Wikipedia is already the world’s ‘Dr Google’ – it’s time for doctors and researchers to make it better


 in The Conversation: “Health professionals have a duty to improve the accuracy of medical entries in Wikipedia, according to a letter published today in Lancet Global Health, because it’s the first port of call for people all over the world seeking medical information.

In our correspondence, a group of international colleagues and I call on medical journals to do more to help experts make Wikipedia more accurate, and for the medical community to make improving its content a top priority.

Use around the world

Ranked the fifth most-visited website in the world, Wikipedia is one of the most-read sources of medical information by the general public. It’s also frequently the first port of call for doctors, medical students, lawmakers, and educators.

Access is provided free of charge on mobile phones in many countries, under the Wikipedia Zero scheme. In developing nations, this has helped the site become the main source of information on medical topics. During the 2014 Ebola outbreak, for instance, page views of the Ebola virus disease peaked at more than 2.5 million per day.

Earlier this year, the site launched the free Medical Wikipedia Offline app in seven languages. The Android app has had nearly 100,000 downloads in its first few months of release. It’s particularly useful in low and middle-income countries, where internet access is typically slow and expensive.

All this makes Wikipedia’s accuracy vital because every medical entry on the collaborative online encyclopedia has the potential for immediate real-world health consequences.

A question of priorities

Given its model of allowing anyone to edit entries, Wikipedia is already surprisingly accurate, famously rivalling Encyclopedia Britannica. But even as the online encyclopedia matures, the accuracy of its medical content remains inconsistent.

The platform has historically struggled to attract expert contributions from researchers. Improving Wikipedia entries tends to be low on the list of priorities for doctors and other health professionals…

accurate information on medication affects what doctors prescribe, what patients request, and what students learn…

Several scholarly journals have been exploring academic peer review of Wikipedia entries and more look to soon join them. Examples of joint-publishing include the Wikipedia articles for Dengue fever and the cerebellum, which have been reviewed and published by the medical journals Open Medicine and the WikiJournal of Medicine respectively.

PLOS Computational Biology similarly joint-publishes review articles in its journal and in Wikipedia for maximum impact. And, the journal RNA Biology requires researchers describing a new RNA family to also write a Wikipedia entry for it.

Embedding the new approach

Progress has been slow, but several independent ventures show how the attitudes of major players in the biomedical ecosystem are beginning to shift further, and take Wikipedia more seriously.

Cochrane, which creates medical guidelines after reviewing research data, now finds Wikipedian partners for its Review Groups to help disseminate their information through Wikipedia.

Medical schools are also getting involved in improving Wikipedia entries. Medical students at University of California, San Francisco, can gain course credit for supervised editing of Wikipedia articles in need of attention….(More)”

Reframing Data Transparency


“Recently, the Centre for Information Policy Leadership (“CIPL”) at Hunton & Williams LLP, a privacy and information policy think tank based in Brussels, London and Washington, D.C., and Telefónica, one of the largest telecommunications company in the world, issued a joint white paper on Reframing Data Transparency (the “white paper”). The white paper was the outcome of a June 2016 roundtable held by the two organizations in London, in which senior business leaders, Data Privacy Officers, lawyers and academics discussed the importance of user-centric transparency to the data driven economy….The issues explored during the roundtable and in the white paper include the following:

