Crowdsourcing a crisis response for COVID-19 in oncology


Aakash Desai et al in Nature Medicine: “Crowdsourcing efforts are currently underway to collect and analyze data from patients with cancer who are affected by the COVID-19 pandemic. These community-led initiatives will fill key knowledge gaps to tackle crucial clinical questions on the complexities of infection with the causative coronavirus SARS-Cov-2 in the large, heterogeneous group of vulnerable patients with cancer…(More)”

Digital solutions to revolutionise community empowerment


Article by Alan Marcus: “…The best responses to Covid-19 have harmonised top-down policies and grassroots organisation. In the UK, more than 700,000 volunteers for the National Health Service are being organised through GoodSAM—an app that, like many gig economy platforms, allows individuals to switch on availability for delivering supplies to vulnerable people.

Perhaps the best example is Taiwan, where officials have kept the rate of infection to a fraction of even highly-rated Singapore. Coordinating public and private groups, the country has deployed a range of online services, including a system for mapping and allocating rationed face masks developed by Digital Minister Audrey Tang and members of an online hacktivist chatroom. …

Effective responses to the crisis show the value of inclusive government and hint at more resilient models for managing our communities. So far, governments, businesses and individuals have pooled resources to deliver country-wide responses. However, this model should be pushed further. Digital tools should be provided to communities to organise themselves, develop locally tailored solutions and get involved in the governance of their town or neighbourhood.

This model requires open communication between local people and the organisations responsible for administrating neighbourhoods—be they governments or businesses. … 

The platform provides significant opportunities for optimising crisis response and elevating quality of life. For example, a popular solution for market vendors forced to close by Covid-19 has been offering delivery services. As well as the businesses, this benefits local people, who can bypass overcrowded superstores or overcapacity online grocery deliveries. While grassroots movements are largely left to organise themselves, this is a missed opportunity for collaboration with local administrators.

By communicating with vendors, the administrator can not only establish an online platform to coordinate their services, but also connect them with local people to help deliver the service, such as van owners who can loan their vehicles. Moreover, the administrator can collect feedback on local infrastructure needed to improve services, such as communal cold lockers for receiving groceries when no-one is home.

By integrating this model into the day-to-day governance of our communities, we can unite community action with top-down resources, empowering local people to co-own the evolution of their neighbourhoods and helping administrators prioritise projects that maximise quality of life.

As Solnit wrote: “A disaster is a lot like a revolution when it comes to disruption and improvisation.” Pushed to their limits, countries are pioneering ways of coordinating local and national action. From this wave of innovation, we can empower communities to become more resilient in crises, more inclusive in their governance and more engaged in the determination of their future….(More)”.

Congress in Crisis: How Legislatures are Continuing to Meet during the Pandemic


The GovLab: “In response to the COVID-19 pandemic, legislatures at the national, state and local level are adapting to keep the lawmaking process going while minimizing the need for face-to-face meetings. While some have simply lowered quorum thresholds or reduced the number of sessions while continuing to meet in person, others are trialing more ambitious remote participation systems where lawmakers convene, deliberate, and vote virtually. Still others have used shift as an opportunity to create mechanisms for greater civic engagement.

For a short overview of how legislatures in Brazil, Chile, France, and other countries are using technology to convene, deliberate and vote remotely, see the GovLab’s short video, Continuity of Congress.”

To recover faster from Covid-19, open up: Managerial implications from an open innovation perspective


Paper by Henry Chesbrough: “Covid-19 has severely tested our public health systems. Recovering from Covid-19 will soon test our economic systems. Innovation will have an important role to play in recovering from the aftermath of the coronavirus. This article discusses both how to manage innovation as part of that recovery, and also derives some lessons from how we have responded to the virus so far, and what those lessons imply for managing innovation during the recovery.

