Yale Environment 360: “By making the recording and sharing of environmental data easier than ever, web-based technology has fostered the rapid growth of so-called citizen scientists — volunteers who collaborate with scientists to collect and interpret data. Numerous Internet-based projects now make use of citizen scientists to monitor environmental health and to track sensitive plant and wildlife populations. From counting butterflies, frogs, and bats across the globe, to piloting personal drones capable of high-definition infrared imaging, citizen scientists are playing a crucial role in collecting data that will help researchers understand the environment. Here is a sampling of some of these projects. ”
View the gallery.
To improve quality, value of patient data, get them involved, study says
at Vital Signs: “The key to the future use of patient-generated data is focusing on data that patients want to produce, own and use and making it easy for them to produce it.
At least, that’s the take of four co-authors from Duke University in an article in this month’s healthcare policy journal Health Affairs. The July issue is chockablock with articles on the many forms and uses of Big Data.
“We observe that the key to high-quality, patient-generated data is to have immediate and actionable data so that patients experience the importance of the data for their own care as well as research purposes,” the authors said in “Assessing the Value of Patient-Generated Data to Comparative Effectiveness Research.”
Patient-generated data, which the authors describe as patient-reported outcomes, or PRO will be “critical to developing the evidence base that informs decisions made by patients, providers and policymakers in pursuit of high-value medical care,” they predict.
“The easier it is for patients and clinicians to navigate (personal data) the more relevant that information will be to patient care, the more invested patients and clinics will be in contributing high-quality data, and the better the data in the big-data ecosystem will be,” they write.
“Analysis show that data quality improves over time and that the amount of missing data declines as patients experience the attention to their symptoms and actions that result from the information they provide,” the authors say…”
Online Tools Every Community Should Use
Courtney Subramanian at NationSwell: “Larger cities like Chicago, San Francisco and New York continue to innovate civic technology and bridge the divide between citizens and government, while this progress is leaving small communities behind.
Without digital tools, staff or infrastructure in place to bring basic services online, small local governments and their citizens are suffering from a digital divide. But one Silicon Valley mind is determined to break that barrier and help smaller cities understand how they can join the digital movement…any civic technology should include the following eight tools:
Bullets: Crime-related data that give residents a sense of how safety is handled in the city.
Examples: CrimeAround.Us, Crime in Chicago, Oakland Crimespotting
Bills: Providing citizens with more transparency around legislative data.
Examples: OpenGov’s AmericaDecoded, MySociety’s SayIt, Councilmatic
Budget: Making public finances and city spending available online.
Examples: OpenGov.com, OpenSpending, Look at Cook
Buses: Transportation tools to help residents with schedules, planning, etc.
Examples: OpenTripPlanner, OneBusAway
Data: Open, organized, municipal information.
Examples: Socrata, NuData, CKAN, OpenDataCatalog, Junar
411: An online information hotline used in the same regard as the phone version.
Examples: CityAnswers, MindMixer, OSQA
311: Non-emergency online assistance including reporting things like road repairs.
Examples: SeeClickFix, PublicStuff, Connected Bits, Service Tracker, Open311Mobile
211: A social services hotline for services including health, jobs training and housing.
Examples: Aunt Bertha, Purple Binder, Connect Chicago
“The opportunity is that we have the chance to take all of these components that are being built as open-source tools and turn them into companies that offer them to cities as hosted platforms,” Nemani told Next City. “Even a 10-person shop can put in a credit card number and pay a hundred dollars a month for one of these tools.”
While Nemani admits each city will be different — some places are too small for transportation components — working towards a template is critical to make civic technology accessible for everyone. But by focusing on these eight tools, any town is off to a great start….”
GitHub: A Swiss Army knife for open government
FCW: “Today, more than 300 government agencies are using the platform for public and private development. Cities (Chicago, Philadelphia, San Francisco), states (New York, Washington, Utah) and countries (United Kingdom, Australia) are sharing code and paving a new road to civic collaboration….
Civic-focused organizations — such as the OpenGov Foundation, the Sunlight Foundation and the Open Knowledge Foundation — are also actively involved with original projects on GitHub. Those projects include the OpenGov Foundation’s Madison document-editing tool touted by the likes of Rep. Darrell Issa (R-Calif.) and the Open Knowledge Foundation’s CKAN, which powers hundreds of government data platforms around the world.
According to GovCode, an aggregator of public government open-source projects hosted on GitHub, there have been hundreds of individual contributors and nearly 90,000 code commits, which involve making a set of tentative changes permanent.
The nitty-gritty
Getting started on GitHub is similar to the process for other social networking platforms. Users create individual accounts and can set up “organizations” for agencies or cities. They can then create repositories (or repos) to collaborate on projects through an individual or organizational account. Other developers or organizations can download repo code for reuse or repurpose it in their own repositories (called forking), and make it available to others to do the same.