  • The transparency deficit in the digital age. There is a growing gap between traditional, legal privacy notices and user-centric transparency that is capable of delivering understandable and actionable information concerning an organization’s data use policies and practices, including why it processes data, what the benefits are to individuals and society, how it protects the data and how users can manage and control the use of their data.
  • The impact of the transparency deficit. The transparency deficit undermines customer trust and customers’ ability to participate more effectively in the digital economy.
  • Challenges of delivering user-centric transparency. In a connected world where there may be no direct relationship between companies and their end users, both transparency and consent as a basis for processing are particularly challenging.
  • Transparency as a multistakeholder challenge. Transparency is not solely a legal issue, but a multistakeholder challenge, which requires engagement of regulators, companies, individuals, behavioral economists, social scientists, psychologists and user experience specialists.
  • The role of data protection authorities (“DPAs”). DPAs play a key role in promoting and incentivizing effective data transparency approaches and tools.
  • The role of companies. Data transparency is a critical business issue because transparency drives digital trust as well as business opportunities. Organizations must innovate on how to deliver user-centric transparency. Data driven companies must research and develop new approaches to transparency that explain the value exchange between customers and companies and the companies’ data practices, and create tools that enable their customers to exercise effective engagement and control.
  • The importance of empowering individuals. It is crucial to support and enhance individuals’ digital literacy, which includes an understanding of the uses of personal data and the benefits of data processing, as well as knowledge of relevant privacy rights and the data management tools that are available to them. Government bodies, regulators and industry should be involved in educating the public regarding digital literacy. Such education should take place in schools and universities, and through consumer education campaigns. Transparency is the foundation and sine qua non of individual empowerment.
  • The role of behavioral economists, social scientists, psychologists and user experience specialists. Experts from these disciplines will be crucial in developing user-centric transparency and controls….(More)”.

Empowering cities


“The real story on how citizens and businesses are driving smart cities” by the Economist Intelligence Unit: “Digital technologies are the lifeblood of today’s cities. They are applied widely in industry and society, from information and communications technology (ICT) to the Internet of Things (IoT), in which objects are connected to the Internet. As sensors turn any object into part of an intelligent urban network, and as computing power facilitates analysis of the data these sensors collect, elected officials and city administrators can gain an unparalleled understanding of the infrastructure and services of their city. However, to make the most of this intelligence, another ingredient is essential: citizen engagement. Thanks to digital technologies, citizens can provide a steady flow of feedback and ideas to city officials.

This study by The Economist Intelligence Unit (EIU), supported by Philips Lighting, investigates how citizens and businesses in 12 diverse cities around the world—Barcelona, Berlin, Buenos Aires, Chicago, London, Los Angeles, Mexico City, New York City, Rio de Janeiro, Shanghai, Singapore and Toronto—envision the benefits of smart cities. The choices of the respondents to the survey reflect the diverse nature of the challenges and opportunities facing different cities, from older cities in mature markets, where technology is at work with infrastructure that may be centuries old, to new cities in emerging markets, which have the opportunity to incorporate digital technologies as they grow.

Coupled with expert perspectives, these insights paint a fresh picture of how digital technologies can empower people to contribute-giving city officials a roadmap to smart city life in the 21st century….(More)”

Budgeting for Equity: How Can Participatory Budgeting Advance Equity in the United States?


Josh Lerner and Madeleine Pape in the Journal of Public Deliberation: “Participatory budgeting (PB) has expanded dramatically in the United States (US) from a pilot process in Chicago’s 49th ward in 2009 to over 50 processes in a dozen cities in 2015. Over this period, scholars, practitioners, and advocates have made two distinct but related claims about its impacts: that it can revitalize democracy and advance equity. In practice, however, achieving the latter has often proven challenging. Based on interviews with PB practitioners from across the US, we argue that an equitydriven model of PB is not simply about improving the quality of deliberation or reducing barriers to participation. While both of these factors are critically important, we identify three additional challenges: 1) Unclear Goals: how to clearly define and operationalize equity, 2) Participant Motivations: how to overcome the agendas of individual budget delegates, and 3) Limiting Structures: how to reconfigure the overarching budgetary and bureaucratic constraints that limit PB’s contribution to broader change. We suggest practical interventions for each of these challenges, including stronger political leadership, extending idea collection beyond the initial brainstorming phase, increasing opportunities for interaction between PB participants and their non-participating neighbors, expanding the scope of PB processes, and building stronger linkages between PB and other forms of political action….(More)”

One Crucial Thing Can Help End Violence Against Girls


Eleanor Goldberg at The Huffington Post: “…There are statistics that demonstrate how many girls are in school, for example. But there’s a glaring lack of information on how many of them have dropped out ― and why ― concluded a new study, “Counting the Invisible Girls,” published this month by Plan International.

