The Trouble With Disclosure: It Doesn’t Work


Jesse Eisinger at ProPublica: “Louis Brandeis was wrong. The lawyer and Supreme Court justice famously declared that sunlight is the best disinfectant, and we have unquestioningly embraced that advice ever since.

 Over the last century, disclosure and transparency have become our regulatory crutch, the answer to every vexing problem. We require corporations and government to release reams of information on food, medicine, household products, consumer financial tools, campaign finance and crime statistics. We have a booming “report card” industry for a range of services, including hospitals, public schools and restaurants.

All this sunlight is blinding. As new scholarship is demonstrating, the value of all this information is unproved. Paradoxically, disclosure can be useless — and sometimes actually harmful or counterproductive.

“We are doing disclosure as a regulatory move all over the board,” says Adam J. Levitin, a law professor at Georgetown, “The funny thing is, we are doing this despite very little evidence of its efficacy.”

Let’s start with something everyone knows about — the “terms of service” agreements for the likes of iTunes. Like everybody else, I click the “I agree” box, feeling a flash of resentment. I’m certain that in Paragraph 184 is a clause signing away my firstborn to a life of indentured servitude to Timothy D. Cook as his chief caviar spoon keeper.

Our legal theoreticians have determined these opaque monstrosities work because someone, somewhere reads the fine print in these contracts and keeps corporations honest. It turns out what we laymen intuit is true: No one reads them, according to research by a New York University law professor, Florencia Marotta-Wurgler.

In real life, there is no critical mass of readers policing the agreements. And if there were an eagle-eyed crew of legal experts combing through these agreements, what recourse would they have? Most people don’t even know that the Supreme Court has gutted their rights to sue in court, and they instead have to go into arbitration, which usually favors corporations.

The disclosure bonanza is easy to explain. Nobody is against it. It’s politically expedient. Companies prefer such rules, especially in lieu of actual regulations that would curtail bad products or behavior. The opacity lobby — the remora fish class of lawyers, lobbyists and consultants in New York and Washington — knows that disclosure requirements are no bar to dodgy practices. You just have to explain what you’re doing in sufficiently incomprehensible language, a task that earns those lawyers a hefty fee.

Of course, some disclosure works. Professor Levitin cites two examples. The first is an olfactory disclosure. Methane doesn’t have any scent, but a foul smell is added to alert people to a gas leak. The second is ATM. fees. A study in Australia showed that once fees were disclosed, people avoided the high-fee machines and took out more when they had to go to them.

But to Omri Ben-Shahar, co-author of a recent book, ” More Than You Wanted To Know: The Failure of Mandated Disclosure,” these are cherry-picked examples in a world awash in useless disclosures. Of course, information is valuable. But disclosure as a regulatory mechanism doesn’t work nearly well enough, he argues….(More)

Confronting the Internet’s Dark Side: Moral and Social Responsibility on the Free Highway


New book by Raphael Cohen-Almagor: “Terrorism, cyberbullying, child pornography, hate speech, cybercrime: along with unprecedented advancements in productivity and engagement, the Internet has ushered in a space for violent, hateful, and antisocial behavior. How do we, as individuals and as a society, protect against dangerous expressions online? Confronting the Internet’s Dark Side is the first book on social responsibility on the Internet. It aims to strike a balance between the free speech principle and the responsibilities of the individual, corporation, state, and the international community. This book brings a global perspective to the analysis of some of the most troubling uses of the Internet. It urges net users, ISPs, and liberal democracies to weigh freedom and security, finding the golden mean between unlimited license and moral responsibility. This judgment is necessary to uphold the very liberal democratic values that gave rise to the Internet and that are threatened by an unbridled use of technology. (More)

How can we ensure that cities create opportunities for healthy urbanization?


Blog by Roy Ahn, Thomas F. Burke & Anita M. McGahan on their new book: “By the year 2100, 8 out of 10 people in the world will reside in cities – a major change in demographics compared to 100 years ago.

Urbanization has sweeping consequences for population health. Most analysts evaluate the “specter of urbanization” by focusing on problems and challenges, which can include slum development, insecurity, and inequality.

