Reddit Is America’s Unofficial Unemployment Hotline

Curated on Posted on by Stefaan Verhulst

Ella Koeze at The New York Times: “In early December, Alex Branch’s car broke down. A 23-year-old former arcade employee in southern Virginia, Mr. Branch had been receiving unemployment benefits since he was laid off in March, and figured he would have no problem paying for the repairs. But when he checked his bank account, he was troubled to find that the payments had stopped.

He had failed to get useful information from his state’s unemployment office before, so he turned to the one place he figured he could get an explanation: Reddit.

“I’m very confused and have no idea what to do,” Mr. Branch wrote on r/Unemployment, a Reddit forum whose popularity has skyrocketed during the pandemic.

The next day, another user commented on Mr. Branch’s post, using a common abbreviation for Extended Benefits, an emergency unemployment program. “Were you on EB? If so, EB was cut off Nov 21.”

Mr. Branch hadn’t realized he had been on Extended Benefits, which kicked in after he exhausted 26 weeks of regular unemployment plus 13 additional weeks granted in the March pandemic stimulus bill. Virginia stopped payments because the state’s unemployment rate had fallen under 5 percent, triggering an end to federal funding for the Extended Benefits program.

“I didn’t know about it,” he said in an interview. “That’s the biggest frustration that I had about it was the fact that I never received the email that it was going to be shut off.”

For many of the millions of Americans like Mr. Branch who lost jobs because of the coronavirus, the stress of being unemployed in a pandemic has been compounded by the difficulty of navigating disorganized and often antiquated state and federal unemployment systems. Information from overwhelmed state offices and websites is often confusing, and reaching an official who can answer questions nearly impossible….

Post after post on r/Unemployment conveys bureaucratic problems with endless variations: how to file a claim depending on your circumstances, what to do if you made a mistake on your claim, what different statuses on your claim might mean, how to navigate confusing and glitch-prone online portals and even how to speak to an actual person to get issues resolved….

Many people come to r/Unemployment to offer answers, not just find them.

Albert Peers, who had been working in a call center in San Diego until the pandemic, spends time every day trying to answer questions about California’s system. He lives alone and can’t easily return to work because he has a lowered immune system. After first visiting the site when he encountered a hitch in his own unemployment benefits, Mr. Peers, 56, was shocked by the number of people who had no idea what to do.

The thought that someone might go hungry or miss rent because they were simply stymied by the system was unacceptable to him. “At that point I just made a decision,” he said. “You know what, like a couple hours every day, because I just can’t turn away.”…(More)”.

Inside the ‘Wikipedia of Maps,’ Tensions Grow Over Corporate Influence

Curated on Posted on by Stefaan Verhulst

Corey Dickinson at Bloomberg: “What do Lyft, Facebook, the International Red Cross, the U.N., the government of Nepal and Pokémon Go have in common? They all use the same source of geospatial data: OpenStreetMap, a free, open-source online mapping service akin to Google Maps or Apple Maps. But unlike those corporate-owned mapping platforms, OSM is built on a network of mostly volunteer contributors. Researchers have described it as the “Wikipedia for maps.”

Since it launched in 2004, OpenStreetMap has become an essential part of the world’s technology infrastructure. Hundreds of millions of monthly users interact with services derived from its data, from ridehailing apps, to social media geotagging on Snapchat and Instagram, to humanitarian relief operations in the wake of natural disasters. 

But recently the map has been changing, due the growing impact of private sector companies that rely on it. In a 2019 paper published in the ISPRS International Journal of Geo-Information, a cross-institutional team of researchers traced how Facebook, Apple, Microsoft and other companies have gained prominence as editors of the map. Their priorities, the researchers say, are driving significant change to what is being mapped compared to the past. 

“OpenStreetMap’s data is crowdsourced, which has always made spectators to the project a bit wary about the quality of the data,” says Dipto Sarkar, a professor of geoscience at Carleton University in Ottawa, and one of the paper’s co-authors. “As the data becomes more valuable and is used for an ever-increasing list of projects, the integrity of the information has to be almost perfect. These companies need to make sure there’s a good map of the places they want to expand in, and nobody else is offering that, so they’ve decided to fill it in themselves.”…(More)”.