Collaborative aspects of GitHub include pull requests that allow developers to submit and accept updates to repos that build on and grow an open-source project. There are wikis, gists (code snippet sharing) and issue tracking for bugs, feature requests, or general questions and answers.
GitHub provides free code hosting for all public repos. Upgrade offerings include personal and organizational plans based on the number of private repos. For organizations that want a self-hosted GitHub development environment, GitHub Enterprise, used by the likes of CFPB, allows for self-hosted, private repos behind a firewall.
GitHub’s core user interface can be unwelcoming or even intimidating to the nondeveloper, but GitHub’s Pages package offers Web-hosting features that include domain mapping and lightweight content management tools such as static site generator Jekyll and text editor Atom.
Notable government projects that use Pages are the White House’s Project Open Data, 18F’s /Developer Program, CFPB’s Open Tech website and New York’s Open Data Handbook. Indeed, Wired recently commented that the White House’s open-data GitHub efforts “could help fix government.”…
See also: GitHub for Government (GovLab)
Accessible Law for the Internet Age
AmericaDecoded: “America’s Laws Are the People’s Public Property. The State Decoded software provides you with a people-friendly way to access your local, state, and federal legal code.
Careful organization by article and section makes browsing a breeze.
A site-wide search allows you to find the laws you’re looking for by topic.
Scroll-over definitions translate legal jargon into common English.
Downloadable legal code lets you take the law into your own hands.
Best of all, everything on the site remains cost-and restriction-free.”
Meet the UK start-ups changing the world with open data
Sophie Curtis in The Telegraph: “Data is more accessible today than anyone could have imagined 10 or 20 years ago. From corporate databases to social media and embedded sensors, data is exploding, with total worldwide volume expected to reach 6.6 zettabytes by 2020.
Open data is information that is available for anyone to use, for any purpose, at no cost. For example, the Department for Education publishes open data about the performance of schools in England, so that companies can create league tables and citizens can find the best-performing schools in their catchment area.
Governments worldwide are working to open up more of their data. Since January 2010, more than 18,500 UK government data sets have been released via the data.gov.uk web portal, creating new opportunities for organisations to build innovative digital services.
Businesses are also starting to realise the value of making their non-personal data freely available, with open innovation leading to the creation products and services that they can benefit from….
Now a range of UK start-ups are working with the ODI to build businesses using open data, and have already unlocked a total of £2.5 million worth of investments and contracts.
Mastodon C joined the ODI start-up programme at its inception in December 2012. Shortly after joining, the company teamed up with Ben Goldacre and Open Healthcare UK, and embarked on a project investigating the use of branded statins over the far cheaper generic versions.
The data analysis identified potential efficiency savings to the NHS of £200 million. The company is now also working with the Technology Strategy Board and Nesta to help them gain better insight into their data.
Another start-up, CarbonCulture is a community platform designed to help people use resources more efficiently. The company uses high-tech metering to monitor carbon use in the workplace and help clients save money.
Organisations such as 10 Downing Street, Tate, Cardiff Council, the GLA and the UK Parliament are using the company’s digital tools to monitor and improve their energy consumption. CarbonCulture has also helped the Department of Energy and Climate Change reduce its gas use by 10 per cent.
Spend Network’s business is built on collecting the spend statements and tender documents published by government in the UK and Europe and then publishing this data openly so that anyone can use it. The company currently hosts over £1.2 trillion of transactions from the UK and over 1.8 million tenders from across Europe.
One of the company’s major breakthroughs was creating the first national, open spend analysis for central and local government. This was used to uncover a 45 per cent delay in the UK’s tendering process, holding up £22 billion of government funds to the economy.
Meanwhile, TransportAPI uses open data feeds from Traveline, Network Rail and Transport for London to provide nationwide timetables, departure and infrastructure information across all modes of public transport.
TransportAPI currently has 700 developers and organisations signed up to its platform, including individual taxpayers and public sector organisations like universities and local authorities. Travel portals, hyperlocal sites and business analytics are also integrating features, such as the ‘nearest transport’ widget, into their websites.
These are just four examples of how start-ups are using open data to create new digital services. The ODI this week announced seven new open data start-ups joining the programme, covering 3D printed learning materials, helping disabled communities, renewable energy markets, and smart cities….”
Are the Authoritarians Winning?
Review of several books by Michael Ignatieff in the New York Review of Books: “In the 1930s travelers returned from Mussolini’s Italy, Stalin’s Russia, and Hitler’s Germany praising the hearty sense of common purpose they saw there, compared to which their own democracies seemed weak, inefficient, and pusillanimous.
