Facial recognition needs a wider policy debate

Curated on Posted on by Stefaan Verhulst

Editorial Team of the Financial Times: “In his dystopian novel 1984, George Orwell warned of a future under the ever vigilant gaze of Big Brother. Developments in surveillance technology, in particular facial recognition, mean the prospect is no longer the stuff of science fiction.

In China, the government was this year found to have used facial recognition to track the Uighurs, a largely Muslim minority. In Hong Kong, protesters took down smart lamp posts for fear of their actions being monitored by the authorities. In London, the consortium behind the King’s Cross development was forced to halt the use of two cameras with facial recognition capabilities after regulators intervened. All over the world, companies are pouring money into the technology.

At the same time, governments and law enforcement agencies of all hues are proving willing buyers of a technology that is still evolving — and doing so despite concerns over the erosion of people’s privacy and human rights in the digital age. Flaws in the technology have, in certain cases, led to inaccuracies, in particular when identifying women and minorities.

The news this week that Chinese companies are shaping new standards at the UN is the latest sign that it is time for a wider policy debate. Documents seen by this newspaper revealed Chinese companies have proposed new international standards at the International Telecommunication Union, or ITU, a Geneva-based organisation of industry and official representatives, for things such as facial recognition. Setting standards for what is a revolutionary technology — one recently described as the “plutonium of artificial intelligence” — before a wider debate about its merits and what limits should be imposed on its use, can only lead to unintended consequences. Crucially, standards ratified in the ITU are commonly adopted as policy by developing nations in Africa and elsewhere — regions where China has long wanted to expand its influence. A case in point is Zimbabwe, where the government has partnered with Chinese facial recognition company CloudWalk Technology. The investment, part of Beijing’s Belt and Road investment in the country, will see CloudWalk technology monitor major transport hubs. It will give the Chinese company access to valuable data on African faces, helping to improve the accuracy of its algorithms….

Progress is needed on regulation. Proposals by the European Commission for laws to give EU citizens explicit rights over the use of their facial recognition data as part of a wider overhaul of regulation governing artificial intelligence are welcome. The move would bolster citizens’ protection above existing restrictions laid out under its general data protection regulation. Above all, policymakers should be mindful that if the technology’s unrestrained rollout continues, it could hold implications for other, potentially more insidious, innovations. Western governments should step up to the mark — or risk having control of the technology’s future direction taken from them….(More)”.

Defining concepts of the digital society

Curated on Posted on by Stefaan Verhulst

A special section of Internet Policy Review edited by Christian Katzenbach and Thomas Christian Bächle: “With this new special section Defining concepts of the digital society in Internet Policy Review, we seek to foster a platform that provides and validates exactly these overarching frameworks and theories. Based on the latest research, yet broad in scope, the contributions offer effective tools to analyse the digital society. Their authors offer concise articles that portray and critically discuss individual concepts with an interdisciplinary mindset. Each article contextualises their origin and academic traditions, analyses their contemporary usage in different research approaches and discusses their social, political, cultural, ethical or economic relevance and impact as well as their analytical value. With this, the authors are building bridges between the disciplines, between research and practice as well as between innovative explanations and their conceptual heritage….(More)”

Algorithmic governance
Christian Katzenbach, Alexander von Humboldt Institute for Internet and Society
Lena Ulbricht, Berlin Social Science Center

Datafication
Ulises A. Mejias, State University of New York at Oswego
Nick Couldry, London School of Economics & Political Science

Filter bubble
Axel Bruns, Queensland University of Technology

Platformisation
Thomas Poell, University of Amsterdam
David Nieborg, University of Toronto
José van Dijck, Utrecht University

Privacy
Tobias Matzner, University of Paderborn
Carsten Ochs, University of Kassel

Belgian experiment that Aristotle would have approved of

Curated on Posted on by Stefaan Verhulst

The Economist: “In a sleepy corner of Belgium, a democratic experiment is under way. On September 16th, 24 randomly chosen Germanophones from the country’s eastern fringe took their seats in a Citizens’ Council. They will have the power to tell elected officials which issues matter, and for each such issue to task a Citizens’ Assembly (also chosen at random) with brainstorming ideas on how to solve them. It’s an engaged citizen’s dream come true.

