Paper by Nargiz Kazimova: “The onset of the COVID-19 pandemic has catalyzed an imperative for digital transformation in the healthcare sector. This study investigates the accelerated shift towards a digitally-enhanced healthcare delivery system, advocating for the widespread adoption of telemedicine and the relaxation of regulatory barriers. The paper also scrutinizes the burgeoning use of electronic health records, wearable devices, artificial intelligence, and machine learning, and how these technologies offer promising avenues for improving patient care and medical outcomes. Despite the advancements, the rapid digital integration raises significant privacy and security concerns. The stigma associated with certain illnesses and potential discrimination presents serious challenges that digital healthcare innovations can exacerbate.
This research underscores the criticality of stringent data governance to safeguard personal health information in the face of growing digitalization. The analysis begins with an exploration of the data governance role in optimizing healthcare outcomes and preserving privacy, followed by an assessment of the breadth and depth of health data proliferation. The paper subsequently navigates the complex legal and ethical terrain, contrasting HIPAA and GDPR frameworks to underline the current regulatory challenges.
A comprehensive set of strategic recommendations is provided for reinforcing data governance and enhancing privacy protection in healthcare. The author advises on updating legal provisions to match the dynamic healthcare environment, widening the scope of privacy laws, and improving the transparency of data-sharing practices. The establishment of ethical guidelines for the collection and use of health data is also recommended, focusing on explicit consent, decision-making transparency, harm accountability, maintenance of data anonymity, and the mitigation of biases in datasets.
Moreover, the study advocates for stronger transparency in data sharing with clear communication on data use, rigorous internal and external audit mechanisms, and informed consent processes. The conclusion calls for increased collaboration between healthcare providers, patients, administrative staff, ethicists, regulators, and technology companies to create governance models that reconcile patient rights with the expansive use of health data. The paper culminates in a call to action for a balanced approach to privacy and innovation in the data-driven era of healthcare…(More)”.
Commission welcomes final agreement on EU Digital Identity Wallet
Press Release: “The Commission welcomes the final agreement reached today by the European Parliament and the Council of the EU at the final trilogue on the Regulation introducing European Digital Identity Wallets. This concludes the co-legislators’ work implementing the results of the provisional political agreement reached on 29 June 2023 on a legal framework for an EU Digital Identity, the first trusted and secure digital identity framework for all Europeans.
This marks an important step towards the Digital Decade 2030 targets on the digitalisation of public services. All EU citizens will be offered the possibility to have an EU Digital Identity Wallet to access public and private online services in full security and protection of personal data all over Europe.
In addition to public services, Very Large Online Platforms designated under the Digital Services Act (including services such as Amazon, Booking.com or Facebook) and private services that are legally required to authenticate their users will have to accept the EU Digital Identity Wallet for logging into their online services. In addition, the wallets’ features and common specifications will make it attractive for all private service providers to accept them for their services, thus creating new business opportunities. The Wallet will also facilitate service providers’ compliance with various regulatory requirements.
In addition to securely storing their digital identity, the Wallet will allow users to open bank accounts, make payments and hold digital documents, such as a mobile Driving Licence, a medical prescription, a professional certificate or a travel ticket. The Wallet will offer a user-friendly and practical alternative to online identification guaranteed by EU law. The Wallet will fully respect the user’s choice whether or not to share personal data, it will offer the highest degree of security certified independently to the same standards, and relevant parts of its code will be published open source to exclude any possibility of misuse, illegal tracking, tracing or government interception.
The legislative discussions have strengthened the ambition of the regulation in a number of areas important for citizens. The Wallet will contain a dashboard of all transactions accessible to its holder, offer the possibility to report alleged violations of data protection, and allow interaction between wallets. Moreover, citizens will be able to onboard the wallet with existing national eID schemes and benefit from free eSignatures for non-professional use…(More)”.
Despite Its Problems, Network Technology Can Help Renew Democracy
Essay by Daniel Araya: “The impact of digital technologies on contemporary economic and social development has been nothing short of revolutionary. The rise of the internet has transformed the way we share content, buy and sell goods, and manage our institutions. But while the hope of the internet has been its capacity to expand human connection and bring people together, the reality has often been something else entirely.
