HHS releases new data and tools to increase transparency on hospital utilization and other trends


Pressrelease: “With more than 2,000 entrepreneurs, investors, data scientists, researchers, policy experts, government employees and more in attendance, the Department of Health and Human Services (HHS) is releasing new data and launching new initiatives at the annual Health Datapalooza conference in Washington, D.C.
Today, the Centers for Medicare & Medicaid Services (CMS) is releasing its first annual update to the Medicare hospital charge data, or information comparing the average amount a hospital bills for services that may be provided in connection with a similar inpatient stay or outpatient visit. CMS is also releasing a suite of other data products and tools aimed to increase transparency about Medicare payments. The data trove on CMS’s website now includes inpatient and outpatient hospital charge data for 2012, and new interactive dashboards for the CMS Chronic Conditions Data Warehouse and geographic variation data. Also today, the Food and Drug Administration (FDA) will launch a new open data initiative. And before the end of the conference, the Office of the National Coordinator for Health Information Technology (ONC) will announce the winners of two data challenges.
“The release of these data sets furthers the administration’s efforts to increase transparency and support data-driven decision making which is essential for health care transformation,” said HHS Secretary Kathleen Sebelius.
“These public data resources provide a better understanding of Medicare utilization, the burden of chronic conditions among beneficiaries and the implications for our health care system and how this varies by where beneficiaries are located,” said Bryan Sivak, HHS chief technology officer. “This information can be used to improve care coordination and health outcomes for Medicare beneficiaries nationwide, and we are looking forward to seeing what the community will do with these releases. Additionally, the openFDA initiative being launched today will for the first time enable a new generation of consumer facing and research applications to embed relevant and timely data in machine-readable, API-based formats.”
2012 Inpatient and Outpatient Hospital Charge Data
The data posted today on the CMS website provide the first annual update of the hospital inpatient and outpatient data released by the agency last spring. The data include information comparing the average charges for services that may be provided in connection with the 100 most common Medicare inpatient stays at over 3,000 hospitals in all 50 states and Washington, D.C. Hospitals determine what they will charge for items and services provided to patients and these “charges” are the amount the hospital generally bills for those items or services.
With two years of data now available, researchers can begin to look at trends in hospital charges. For example, average charges for medical back problems increased nine percent from $23,000 to $25,000, but the total number of discharges decreased by nearly 7,000 from 2011 to 2012.
In April, ONC launched a challenge – the Code-a-Palooza challenge – calling on developers to create tools that will help patients use the Medicare data to make health care choices. Fifty-six innovators submitted proposals and 10 finalists are presenting their applications during Datapalooza. The winning products will be announced before the end of the conference.
Chronic Conditions Warehouse and Dashboard
CMS recently released new and updated information on chronic conditions among Medicare fee-for-service beneficiaries, including:

  • Geographic data summarized to national, state, county, and hospital referral regions levels for the years 2008-2012;
  • Data for examining disparities among specific Medicare populations, such as beneficiaries with disabilities, dual-eligible beneficiaries, and race/ethnic groups;
  • Data on prevalence, utilization of select Medicare services, and Medicare spending;
  • Interactive dashboards that provide customizable information about Medicare beneficiaries with chronic conditions at state, county, and hospital referral regions levels for 2012; and
  • Chartbooks and maps.