Belgium’s German-speakers are an often-overlooked minority next to their Francophone and Flemish countrymen. They are few in number—just 76,000 people out of a population of 11m—yet have a distinct identity, shaped by their proximity to Germany, the Netherlands and Luxembourg. Thanks to Belgium’s federal system the community is thought to be the smallest region of the EU with its own legislative powers: a parliament of 25 representatives and a government of four decides on policies related to issues including education, sport, training and child benefits.

This new system takes democracy one step further. Based on selection by lottery—which Aristotle regarded as real democracy, in contrast to election, which he described as “oligarchy”—it was trialled in 2017 and won enthusiastic reviews from participants, officials and locals.

Under the “Ostbelgien Model”, the Citizens’ Council and the assemblies it convenes will run in parallel to the existing parliament and will set its legislative agenda. Parliamentarians must consider every proposal that wins support from 80% of the council, and must publicly defend any decision to take a different path.

Some see the project as a tool that could counter political discontent by involving ordinary folk in decision-making. But for Alexander Miesen, a Belgian senator who initiated the project, the motivation is cosier. “People would like to share their ideas, and they also have a lot of experience in their lives which you can import into parliament. It’s a win-win,” he says.

Selecting decision-makers by lottery is unusual these days, but not unknown: Ireland randomly selected the members of the Citizens’ Assembly that succeeded in breaking the deadlock on abortion laws. Referendums are a common way of settling important matters in several countries. But in Eupen, the largest town in the German-speaking region, citizens themselves will come up with the topics and policies which parliamentarians then review, rather than expressing consent to ideas proposed by politicians. Traditional decision-makers still have the final say, but “citizens can be sure that their ideas are part of the process,” says Mr Miesen….(More)”.

Finland’s model in utilising forest data

Curated on Posted on by Stefaan Verhulst

Report by Matti Valonen et al: “The aim of this study is to depict the Finnish Forest Centre’s Metsään.fiwebsite’s background, objectives and implementation and to assess its needs for development and future prospects. The Metsään.fi-service included in the Metsään.fi-website is a free e-service for forest owners and corporate actors (companies, associations and service providers) in the forest sector, which aim is to support active decision-making among forest owners by offering forest resource data and maps on forest properties, by making contacts with the authorities easier through online services and to act as a platform for offering forest services, among other things.

In addition to the Metsään.fi-service, the website includes open forest data services that offer the users national forest resource data that is not linked with personal information.

Private forests are in a key position as raw material sources for traditional and new forest-based bioeconomy. In addition to wood material, the forests produce non-timber forest products (for example berries and mushrooms), opportunities for recreation and other ecosystem services.

Private forests cover roughly 60 percent of forest land, but about 80 percent of the domestic wood used by forest industry. In 2017 the value of the forest industry production was 21 billion euros, which is a fifth of the entire industry production value in Finland. The forest industry export in 2017 was worth about 12 billion euros, which covers a fifth of the entire export of goods. Therefore, the forest sector is important for Finland’s national economy…(More)”.

Handbook of Research on Politics in the Computer Age

Curated on Posted on by Stefaan Verhulst

Book edited by Ashu M. G. Solo: “Technology and particularly the Internet have caused many changes in the realm of politics. Aspects of engineering, computer science, mathematics, or natural science can be applied to politics. Politicians and candidates use their own websites and social network profiles to get their message out. Revolutions in many countries in the Middle East and North Africa have started in large part due to social networking websites such as Facebook and Twitter. Social networking has also played a role in protests and riots in numerous countries. The mainstream media no longer has a monopoly on political commentary as anybody can set up a blog or post a video online. Now, political activists can network together online.

The Handbook of Research on Politics in the Computer Age is a pivotal reference source that serves to increase the understanding of methods for politics in the computer age, the effectiveness of these methods, and tools for analyzing these methods. The book includes research chapters on different aspects of politics with information technology, engineering, computer science, or math, from 27 researchers at 20 universities and research organizations in Belgium, Brazil, Cape Verde, Egypt, Finland, France, Hungary, Italy, Mexico, Nigeria, Norway, Portugal, and the United States of America. Highlighting topics such as online campaigning and fake news, the prospective audience includes, but is not limited to, researchers, political and public policy analysts, political scientists, engineers, computer scientists, political campaign managers and staff, politicians and their staff, political operatives, professors, students, and individuals working in the fields of politics, e-politics, e-government, new media and communication studies, and Internet marketing….(More)”.