When social media networks first emerged about a decade ago, they were hailed as “technologies of liberation” with the capacity to spread democracy. While these social networks have undeniably democratized access to information, they have also helped to stimulate social and political fragmentation, eroding the discursive fibres that hold democracies together.
Prior to the internet, news and media were the domain of professional journalists, overseen by powerful experts, and shaped by gatekeepers. However, in the age of the internet, platforms circumvent the need for gatekeepers altogether. Bypassing the centralized distribution channels that have served as a foundation to mass industrial societies, social networks have begun reshaping the way democratic societies build consensus. Given the importance of discourse to democratic self-government, concern is growing that democracy is failing…(More)”.
Parliament Buildings: The Architecture of Politics in Europe
Book edited by Sophia Psarra, Uta Staiger, and Claudia Sternberg: “As political polarisation undermines confidence in the shared values and established constitutional orders of many nations, it is imperative that we explore how parliaments are to stay relevant and accessible to the citizens whom they serve. The rise of modern democracies is thought to have found physical expression in the staged unity of the parliamentary seating plan. However, the built forms alone cannot give sufficient testimony to the exercise of power in political life.
Parliament Buildings brings together architecture, history, art history, history of political thought, sociology, behavioural psychology, anthropology and political science to raise a host of challenging questions. How do parliament buildings give physical form to norms and practices, to behaviours, rituals, identities and imaginaries? How are their spatial forms influenced by the political cultures they accommodate? What kinds of histories, politics and morphologies do the diverse European parliaments share, and how do their political trajectories intersect?
This volume offers an eclectic exploration of the complex nexus between architecture and politics in Europe. Including contributions from architects who have designed or remodelled four parliament buildings in Europe, it provides the first comparative, multi-disciplinary study of parliament buildings across Europe and across history…(More)”
Unlocking the Potential: The Call for an International Decade of Data
Working Paper by Stefaan Verhulst : “The goal of this working paper is to reiterate the central importance of data – to Artificial Intelligence (AI) in particular, but more generally to the landscape of digital technology.
What follows serves as a clarion call to the global community to prioritize and advance data as the bedrock for social and economic development, especially for the UN’s Sustainable Development Goals. It begins by recognizing the existence of significant remaining challenges related to data; encompassing issues of accessibility, distribution, divides, and asymmetries. In light of these challenges, and as we propel ourselves into an era increasingly dominated by AI and AI-related innovation, the paper argues that establishing a more robust foundation for the stewardship of data is critical; a foundation that, for instance, embodies inclusivity, self-determination, and responsibility.
Finally, the paper advocates for the creation of an International Decade of Data (IDD), an initiative aimed at solidifying this foundation globally and advancing our collective efforts towards data-driven progress.
Download ‘Unlocking the Potential: The Call for an International Decade of Data’ here. “
Researchers warn we could run out of data to train AI by 2026. What then?
Article by Rita Matulionyte: “As artificial intelligence (AI) reaches the peak of its popularity, researchers have warned the industry might be running out of training data – the fuel that runs powerful AI systems. This could slow down the growth of AI models, especially large language models, and may even alter the trajectory of the AI revolution.
But why is a potential lack of data an issue, considering how much there are on the web? And is there a way to address the risk?…
We need a lot of data to train powerful, accurate and high-quality AI algorithms. For instance, ChatGPT was trained on 570 gigabytes of text data, or about 300 billion words.
Similarly, the stable diffusion algorithm (which is behind many AI image-generating apps such as DALL-E, Lensa and Midjourney) was trained on the LIAON-5B dataset comprising of 5.8 billion image-text pairs. If an algorithm is trained on an insufficient amount of data, it will produce inaccurate or low-quality outputs.
The quality of the training data is also important…This is why AI developers seek out high-quality content such as text from books, online articles, scientific papers, Wikipedia, and certain filtered web content. The Google Assistant was trained on 11,000 romance novels taken from self-publishing site Smashwords to make it more conversational.
The AI industry has been training AI systems on ever-larger datasets, which is why we now have high-performing models such as ChatGPT or DALL-E 3. At the same time, research shows online data stocks are growing much slower than datasets used to train AI.
In a paper published last year, a group of researchers predicted we will run out of high-quality text data before 2026 if the current AI training trends continue. They also estimated low-quality language data will be exhausted sometime between 2030 and 2050, and low-quality image data between 2030 and 2060.
