DataCollaboratives.org – A New Resource on Creating Public Value by Exchanging Data

Curated on Posted on by Stefaan Verhulst

Recent years have seen exponential growth in the amount of data being generated and stored around the world. There is increasing recognition that this data can play a key role in solving some of the most difficult public problems we face.

However, much of the potentially useful data is currently privately held and not available for public insights. Data in the form of web clicks, social “likes,” geo location and online purchases are typically tightly controlled, usually by entities in the private sector. Companies today generate an ever-growing stream of information from our proliferating sensors and devices. Increasingly, they—and various other actors—are asking if there is a way to make this data available for the public good. There is an ongoing search for new models of corporate responsibility in the digital era around data toward the creation of “data collaboratives”.

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Today, the GovLab is excited to launch a new resource for Data Collaboratives (datacollaboratives.org). Data Collaboratives are an emerging form of public-private partnership in which participants from different sectors — including private companies, research institutions, and government agencies — exchange data to help solve public problems.

The resource results from different partnerships with UNICEF (focused on creating data collaboratives to improve children’s lives) and Omidyar Network (studying new ways to match (open) data demand and supply to increase impact).

Natalia Adler, a data, research and policy planning specialist and the UNICEF Data Collaboratives Project Lead notes, “At UNICEF, we’re dealing with the world’s most complex problems affecting children. Data Collaboratives offer an exciting opportunity to tap on previously inaccessible datasets and mobilize a wide range of data expertise to advance child rights around the world. It’s all about connecting the dots.”

To better understand the potential of these Collaboratives, the GovLab collected information on dozens of examples from across the world. These many and diverse initiatives clearly suggest the potential of Data Collaboratives to improve people’s lives when done responsibly. As Stefaan Verhulst, co-founder of the GovLab, puts it: “In the coming months and years, Data Collaboratives will be essential vehicles for harnessing the vast stores of privately held data toward the public good.”

In particular, our research to date suggests that Data Collaboratives offer a number of potential benefits, including enhanced:

  • Situational Awareness and Response: For example, Orbital Insights and the World Bank are using satellite imagery to measure and track poverty. This technology can, in some instances, “be more accurate than U.S. census data.”
  • Public Service Design and Delivery: Global mapping company, Esri, and Waze’s Connected Citizen’s program are using crowdsourced traffic information to help governments design better transportation.
  • Impact Assessment and Evaluation: Nielsen and the World Food Program (WFP) have been using data collected via mobile phone surveys to better monitor food insecurity in order to advise the WFP’s resource allocations….(More)

Urban Exposures: How Cell Phone Data Helps Us Better Understand Human Exposure To Air Pollution

Curated on Posted on by Stefaan Verhulst

Senseable City Lab: “Global urbanization has led to one of the world’s most pressing environmental health concerns: the increasing number of people contributing to and being affected by air pollution, leading to 7 million early deaths each year. The key issue is human exposure to pollution within cities and the consequential effects on human health.

With new research conducted at MIT’s Senseable City Lab, human exposure to air pollution can now be accurately quantified at an unprecedented scale. Researchers mapped the movements of several million people using ubiquitous cell phone data, and intersected this information with neighborhood air pollution measures. Covering the expanse of New York City and its 8.5 million inhabitants, the study reveals where and when New Yorkers are most at risk of exposure to air pollution – with major implications for environment and public health policy… (More)”

International Open Data Roadmap

Curated on Posted on by Stefaan Verhulst

IODC16: We have entered the next phase in the evolution of the open data movement. Just making data publicly available can no longer be the beginning and end of every conversation about open data. The focus of the movement is now shifting to building open data communities, and an increasingly sophisticated network of communities have begun to make data truly useful in addressing a myriad of problems facing citizens and their governments around the world:

  • More than 40 national and local governments have already committed to implement the principles of the International Open Data Charter;
  • Open data is central to many commitments made this year by world leaders, including the Sustainable Development Goals (SDGs), the Paris Climate Agreement, and the G20 Anti Corruption Data Principles; and
  • Open data is also an increasingly local issue, as hundreds of cities and sub-national governments implement open data policies to drive transparency, economic growth, and service delivery in close collaboration with citizens.