The Public-Data Opportunity: Why Governments Should Share More

Curated on Posted on by Stefaan Verhulst

Press Release: “The Lisbon Council launches The Public-Data Opportunity: Why Governments Should Share More, a new discussion paper that looks at the state of play for public-sector data sharing – and calls for better protocols and procedures to deliver data-driven service to all Europeans. The paper analyses the importance of data-sharing between European Union public agencies, identifies the barriers and proposes seven policy recommendations that will help lift them. It builds on the research conducted by the “Understanding Value Co-Creation in Public Services for Transforming European Public Administrations” project, or Co-VAL, a 12-partner research consortium, co-funded by the European Union. And was launched at The 2019 Digital Government Conference convened by the Presidency of the European Council of Finland in Helsinki….(More)”

We Need a Fourth Branch of Government

Curated on Posted on by Stefaan Verhulst

George A. Papandreou at The New York Times: “In ancient times, politics was born of the belief that we can be masters of our own fate, and democracy became a continuing, innovative project to guarantee people a say in public decisions.

Today, however, we live in a paradox. Humanity has created vast wealth and technological know-how that could contribute to solutions for the global common good, yet immense numbers of people are disempowered, marginalized and suffering from a deep sense of insecurity. Working together, we have the ability to reshape the world as we know it. Unfortunately, that power rests in the hands of only a few.

The marginalization we see today is rooted in the globalization promoted by policy models such as the Washington Consensus, which distanced politics and governance from economic power. Companies in the financial, pharmaceutical, agricultural, oil and tech industries are no longer governed by the laws of a single state — they live in a separate global stratosphere, one regulated to suit their interests.

The consequences of all this are huge disparities in wealth and power. There is, for example, an overconcentration of money in media and politics, due to lobbying and outright corruption. And in many countries, democratic institutions have been captured and the will of the people has been compromised….

We could embrace reactive politics, elect authoritarian leaders, build walls, and promote isolationism and racism. This path offers a simple yet illusory way to “take back control,” but in fact accomplishes the opposite: It gives up control to power-hungry demagogues who divide us, weaken civil society and feed us dead-end solutions.

But rather than embrace those false promises, let us instead reinvent and deepen democratic institutions, in order to empower people, tame global capitalism, eliminate inequality and assert control over our international techno-society.

From my experience, an important step toward these goals would be to create a fourth branch of government.

This new deliberative branch, in which all citizens — the “demos” — could participate, would sit alongside the executive, legislative and judicial branches. All laws and decisions would first go through an e-deliberation process before being debated in our city halls, parliaments or congresses.

Inspired by the agora of ideas and debate in ancient Athens, I set up as prime minister a rudimentary “wiki-law” process for deliberating issues online before laws are voted on. Trusting collective wisdom brought insightful and invaluable responses.

In contrast to how social media works today, a similar platform could develop transparent algorithms that use artificial intelligence to promote wholesome debate and informed dialogue while fairly aggregating citizens’ positions to promote consensus building. All who participate in this public e-agora would appear under their true identities — real voices, not bots. Eponymous, not anonymous.

To facilitate debate, forums of professionals could give informed opinions on issues of the day. Public television, newspapers, radio and podcasts could enlighten the conversation. Schools would be encouraged to participate. So-called deliberative polling (again inspired by ancient Athens and developed for modern society by James Fishkin at Stanford University) could improve decision-making by leveraging sustained dialogue among polling participants and experts to produce more informed public opinion. The concept was used by the Citizens’ Assembly in Ireland from 2016 to 2018, a riveting exercise in deliberative democracy that produced breakthroughs on seemingly intractable issues such as abortion.