Covid-19’s assault has prompted a number of encouraging developments. One development has been the rapid mobilization of scientists, pharmaceutical companies and government officials to launch a variety of scientific initiatives to find an effective response to the virus. As of the time of this writing, there are tests underway of more than 50 different compounds as possible vaccines against the virus.1 Most of these will ultimately fail, but the severity of the crisis demands that we investigate every plausible candidate. We need rapid, parallel experimentation, and it must be the test data that select our vaccine, not internal political or bureaucratic processes.

A second development has been the release of copious amounts of information about the virus, its spread, and human responses to various public health measures. The Gates Foundation, working with the Chan-Zuckerberg Foundation and the White House Office of Science and Technology Policy have joined forces to publish all of the known medical literature on the coronavirus, in machine-readable form. This was done with the intent to accelerate the analysis of the existing research to identify possible new avenues of attack against Covid-19. The coronavirus itself was synthesized early on in the outbreak by scientists in China, providing the genetic sequence of the virus, and showing where it differed from earlier viruses such as SARS and MERS. This data was immediately shared widely with scientists and researchers around the world. At the same time, GITHUB and the Humanitarian Data Exchange each have an accumulating series of datasets on the geography of the spread of the disease (including positive test cases, hospitalizations, and deaths).

What these developments have in common is openness. In fighting a pandemic, speed is crucial, and the sooner we know more and are able to take action, the better for all of us. Opening up mobilizes knowledge from many different places, causing our learning to advance and our progress against the disease to accelerate. Openness unleashes a volunteer army of researchers, working in their own facilities, across different time zones, and different countries. Openness leverages the human capital available in the world to tackle the disease, and also accesses the physical capital (such as plant and equipment) already in place to launch rapid testing of possible solutions. This openness corresponds well to an academic body of work called open innovation (Chesbrough, 2003Chesbrough, 2019).

Innovation is often analyzed in terms of costs, and the question of whether to “make or buy” often rests on which approach costs less. But in a pandemic, time is so valuable and essential, that the question of costs is far less important than the ability to get to a solution sooner. The Covid-19 disease appears to be doubling every 3–5 days, so a delay of just a few weeks in the search for a new vaccine (they normally take 1–2 years to develop, or more) might witness multiple doublings of size of the population infected with the disease. It is for this reason that Bill Gates is providing funds to construct facilities in advance for producing the leading vaccine candidates. Though the facilities for the losing candidates will not be used, it will save precious time to make the winning vaccine in high volume, once it is found.

Open innovation can help speed things up….(More)”.

Who Do You Trust? The Consequences of Partisanship and Trust in Government for Public Responsiveness to COVID-19


Paper by Daniel Goldstein and Johannes Wiedemann: “To combat the novel coronavirus, there must be relatively uniform implementation of preventative measures, e.g., social distancing and stay-at-home orders, in order to minimize continued spread. We analyze cellphone mobility data to measure county-level compliance with these critical public health policies. Leveraging staggered roll-out, we estimate the causal effect of stay-at-home orders on mobility using a difference-in-differences strategy, which we find to have significantly curtailed movement.

However, examination of descriptive heterogeneous effects suggests the critical role that several sociopolitical attributes hold for producing asymmetrical compliance across society. We examine measures of partisanship, partisan identity being shared with government leaders, and trust in government (measured by the proxies of voter turnout and social capital). We find that Republican counties comply less, but comply relatively more when directives are given by co-partisan leaders, suggesting citizens are more trusting in the authority of co-partisans. Furthermore, our proxy measures suggest that trust in government increases overall compliance. However, when trust (as measured by social capital) is interacted with county-level partisanship, which we interpret as community-level trust, we find that trust amplifies compliance or noncompliance, depending upon the prevailing community sentiment.

We argue that these results align with a theory of public policy compliance in which individual behavior is informed by one’s level of trust in the experts who craft policy and one’s trust in those who implement it, i.e., politicians and bureaucrats. Moreover, this evaluation is amplified by local community sentiments. Our results are supportive of this theory and provide a measure of the real-world importance of trust in government to citizen welfare. Moreover, our results illustrate the role that political polarization plays in creating asymmetrical compliance with mitigation policies, an outcome that may prove severely detrimental to successful containment of the COVID-19 pandemic….(More)”.