Screen Shot 2017-01-17 at 11.32.32 AMTo further accelerate collaboration and increase the impact of open data activities globally, the Government of Spain, the International Development Research Centre, the World Bank, and the Open Data for Development Network recently hosted the fourth International Open Data Conference (IODC) on October 6-7, 2106 in Madrid, Spain.

Under the theme of Global Goals, Local Impact, the fourth IODC reconvened an ever expanding open data community to showcase best practices, confront shared challenges, and deepen global and regional collaboration in an effort to maximize the impact of open data. Supported by a full online archive of the 80+ sessions and 20+ special events held in Madrid during the first week of October 2016, this report reflects on the discussions and debates that took place, as well as the information shared on a wide range of vibrant global initiatives, in order to map out the road ahead, strengthen cohesion among existing efforts, and explore new ways to use open data to drive social and economic inclusion around the world….(More)”

Open Traffic Data to Revolutionize Transport

Curated on Posted on by Stefaan Verhulst

World Bank: “Congestion in metropolitan Manila costs the economy more than $60 million per day, and it is not atypical to spend more than 2 hours to travel 8 km during the evening commute there. But beyond these statistics, until recently, very little was actually known about Manila’s congestion, because the equipment and manpower required to collect traffic data has far exceeded available resources. Most cities in developing countries face similar issues.

Traditional methods of collecting traffic data rely either on labor-intensive fieldwork or capital-intensive sensor data networks. The former is slow and results in low-quality data, and the latter requires substantial capital and maintenance outlays, while only covering a small portion of a metropolitan area. In the era of big data, shouldn’t we be able to do better?

Responding to this need, Easy Taxi, Grab, and Le.Taxi, three ridesharing  companies—which, combined, cover more than 30 countries and millions of customers—are working with the World Bank and partners to make traffic data derived from their drivers’ GPS streams available to public through an open data license. Through the new Open Transport Partnership, these companies, along with founding members Mapzen, the World Resources Institute, Miovision, and NDrive, will empower resource-constrained transport agencies to make better, evidence-based decisions that previously had been out of reach.

Issues that this data will help address include, among others, traffic signal timing plans, public transit provision, roadway infrastructure needs, emergency traffic management, and travel demand management. According to Alyssa Wright, president of the US Open Street Map Foundation, the partnership “seeks to improve the efficiency and efficacy of global transportation use and provision through open data and capacity building.” …(More)

See also http://opentraffic.io/

Fighting Ebola with information

Curated on Posted on by Stefaan Verhulst

Larissa Fast and Adele Waugaman at Global Innovation Exchange: What can be learned from the use of data, information, and digital technologies, such as mobile-based systems and internet connectivity, during the Ebola outbreak response in West Africa? What worked, what didn’t, and how can we apply these lessons to improve data and information flows in the future? This report details key findings and recommendations about the collection, management, analysis, and use of paper-based and digital data and information, drawing upon the insights of more than 130 individuals and organizations who worked tirelessly to end the Ebola outbreak in West Africa in 2014 and 2015….(More)”

Prisoners use VR programme as a rehabilitation tool

Curated on Posted on by Stefaan Verhulst

Springwise: “The global prison population currently totals 10.5 million, and while many countries including the UK and US have seen a steady decline in crime rates over the past decade, the rate of reoffending prisoners has increased. About two-thirds of released prisoners in the US are rearrested within three years of release, and about three-quarters of released prisoners were rearrested within five. Virtual Rehab is a new project that seeks to rehabilitate inmates using VR technology.