Why Data On Women And Girls Is Crucial

Without accurate information about the struggles girls face, such as abuse, child marriage, and dropout rates, governments and nonprofit groups can’t develop programs that cater to the specific needs of underserved girls. As a result, struggling girls across the globe, have little chance of escaping the problems that prevent them from pursuing an education and becoming economically independent.

“If data used for policy-making is incomplete, we have a real challenge. Current data is not telling the full story,” Emily Courey Pryor, senior director of Data2X, said at the Social Good Summit in New York City last month. Data2X is a U.N.-led group that works with data collectors and policymakers to identify gender data issues and to help bring about solutions.

Plan International released its report to coincide with a number of major recent events….

How Data Helps Improve The Lives Of Women And Girls 

While data isn’t a panacea, it has proven in a number of instances to help marginalized groups.

Until last year, it was legal in Guatemala for a girl to marry at age 14 ― despite the numerous health risks associated with the practice. Young brides are more vulnerable to sexual abuse and more likely to face fatal complications related to pregnancy and childbirth than those who marry later.

To urge lawmakers to raise the minimum age of marriage, Plan International partnered with advocates and civil society groups to launch its “Because I am a Girl” initiative. It analyzed traditional Mayan laws and gathered evidence about the prevalence of child marriage and its impact on children’s lives. The group presented the information before Guatemala’s Congress and in August of last year, the minimum age for marriage was raised to 18.

A number of groups are heeding the call to continue to amass better data.

In May, the Bill and Melinda Gates Foundation pledged $80 million over the next three years to gather robust and reliable data.

In September, the U.N. women announced “Making Every Woman and Girl Count,”a public-private partnership that’s working to tackle the data issue. The program was unveiled at the U.N. General Assembly, and is working with the Gates Foundation, Data2X and a number of world leaders…(More)”

Open Innovation: Practices to Engage Citizens and Effectively Implement Federal Initiatives


United States Government Accountability Office: “Open innovation involves using various tools and approaches to harness the ideas, expertise, and resources of those outside an organization to address an issue or achieve specific goals. GAO found that federal agencies have frequently used five open innovation strategies to collaborate with citizens and external stakeholders, and encourage their participation in agency initiatives.

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GAO identified seven practices that agencies can use to effectively implement initiatives that involve the use of these strategies:

  • Select the strategy appropriate for the purpose of engaging the public and the agency’s capabilities.
  • Clearly define specific goals and performance measures for the initiative.
  • Identify and engage external stakeholders and potential partners.
  • Develop plans for implementing the initiative and recruiting participants.
  • Engage participants and partners while implementing the initiative.
  • Collect and assess relevant data and report results.
  • Sustain communities of interested partners and participants.

Aspects of these practices are illustrated by the 15 open innovation initiatives GAO reviewed at six selected agencies: the Departments of Energy, Health and Human Services, Housing and Urban Development, and Transportation (DOT); the Environmental Protection Agency; and the National Aeronautics and Space Administration (NASA).

For example:

• With the Asteroid Data Hunter challenge, NASA used a challenge and citizen science effort, beginning in 2014, to improve the accuracy of its asteroid detection program and develop an application for citizen scientists.

• Since 2009, DOT’s Federal Highway Administration has used an ideation initiative called Every Day Counts to identify innovations to improve highway project delivery. Teams of federal, state, local, and industry experts then implement the ideas chosen through this process….(More)”

NYC cyclists crowd-source map showing cars in bike lanes


Springwise: “Founded by a cyclist frustrated at the lack of local government action on enforcing bike safety, the Cars In Bike Lanes map geo-tags and time-stamps each contribution. New York City riders upload their photos, including a description of the cross streets where the incident occurred. License plate details are made visible, and users of the map can click to find out if a driver is a repeat offender.