National AI Strategies from a human rights perspective


Report by Global Partners Digital: “…looks at existing strategies adopted by governments and regional organisations since 2017. It assesses the extent to which human rights considerations have been incorporated and makes a series of recommendations to policymakers looking to develop or revise AI strategies in the future….

Our report found that while the majority of National AI Strategies mention human rights, very few contain a deep human rights-based analysis or concrete assessment of how various AI applications impact human rights. In all but a few cases, they also lacked depth or specificity on how human rights should be protected in the context of AI, which was in contrast to the level of specificity on other issues such as economic competitiveness or innovation advantage. 

The report provides recommendations to help governments develop human rights-based national AI strategies. These recommendations fall under six broad themes:

  • Include human rights explicitly and throughout the strategy: Thinking about the impact of AI on human rights-and how to mitigate the risks associated with those impacts- should be core to a national strategy. Each section should consider the risks and opportunities AI provides as related to human rights, with a specific focus on at-risk, vulnerable and marginalized communities.
  • Outline specific steps to be taken to ensure human rights are protected: As strategies engage with human rights, they should include specific goals, commitments or actions to ensure that human rights are protected.
  • Build in incentives or specific requirements to ensure rights-respecting practice: Governments should take steps within their strategies to incentivize human rights-respecting practices and actions across all sectors, as well as to ensure that their goals with regards to the protection of human rights are fulfilled.
  • Set out grievance and remediation processes for human rights violations: A National AI Strategy should look at the existing grievance and remedial processes available for victims of human rights violations relating to AI. The strategy should assess whether the process needs revision in light of the particular nature of AI as a technology or in the capacity-building of those involved so that they are able to receive complaints concerning AI.
  • Recognize the regional and international dimensions to AI policy: National strategies should clearly identify relevant regional and global fora and processes relating to AI, and the means by which the government will promote human rights-respecting approaches and outcomes at them through proactive engagement.
  • Include human rights experts and other stakeholders in the drafting of National AI Strategies: When drafting a national strategy, the government should ensure that experts on human rights and the impact of AI on human rights are a core part of the drafting process….(More)”.

Tear down this wall: Microsoft embraces open data


The Economist: “Two decades ago Microsoft was a byword for a technological walled garden. One of its bosses called free open-source programs a “cancer”. That was then. On April 21st the world’s most valuable tech firm joined a fledgling movement to liberate the world’s data. Among other things, the company plans to launch 20 data-sharing groups by 2022 and give away some of its digital information, including data it has aggregated on covid-19.

Microsoft is not alone in its newfound fondness for sharing in the age of the coronavirus. “The world has faced pandemics before, but this time we have a new superpower: the ability to gather and share data for good,” Mark Zuckerberg, the boss of Facebook, a social-media conglomerate, wrote in the Washington Post on April 20th. Despite the EU’s strict privacy rules, some Eurocrats now argue that data-sharing could speed up efforts to fight the coronavirus. 

But the argument for sharing data is much older than the virus. The OECD, a club mostly of rich countries, reckons that if data were more widely exchanged, many countries could enjoy gains worth between 1% and 2.5% of GDP. The estimate is based on heroic assumptions (such as putting a number on business opportunities created for startups). But economists agree that readier access to data is broadly beneficial, because data are “non-rivalrous”: unlike oil, say, they can be used and re-used without being depleted, for instance to power various artificial-intelligence algorithms at once. 