Virtual Rehab’s interactive tool includes education on a broad range of themes, from family violence and sexual offences to psychological challenges including mental & emotional disorders. The programme works by placing the prisoner into interactive role play scenarios which reverse the aggressor / victim roles, propelling the prisoner into the skin of an assaulted person with the aim of developing empathy. The programme also includes formal education and vocational job training, developing professional skills to help ex-offenders thrive in the real world. …

Virtual reality has already had an impact in various areas related to rehabilitation, including in the treatment of conditions such as PTSD and anxiety. At Springwise, we recently covered two programmes (a glove and an online platform) that use online gaming to support the recovery of patients….(More)”

Chasing Shadows: Visions of Our Coming Transparent World

Curated on Posted on by Stefaan Verhulst

A science fiction and tech-vision anthology “about the coming era of transparency in the information age” edited by David Brin & Stephen W. Potts: “Young people log their lives with hourly True Confessions. Cops wear lapel-cams and spy agencies peer at us — and face defections and whistle blowers. Bank records leak and “uncrackable” firewalls topple. As we debate internet privacy, revenge porn, the NSA, and Edward Snowden, cameras get smaller, faster, and more numerous.

Has Orwell’s Big Brother finally come to pass? Or have we become a global society of thousands of Little Brothers — watching, judging, and reporting on one another?

Partnering with the Arthur C. Clarke Center for Human Imagination, and inspired by Brin’s nonfiction book, The Transparent Society: Will Technology Make Us Choose Between Privacy and Freedom?, noted author and futurist David Brin and scholar Stephen W. Potts have compiled essays and short stories from writers such as Robert J. Sawyer, James Morrow, William Gibson, Damon Knight, Jack McDevitt, and many others to examine the benefits and pitfalls of technological transparency in all its permutations.

Among the many questions…

  • Do we answer surveillance with sousveillance, shining accountability upward?
  • Will we spiral into busybody judgmentalism? Or might people choose to leave each other alone?
  • Will empathy increase or decrease in a more transparent world?
  • What if we could own our information, and buy and sell it in a web bazaar?…(More)”

Notable Privacy and Security Books from 2016

Curated on Posted on by Stefaan Verhulst

Daniel J. Solove at Technology, Academics, Policy: “Here are some notable books on privacy and security from 2016….

Chris Jay Hoofnagle, Federal Trade Commission Privacy Law and Policy

From my blurb: “Chris Hoofnagle has written the definitive book about the FTC’s involvement in privacy and security. This is a deep, thorough, erudite, clear, and insightful work – one of the very best books on privacy and security.”

My interview with Hoofnagle about his book: The 5 Things Every Privacy Lawyer Needs to Know about the FTC: An Interview with Chris Hoofnagle

My further thoughts on the book in my interview post above: “This is a book that all privacy and cybersecurity lawyers should have on their shelves. The book is the most comprehensive scholarly discussion of the FTC’s activities in these areas, and it also delves deep in the FTC’s history and activities in other areas to provide much-needed context to understand how it functions and reasons in privacy and security cases. There is simply no better resource on the FTC and privacy. This is a great book and a must-read. It is filled with countless fascinating things that will surprise you about the FTC, which has quite a rich and storied history. And it is an accessible and lively read too – Chris really makes the issues come alive.”

Gary T. Marx, Windows into the Soul: Surveillance and Society in an Age of High Technology

From Peter Grabosky: “The first word that came to mind while reading this book was cornucopia. After decades of research on surveillance, Gary Marx has delivered an abundant harvest indeed. The book is much more than a straightforward treatise. It borders on the encyclopedic, and is literally overflowing with ideas, observations, and analyses. Windows into the Soul commands the attention of anyone interested in surveillance, past, present, and future. The book’s website contains a rich abundance of complementary material. An additional chapter consists of an intellectual autobiography discussing the author’s interest in, and personal experience with, surveillance over the course of his career. Because of its extraordinary breadth, the book should appeal to a wide readership…. it will be of interest to scholars of deviance and social control, cultural studies, criminal justice and criminology. But the book should be read well beyond the towers of academe. The security industry, broadly defined to include private security and intelligence companies as well as state law enforcement and intelligence agencies, would benefit from the book’s insights. So too should it be read by those in the information technology industries, including the manufacturers of the devices and applications which are central to contemporary surveillance, and which are shaping our future.”

