The application of crowdsourcing approaches to cancer research: a systematic review


Paper by Young Ji Lee, Janet A. Arida, and Heidi S. Donovan at Cancer Medicine: “Crowdsourcing is “the practice of obtaining participants, services, ideas, or content by soliciting contributions from a large group of people, especially via the Internet.” (Ranard et al. J. Gen. Intern. Med. 29:187, 2014) Although crowdsourcing has been adopted in healthcare research and its potential for analyzing large datasets and obtaining rapid feedback has recently been recognized, no systematic reviews of crowdsourcing in cancer research have been conducted. Therefore, we sought to identify applications of and explore potential uses for crowdsourcing in cancer research. We conducted a systematic review of articles published between January 2005 and June 2016 on crowdsourcing in cancer research, using PubMed, CINAHL, Scopus, PsychINFO, and Embase. Data from the 12 identified articles were summarized but not combined statistically. The studies addressed a range of cancers (e.g., breast, skin, gynecologic, colorectal, prostate). Eleven studies collected data on the Internet using web-based platforms; one recruited participants in a shopping mall using paper-and-pen data collection. Four studies used Amazon Mechanical Turk for recruiting and/or data collection. Study objectives comprised categorizing biopsy images (n = 6), assessing cancer knowledge (n = 3), refining a decision support system (n = 1), standardizing survivorship care-planning (n = 1), and designing a clinical trial (n = 1). Although one study demonstrated that “the wisdom of the crowd” (NCI Budget Fact Book, 2017) could not replace trained experts, five studies suggest that distributed human intelligence could approximate or support the work of trained experts. Despite limitations, crowdsourcing has the potential to improve the quality and speed of research while reducing costs. Longitudinal studies should confirm and refine these findings….(More)”

Handbook on Political Trust


Book edited by Sonja Zmerli and Tom W.G. van der Meer: “Political trust – of citizens in government, parliament or political parties – has been centre stage in political science for more than half a century, reflecting ongoing concerns about the legitimacy of representative democracy. This Handbook offers the first truly global perspective on political trust and integrates the conceptual, theoretical, methodological, and empirical state of the art.

An impressive, international body of expert scholars explore established and new venues of research, by taking stock of levels, trends, explanations and implications of political trust, and relating them to regional particularities across the globe. Along with a wealth of genuine empirical analyses, this Handbook also features the latest developments in personality, cognitive and emotional research and discusses, not only the relevance, but also the ‘dark side’ of political trust….(More)”.

The Rise of Big Data Policing: Surveillance, Race, and the Future of Law Enforcement


Book by Andrew Guthrie Ferguson on “The consequences of big data and algorithm-driven policing and its impact on law enforcement…In a high-tech command center in downtown Los Angeles, a digital map lights up with 911 calls, television monitors track breaking news stories, surveillance cameras sweep the streets, and rows of networked computers link analysts and police officers to a wealth of law enforcement intelligence.
This is just a glimpse into a future where software predicts future crimes, algorithms generate virtual “most-wanted” lists, and databanks collect personal and biometric information.  The Rise of Big Data Policing introduces the cutting-edge technology that is changing how the police do their jobs and shows why it is more important than ever that citizens understand the far-reaching consequences of big data surveillance as a law enforcement tool.
Andrew Guthrie Ferguson reveals how these new technologies —viewed as race-neutral and objective—have been eagerly adopted by police departments hoping to distance themselves from claims of racial bias and unconstitutional practices.  After a series of high-profile police shootings and federal investigations into systemic police misconduct, and in an era of law enforcement budget cutbacks, data-driven policing has been billed as a way to “turn the page” on racial bias.
But behind the data are real people, and difficult questions remain about racial discrimination and the potential to distort constitutional protections.
In this first book on big data policing, Ferguson offers an examination of how new technologies will alter the who, where, when and how we police.  These new technologies also offer data-driven methods to improve police accountability and to remedy the underlying socio-economic risk factors that encourage crime….(More)”

Enhancing Citizen Engagement in the Face of Climate Change Risks: A Case Study of the Flood Early Warning System and Health Information System in Semarang City, Indonesia