Many governments have recognised the potential. Cities from Berlin to San Francisco have “open data” initiatives. Companies have been cagier, says Stefaan Verhulst, who heads the Governance Lab at New York University, which studies such things. Firms worry about losing intellectual property, imperilling users’ privacy and hitting technical obstacles. Standard data formats (eg, JPEG images) can be shared easily, but much that a Facebook collects with its software would be meaningless to a Microsoft, even after reformatting. Less than half of the 113 “data collaboratives” identified by the lab involve corporations. Those that do, including initiatives by BBVA, a Spanish bank, and GlaxoSmithKline, a British drugmaker, have been small or limited in scope. 

Microsoft’s campaign is the most consequential by far. Besides encouraging more non-commercial sharing, the firm is developing software, licences and (with the Governance Lab and others) governance frameworks that permit firms to trade data or provide access to them without losing control. Optimists believe that the giant’s move could be to data what IBM’s embrace in the late 1990s of the Linux operating system was to open-source software. Linux went on to become a serious challenger to Microsoft’s own Windows and today underpins Google’s Android mobile software and much of cloud-computing…(More)”.

The global pandemic has spawned new forms of activism – and they’re flourishing


Erica Chenoweth, Austin Choi-Fitzpatrick, Jeremy Pressman, Felipe G Santos and Jay Ulfelder at The Guardian: “Before the Covid-19 pandemic, the world was experiencing unprecedented levels of mass mobilization. The decade from 2010 to 2019 saw more mass movements demanding radical change around the world than in any period since World War II. Since the pandemic struck, however, street mobilization – mass demonstrations, rallies, protests, and sit-ins – has largely ground to an abrupt halt in places as diverse as India, Lebanon, Chile, Hong Kong, Iraq, Algeria, and the United States.

The near cessation of street protests does not mean that people power has dissipated. We have been collecting data on the various methods that people have used to express solidarity or adapted to press for change in the midst of this crisis. In just several weeks’ time, we’ve identified nearly 100 distinct methods of nonviolent action that include physical, virtual and hybrid actions – and we’re still counting. Far from condemning social movements to obsolescence, the pandemic – and governments’ responses to it – are spawning new tools, new strategies, and new motivation to push for change.

In terms of new tools, all across the world, people have turned to methods like car caravanscacerolazos (collectively banging pots and pans inside the home), and walkouts from workplaces with health and safety challenges to voice personal concerns, make political claims, and express social solidarity. Activists have developed alternative institutions such as coordinated mask-sewing, community mutual aid pods, and crowdsourced emergency funds. Communities have placed teddy bears in their front windows for children to find during scavenger hunts, authors have posted live-streamed readings, and musicians have performed from their balconies and rooftops. Technologists are experimenting with drones adapted to deliver supplies, disinfect common areas, check individual temperatures, and monitor high-risk areas. And, of course, many movements are moving their activities online, with digital ralliesteachins, and information-sharing.

Such activities have had important impacts. Perhaps the most immediate and life-saving efforts have been those where movements have begun to coordinate and distribute critical resources to people in need. Local mutual aid pods, like those in Massachusetts, have emerged to highlight urgent needs and provide for crowdsourced and volunteer rapid response. Pop-up food banks, reclaiming vacant housing, crowdsourced hardship funds, free online medical-consultation clinics, mass donations of surgical masks, gloves, gowns, goggles and sanitizer, and making masks at home are all methods that people have developed in the past several weeks. Most people have made these items by hand. Others have even used 3D printers to make urgently-needed medical supplies. These actions of movements and communities have already saved countless lives….(More)”.

Mind the app – considerations on the ethical risks of COVID-19 apps


Blog by Luciano Floridi: “There is a lot of talk about apps to deal with the pandemic. Some of the best solutions use the Bluetooth connection of mobile phones to determine the contact between people and therefore the probability of contagion.

In theory, it’s simple. In practice, it is a minefield of ethical problems, not only technical ones. To understand them, it is useful to distinguish between the validation and the verification of a system. 
The validation of a system answers the question: “are we building the right system?”. The answer is no if the app

  • is illegal;
  • is unnecessary, for example, there are better solutions; 
  • is a disproportionate solution to the problem, for example, there are only a few cases in the country; 
  • goes beyond the purpose for which it was designed, for example, it is used to discriminate people; 
  • continues to be used even after the end of the emergency.