Democracies today are in the middle of a similar period of envy and despondency. Authoritarian competitors are aglow with arrogant confidence. In the 1930s, Westerners went to Russia to admire Stalin’s Moscow subway stations; today they go to China to take the bullet train from Beijing to Shanghai, and just as in the 1930s, they return wondering why autocracies can build high-speed railroad lines seemingly overnight, while democracies can take forty years to decide they cannot even begin. The Francis Fukuyama moment—when in 1989 Westerners were told that liberal democracy was the final form toward which all political striving was directed—now looks like a quaint artifact of a vanished unipolar moment.
For the first time since the end of the cold war, the advance of democratic constitutionalism has stopped. The army has staged a coup in Thailand and it’s unclear whether the generals will allow democracy to take root in Burma. For every African state, like Ghana, where democratic institutions seem secure, there is a Mali, a Côte d’Ivoire, and a Zimbabwe, where democracy is in trouble.
In Latin America, democracy has sunk solid roots in Chile, but in Mexico and Colombia it is threatened by violence, while in Argentina it struggles to shake off the dead weight of Peronism. In Brazil, the millions who took to the streets last June to protest corruption seem to have had no impact on the cronyism in Brasília. In the Middle East, democracy has a foothold in Tunisia, but in Syria there is chaos; in Egypt, plebiscitary authoritarianism rules; and in the monarchies, absolutism is ascendant.
In Europe, the policy elites keep insisting that the remedy for their continent’s woes is “more Europe” while a third of their electorate is saying they want less of it. From Hungary to Holland, including in France and the UK, the anti-European right gains ground by opposing the European Union generally and immigration in particular. In Russia the democratic moment of the 1990s now seems as distant as the brief constitutional interlude between 1905 and 1914 under the tsar….
It is not at all apparent that “governance innovation,” a bauble Micklethwait and Wooldridge chase across three continents, watching innovators at work making government more efficient in Chicago, Sacramento, Singapore, and Stockholm, will do the trick. The problem of the liberal state is not that it lacks modern management technique, good software, or different schemes to improve the “interface” between the bureaucrats and the public. By focusing on government innovation, Micklethwait and Wooldridge assume that the problem is improving the efficiency of government. But what is required is both more radical and more traditional: a return to constitutional democracy itself, to courts and regulatory bodies that are freed from the power of money and the influence of the powerful; to legislatures that cease to be circuses and return to holding the executive branch to public account while cooperating on measures for which there is a broad consensus; to elected chief executives who understand that they are not entertainers but leaders….”
Books reviewed:
Foreign Policy Begins at Home: The Case for Putting America’s House in Order
by Richard N. Haass
Basic Books, 195 pp., $15.99 (paper)
Restraint: A New Foundation for US Grand Strategy
by Barry R. Posen
Cornell University Press, 234 pp., $29.95
The Fourth Revolution: The Global Race to Reinvent the State
by John Micklethwait and Adrian Wooldridge
Penguin, 305 pp., $27.95
Reforming Taxation to Promote Growth and Equity
a white paper by Joseph Stiglitz
Roosevelt Institute, 28 pp., May 28, 2014; available at rooseveltinstitute.org“
Liberating Data to Transform Health Care
Erika G. Martin, Natalie Helbig, and Nirav R. Shah on New York’s Open Data Experience in JAMA: “The health community relies on governmental survey, surveillance, and administrative data to track epidemiologic trends, identify risk factors, and study the health care delivery system. Since 2009, a quiet “open data” revolution has occurred. Catalyzed by President Obama’s open government directive, federal, state, and local governments are releasing deidentified data meeting 4 “open” criteria: public accessibility, availability in multiple formats, free of charge, and unlimited use and distribution rights.1 As of February 2014, HealthData.gov, the federal health data repository, has more than 1000 data sets, and Health Data NY, New York’s health data site, has 48 data sets with supporting charts and maps. Data range from health interview surveys to administrative transactions. The implicit logic is that making governmental data readily available will improve government transparency; increase opportunities for research, mobile health application development, and data-driven quality improvement; and make health-related information more accessible. Together, these activities have the potential to improve health care quality, reduce costs, facilitate population health planning and monitoring, and empower health care consumers to make better choices and live healthier lives.”
Is Crowdsourcing the Future for Legislation?
Brian Heaton in GovTech: “…While drafting legislation is traditionally the job of elected officials, an increasing number of lawmakers are using digital platforms such as Wikispaces and GitHub to give constituents a bigger hand in molding the laws they’ll be governed by. The practice has been used this year in both California and New York City, and shows no signs of slowing down anytime soon, experts say.
Trond Undheim, crowdsourcing expert and founder of Yegii Inc., a startup company that provides and ranks advanced knowledge assets in the areas of health care, technology, energy and finance, said crowdsourcing was “certainly viable” as a tool to help legislators understand what constituents are most passionate about.