AI could contribute up to US$15.7 trillion (A$24.1 trillion) to the world economy by 2030, according to accounting and consulting group PwC. But running out of usable data could slow down its development…(More)”.
What Is Public Trust in the Health System? Insights into Health Data Use
Open Access Book by Felix Gille: “This book explores the concept of public trust in health systems.
In the context of recent events, including public response to interventions to tackle the COVID-19 pandemic, vaccination uptake and the use of health data and digital health, this important book uses empirical evidence to address why public trust is vital to a well-functioning health system.
In doing so, it provides a comprehensive contemporary explanation of public trust, how it affects health systems and how it can be nurtured and maintained as an integral component of health system governance…(More)”.
Climate data can save lives. Most countries can’t access it.
Article by Zoya Teirstein: “Earth just experienced one of its hottest, and most damaging, periods on record. Heat waves in the United States, Europe, and China; catastrophic flooding in India, Brazil, Hong Kong, and Libya; and outbreaks of malaria, dengue, and other mosquito-borne illnesses across southern Asia claimed tens of thousands of lives. The vast majority of these deaths could have been averted with the right safeguards in place.
The World Meteorological Organization, or WMO, published a report last week that shows just 11 percent of countries have the full arsenal of tools required to save lives as the impacts of climate change — including deadly weather events, infectious diseases, and respiratory illnesses like asthma — become more extreme. The United Nations climate agency predicts that significant natural disasters will hit the planet 560 times per year by the end of this decade. What’s more, countries that lack early warning systems, such as extreme heat alerts, will see eight times more climate-related deaths than countries that are better prepared. By midcentury, some 50 percent of these deaths will take place in Africa, a continent that is responsible for around 4 percent of the world’s greenhouse gas emissions each year…(More)”.
AI and Democracy’s Digital Identity Crisis
Essay by Shrey Jain, Connor Spelliscy, Samuel Vance-Law and Scott Moore: “AI-enabled tools have become sophisticated enough to allow a small number of individuals to run disinformation campaigns of an unprecedented scale. Privacy-preserving identity attestations can drastically reduce instances of impersonation and make disinformation easy to identify and potentially hinder. By understanding how identity attestations are positioned across the spectrum of decentralization, we can gain a better understanding of the costs and benefits of various attestations. In this paper, we discuss attestation types, including governmental, biometric, federated, and web of trust-based, and include examples such as e-Estonia, China’s social credit system, Worldcoin, OAuth, X (formerly Twitter), Gitcoin Passport, and EAS. We believe that the most resilient systems create an identity that evolves and is connected to a network of similarly evolving identities that verify one another. In this type of system, each entity contributes its respective credibility to the attestation process, creating a larger, more comprehensive set of attestations. We believe these systems could be the best approach to authenticating identity and protecting against some of the threats to democracy that AI can pose in the hands of malicious actors. However, governments will likely attempt to mitigate these risks by implementing centralized identity authentication systems; these centralized systems could themselves pose risks to the democratic processes they are built to defend. We therefore recommend that policymakers support the development of standards-setting organizations for identity, provide legal clarity for builders of decentralized tooling, and fund research critical to effective identity authentication systems…(More)”
Networked Press Freedom
Book by Mike Ananny: “…offers a new way to think about freedom of the press in a time when media systems are in fundamental flux. Ananny challenges the idea that press freedom comes only from heroic, lone journalists who speak truth to power. Instead, drawing on journalism studies, institutional sociology, political theory, science and technology studies, and an analysis of ten years of journalism discourse about news and technology, he argues that press freedom emerges from social, technological, institutional, and normative forces that vie for power and fight for visions of democratic life. He shows how dominant, historical ideals of professionalized press freedom often mistook journalistic freedom from constraints for the public’s freedom to encounter the rich mix of people and ideas that self-governance requires. Ananny’s notion of press freedom ensures not only an individual right to speak, but also a public right to hear.
Seeing press freedom as essential for democratic self-governance, Ananny explores what publics need, what kind of free press they should demand, and how today’s press freedom emerges from intertwined collections of humans and machines. If someone says, “The public needs a free press,” Ananny urges us to ask in response, “What kind of public, what kind of freedom, and what kind of press?” Answering these questions shows what robust, self-governing publics need to demand of technologists and journalists alike…(More)”.