Today, we are on the verge of momentous global changes, in robotics, A.I., the climate and more. The world’s citizens must debate the ethical implications of our increasingly godlike technological powers….(More)”

Why policy networks don’t work (the way we think they do)

Curated on Posted on by Stefaan Verhulst

Blog by James Georgalakis: “Is it who you know or what you know? The literature on evidence uptake and the role of communities of experts mobilised at times of crisis convinced me that a useful approach would be to map the social network that emerged around the UK-led mission to Sierra Leone so it could be quantitatively analysed. Despite the well-deserved plaudits for my colleagues at IDS and their partners in the London School of Hygiene and Tropical Medicine, the UK Department for International Development (DFID), the Wellcome Trust and elsewhere, I was curious to know why they had still met real resistance to some of their policy advice. This included the provision of home care kits for victims of the virus who could not access government or NGO run Ebola Treatment Units (ETUs).

It seemed unlikely these challenges were related to poor communications. The timely provision of accessible research knowledge by the Ebola Response Anthropology Platform has been one of the most celebrated aspects of the mobilisation of anthropological expertise. This approach is now being replicated in the current Ebola response in the Democratic Republic of Congo (DRC).  Perhaps the answer was in the network itself. This was certainly indicated by some of the accounts of the crisis by those directly involved.

Social network analysis

I started by identifying the most important looking policy interactions that took place between March 2014, prior to the UK assuming leadership of the Sierra Leone international response and mid-2016, when West Africa was finally declared Ebola free. They had to be central to the efforts to coordinate the UK response and harness the use of evidence. I then looked for documents related to these events, a mixture of committee minutes, reports and correspondence , that could confirm who was an active participant in each. This analysis of secondary sources related to eight separate policy processes and produced a list of 129 individuals. However, I later removed a large UK conference that took place in early 2016 at which learning from the crisis was shared.  It appeared that most delegates had no significant involvement in giving policy advice during the crisis. This reduced the network to 77….(More)”.

Index: Secondary Uses of Personal Data

Curated on Posted on by Michelle Winowatan

By Alexandra Shaw, Andrew Zahuranec, Andrew Young, Stefaan Verhulst

The Living Library Index–inspired by the Harper’s Index–provides important statistics and highlights global trends in governance innovation. This installment focuses on public perceptions regarding secondary uses of personal data (or the re-use of data initially collected for a different purpose). It provides a summary of societal perspectives toward personal data usage, sharing, and control. It is not meant to be comprehensive–rather, it intends to illustrate conflicting, and often confusing, attitudes toward the re-use of personal data. 

Please share any additional, illustrative statistics on data, or other issues at the nexus of technology and governance, with us at [email protected]

Data ownership and control 

  • Percentage of Americans who say it is “very important” they control information collected about them: 74% – 2016
  • Americans who think that today’s privacy laws are not good enough at protecting people’s privacy online: 68% – 2016
  • Americans who say they have “a lot” of control over how companies collect and use their information: 9% – 2015
  • In a survey of 507 online shoppers, the number of respondents who indicated they don’t want brands tracking their location: 62% – 2015
  • In a survey of 507 online shoppers, the amount who “prefer offers that are targeted to where they are and what they are doing:” 60% – 2015 
  • Number of surveyed American consumers willing to provide data to corporations under the following conditions: 
    • “Data about my social concerns to better connect me with non-profit organizations that advance those causes:” 19% – 2018
    • “Data about my DNA to help me uncover any hereditary illnesses:” 21% – 2018
    • “Data about my interests and hobbies to receive relevant information and offers from online sellers:” 32% – 2018
    • “Data about my location to help me find the fastest route to my destination:” 40% – 2018
    • “My email address to receive exclusive offers from my favorite brands:”  56% – 2018  