Susan C. Lawrence, Privacy and the Past: Research, Law, Archives, Ethics

From the book blurb: “When the new HIPAA privacy rules regarding the release of health information took effect, medical historians suddenly faced a raft of new ethical and legal challenges—even in cases where their subjects had died years, or even a century, earlier. In Privacy and the Past, medical historian Susan C. Lawrence explores the impact of these new privacy rules, offering insight into what historians should do when they research, write about, and name real people in their work.”

Ronald J. Krotoszynski, Privacy Revisited: A Global Perspective on the Right to Be Left Alone

From Mark Tushnet: “Professor Krotoszynski provides a valuable overview of how several constitutional systems accommodate competing interests in privacy, speech, and democracy. He shows how scholarship in comparative law can help one think about one’s own legal system while remaining sensitive to the different cultural and institutional settings of each nation’s law. A very useful contribution.”

Laura K. Donohue, The Future of Foreign Intelligence: Privacy and Surveillance in a Digital Age…

Gordon Corera, Cyberspies: The Secret History of Surveillance, Hacking, and Digital Espionage…

J. Macgregor Wise, Surveillance and Film…(More; See also Nonfiction Privacy + Security Books).

Cancer Research Orgs Release Big Data for Precision Medicine

Curated on Posted on by Stefaan Verhulst

 at HealthITAnalytics: “The American Association for Cancer Research (AACR) is releasing more than 19,000 de-identified genomic records to further the international research community’s explorations into precision medicine.

The big data dump, which includes information on 59 major types of cancer, including breast, colorectal, and lung cancer, is a result of the AACR Project Genomics Evidence Neoplasia Information Exchange (GENIE) initiative, and includes both genomic and some clinical data on consenting patients….

“These data were generated as part of routine patient care and without AACR Project GENIE they would likely never have been shared with the global cancer research community.”

Eight cancer research institutions, including five based in the United States, have contributed to the first phase of the GENIE project.  Dana-Farber Cancer Institute in Boston, Memorial Sloan Kettering Cancer Center in New York City, and the University of Texas MD Anderson Cancer Center in Houston are among the collaborators.

Alongside institutions in Paris, the Netherlands, Toronto, Nashville, and Baltimore, these organizations aim to expand the research community’s knowledge of cancer and its potential treatments by continuing to make the exchange of high-grade clinical data a top priority.

“We are committed to sharing not only the real-world data within the AACR Project GENIE registry but also our best practices, from tips about assembling an international consortium to the best variant analysis pipeline, because only by working together will information flow freely and patients benefit rapidly,” Sawyers added…

Large-scale initiatives like the AACR Project GENIE, alongside separate data collection efforts like the VA’s Million Veterans Project, the CancerLinQ platform, Geisinger Health System’s MyCode databank, and the nascent PMI Cohort, will continue to make critical genomic and clinical data available to investigators across the country and around the world…(More)”.

Inside the Digital Revolution

Curated on Posted on by Stefaan Verhulst

Heather Brooks in the Journal of International Affairs: “Technology and transparency combined to create the digital revolution, which in turn has ushered in a new form o f monitory democracy. Communicative abundance and global interconnection mean the democratic franchise can expand and deepen, but the author argues that it matters who is made transparent and for what purpose. Content and context matter. Technology and transparency can be used to strengthen democracy by opening up government to citizens, but the same tools can also be used by the state to surveil and disempower citizens, thereby damaging democracy. The author uses three case studies to discuss the impact o f digitizing information on power relations between citizens and states. First, her observations as the journalist and litigant in the legal case that forced the digitization o f UK parliamentary expense records, which when leaked created one o f the biggest political scandals in that country for decades. Second, she obtained the entire set o f U. S. diplomatic cables and reported on their contents for the Guardian. Lastly, she served as a member o f the Independent Surveillance Review Panel, set up by the UK government to investigate allegations made by Edward Snowden that the UK and U.S. governments were conducting mass surveillance programs that were potentially illegal and lacked adequate oversight. The case studies show how journalism is integral not only to identifying useful civic information but also maximizing the public good from leaked information while minimizing harm….(More)”