The interactive map is open source, and the founder says he hopes other cities and developers customize the site for their areas. Development plans for the site will focus on increasing the numbers of cyclists using, and contributing to, it. And ideally, it will put pressure on local governments to actively enforce safety regulations designed to protect cyclists.

Cycle safety is a common urban problem, and cities around the world are designing different solutions. In The Netherlands,flashing LED lights warn cars of approaching cyclists at busy intersections. In Denmark, bikes fitted with radio frequency identification tags turn traffic lights in favor of the cyclist….(More)”

How Companies Can Help Cities Close the Data Gap


Shamina Singh in Governing: “Recent advances in data analytics have revolutionized the way many companies do business. Starbucks, for example, rolls out new beverages and chooses its store locations by analyzing customer, economic and other data. And as Amazon’s customers know so well, the company makes purchase recommendations to them in real time based on items they’ve viewed or bought. So why aren’t more of our cities leveraging data in the same way to improve services for their residents?

According to a recent report by Bloomberg Philanthropies’ What Works Cities initiative, city officials say they simply lack the capacity to do so. Nearly half pointed to a shortage of staff and financial resources dedicated to gathering and evaluating data.

This gap between companies’ and cities’ ability to use data is not surprising. Businesses have invested heavily in data and analytics in recent years, and they are spending an average of $7 million annually per company on data-related activities. These investments are made with the understanding that they will improve the companies’ bottom line, and they have started paying off.

City halls, on the other hand, find themselves hamstrung when it comes to investing in data and analytics. Despite recent growth, city revenues remain below pre-recession levels, with spending demands on the rise. Furthermore, many cities face the need to balance long-term opportunity with real short-term needs. Do you hire a data scientist — who may command a salary north of $200,000 — to research strategies to reduce crime in the long run, or do you hire more police officers to keep neighborhoods safe today?….

One way companies can help is through data philanthropy, leveraging their data analytics and capabilities to advance social progress. A step beyond conventional philanthropy and traditional corporate social-responsibility initiatives, data philanthropy is a new kind of response to social issues.

There are a number of ways cities could employ data philanthropy. For starters, they could partner with relevant apps to help ameliorate deteriorating roads. In Oklahoma City, for example, potholes are a particularly serious problem. Data from Waze, the community-based mapping and navigation app, could be leveraged to build a system through which residents could report potholes, allowing city services to efficiently fill them in.

Some data-philanthropy projects are already underway. Uber, for example, recently partnered with the city of Boston in the hopes that its data could help the city improve traffic congestion and community planning. Uber donates anonymized trip data by Zip code, allowing city officials to see the date and time of a trip, its duration and distance traveled. Boston’s transportation, neighborhood development and redevelopment agencies will have access to the data, equipping them with a new tool for more-effective policymaking.

While there is demonstrated enthusiasm from cities for more effective use of data to improve their residents’ lives, cities won’t be able to close the data gap on their own. Private-sector companies must answer the call. Helped in part by the better use of data, cities can create improved, more inclusive and stronger business environments. Who would argue with that goal?…(More)”

From Brexit to Colombia’s No vote: are constitutional democracies in crisis?


 in The Conversation Global: What do Colombia’s recent plebiscite and Brexit have in common? The surface similarities are clear: both referendums produced outcomes that few experts or citizens expected.

And many considered them a blow to core the social values of peace, integration, development and prosperity.

The unanticipated and widely debated results in Colombia and Great Britain – indeed, the very decision to use the mechanism of popular consultation to identify the citizenry’s will – obliges us to reflect on the future of democratic systems.

Both the British and Colombian plebiscites can be understood as the consequence, not the cause, of a crisis in representative democracy that affects not just these two countries but many others around the world.

The nature of democracy

Democracies recognise that only the people have the legitimacy to decide their destiny. But they also acknowledge that identifying the will of a collective isn’t simple: modern democracies are constitutional, which means that decisions made by the people – usually through their representatives – are limited by the content of the national constitution.