Consumer Attitudes 

  • Academic study participants willing to donate personal data to research if it could lead to public good: 60% – 2014
  • Academic study participants willing to share personal data for research purposes in the interest of public good: 25% – 2014
  • Percentage who expect companies to “treat [them] like an individual, not as a member of some segment like ‘millennials’ or ‘suburban mothers:’” 74% – 2018 
    • Percentage who believe that brands should understand a “consumer’s individual situation (e.g. marital status, age, location, etc.)” when they’re being marketed to: 70% – 2018 Number who are “more annoyed” by companies now compared to 5 years ago: 40% – 2018Percentage worried their data is shared across companies without their permission: 88% – 2018Amount worried about a brand’s ability to track their behavior while on the brand’s website, app, or neither: 75% – 2018 
  • Consumers globally who expect brands to anticipate needs before they arise: 33%  – 2018 
  • Surveyed residents of the United Kingdom who identify as:
    • “Data pragmatists” willing to share personal data “under the right circumstances:” 58% – 2017
    • “Fundamentalists,” who would not share personal data for better services: 24% – 2017
    • Respondents who think data sharing is part of participating in the modern economy: 62% – 2018
    • Respondents who believe that data sharing benefits enterprises more than consumers: 75% – 2018
    • People who want more control over their data that enterprises collect: 84% – 2018
    • Percentage “unconcerned” about personal data protection: 18% – 2018
  • Percentage of Americans who think that government should do more to regulate large technology companies: 55% – 2018
  • Registered American voters who trust broadband companies with personal data “a great deal” or “a fair amount”: 43% – 2017
  • Americans who report experiencing a major data breach: 64% – 2017
  • Number of Americans who believe that their personal data is less secure than it was 5 years ago: 49% – 2019
  • Amount of surveyed American citizens who consider trust in a company an important factor for sharing data: 54% – 2018

Convenience

Microsoft’s 2015 Consumer Data Value Exchange Report attempts to understand consumer attitudes on the exchange of personal data across the global markets of Australia, Brazil, Canada, Colombia, Egypt, Germany, Kenya, Mexico, Nigeria, Spain, South Africa, United Kingdom and the United States. From their survey of 16,500 users, they find:

  • The most popular incentives for sharing data are: 
    • Cash rewards: 64% – 2015
    • Significant discounts: 49% – 2015
    • Streamlined processes: 29% – 2015
    • New ideas: 28% – 2015
  • Respondents who would prefer to see more ads to get new services: 34% – 2015
  • Respondents willing to share search terms for a service that enabled fewer steps to get things done: 70% – 2015 
  • Respondents willing to share activity data for such an improvement: 82% – 2015
  • Respondents willing to share their gender for “a service that inspires something new based on others like them:” 79% – 2015

A 2015 Pew Research Center survey presented Americans with several data-sharing scenarios related to convenience. Participants could respond: “acceptable,” “it depends,” or “not acceptable” to the following scenarios: 

  • Share health information to get access to personal health records and arrange appointments more easily:
    • Acceptable: 52% – 2015
    • It depends: 20% – 2015
    • Not acceptable: 26% – 2015
  • Share data for discounted auto insurance rates: 
    • Acceptable: 37% – 2015
    • It depends: 16% – 2015
    • Not acceptable: 45% – 2015
  • Share data for free social media services: 
    • Acceptable: 33% – 2015
    • It depends: 15% – 2015
    • Not acceptable: 51% – 2015
  • Share data on smart thermostats for cheaper energy bills: 
    • Acceptable: 33% – 2015
    • It depends: 15% – 2015
    • Not acceptable: 51% – 2015

Other Studies

  • Surveyed banking and insurance customers who would exchange personal data for:
    • Targeted auto insurance premiums: 64% – 2019
    • Better life insurance premiums for healthy lifestyle choices: 52% – 2019 
  • Surveyed banking and insurance customers willing to share data specifically related to income, location and lifestyle habits to: 
    • Secure faster loan approvals: 81.3% – 2019
    • Lower the chances of injury or loss: 79.7% – 2019 
    • Receive discounts on non-insurance products or services: 74.6% – 2019
    • Receive text alerts related to banking account activity: 59.8% – 2019 
    • Get saving advice based on spending patterns: 56.6% – 2019
  • In a survey of over 7,000 members of the public around the globe, respondents indicated:
    • They thought “smartphone and tablet apps used for navigation, chat, and news that can access your contacts, photos, and browsing history” is “creepy;” 16% – 2016
    • Emailing a friend about a trip to Paris and receiving advertisements for hotels, restaurants and excursions in Paris is “creepy:” 32% – 2016
    • A free fitness-tracking device that monitors your well-being and sends a monthly report to you and your employer is “creepy:” 45% – 2016
    • A telematics device that allows emergency services to track your vehicle is “creepy:” 78% – 2016
  • The number of British residents who do not want to work with virtual agents of any kind: 48% – 2017
  • Americans who disagree that “if companies give me a discount, it is a fair exchange for them to collect information about me without my knowing”: 91% – 2015