Assuming the app passes the validation stage, then it needs to be verified.
The verification of a system answers the question: “are we building the system in the right way?”. Here too the difficulties are considerable. I have become increasingly aware of them as I collaborate with two national projects about a coronavirus app, as an advisor on their ethical implications. 
For once, the difficult problem is not privacy. Of course, it is trivially true that there are and there might always be privacy issues. The point is that, in this case, they can be made much less pressing than other issues. However, once (or if you prefer, even if) privacy is taken care of, other difficulties appear to remain intractable. A Bluetooth-based app can use anonymous data, recorded only in the mobile phone, used exclusively to send alerts in case of the contact with people infected. It is not easy but it is feasible, as demonstrated by the approach adopted by the Pan-European Privacy Preserving Proximity Tracing initiative (PEPP-PT). The apparently intractable problems are the effectiveness and fairness of the app.

To be effective, an app must be adopted by many people. In Britain, I was told that it would be useless if used by less than 20% of the population. According to the PEPP-PT, real effectiveness seems to be reached around the threshold of 60% of the whole population. This means that in Italy, for example, the app should be consistently and correctly used by something between 11m to 33m people, out of a population of 55m. Consider that in 2019 Facebook Messenger was used by 23m Italians. Even the often-mentioned app TraceTogether has been downloaded by an insufficient number of people in Singapore.


Given that it is unlikely that the app will be adopted so extensively just voluntarily, out of social responsibility, and that governments are reluctant to impose it as mandatory (and rightly so, for it would be unfair, see below), it is clear that it will be necessary to encourage its use, but this only shifts the problem….

Therefore, one should avoid the risk of transforming the production of the app into a signalling process. To do so, the verification should not be severed from, but must feedback on, the validation. This means that if the verification fails so should the validation, and the whole project ought to be reconsidered. It follows that a clear deadline by when (and by whom) the whole project may be assessed (validation + verification) and in case be terminated, or improved, or even simply renewed as it is, is essential. At least this level of transparency and accountability should be in place.

An app will not save us. And the wrong app will be worse than useless, as it will cause ethical problems and potentially exacerbate health-related risks, e.g. by generating a false sense of security, or deepening the digital divide. A good app must be part of a wider strategy, and it needs to be designed to support a fair future. If this is not possible, better do something else, avoid its positive, negative and opportunity costs, and not play the political game of merely signalling that something (indeed anything) has been tried…(More)”.

Embracing digital government during the pandemic and beyond


UN DESA Policy Brief: “…Involving civil society organizations, businesses, social entrepreneurs and the general public in managing the COVID-19 pandemic and its aftermath can prove to be highly effective for policy- and decision-makers. Online engagement initiatives led by governments can help people cope with the crisis as well as improve government operations. In a crisis situation, it becomes more important than ever to reach out to vulnerable groups in society, respond to their needs and ensure social stability. Engaging with civil society allows governments to tackle socio-economic challenges in a more productive way that leaves no one behind….

Since the crisis has put public services under stress, governments are urged to deploy effective digital technologies to contain the outbreak. Most innovative quick-to-market solutions have stemmed from the private sector. However, the crisis has exposed the need for government leadership in the development and adoption of new technologies such as artificial intelligence (AI) and robotics to ensure an effective provision of public services…

The efforts in developing digital government strategies after the COVID-19 crisis should focus on improving data protection and digital inclusion policies as well as on strengthening the policy and technical capabilities of public institutions. Even though public-private partnerships are essential for implementing innovative technologies, government leadership, strong institutions and effective public policies are crucial to tailor digital solutions to countries’ needs as well as prioritize security, equity and the protection of people’s rights. The COVID-19 pandemic has emphasized the importance of technology, but also the pivotal role of an effective, inclusive and accountable government….(More)”.