Critical Perspectives on Open Development

Curated on Posted on by Stefaan Verhulst

Book edited by Arul Chib, Caitlin M. Bentley, and Matthew L. Smith: “Over the last ten years, “open” innovations—the sharing of information and communications resources without access restrictions or cost—have emerged within international development. But do these innovations empower poor and marginalized populations? This book examines whether, for whom, and under what circumstances the free, networked, public sharing of information and communication resources contribute (or not) toward a process of positive social transformation. The contributors offer cross-cutting theoretical frameworks and empirical analyses that cover a broad range of applications, emphasizing the underlying aspects of open innovations that are shared across contexts and domains.

The book first outlines theoretical frameworks that span knowledge stewardship, trust, situated learning, identity, participation, and power decentralization. It then investigates these frameworks across a range of institutional and country contexts, considering each in terms of the key emancipatory principles and structural impediments it seeks to address. Taken together, the chapters offer an empirically tested theoretical direction for the field….(More)”.

Centre for Applied Data Ethics Strategy – Enabling ethically appropriate research and statistics for the public good

Curated on Posted on by Stefaan Verhulst

Foreword by Professor Sir Ian Diamond: “I am delighted to introduce the UK Statistics Authority’s new Centre for Applied Data Ethics which we committed to establishing in the UK Statistics Authority’s five-year strategy published last year. Being able to show that researchers, statisticians and analysts have not only considered how they can use data but also how they should use data from an ethical perspective is vital to ensuring public acceptability around the use of data for research and statistical purposes. For this reason, I believe that it is important that as the UK’s national statistical institute, we play a lead role in providing statisticians, researchers and analysts with applied sources of advice, guidance and other tools to help them ensure they use data in ethically appropriate ways. I have therefore established the UK Statistics Authority’s Centre for Applied Data Ethics with the aim of being recognised as world-leaders in the practical application of data ethics for statistics and research.

The new Centre will build on the excellent work of the National Statistician’s Data Ethics Advisory Committee that will continue to provide me with valuable independent data ethics advice and assurance about the collection and use of data for research and statistics.

The significant role the analytical community across Government and beyond has played in informing the response to the ongoing Covid-19 pandemic highlights the importance of using data in new ways to produce timely statistics, research and analysis to inform the important policy questions of the day. Demonstrating how we apply the principles of good data ethics is an important part of this and is a key enabler, and safeguard, to unlock the power of data for better research and statistics for the public good. By focussing our efforts on providing practical data ethics support and guidance to researchers collecting and using data, the Centre for Applied Data Ethics will help the UK Statistics Authority to meet its strategic objectives of producing statistics for the public good to inform the UK, improve lives and build for the future….(More)”.

Collective bargaining on digital platforms and data stewardship

Curated on Posted on by Stefaan Verhulst

Paper by Astha Kapoor: “… there is a need to think of exploitation on platforms not only through the lens of labour rights but also that of data rights. In the current context, it is impossible to imagine well-being without more agency on the way data are collected, stored and used. It is imperative to envision structures through which worker communities and representatives can be more involved in determining their own data lives on platforms. There is a need to organize and mobilize workers on data rights.

One of the ways in which this can be done is through a mechanism of community data stewards who represent the needs and interests of workers to their platforms, thus negotiating and navigating the data-based decisions. This paper examines the need for data rights as a critical requirement for worker well-being in the platform economy and the ways in which it can be actualized. It argues, given that workers on platforms produce data through collective labour on and off the platform, that worker data are a community resource and should be governed by representatives of workers who can negotiate with platforms on the use of that data for workers and for the public interest. The paper analyses the opportunity for a community data steward mechanism that represents workers’ interests and intermediates on data issues, such as transparency and accountability, with offline support systems. And is also a voice to online action to address some of the injustices of the data economy. Thus, a data steward is a tool through which workers better control their data—consent, privacy and rights—better and organize online. Essentially, it is a way forward for workers to mobilize collective bargaining on data rights.

The paper covers the impact of the COVID-19 pandemic on workers’ rights and well-being. It explores the idea of community data rights on the platform economy and why collective bargaining on data is imperative for any kind of meaningful negotiation with technology companies. The role of a community data steward in reclaiming workers’ power in the platform economy is explained, concluding with policy recommendations for a community data steward structure in the Indian context….(More)”.