Data Brokers, Intermediaries, and Third Parties 

  • Americans who consider it acceptable for a grocery store to offer a free loyalty card in exchange for selling their shopping data to third parties: 47% – 2016
  • Number of people who know that “searches, site visits and purchases” are reviewed without consent:  55% – 2015
  • The number of people in 1991 who wanted companies to ask them for permission first before collecting their personal information and selling that data to intermediaries: 93% – 1991
    • Number of Americans who “would be very concerned if the company at which their data were stored sold it to another party:” 90% – 2008
    • Percentage of Americans who think it’s unacceptable for their grocery store to share their shopping data with third parties in exchange for a free loyalty card: 32% – 2016
  • Percentage of Americans who think that government needs to do more to regulate advertisers: 64% – 2016
    • Number of Americans who “want to have control over what marketers can learn about” them online: 84% – 2015
    • Percentage of Americans who think they have no power over marketers to figure out what they’re learning about them: 58% – 2015
  • Registered American voters who are “somewhat uncomfortable” or “very uncomfortable” with companies like Internet service providers or websites using personal data to recommend stories, articles, or videos:  56% – 2017
  • Registered American voters who are “somewhat uncomfortable” or “very uncomfortable” with companies like Internet service providers or websites selling their personal information to third parties for advertising purposes: 64% – 2017

Personal Health Data

The Robert Wood Johnson Foundation’s 2014 Health Data Exploration Project Report analyzes attitudes about personal health data (PHD). PHD is self-tracking data related to health that is traceable through wearable devices and sensors. The three major stakeholder groups involved in using PHD for public good are users, companies that track the users’ data, and researchers. 

  • Overall Respondents:
    • Percentage who believe anonymity is “very” or “extremely” important: 67% – 2014
    • Percentage who “probably would” or “definitely would” share their personal data with researchers: 78% – 2014
    • Percentage who believe that they own—or should own—all the data about them, even when it is indirectly collected: 54% – 2014
    • Percentage who think they share or ought to share ownership with the company: 30% – 2014
    • Percentage who think companies alone own or should own all the data about them: 4% – 2014
    • Percentage for whom data ownership “is not something I care about”: 13% – 2014
    • Percentage who indicated they wanted to own their data: 75% – 2014 
    • Percentage who would share data only if “privacy were assured:” 68% – 2014
    • People who would supply data regardless of privacy or compensation: 27% – 2014
      • Percentage of participants who mentioned privacy, anonymity, or confidentiality when asked under what conditions they would share their data:  63% – 2014
      • Percentage who would be “more” or “much more” likely to share data for compensation: 56% – 2014
      • Percentage who indicated compensation would make no difference: 38% – 2014
      • Amount opposed to commercial  or profit-making use of their data: 13% – 2014
    • Percentage of people who would only share personal health data with a guarantee of:
      • Privacy: 57% – 2014
      • Anonymization: 90% – 2014
  • Surveyed Researchers: 
    • Percentage who agree or strongly agree that self-tracking data would help provide more insights in their research: 89% – 2014
    • Percentage who say PHD could answer questions that other data sources could not: 95% – 2014
    • Percentage who have used public datasets: 57% – 2014
    • Percentage who have paid for data for research: 19% – 2014
    • Percentage who have used self-tracking data before for research purposes: 46% – 2014
    • Percentage who have worked with application, device, or social media companies: 23% – 2014
    • Percentage who “somewhat disagree” or “strongly disagree” there are barriers that cannot be overcome to using self-tracking data in their research: 82% – 2014 

SOURCES: 

“2019 Accenture Global Financial Services Consumer Study: Discover the Patterns in Personality”, Accenture, 2019. 

“Americans’ Views About Data Collection and Security”, Pew Research Center, 2015. 

“Data Donation: Sharing Personal Data for Public Good?”, ResearchGate, 2014.

“Data privacy: What the consumer really thinks,” Acxiom, 2018.

“Exclusive: Public wants Big Tech regulated”, Axios, 2018.

“Consumer data value exchange,” Microsoft, 2015.

