However, given generally low voter turnout, it will take more than voting rights to create more inclusive democracies…(More)”.

Citizen power mobilized to fight against mosquito borne diseases

Curated on Posted on by Stefaan Verhulst

GigaBlog: “Just out in GigaByte is the latest data release from Mosquito Alert, a citizen science system for investigating and managing disease-carrying mosquitoes, and is part of our WHO-sponsored series on vector borne human diseases. Presenting 13,700 new database records in the Global Biodiversity Information Facility (GBIF) repository, all linked to photographs submitted by citizen volunteers and validated by entomological experts to determine if it provides evidence of the presence of any of the mosquito vectors of top concern in Europe. This is the latest of a new special issue of papers presenting biodiversity data for research on human diseases health, incentivising data sharing to fill important particular species and geographic gaps. As big fans of citizen science (and Mosquito Alert), its great to see this new data showcased in the series.

Vector-borne diseases account for more than 17% of all infectious diseases in humans. There are large gaps in knowledge related to these vectors, and data mobilization campaigns are required to improve data coverage to help research on vector-borne diseases and human health. As part of these efforts, GigaScience Press has partnered with the GBIF; and has been supported by TDR, the Special Programme for Research and Training in Tropical Diseases, hosted at the World Health Organization. Through this we launched this “Vectors of human disease” thematic series. Incentivising the sharing of this extremely important data, Article Processing Charges have been waived to assist with the global call for novel data. This effort has already led to the release of newly digitised location data for over 600,000 vector specimens observed across the Americas and Europe.

While paying credit to such a large number of volunteers, creating such a large public collection of validated mosquito images allows this dataset to be used to train machine-learning models for vector detection and classification. Sharing the data in this novel manner meant the authors of these papers had to set up a new credit system to evaluate contributions from multiple and diverse collaborators, which included university researchers, entomologists, and other non-academics such as independent researchers and citizen scientists. In the GigaByte paper these are acknowledged through collaborative authorship for the Mosquito Alert Digital Entomology Network and the Mosquito Alert Community…(More)”.

The Need for New Methods to Establish the Social License for Data Reuse

Curated on Posted on by Stefaan Verhulst

Stefaan G. Verhulst & Sampriti Saxena at Data & Policy: “Data has rapidly emerged as an invaluable asset in societies and economies, leading to growing demands for innovative and transformative data practices. One such practice that has received considerable attention is data reuse. Data reuse is at the forefront of an emerging “third wave of open data” (Verhulst et al., 2020). Data reuse takes place when data collected for one purpose is used subsequently for an alternative purpose, typically with the justification that such secondary use has potential positive social impact (Choo et al., 2021). Since data is considered a non-rivalrous good, it can be used an infinite number of times, each use potentially bringing new insights and solutions to public problems (OECD, 2021). Data reuse can also lead to lower project costs and more sustainable outcomes for a variety of data-enabled initiatives across sectors.

A social license, or social license to operate, captures multiple stakeholders’ acceptance of standard practices and procedures (Kenton, 2021). Stakeholders, in this context, could refer to both the public and private sector, civil society, and perhaps most importantly, the public at large. Although the term originated in the context of extractive industries, it is now applied to a much broader range of businesses including technologies like artificial intelligence (Candelon et al., 2022). As data becomes more commonly compared to exploitative practices like mining, it is only apt that we apply the concept of social licenses to the data ecosystem as well (Aitken et al., 2020).

Before exploring how to achieve social licenses for data reuse, it is important to understand the many factors that affect social licenses….(More)”.