As the World Health Organization and UN Habitat note in their seminal report, Hidden Cities, “Cities concentrate opportunities, jobs and services, but they also concentrate risks and hazards for health.” The urban poor are especially vulnerable because their housing conditions and access to clean water, sanitation, and health care are often severely compromised.

Additionally, the jobs available to the urban poor are often informal, dangerous, and temporary. Yet the lack of integrated governance and infrastructure responsible for urbanization problems also can create remarkable and often untapped opportunities for improving health. How can we ensure that cities create opportunities for healthy urbanization?

In our new book, Innovating for Healthy Urbanization, we argue that using the “innovations” lens can provide a unique platform through which solutions for urbanization and health can emerge.

Sometimes “innovations” can be decidedly high tech, such as holograms on medication packaging that protect against drug counterfeiters, or tiny filter paper tests costing pennies that exponentially increase access to medical diagnostic testing for poor people living in cities.

Other innovations are less tech-focused, but equally impactful, such as advocating for motorcycle helmet laws in cities or a low-cost, condom catheter-balloon kit that can save mothers from dying from postpartum hemorrhage.

What makes both high- and low-tech solutions effective? Pushing the envelope on what works and then integrating solutions to meet a community’s priority needs…..(More)”

Smartphones as Locative Media


Book by Jordan Frith: “Smartphone adoption has surpassed 50% of the population in more than 15 countries, and there are now more than one million mobile applications people can download to their phones. Many of these applications take advantage of smartphones as locative media, which is what allows smartphones to be located in physical space. Applications that take advantage of people’s location are called location-based services, and they are the focus of this book.

Smartphones as locative media raise important questions about how we understand the complicated relationship between the Internet and physical space. This book addresses these questions through an interdisciplinary theoretical framework and a detailed analysis of how various popular mobile applications including Google Maps, Facebook, Instagram, Yelp, and Foursquare use people’s location to provide information about their surrounding space….(More)”

Transparency in Social Media


New book on “Tools, Methods and Algorithms for Mediating Online Interactions” edited by Matei, Sorin; Adam; Russell Martha G.: and Bertino, Elisa (Eds.): “The volume presents, in a synergistic manner, significant theoretical and practical contributions in the area of social media reputation and authorship measurement, visualization, and modeling. The book justifies and proposes contributions to a future agenda for understanding the requirements for making social media authorship more transparent. Building on work presented in a previous volume of this series, Roles, Trust, and Reputation in Social Media Knowledge Markets, this book discusses new tools, applications, services, and algorithms that are needed for authoring content in a real-time publishing world. These insights may help people who interact and create content through social media better assess their potential for knowledge creation. They may also assist in analyzing audience attitudes, perceptions, and behavior in informal social media or in formal organizational structures. In addition, the volume includes several chapters that analyze the higher order ethical, critical thinking, and philosophical principles that may be used to ground social media authorship. Together, the perspectives presented in this volume help us understand how social media content is created and how its impact can be evaluated.

The chapters demonstrate thought leadership through new ways of constructing social media experiences and making traces of social interaction visible. Transparency in Social Media aims to help researchers and practitioners design services, tools, or methods of analysis that encourage a more transparent process of interaction and communication on social media. Knowing who has added what content and with what authority to a specific online social media project can help the user community better understand, evaluate and make decisions and, ultimately, act on the basis of such information …(More)”

Deliberation and Development : Rethinking the Role of Voice and Collective Action in Unequal Societies


Book by Patrick Heller and Vijayendra Rao for the Worldbank: “Deliberation is the process by which a group of people, each with equal voice, can – via a process of discussion and debate – reach an agreement. This book attempts to do two things. First, it rethinks the role of deliberation in development and shows that it has potential well beyond a narrow focus on participatory projects. Deliberation, if properly instituted, has the potential to have a transformative effect on many if not all aspects of development, and especially in addressing problems of collective action, coordination, and entrenched inequality. This has broad implications both at the global and local level. Second, the book demonstrates that taking deliberation seriously calls for a different approach to both research and policy design and requires a much greater emphasis on the processes by which decisions are made, rather than an exclusive focus on the outcomes. Deliberation and Development contributes to a broader literature to understand the role of communicative processes in development….(More)

Harnessing Mistrust for Civic Action


Ethan Zuckerman: “…One predictable consequence of mistrust in institutions is a decrease in participation. Fewer than 37% of eligible US voters participated in the 2014 Congressional election. Participation in European parliamentary and national elections across Europe is higher than the US’s dismal rates, but has steadily declined since 1979, with turnout for the 2014 European parliamentary elections dropping below 43%. It’s a mistake to blame low turnout on distracted or disinterested voters, when a better explanation exists: why vote if you don’t believe the US congress or European Parliament is capable of making meaningful change in the world?