These public data resources support the HHS Initiative on Multiple Chronic Conditions by providing researchers and policymakers a better understanding of the burden of chronic conditions among beneficiaries and the implications for our health care system.
Geographic Variation Dashboard
The Geographic Variation Dashboards present Medicare fee-for-service per-capita spending at the state and county levels in interactive formats. CMS calculated the spending figures in these dashboards using standardized dollars that remove the effects of the geographic adjustments that Medicare makes for many of its payment rates. The dashboards include total standardized per capita spending, as well as standardized per capita spending by type of service. Users can select the indicator and year they want to display. Users can also compare data for a given state or county to the national average. All of the information presented in the dashboards is also available for download from the Geographic Variation Public Use File.
Research Cohort Estimate Tool
CMS also released a new tool that will help researchers and other stakeholders estimate the number of Medicare beneficiaries with certain demographic profiles or health conditions. This tool can assist a variety of stakeholders interested in specific figures on Medicare enrollment. Researchers can also use this tool to estimate the size of their proposed research cohort and the cost of requesting CMS data to support their study.
Digital Privacy Notice Challenge
ONC, with the HHS Office of Civil Rights, will be awarding the winner of the Digital Privacy Notice Challenge during the conference. The winning products will help consumers get notices of privacy practices from their health care providers or health plans directly in their personal health records or from their providers’ patient portals.
OpenFDA
The FDA’s new initiative, openFDA, is designed to facilitate easier access to large, important public health datasets collected by the agency. OpenFDA will make FDA’s publicly available data accessible in a structured, computer readable format that will make it possible for technology specialists, such as mobile application creators, web developers, data visualization artists and researchers to quickly search, query, or pull massive amounts of information on an as needed basis. The initiative is the result of extensive research to identify FDA’s publicly available datasets that are often in demand, but traditionally difficult to use. Based on this research, openFDA is beginning with a pilot program involving millions of reports of drug adverse events and medication errors submitted to the FDA from 2004 to 2013. The pilot will later be expanded to include the FDA’s databases on product recalls and product labeling.
For more information about CMS data products, please visit http://www.cms.gov/Research-Statistics-Data-and-Systems/Research-Statistics-Data-and-Systems.html.
For more information about today’s FDA announcement visit: http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/UCM399335 or http://open.fda.gov/

How open data can help shape the way we analyse electoral behaviour


Harvey Lewis (Deloitte), Ulrich Atz, Gianfranco Cecconi, Tom Heath (ODI) in The Guardian: Even after the local council elections in England and Northern Ireland on 22 May, which coincided with polling for the European Parliament, the next 12 months remain a busy time for the democratic process in the UK.
In September, the people of Scotland make their choice in a referendum on the future of the Union. Finally, the first fixed-term parliament in Westminster comes to an end with a general election in all areas of Great Britain and Northern Ireland in May 2015.
To ensure that as many people as possible are eligible and able to vote, the government is launching an ambitious programme of Individual Electoral Registration (IER) this summer. This will mean that the traditional, paper-based approach to household registration will shift to a tailored and largely digital process more in-keeping with the data-driven demands of the twenty-first century.
Under IER, citizens will need to provide ‘identifying information’, such as date of birth or national insurance number, when applying to register.

Ballots: stuck in the past?

However, despite the government’s attempts through IER to improve the veracity of information captured prior to ballots being posted, little has changed in terms of the vision for capturing, distributing and analysing digital data from election day itself.

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Indeed, paper is still the chosen medium for data collection.
Digitising elections is fraught with difficulty, though. In the US, for example, the introduction of new voting machines created much controversy even though they are capable of providing ‘near-perfect’ ballot data.
The UK’s democratic process is not completely blind, though. Numerous opinion surveys are conducted both before and after polling, including the long-running British Election Study, to understand the shifting attitudes of a representative cross-section of the electorate.
But if the government does not retain in sufficient geographic detail digital information on the number of people who vote, then how can it learn what is necessary to reverse the long-running decline in turnout?

The effects of lack of data

To add to the debate around democratic engagement, a joint research team, with data scientists from Deloitte and the Open Data Institute (ODI), have been attempting to understand what makes voters tick.
Our research has been hampered by a significant lack of relevant data describing voter behaviour at electoral ward level, as well as difficulties in matching what little data is available to other open data sources, such as demographic data from the 2011 Census.
Even though individual ballot papers are collected and verified for counting the number of votes per candidate – the primary aim of elections, after all – the only recent elections for which aggregate turnout statistics have been published at ward level are the 2012 local council elections in England and Wales. In these elections, approximately 3,000 wards from a total of over 8,000 voted.
Data published by the Electoral Commission for the 2013 local council elections in England and Wales purports to be at ward level but is, in fact, for ‘county electoral divisions’, as explained by the Office for National Statistics.
Moreover, important factors related to the accessibility of polling stations – such as the distance from main population centres – could not be assessed because the location of polling stations remains the responsibility of individual local authorities – and only eight of these have so far published their data as open data.
Given these fundamental limitations, drawing any robust conclusions is difficult. Nevertheless, our research shows the potential for forecasting electoral turnout with relatively few census variables, the most significant of which are age and the size of the electorate in each ward.