Unravelling the New Plebiscitary Democracy: Towards a Research Agenda

Curated on Posted on by Stefaan Verhulst

Paper by Frank Hendriks: “Pushed by technological, cultural and related political drivers, a ‘new plebiscitary democracy’ is emerging which challenges established electoral democracy as well as variants of deliberative democracy. The new plebiscitary democracy reinvents and radicalizes longer-existing methods (initiative, referendum, recall, primary, petition, poll) with new tools and applications (mostly digital). It comes with a comparatively thin conceptualization of democracy, invoking the bare notion of a demos whose aggregated will is to steer actors and issues in public governance in a straight majoritarian way. In addition to unravelling the reinvented logic of plebiscitary democracy in conceptual terms, this article fleshes out an empirically informed matrix of emerging formats, distinguishing between votations that are ‘political-leader’ and ‘public-issue’ oriented on the one hand, and ‘inside-out’ and ‘outside-in’ initiated on the other hand. Relatedly, it proposes an agenda for systematic research into the various guises, drivers and implications of the new plebiscitary democracy. Finally, it reflects on possible objections to the argumentation….(More)”

Public-Private Partnerships: Compound and Data Sharing in Drug Discovery and Development

Curated on Posted on by Stefaan Verhulst

Paper by Andrew M. Davis et al: “Collaborative efforts between public and private entities such as academic institutions, governments, and pharmaceutical companies form an integral part of scientific research, and notable instances of such initiatives have been created within the life science community. Several examples of alliances exist with the broad goal of collaborating toward scientific advancement and improved public welfare. Such collaborations can be essential in catalyzing breaking areas of science within high-risk or global public health strategies that may have otherwise not progressed. A common term used to describe these alliances is public-private partnership (PPP). This review discusses different aspects of such partnerships in drug discovery/development and provides example applications as well as successful case studies. Specific areas that are covered include PPPs for sharing compounds at various phases of the drug discovery process—from compound collections for hit identification to sharing clinical candidates. Instances of PPPs to support better data integration and build better machine learning models are also discussed. The review also provides examples of PPPs that address the gap in knowledge or resources among involved parties and advance drug discovery, especially in disease areas with unfulfilled and/or social needs, like neurological disorders, cancer, and neglected and rare diseases….(More)”.

Governance for Innovation and Privacy: The Promise of Data Trusts and Regulatory Sandboxes

Curated on Posted on by Stefaan Verhulst

Essay by Chantal Bernier: “Innovation feeds on data, both personal, identified data and de-identified data. To protect the data from increasing privacy risks, governance structures emerge to allow the use and sharing of data as necessary for innovation while addressing privacy risks. Two frameworks proposed to fulfill this purpose are data trusts and regulatory sandboxes.

The Government of Canada introduced the concept of “data trust” into the Canadian privacy law modernization discussion through Canada’s Digital Charter in Action: A Plan by Canadians, for Canadians, to “enable responsible innovation.” At a high level, a data trust may be defined, according to the Open Data Institute, as a legal structure that is appropriate to the data sharing it is meant to govern and that provides independent stewardship of data.

Bill C-11, known as the Digital Charter Implementation Act, 2020, and tabled on November 17, 2020, lays the groundwork for the possibility of creating data trusts for private organizations to disclose de-identified data to specific public institutions for “socially beneficial purposes.” In her recent article “Replacing Canada’s 20-Year-Old Data Protection Law,” Teresa Scassa provides a superb overview and analysis of the bill.

Another instrument for privacy protective innovation is referred to as the “regulatory sandbox.” The United Kingdom’s Information Commissioner’s Office (ICO) provides a regulatory sandbox service that encourages organizations to submit innovative initiatives without fear of enforcement action. From there, the ICO sandbox team provides advice related to privacy risks and how to embed privacy protection.

Both governance measures may hold the future of privacy and innovation, provided that we accept this equation: De-identified data may no longer be considered irrevocably anonymous and therefore should not be released unconditionally, but the risk of re-identification is so remote that the data may be released under a governance structure that mitigates the residual privacy risk.  

Innovation Needs Identified Personal Data and De-identified Data   

The role of data in innovation does not need to be explained. Innovation requires a full understanding of what is, to project toward what could be. The need for personal data, however, calls for far more than an explanation. Its use must be justified. Applications abound, and they may not be obvious to the layperson. Researchers and statisticians, however, underline the critical role of personal data with one word: reliability.