In his 2012 book, “Twilight of the Elites”, Christopher Hayes suggests that the political tension of our time is not between left and right, but between institutionalists and insurrectionists. Institutionalists believe we can fix the world’s problems by strengthening and revitalizing the institutions we have. Insurrectionists believe we need to abandon these broken institutions we have and replace them with new, less corrupted ones, or with nothing at all. The institutionalists show up to vote in elections, but they’re being crowded out by the insurrectionists, who take to the streets to protest, or more worryingly, disengage entirely from civic life.

Conventional wisdom suggests that insurrectionists will grow up, stop protesting and start voting. But we may have reached a tipping point where the cultural zeitgeist favors insurrection. My students at MIT don’t want to work for banks, for Google or for universities – they want to build startups that disrupt banks, Google and universities.

The future of democracy depends on finding effective ways for people who mistrust institutions to make change in their communities, their nations and the world as a whole. The real danger is not that our broken institutions are toppled by a wave of digital disruption, but that a generation disengages from politics and civics as a whole.

It’s time to stop criticizing youth for their failure to vote and time to start celebrating the ways insurrectionists are actually trying to change the world. Those who mistrust institutions aren’t just ignoring them. Some are building new systems designed to make existing institutions obsolete. Others are becoming the fiercest and most engaged critics of of our institutions, while the most radical are building new systems that resist centralization and concentration of power.

Those outraged by government and corporate complicity in surveillance of the internet have the option of lobbying their governments to forbid these violations of privacy, or building and spreading tools that make it vastly harder for US and European governments to read our mail and track our online behavior. We need both better laws and better tools. But we must recognize that the programmers who build systems like Tor, PGP and Textsecure are engaged in civics as surely as anyone crafting a party’s political platform. The same goes for entrepreneurs building better electric cars, rather than fighting to legislate carbon taxes. As people lose faith in institutions, they seek change less through passing and enforcing laws, and more through building new technologies and businesses whose adoption has the same benefits as wisely crafted and enforced laws….(More)”

Scientists Are Hoarding Data And It’s Ruining Medical Research


Ben Goldacre at Buzzfeed: “We like to imagine that science is a world of clean answers, with priestly personnel in white coats, emitting perfect outputs, from glass and metal buildings full of blinking lights.

The reality is a mess. A collection of papers published on Wednesday — on one of the most commonly used medical treatments in the world — show just how bad things have become. But they also give hope.

The papers are about deworming pills that kill parasites in the gut, at extremely low cost. In developing countries, battles over the usefulness of these drugs have become so contentious that some people call them “The Worm Wars.”…

This “deworm everybody” approach has been driven by a single, hugely influential trial published in 2004 by two economists, Edward Miguel and Michael Kremer. This trial, done in Kenya, found that deworming whole schools improved children’s health, school performance, and school attendance. What’s more, these benefits apparently extended to children in schools several miles away, even when those children didn’t get any deworming tablets (presumably, people assumed, by interrupting worm transmission from one child to the next).

A decade later, in 2013, these two economists did something that very few researchers have ever done. They handed over their entire dataset to independent researchers on the other side of the world, so that their analyses could be checked in public. What happened next has every right to kick through a revolution in science and medicine….

This kind of statistical replication is almost vanishingly rare. A recent study set out to find all well-documented cases in which the raw data from a randomized trial had been reanalysed. It found just 37, out of many thousands. What’s more, only five were conducted by entirely independent researchers, people not involved in the original trial.

These reanalyses were more than mere academic fun and games. The ultimate outcomes of the trials changed, with terrifying frequency: One-third of them were so different that the take-home message of the trial shifted.