What role can open data play?

The limited results described above provide a tantalising glimpse into a possible future scenario: where open data provides a deeper and more granular understanding of electoral behaviour.
On the back of more sophisticated analyses, policies for improving democratic engagement – particularly among young people – have the potential to become focused and evidence-driven.
And, although the data captured on election day will always remain primarily for the use of electing the public’s preferred candidate, an important secondary consideration is aggregating and publishing data that can be used more widely.
This may have been prohibitively expensive or too complex in the past but as storage and processing costs continue to fall, and the appetite for such knowledge grows, there is a compelling business case.
The benefits of this future scenario potentially include:

  • tailoring awareness and marketing campaigns to wards and other segments of the electorate most likely to respond positively and subsequently turn out to vote
  • increasing the efficiency with which European, general and local elections are held in the UK
  • improving transparency around the electoral process and stimulating increased democratic engagement
  • enhancing links to the Government’s other significant data collection activities, including the Census.

Achieving these benefits requires commitment to electoral data being collected and published in a systematic fashion at least at ward level. This would link work currently undertaken by the Electoral Commission, the ONS, Plymouth University’s Election Centre, the British Election Study and the more than 400 local authorities across the UK.”

Citizen participation and technology


ICTlogy: “The recent, rapid rise in the use of digital technology is changing relationships between citizens, organizations and public institutions, and expanding political participation. But while technology has the potential to amplify citizens’ voices, it must be accompanied by clear political goals and other factors to increase their clout.
Those are among the conclusions of a new NDI study, “Citizen Participation and Technology,” that examines the role digital technologies – such as social media, interactive websites and SMS systems – play in increasing citizen participation and fostering accountability in government. The study was driven by the recognition that better insights are needed into the relationship between new technologies, citizen participation programs and the outcomes they aim to achieve.
Using case studies from countries such as Burma, Mexico and Uganda, the study explores whether the use of technology in citizen participation programs amplifies citizen voices and increases government responsiveness and accountability, and whether the use of digital technology increases the political clout of citizens.
The research shows that while more people are using technology—such as social media for mobile organizing, and interactive websites and text messaging systems that enable direct communication between constituents and elected officials or crowdsourcing election day experiences— the type and quality of their political participation, and therefore its impact on democratization, varies. It also suggests that, in order to leverage technology’s potential, there is a need to focus on non-technological areas such as political organizing, leadership skills and political analysis.
For example, the “2% and More Women in Politics” coalition led by Mexico’s National Institute for Women (INMUJERES) used a social media campaign and an online petition to call successfully for reforms that would allocate two percent of political party funding for women’s leadership training. Technology helped the activists reach a wider audience, but women from the different political parties who made up the coalition might not have come together without NDI’s role as a neutral convener.
The study, which was conducted with support from the National Endowment for Democracy, provides an overview of NDI’s approach to citizen participation, and examines how the integration of technologies affects its programs in order to inform the work of NDI, other democracy assistance practitioners, donors, and civic groups.

Observations:

Key findings:

  1. Technology can be used to readily create spaces and opportunities for citizens to express their voices, but making these voices politically stronger and the spaces more meaningful is a harder challenge that is political and not technological in nature.
  2. Technology that was used to purposefully connect citizens’ groups and amplify their voices had more political impact.
  3. There is a scarcity of data on specific demographic groups’ use of, and barriers to technology for political participation. Programs seeking to close the digital divide as an instrument of narrowing the political divide should be informed by more research into barriers to access to both politics and technology.
  4. There is a blurring of the meaning between the technologies of open government data and the politics of open government that clouds program strategies and implementation.
  5. Attempts to simply crowdsource public inputs will not result in users self-organizing into politically influential groups, since citizens lack the opportunities to develop leadership, unity, and commitment around a shared vision necessary for meaningful collective action.
  6. Political will and the technical capacity to engage citizens in policy making, or providing accurate data on government performance are lacking in many emerging democracies. Technology may have changed institutions’ ability to respond to citizen demands but its mere presence has not fundamentally changed actual government responsiveness.”