Chapter by Aniessa Delima Sari and Nyoman Prayoga in book on Climate Change in Cities: “This case study describes how two climate resilience action projects in Semarang City, Indonesia, were able to provide new mechanisms allowing better engagement between the Semarang city government and its citizens. With the introduction of the Flood Early Warning System (FEWS), flood-prone communities in the Beringin River Basin are now able to evacuate to safe shelters before flood incidents occur. Through the Health Information and Early Warning System (HIEWS), citizens can access real-time information related to dengue fever cases in the city. Although the focus areas are different, both projects aim to help communities become more resilient to the impacts of climate change, specifically floods and vector-borne disease. We find similar patterns in the two cases, in which efforts to enhance community participation are essential to guarantee the success of the projects. Enhanced community engagement is achieved through the thoughtful consideration of local knowledge and social networks, intensive assistance to increase awareness and motivation of the community, and understanding governance structures to ensure that funds are allocated through formal handover processes to continue and expand the results of the interventions. These findings are useful and important to guide any climate change adaptation projects toward better sustainability and ownership, especially in the application of an early warning system or information system that requires technology, sustainable budget allocation from the local government to operate and maintain the system, and buy-in from local communities…(More)”

Information Governance in Japan: Towards a Comparative Paradigm


Book by Kenji E. KushidaYuko Kasuya and Eiji Kawabata: “The history of human civilization has been about managing information, from hunting and gathering through contemporary times. In modern societies, information flows are central to how individuals and societies interact with governments, economies, and other countries. Despite this centrality of information, information governance—how information flows are managed—has not been a central concern of scholarship. We argue that it should be, especially now that digitization has dramatically altered the amount of information generated, how it can be transmitted, and how it can be used.

This book examines various aspects of information governance in Japan, utilizing comparative and historical perspectives. The aim is threefold: 1) to explore Japan’s society, politics, and economy through a critical but hitherto under-examined vantage that we believe cuts to the core of what modern societies are built with—information; 2) articulate a set of components which can be used to analyze other countries from the vantage of information governance; and 3) provide frameworks of reference to analyze each component.

This book is the product of a multidisciplinary, multinational collaboration between scholars based in the US and Japan. Each are experts in their own fields (economics, political science, information science, law, library science), and were brought together in two workshops to develop, explore, and analyze the conception and various of facets of information governance. This book is frontier research by proposing and taking this conception of information governance as a framework of analysis.

The introduction sets up the analysis by providing background and a framework for understanding the conception of information governance. Part I focuses on the management of government-held information. Part II examines information central to economic activity. Part III explores information flows crucial to politics and social life….(More)”.

Using Public Data From Different Sources


Chapter byYair Cohen in Maximizing Social Science Research Through Publicly Accessible Data Sets, book edited by S. Marshall Perry: “The United States federal government agencies as well as states agencies are liberating their data through web portals. Web portals like data.gov, census.gov, healthdata.gov, ed.gov and many others on the state level provide great opportunity for researchers of all fields. This chapter shows the challenges and the opportunities that lie by merging data from different pubic sources. The researcher collected and merged data from the following datasets: NYSED school report card, NYSED Fiscal Profile Reporting System, Civil Rights Data Collection, and Census 2010 School District Demographics System. The challenges include data validation, data cleaning, flatting data for easy reporting, and merging datasets based on text fields….(More)”.

 

User Centric E-Government: Challenges and Opportunities


Book edited by Saqib Saeed, Zaigham Mahmood and T. Ramayah: “This book provides user studies and theories related to user-centered technology design processes for e-government projects. The book mainly discusses inherent issues of technology design implications, user experiences, and guidelines for technology appropriation. Ethnographic studies focusing on real life examples will enable readers to understand the problems in an effective way. Furthermore, the theories and results will help researchers and practitioners to handle these challenges in an efficient way.

E-Government is about harnessing the information revolution to improve the efficiency of government processes and the lives of citizens. It aims at a citizen centered approach to governance through effective use of the Internet and Information and Communication Technologies (ICTs). E-Government promotes transparency and effectiveness of a government’s processes as well as citizens’ participation (e-participation) in the affairs of the government. Whereas E-government projects are huge undertakings for government departments, a user-centric approach requires citizens’ participation in the design and delivery  of e government services. In both these respects, there are huge challenges and governments require long term commitment as well as correct planning and availability of financial resources to address them.