This matters. Medical trials aren’t conducted out of an abstract philosophical interest, for the intellectual benefit of some rarefied class in ivory towers. Researchers do trials as a service, to find out what works, because they intend to act on the results. It matters that trials get an answer that is not just accurate, but also reliable.

So here we have an odd situation. Independent reanalysis can improve the results of clinical trials, and help us not go down blind alleys, or give the wrong treatment to the wrong people. It’s pretty cheap, compared to the phenomenal administrative cost of conducting a trial. And it spots problems at an alarmingly high rate.

And yet, this kind of independent check is almost never done. Why not? Partly, it’s resources. But more than that, when people do request raw data, all too often the original researchers duck, dive, or simply ignore requests….

Two years ago I published a book on problems in medicine. Front and center in this howl was “publication bias,” the problem of clinical trial results being routinely and legally withheld from doctors, researchers, and patients. The best available evidence — from dozens of studieschasing results for completed trials — shows that around half of all clinical trials fail to report their results. The same is true of industry trials, and academic trials. What’s more, trials with positive results are about twice as likely to post results, so we see a biased half of the literature.

This is a cancer at the core of evidence-based medicine. When half the evidence is withheld, doctors and patients cannot make informed decisions about which treatment is best. When I wrote about this, various people from the pharmaceutical industry cropped up to claim that the problem was all in the past. So I befriended some campaigners, we assembled a group of senior academics, and started the AllTrials.net campaign with one clear message: “All trials must be registered, with their full methods and results reported.”

Dozens of academic studies had been published on the issue, and that alone clearly wasn’t enough. So we started collecting signatures, and we now have more than 85,000 supporters. At the same time we sought out institutional support. Eighty patient groups signed up in the first month, with hundreds more since then. Some of the biggest research funders, and even government bodies, have now signed up.

This week we’re announcing support from a group of 85 pension funds and asset managers, representing more than 3.5 trillion euros in funds, who will be asking the pharma companies they invest in to make plans to ensure that all trials — past, present, and future — report their results properly. Next week, after two years of activity in Europe, we launch our campaign in the U.S….(More)”

From Governmental Open Data Toward Governmental Open Innovation (GOI)


Chapter by Daniele Archibugi et al in The Handbook of Global Science, Technology, and Innovation: “Today, governments release governmental data that were previously hidden to the public. This democratization of governmental open data (OD) aims to increase transparency but also fuels innovation. Indeed, the release of governmental OD is a global trend, which has evolved into governmental open innovation (GOI). In GOI, governmental actors purposively manage the knowledge flows that span organizational boundaries and reveal innovation-related knowledge to the public with the aim to spur innovation for a higher economic and social welfare at regional, national, or global scale. GOI subsumes different revealing strategies, namely governmental OD, problem, and solution revealing. This chapter introduces the concept of GOI that has evolved from global OD efforts. It present a historical analysis of the emergence of GOI in four different continents, namely, Europe (UK and Denmark), North America (United States and Mexico), Australia, and China to highlight the emergence of GOI at a global scale….(More)”

Collaborative Innovation


Book by Mitsuru Kodama onDeveloping Health Support Ecosystems…With the development of the aging society and the increased importance of emergency risk management in recent years, a large number of medical care challenges – advancing medical treatments, care & support, pharmacological treatments, greater health awareness, emergency treatments, telemedical treatment and care, the introduction of electronic charts, and rising costs – are emerging as social issues throughout the whole world. Hospitals and other medical institutions must develop and maintain superior management to achieve systems that can provide better medical care, welfare and health while enabling “support innovation.” Key medical care, welfare and health industries play a crucial role in this, but also of importance are management innovation models that enable “collaborative innovation” by closely linking diverse fields such as ICT, energy, electric equipment, machinery and transport.

Looking across different industries, Collaborative Innovation offers new knowledge and insights on the extraordinary value and increasing necessity of collaboration across different organizations in improving the health and lives of people. It breaks new ground with its research theme of building “health support ecosystems,” focusing on protecting people through collaborative innovation. This book opens up new, wide-ranging interdisciplinary academic research domains combining the humanities with science across various areas including general business administration, economics, information technology, medical informatics and drug information science….(More)”