Crowdsourcing platform for museums


Thesis by Kræn Vesterberg Hansen: “This thesis addresses a strategic challenge at National Museum of Denmark to engage with external people, interested in contributing information about their collection of more than half a million coins and medals. This approach of getting outsiders to help with the completion of many small tasks are popularly known as crowdsourcing. This entails a need for the transcription of handwritten protocols, establishment of references between of entries in protocols and photographs of coins. These coins also references both structured and non-structured metadata.
Does a digital platformfor crowd engagement, in the museum’s context, exist? And how is such a platform integrated with the existing infrastructure of the museum? The report considers the MediaWiki, Amazon’s Mechanical Turk and Zooniverse’s Scribe transcription interface, and finds that the MediaWiki fits approximately 70% of the requirements.
Existing cases of successful crowdsourcing projects, national as well international is mentioned and the solution builds upon APIs of existing infrastructure components (such as the existing collection management system GenReg Mønt and the Canto Cumulus digital asset management system) in a modular and reusable architecture.
The report approaches the challenge in a three part process, greatly inspired by the software process model of “Reuse-oriented software engineering” proposed by Professor of Software engineering at the University of St Andrews, Ian Summerville.”

How Big Data Could Undo Our Civil-Rights Laws


Virginia Eubanks in the American Prospect: “From “reverse redlining” to selling out a pregnant teenager to her parents, the advance of technology could render obsolete our landmark civil-rights and anti-discrimination laws.
Big Data will eradicate extreme world poverty by 2028, according to Bono, front man for the band U2. But it also allows unscrupulous marketers and financial institutions to prey on the poor. Big Data, collected from the neonatal monitors of premature babies, can detect subtle warning signs of infection, allowing doctors to intervene earlier and save lives. But it can also help a big-box store identify a pregnant teenager—and carelessly inform her parents by sending coupons for baby items to her home. News-mining algorithms might have been able to predict the Arab Spring. But Big Data was certainly used to spy on American Muslims when the New York City Police Department collected license plate numbers of cars parked near mosques, and aimed surveillance cameras at Arab-American community and religious institutions.
Until recently, debate about the role of metadata and algorithms in American politics focused narrowly on consumer privacy protections and Edward Snowden’s revelations about the National Security Agency (NSA). That Big Data might have disproportionate impacts on the poor, women, or racial and religious minorities was rarely raised. But, as Wade Henderson, president and CEO of the Leadership Conference on Civil and Human Rights, and Rashad Robinson, executive director of ColorOfChange, a civil rights organization that seeks to empower black Americans and their allies, point out in a commentary at TPM Cafe, while big data can change business and government for the better, “it is also supercharging the potential for discrimination.”
In his January 17 speech on signals intelligence, President Barack Obama acknowledged as much, seeking to strike a balance between defending “legitimate” intelligence gathering on American citizens and admitting that our country has a history of spying on dissidents and activists, including, famously, Dr. Martin Luther King, Jr. If this balance seems precarious, it’s because the links between historical surveillance of social movements and today’s uses of Big Data are not lost on the new generation of activists.
“Surveillance, big data and privacy have a historical legacy,” says Amalia Deloney, policy director at the Center for Media Justice, an Oakland-based organization dedicated to strengthening the communication effectiveness of grassroots racial justice groups. “In the early 1960s, in-depth, comprehensive, orchestrated, purposeful spying was used to disrupt political movements in communities of color—the Yellow Peril, the American Indian Movement, the Brown Berets, or the Black Panthers—to create fear and chaos, and to spread bias and stereotypes.”
In the era of Big Data, the danger of reviving that legacy is real, especially as metadata collection renders legal protection of civil rights and liberties less enforceable….
Big Data and surveillance are unevenly distributed. In response, a coalition of 14 progressive organizations, including the ACLU, ColorOfChange, the Leadership Conference on Civil and Human Rights, the NAACP, National Council of La Raza, and the NOW Foundation, recently released five “Civil Rights Principles for the Era of Big Data.” In their statement, they demand:

  • An end to high-tech profiling;
  • Fairness in automated decisions;
  • The preservation of constitutional principles;
  • Individual control of personal information; and
  • Protection of people from inaccurate data.