“Crossing the Line: Staying on the right side of consumer privacy,” KPMG International Cooperative, 2016.

“How do you feel about the government sharing our personal data? – livechat”, The Guardian, 2017. 

“Personal data for public good: using health information in medical research”, The Academy of Medical Sciences, 2006. 

“Personal Data for the Public Good: New Opportunities to Enrich Understanding of Individual and Population Health”, Robert Wood Johnson Foundation, Health Data Exploration Project, Calit2, UC Irvine and UC San Diego, 2014. 

“Pew Internet and American Life Project: Cloud Computing Raises Privacy Concerns”, Pew Research Center, 2008. 

“Poll: Little Trust That Tech Giants Will Keep Personal Data Private”, Morning Consult & Politico, 2017. 

“Privacy and Information Sharing”, Pew Research Center, 2016. 

“Privacy, Data and the Consumer: What US Thinks About Sharing Data”, MarTech Advisor, 2018. 

“Public Opinion on Privacy”, Electronic Privacy Information Center, 2019. 

“Selligent Marketing Cloud Study Finds Consumer Expectations and Marketer Challenges are Rising in Tandem”, Selligent Marketing Cloud, 2018. 

“The Data-Sharing Disconnect: The Impact of Context, Consumer Trust, and Relevance in Retail Marketing,” Boxever, 2015. 

“Microsoft Research reveals understanding gap in the brand-consumer data exchange,” Microsoft Research, 2015.

“Survey: 58% will share personal data under the right circumstances”, Marketing Land: Third Door Media, 2019. 

“The state of privacy in post-Snowden America”, Pew Research Center, 2016. 

The Tradeoff Fallacy: How Marketers Are Misrepresenting American Consumers And Opening Them Up to Exploitation”, University of Pennsylvania, 2015.

Citizens’ voices for better health and social policies

Curated on Posted on by Stefaan Verhulst

Olivia Biermann et al at PLOS Blog Speaking of Medicine: “Citizen engagement is important to make health and social policies more inclusive and equitable, and to contribute to learning and responsive health and social systems. It is also valuable in understanding the complexities of the social structure and how to adequately respond to them with policies. By engaging citizens, we ensure that their tacit knowledge feeds into the policy-making process. What citizens know can be valuable in identifying feasible policy options, understanding contextual factors, and putting policies into practice. In addition, the benefit of citizen engagement extends much beyond improving health policy-making processes by making them more participatory and inclusive; being engaged in policy-making processes can build patients’ capacity and empower them to speak up for their own and their families’ health and social needs, and to hold policy-makers accountable. Moreover, apart from being involved in their own care, citizen-patients can contribute to quality improvement, research and education.

Most studies on citizen engagement to date originate from high-income countries. The engagement methods used are not necessarily applicable in low- and middle-income countries, and even the political support, the culture of engagement and established citizen engagement processes might be different. Still, published processes of engaging citizens can be helpful in identifying key components across different settings, e.g. in terms of levels of engagement, communication channels and methods of recruitment. Contextualizing the modes of engagement between and within countries is a must.

Examples of citizen engagement

There are many examples of ad hoc citizen engagement initiatives at local, national and international levels. Participedia, a repository of public participation initiatives around the globe, showcases that the field of citizen engagement is extremely vibrant.  In the United Kingdom, the Citizens’ Council of the National Institute for Health and Clinical Excellence (NICE) provides NICE with a public perspective on overarching moral and ethical issues that NICE has to take into account when producing guidance. In the United States of America, the National Issues Forum supports the implementation of deliberative forums on pressing national policy issues. Yet, there are few examples that have long-standing programs of engagement and that engage citizens in evidence-informed policymaking.

A pioneer in engaging citizens in health policy-making processes is the McMaster Health Forum in Hamilton, Canada. The citizens who are invited to engage in a “citizen panel” first receive a pre-circulated, plain-language briefing document to spark deliberation about a pressing health and social-system issue. During the panels, citizens then discuss the problem and its causes, options to address it and implementation considerations. The values that they believe should underpin action to address the issue are captured in a panel summary which is used to inform a policy dialogue on the same topic, also organized by the McMaster Health Forum….(More)”.