System design for e-governmental applications is inherently a complex process. In successful e-government projects, appropriately designed technology infrastructure plays a pivotal rule. The technology appropriation process requires that e-government technologies should be in line with the work practices of end users, so that successful usage of these technologies can be realized. E-governmental systems which fail to take into account such human factors result in failure and wasting huge amounts of public money as well as a loss of confidence of the public in such technological infrastructures. It is highly important that citizens are enabled to have access to the appropriate information technology, have knowledge and skills to use the available technology, and have the positive commitment to affect the governments’ strategies. So, enabling citizens to effectively participate is much more difficult.  This book addresses these inherent challenges and available opportunities with respect to user-centric e-government….(More)”.

Blockchain: Blueprint for a New Economy


Book by Melanie Swan: “Bitcoin is starting to come into its own as a digital currency, but the blockchain technology behind it could prove to be much more significant. This book takes you beyond the currency (“Blockchain 1.0”) and smart contracts (“Blockchain 2.0”) to demonstrate how the blockchain is in position to become the fifth disruptive computing paradigm after mainframes, PCs, the Internet, and mobile/social networking.

Author Melanie Swan, Founder of the Institute for Blockchain Studies, explains that the blockchain is essentially a public ledger with potential as a worldwide, decentralized record for the registration, inventory, and transfer of all assets—not just finances, but property and intangible assets such as votes, software, health data, and ideas.

Topics include:

  • Concepts, features, and functionality of Bitcoin and the blockchain
  • Using the blockchain for automated tracking of all digital endeavors
  • Enabling censorship?resistant organizational models
  • Creating a decentralized digital repository to verify identity
  • Possibility of cheaper, more efficient services traditionally provided by nations
  • Blockchain for science: making better use of the data-mining network
  • Personal health record storage, including access to one’s own genomic data
  • Open access academic publishing on the blockchain…(More)”.

Plato and the Nerd. The Creative Partnership of Humans and Technology


MITPress: “In this book, Edward Ashford Lee makes a bold claim: that the creators of digital technology have an unsurpassed medium for creativity. Technology has advanced to the point where progress seems limited not by physical constraints but the human imagination. Writing for both literate technologists and numerate humanists, Lee makes a case for engineering—creating technology—as a deeply intellectual and fundamentally creative process. Explaining why digital technology has been so transformative and so liberating, Lee argues that the real power of technology stems from its partnership with humans.

Lee explores the ways that engineers use models and abstraction to build inventive artificial worlds and to give us things that we never dreamed of—for example, the ability to carry in our pockets everything humans have ever published. But he also attempts to counter the runaway enthusiasm of some technology boosters who claim everything in the physical world is a computation—that even such complex phenomena as human cognition are software operating on digital data. Lee argues that the evidence for this is weak, and the likelihood that nature has limited itself to processes that conform to today’s notion of digital computation is remote.

Lee goes on to argue that artificial intelligence’s goal of reproducing human cognitive functions in computers vastly underestimates the potential of computers. In his view, technology is coevolving with humans. It augments our cognitive and physical capabilities while we nurture, develop, and propagate the technology itself. Complementarity is more likely than competition….(More)”.

The Death of Public Knowledge? How Free Markets Destroy the General Intellect


Book edited by Aeron Davis: “...argues for the value and importance of shared, publicly accessible knowledge, and suggests that the erosion of its most visible forms, including public service broadcasting, education, and the network of public libraries, has worrying outcomes for democracy.

With contributions from both activists and academics, this collection of short, sharp essays focuses on different aspects of public knowledge, from libraries and education to news media and public policy. Together, the contributors record the stresses and strains placed upon public knowledge by funding cuts and austerity, the new digital economy, quantification and target-setting, neoliberal politics, and inequality. These pressures, the authors contend, not only hinder democracies, but also undermine markets, economies, and social institutions and spaces everywhere.

Covering areas of international public concern, these polemical, accessible texts include reflections on the fate of schools and education, the takeover of public institutions by private interests, and the corruption of news and information in the financial sector. They cover the compromised Greek media during recent EU negotiations, the role played by media and political elites in the Irish property bubble, the compromising of government policy by corporate interests in the United States and Korea, and the squeeze on public service media in the United Kingdom, New Zealand, and the United States.

Individually and collectively, these pieces spell out the importance of maintaining public, shared knowledge in all its forms, and offer a rallying cry for doing so, asserting the need for strong public, financial, and regulatory support….(More)”