This historic coalition aims to start a national conversation about the role of big data in social and political inequality. “We’re beginning to ask the right questions,” says O’Neill. “It’s not just about what can we do with this data. How are communities of color impacted? How are women within those communities impacted? We need to fold these concerns into the national conversation.”

Open Data at Core of New Governance Paradigm


GovExec: “Rarely are federal agencies compared favorably with Facebook, Instagram, or other modern models of innovation, but there is every reason to believe they can harness innovation to improve mission effectiveness. After all, Aneesh Chopra, former U.S. Chief Technology Officer, reminded the Excellence in Government 2014 audience that government has a long history of innovation. From nuclear fusion to the Internet, the federal government has been at the forefront of technological development.
According to Chopra, the key to fueling innovation and economic prosperity today is open data. But to make the most of open data, government needs to adapt its culture. Chopra outlined three essential elements of doing so:

  1. Involve external experts – integrating outside ideas is second to none as a source of innovation.
  2. Leverage the experience of those on the front lines – federal employees who directly execute their agency’s mission often have the best sense of what does and does not work, and what can be done to improve effectiveness.
  3. Look to the public as a value multiplier – just as Facebook provides a platform for tens of thousands of developers to provide greater value, federal agencies can provide the raw material for many more to generate better citizen services.

In addition to these three broad elements, Chopra offered four specific levers government can use to help enact this paradigm shift:

  1. Democratize government data – opening government data to the public facilitates innovation. For example, data provided by the National Oceanic and Atmospheric Administration helps generate a 5 billion dollar industry by maintaining almost no intellectual property constraints on its weather data.
  2. Collaborate on technical standards – government can act as a convener of industry members to standardize technological development, and thereby increase the value of data shared.
  3. Issue challenges and prizes – incentivizing the public to get involved and participate in efforts to create value from government data enhances the government’s ability to serve the public.
  4. Launch government startups – programs like the Presidential Innovation Fellows initiative helps challenge rigid bureaucratic structures and permeate a culture of innovation.

Federal leaders will need a strong political platform to sustain this shift. Fortunately, this blueprint is also bipartisan, says Chopra. Political leaders on both sides of the aisle are already getting behind the movement to bring innovation to the core of government..

An App That Makes It Easy to Pester Your Congress Member


Klint Finley in Wired: “Joe Trippi pioneered the use of social media as a fundraising tool. As campaign manager for Democratic presidential candidate Howard Dean in 2004, he started a trend that has reinvented that way politicians run for office. But he believes that many politicians are still missing out on the power of the internet once they’re elected.
“There’s been a lot of focus on winning campaigns, but there’s been less focus on governing,” Trippi says. “There are a lot of tools out there for campaigns to talk to voters, but not as many looking at how to give citizens and voters more impact on actual elected leaders in Congress.”

‘There’s been a lot of focus on winning campaigns, but there’s been less focus on governing.’