“I’m a big believer in asking a wide variety of people the same question and crowdsourcing has become known as the long-tail of answers,” Undheim said. “People you wouldn’t necessarily think of have something useful to say.”
California Assemblyman Mike Gatto, D-Los Angeles, agreed. He’s spearheaded an effort this year to let residents craft legislation regarding probate law — a measure designed to allow a court to assign a guardian to a deceased person’s pet. Gatto used the online Wikispaces platform — which allows for Wikipedia-style editing and content contribution — to let anyone with an Internet connection collaborate on the legislation over a period of several months.
The topic of the bill may not have been headline news, but Gatto was encouraged by the media attention his experiment received. As a result, he’s committed to running another crowdsourced bill next year — just on a bigger, more mainstream public issue.
New York City Council Member Ben Kallos has a plethora of technology-related legislation being considered in the Big Apple. Many of the bills are open for public comment and editing on GitHub. In an interview with Government Technology last month, Kallos said he believes using crowdsourcing to comment on and edit legislation is empowering and creates a different sense of democracy where people can put forward their ideas.
County governments also are joining the crowdsourcing trend. The Catawba Regional Council of Governments in South Carolina and the Centralia Council of Governments in North Carolina are gathering opinions on how county leaders should plan for future growth in the region.
At a public forum earlier this year, attendees were given iPads to go online and review four growth options and record their views on which they preferred. The priorities outlined by citizens will be taken back to decision-makers in each of the counties to see how well existing plans match up with what the public wants.
Gatto said he’s encouraged by how quickly the crowdsourcing of policy has spread throughout the U.S. He said there’s a disconnect between governments and their constituencies who believe elected officials don’t listen. But that could change as crowdsourcing continues to make its impact on lawmakers.
“When you put out a call like I did and others have done and say ‘I’m going to let the public draft a law and whatever you draft, I’m committed to introducing it … I think that’s a powerful message,” Gatto said. “I think the public appreciates it because it makes them understand that the government still belongs to them.”
Protecting the Process
Despite the benefits crowdsourcing brings to the legislative process, there remain some question marks about whether it truly provides insight into the public’s feelings on an issue. For example, because many political issues are driven by the influence of special interest groups, what’s preventing those groups from manipulating the bill-drafting process?
Not much, according to Undheim. He cautioned policymakers to be aware of the motivations from people taking part in crowdsourcing efforts to write and edit laws. Gatto shared Undheim’s concerns, but noted that the platform he used for developing his probate law – Wikispaces – has safeguards in place so that a member of his staff can revert language of a crowdsourced bill back to a previous version if it’s determined that someone was trying to unduly influence the drafting process….”
Participant Index Seeks to Determine Why One Film Spurs Activism, While Others Falter
in the New York Times: “You watched the wrenching documentary. You posted your outrage on Twitter. But are you good for more than a few easy keystrokes of hashtag activism?
Participant Media and some powerful partners need to know.
For the last year Participant, an activist entertainment company that delivers movies with a message, has been quietly working with the Bill & Melinda Gates Foundation, the Knight Foundation and the University of Southern California’s Annenberg School for Communication and Journalism to answer a question vexing those who would use media to change the world.
That is, what actually gets people moving? Do grant-supported media projects incite change, or are they simply an expensive way of preaching to the choir?…
To get the answers it wants, Participant is developing a measuring tool that it calls the Participant Index, assisted in the effort by the Annenberg school’s Media Impact Project. In rough parallel to the Nielsen television ratings, the still-evolving index compiles raw audience numbers for issue-driven narrative films, documentaries, television programs and online short videos, along with measures of conventional and social media activity, including Twitter and Facebook presence.
The two measures are then matched with the results of an online survey, about 25 minutes long, that asks as many as 350 viewers of each project an escalating set of questions about their emotional response and level of engagement.
Did it affect you emotionally? Did you share information about it? Did you boycott a product or company? Did it change your life?
“If this existed, we would not be doing it,” said James G. Berk, chief executive of Participant. “We desperately need more and more information, to figure out if what we were doing is actually working.”
The answers result in a score that combines separate emotional and behavioral measures. On a scale of 100, for instance, “The Square,” a documentary about Egyptian political upheaval that was included in Participant’s first echelon of 35 indexed titles this year, scored extremely high for emotional involvement, with a 97, but lower in terms of provoking action, with an 87, for a combined average of 92.
By contrast, “Farmed and Dangerous,” a comic web series about industrial agriculture, hit 99 on the action scale, as respondents said, for instance, that they had bought or shunned a product, and 94 for emotion, for an average of 97. That marked it as having potentially higher impact than “The Square” among those who saw it….”