Decisions occasionally made by a constitutional assembly or by a supermajority in congress – say, to ban torture – prevent the government from authorising such action, no matter how dramatic the current social circumstance (a terrorist attack, for instance, or war), or how much a national majority favours the measure.

Constitutional rights and the rules of the democratic game cannot be modified by governments or even by a majority of the people. Democratic communities are bound by the deep constitutional commitments they’ve made to respect human rights and the rule of law.

These beliefs may, of course, be threatened by an occasional challenge. A terrorist attack that fills people with fear and resentment may make them forget, momentarily, that yesterday or two centuries ago – when they were mentally and emotionally far from this blinding, overwhelming event – they made the choice never to torture, anticipating that their desire to do so would be motivated by basic human instinct such as survival or vengeance.

That’s what a constitution is for: defining our shared basic values and goals as a nation, external factors be damned.

Decisions like the ones the Colombian and British people were asked to vote on do not represent mere political choices, such as whether to raise the sales tax or expand free trade.

They were much more akin to constitutional decisions that, depending on their outcomes, would usher in a new era in the lives of those nations. Community identity, rights, the rule of law and peace itself were some of the basic and fundamental values at stake.

The problem with plebiscites

There are many ways to make, validate, and build consensus around fundamental constitutional decisions: parliamentary super-majorities in Chile, constitutional assemblies in Argentina, or state legislature approvalin Mexico and the United States.

In some, such as the current Chilean process designed by Michelle Bachelet’s administration, the people themselves are called to deliberate constitutional choices in public forums.

And yet in the Colombian and the British cases, the government chose the riskiest of all known methods for identifying popular constitutional will. In this kind of process, complex questions are put forth in a way that makes it seem quite simple, because they must be answered in a single word: yes or no….

these difficult and deep concerns cannot be decided via a confusing question and a binary response.

Plebiscites are not necessarily democratic for those of us who believe that the justification of democracy as a superior political system superior is not because it counts heads, but because of the deliberative process that precedes decisions.

Thus, Chilean dictator Augusto Pinochet’s famous plebscita were not democratic exercises. A democratic exercise only exists when a diverse exchange of perspectives, opinions, and information can take place. The more diverse those inputs, the more legitimate the outcome of the vote.

The plebiscite constitutes the opposite of everything that we hope will happen in constitutional decision-making: the question is designed and imposed by those in power and the probability or suspicion that their formulation is biased is very high.

What’s more, public deliberation about the question may happen, but it’s not a certainty. Are people talking to their neighbours? Are they developing their position and hearing alternative approaches, which is the best way to make an educated decision?…

Constitutional decisions, which is to say the decisions political communities make rarely but carefully over the course of their history – what Bruce Ackerman calls “constitutional moments” – cannot be decided by plebiscite.

The popular will is too elusive for us to fool ourselves into thinking we can capture it with a single question….(More)”

Participatory Budgeting in the United States: A Guide for Local Governments


Book by Victoria Gordon, Jeffery L. Osgood, Jr., Daniel Boden: “Although citizen engagement is a core public service value, few public administrators receive training on how to share leadership with people outside the government.Participatory Budgeting in the United States serves as a primer for those looking to understand a classic example of participatory governance, engaging local citizens in examining budgetary constraints and priorities before making recommendations to local government. Utilizing case studies and an original set of interviews with community members, elected officials, and city employees, this book provides a rare window onto the participatory budgeting process through the words and experiences of the very individuals involved. The central themes that emerge from these fascinating and detailed cases focus on three core areas: creating the participatory budgeting infrastructure; increasing citizen participation in participatory budgeting; and assessing and increasing the impact of participatory budgeting. This book provides students, local government elected officials, practitioners, and citizens with a comprehensive understanding of participatory budgeting and straightforward guidelines to enhance the process of civic engagement and democratic values in local communities….(More)”