That’s why Trippi is working with an internet startup called Countable, which seeks to give citizens a greater voice in national politics. The company’s online service, which launches to the public today, gives you a simple and concise overview of the bills your national representatives are debating, and it lets you instantly send emails to these representatives, telling them how you would like them to vote.
Countable joins a growing wave of online tools that can improve the dialogue between citizens and representatives, including Madison, which lets you add your thoughts to both proposed bills and existing policies, and ThinkUp, a tool the White House uses to gauge popular sentiment through social media. The new service is most similar to Democracy OS, which lets governments and non-profits set up websites where people can discuss issues and vote on particular topics. But instead of building a platform that government operations must install on their own computer servers, Countable is offering a ready-made service.
In other words, you don’t have to wait for your representatives to adopt anything. All you have to do is sign up and start sending your thoughts to Congress….
One of the biggest challenges the company faces is providing enough information for citizens to develop informed opinions, without overwhelming them with details. “Fortunately, most pieces of legislation can be reasonably straight forward,” Myers says. “It’s when you get into complicated legislation with different political motivations associated with it that things get hard.”
For example, politicians often add amendments to bills that contain additional regulations or spending unrelated to the bill in question. Myers says that Countable will post updates to bills that have such riders. “Being able to call that out is actually a benefit in what we do,” he says.
The company is hiring writers from a variety of backgrounds, including politics and marketing, to ensure that the content is both accurate and understandable. Myers says the company strives to offer a balanced view of the pros and cons of each piece of legislation. “The editorial team represents multiple different political view points, but it will never be perfect,” he admits. To improve develop the editorial process, the company is also advised by former Reuters News publisher Andrew Goldner.
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The other issue is e-mailing your representatives may not be that effective. And since Countable doesn’t do much to verify that you are who you say you are, a lobbyist or advocacy group could sign-up for multiple accounts and make it look like constituents feel more strongly about an issue than they actually do. But Myers says this isn’t much an issue, at least for now. “When talking with representatives, it’s not a major concern,” Myers says. “You can already e-mail your representatives without verifying your identity…”

New crowdsourcing site like ‘Yelp’ for philanthropy


Vanessa Small in the Washington Post: “Billionaire investor Warren Buffett once said that there is no market test for philanthropy. Foundations with billions in assets often hand out giant grants to charity without critique. One watchdog group wants to change that.
The National Committee for Responsive Philanthropy has created a new Web site that posts public feedback about a foundation’s giving. Think Yelp for the philanthropy sector.
Along with public critiques, the new Web site, Philamplify.org, uploads a comprehensive assessment of a foundation conducted by researchers at the National Committee for Responsive Philanthropy.
The assessment includes a review of the foundation’s goals, strategies, partnerships with grantees, transparency, diversity in its board and how any investments support the mission.
The site also posts recommendations on what would make the foundation more effective in the community. The public can agree or disagree with each recommendation and then provide feedback about the grantmaker’s performance.
People who post to the site can remain anonymous.
NCRP officials hope the site will stir debate about the giving practices of foundations.
“Foundation leaders rarely get honest feedback because no one wants to get on the wrong side of a foundation,” said Lisa Ranghelli, a director at NCRP. “There’s so much we need to do as a society that we just want these philanthropic resources to be used as powerfully as possible and for everyone to feel like they have a voice in how philanthropy operates.”
With nonprofit rating sites such as Guidestar and Charity Navigator, Philamplify is just one more move to create more transparency in the nonprofit sector. But the site might be one of the first to force transparency and public commentary exclusively about the organizations that give grants.
Foundation leaders are open to the site, but say that some grantmakers already use various evaluation methods to improve their strategies.
Groups such as Grantmakers for Effective Organizations and the Center for Effective Philanthropy provide best practices for foundation giving.
The Council on Foundations, an Arlington-based membership organization of foundation groups, offers a list of tools and ideas for foundations to make their giving more effective.
“We will be paying close attention to Philamplify and new developments related to it as the project unfolds,” said Peter Panepento, senior vice president of community and knowledge at the Council on Foundations.
Currently there are three foundations up for review on the Web site: the William Penn Foundation in Philadelphia, which focuses on improving the Greater Philadelphia community; the Robert W. Woodruff Foundation in Atlanta, which gives grants in science and education; and the Lumina Foundation for Education in Indianapolis, which focuses on access to higher learning….”
Officials say Philamplify will focus on the top 100 largest foundations to start. Large foundations would include groups such as the Bill and Melinda Gates Foundation, the Robert Wood Johnson Foundation and Silicon Valley Community Foundation, and the foundations of companies such as Wal-Mart, Wells Fargo, Johnson & Johnson and GlaxoSmithKline.
Although there are concerns about the site’s ability to keep comments objective, grantees hope it will start a dialogue that has been absent in philanthropy.