Processing data that can be traced, either through identifiers or through pseudonyms, allows superior machine learning, longitudinal studies and essential correlations, which provide, in turn, better data in which to ground innovation. Statistics Canada has developed a “Continuum of Microdata Access” to its databases on the premise that “researchers require access to microdata at the individual business, household or person level for research purposes. To preserve the privacy and confidentiality of respondents, and to encourage the use of microdata, Statistics Canada offers a wide range of options through a series of online channels, facilities and programs.”

Since the first national census in 1871, Canada has put data — derived from personal data collected through the census and surveys — to good use in the public and private sectors alike. Now, new privacy risks emerge, as the unprecedented volume of data collection and the power of analytics bring into question the notion that the de-identification of data — and therefore its anonymization — is irreversible.

And yet, data to inform innovation for the good of humanity cannot exclude data about humans. So, we must look to governance measures to release de-identified data for innovation in a privacy-protective manner. …(More)”.

Time to evaluate COVID-19 contact-tracing apps

Curated on Posted on by Stefaan Verhulst

Letter to the Editor of Nature by Vittoria Colizza et al: “Digital contact tracing is a public-health intervention. Real-time monitoring and evaluation of the effectiveness of app-based contact tracing is key for improvement and public trust.

SARS-CoV-2 is likely to become endemic in many parts of the world, and there is still no certainty about how quickly vaccination will become available or how long its protection will last. For the foreseeable future, most countries will rely on a combination of various measures, including vaccination, social distancing, mask wearing and contact tracing.

Digital contact tracing via smartphone apps was established as a new public-health intervention in many countries in 2020. Most of these apps are now at a stage at which they need to be evaluated as public-health tools. We present here five key epidemiological and public-health requirements for COVID-19 contact-tracing apps and their evaluation.

1. Integration with local health policy. App notifications should be consistent with local health policies. The app should be integrated into access to testing, medical care and advice on isolation, and should work in conjunction with conventional contact tracing where available1. Apps should be interoperable across countries, as envisaged by the European Commission’s eHealth Network.

2. High user uptake and adherence. Contact-tracing apps can reduce transmission at low levels of uptake, including for those without smartphones2. However, large numbers of users increase effectiveness3,4. An effective communication strategy that explains the apps’ role and addresses privacy concerns is essential for increasing adoption5. Design, implementation and deployment should make the apps accessible to harder-to-reach communities. Adherence to quarantine should be encouraged and supported.

3. Quarantine infectious people as accurately as possible. The purpose of contact tracing is to quarantine as many potentially infectious people as possible, but to minimize the time spent in quarantine by uninfected people. To achieve optimal performance, apps’ algorithms must be ‘tunable’, to adjust to the epidemic as it evolves6.

4. Rapid notification. The time between the onset of symptoms in an index case and the quarantine of their contacts is of key importance in COVID-19 contact tracing7,8. Where a design feature introduces a delay, it needs to be outweighed by gains in, for example, specificity, uptake or adherence. If the delays exceed the period during which most contacts transmit the disease, the app will fail to reduce transmission.

5. Ability to evaluate effectiveness transparently. The public must be provided with evidence that notifications are based on the best available data. The tracing algorithm should therefore be transparent, auditable, under oversight and subject to review. Aggregated data (not linked to individual people) are essential for evaluation of and improvement in the performance of the app. Data on local uptake at a sufficiently coarse-grained spatial resolution are equally key. As apps in Europe do not ‘geolocate’ people, this additional information can be provided by the user or through surveys. Real-time monitoring should be performed whenever possible….(More)”.

Mini-Publics and the Wider Public: The Perceived Legitimacy of Randomly Selecting Citizen Representatives

Curated on Posted on by Stefaan Verhulst

Paper by James Pow: “There are two important dimensions to the membership of mini-publics that are distinct from the membership of conventional representative institutions: the selection mechanism (sortition) and the profile of the body’s eligible membership (‘ordinary’ citizens). This article examines the effects of these design features on perceived legitimacy. A survey experiment in the deeply divided context of Northern Ireland finds no evidence that variation in mini-public selection features has an overall effect on perceived legitimacy, but there are important individual-level differences….(More)”.