New Technologies in Constitution Making


Special Report of the US Institute of Peace by Jason Gluck and Brendon Ballou: “Summary…

  • Public participation has become an integral part of constitution making, particularly since the end of the Cold War. It has strengthened national unity, built trust between governments and citizens, promoted reconciliation, and helped produce national consensus.
  • Constitution drafters in the past were mostly limited to using official statements and press releases, workshops, meetings, radio and television programs, and printed materials to engage with citizens. These methods were often costly and time-consuming, and failed to reach significant segments of the public.
  • New technologies can increase participation in and the perceived legitimacy of constitutional processes.
  • Constitution drafters have recently begun using the web and mobile phones to educate citizens on the constitution-writing process and engage them on issues of concern. Increasingly constitution writers are also using the web to consult international experts on specific technical issues.
  • Given the rapid growth of the Internet and mobile phone penetration in the developing world, the increased use of new technologies in constitution writing is nearly inevitable.
  • People and organizations considering using these tools should bear four things in mind. New technologies will affect different groups differently. The people who use these tools should respect social and cultural norms. They should keep control of the process in the hands of national actors. Last, they should fit their work within the larger context of the conflict or postconflict environment in which they work.
  • Constitution making is a difficult field, however, and new technologies are tools, not panaceas”

Continued Progress and Plans for Open Government Data


Steve VanRoekel, and Todd Park at the White House:  “One year ago today, President Obama signed an executive order that made open and machine-readable data the new default for government information. This historic step is helping to make government-held data more accessible to the public and to entrepreneurs while appropriately safeguarding sensitive information and rigorously protecting privacy.
Freely available data from the U.S. government is an important national resource, serving as fuel for entrepreneurship, innovation, scientific discovery, and economic growth. Making information about government operations more readily available and useful is also core to the promise of a more efficient and transparent government. This initiative is a key component of the President’s Management Agenda and our efforts to ensure the government is acting as an engine to expand economic growth and opportunity for all Americans. The Administration is committed to driving further progress in this area, including by designating Open Data as one of our key Cross-Agency Priority Goals.
Over the past few years, the Administration has launched a number of Open Data Initiatives aimed at scaling up open data efforts across the Health, Energy, Climate, Education, Finance, Public Safety, and Global Development sectors. The White House has also launched Project Open Data, designed to share best practices, examples, and software code to assist federal agencies with opening data. These efforts have helped unlock troves of valuable data—that taxpayers have already paid for—and are making these resources more open and accessible to innovators and the public.
Other countries are also opening up their data. In June 2013, President Obama and other G7 leaders endorsed the Open Data Charter, in which the United States committed to publish a roadmap for our nation’s approach to releasing and improving government data for the public.
Building upon the Administration’s Open Data progress, and in fulfillment of the Open Data Charter, today we are excited to release the U.S. Open Data Action Plan. The plan includes a number of exciting enhancements and new data releases planned in 2014 and 2015, including:

  • Small Business Data: The Small Business Administration’s (SBA) database of small business suppliers will be enhanced so that software developers can create tools to help manufacturers more easily find qualified U.S. suppliers, ultimately reducing the transaction costs to source products and manufacture domestically.
  • Smithsonian American Art Museum Collection: The Smithsonian American Art Museum’s entire digitized collection will be opened to software developers to make educational apps and tools. Today, even museum curators do not have easily accessible information about their art collections. This information will soon be available to everyone.
  • FDA Adverse Drug Event Data: Each year, healthcare professionals and consumers submit millions of individual reports on drug safety to the Food and Drug Administration (FDA). These anonymous reports are a critical tool to support drug safety surveillance. Today, this data is only available through limited quarterly reports. But the Administration will soon be making these reports available in their entirety so that software developers can build tools to help pull potentially dangerous drugs off shelves faster than ever before.

We look forward to implementing the U.S. Open Data Action Plan, and to continuing to work with our partner countries in the G7 to take the open data movement global”.