Susan Young Rojahn in MIT Technology Review: “PatientsLikeMe, the largest online network for patients, has established its first broad partnership with a drug company. Genentech, the South San Francisco biotechnology company bought by Roche in 2009, now has access to PatientsLikeMe’s full database for five years.
PatientsLikeMe is an online network of some 250,000 people with chronic diseases who share information about symptoms, treatments, and coping mechanisms. The largest communities within the network are built around fibromyalgia, multiple sclerosis, and amyotrophic lateral sclerosis (ALS), but as many as 2,000 conditions are represented in the system. The hope is that the information shared by people with chronic disease will help the life sciences industry identify unmet needs in patients and generate medical evidence, says co-founder Ben Heywood.
The agreement with Genentech is not the first collaboration between a life sciences company and PatientsLikeMe, named one of 50 Disruptive Companies in 2012 by MIT Technology Review, but it is the broadest. Previous collaborations were more limited in scope, says Heywood, focusing on a particular research question or a specific disease area. The deal with Genentech is an all-encompassing subscription to information posted by the entire PatientsLikeMe population, without the need for new contracts and new business deals if a research program shifts direction from its original focus. “This allows for a much more rapid real-time use of the data,” says Heywood.
In 2010, PatientsLikeMe demonstrated some of its potential to advance medicine. With data from its community of ALS patients, who suffer from a progressive and fatal neurological disease, the company could see that a drug under study was not effective (see “Patients’ Social Network Predicts Drug Outcomes”). Those findings were corroborated by an academic study published that year. Another area of medicine the network can shed light on is the quality of care patients receive, including whether or not doctors are following guidelines established by medical societies for how patients are treated. “As we try to shift to patient-centered health care, we have to understand what [patients] value,” says Heywood.
In exchange for an undisclosed payment to PatientsLikeMe, Genentech has a five-year subscription to the data in the online network. The data will be de-identified– that is, Genentech will not see patient names or email addresses. Heywood says his company is hoping to establish broad agreements with other life sciences companies soon.”
'Hackathons' Aim to Solve Health Care's Ills
Amy Dockser Marcus in the Wall Street Journal: “Hackathons, the high-octane, all-night problem-solving sessions popularized by the software-coding community, are making their way into the more traditional world of health care. At Massachusetts Institute of Technology, a recent event called Hacking Medicine’s Grand Hackfest attracted more than 450 people to work for one weekend on possible solutions to problems involving diabetes, rare diseases, global health and information technology used at hospitals.
Health institutions such as New York-Presbyterian Hospital and Brigham and Women’s Hospital in Boston have held hackathons. MIT, meantime, has co-sponsored health hackathons in India, Spain and Uganda.
Hackathons of all kinds are increasingly popular. Intel Corp. recently bought a group that organizes them. Companies hoping to spark creative thinking sponsor them. And student-run hackathons have turned into intercollegiate competitions.
But in health care, where change typically comes much more slowly than in Silicon Valley, they represent a cultural shift. To solve a problem, scientists and doctors can spend years painstakingly running experiments, gathering data, applying for grants and publishing results. So the idea of an event where people give two-minute pitches describing a problem, then join a team of strangers to come up with a solution in the course of one weekend is radical.
“We are not trying to replace the medical culture with Facebook culture,” said Elliot Cohen, who wore a hoodie over a button-down dress shirt at the MIT event in March and helped start MIT Hacking Medicine while at business school. “But we want to try to blend them more.”
Mr. Cohen co-founded and is chief technology officer at PillPack, a pharmacy that sends customers personalized packages of their medications, a company that started at a hackathon.
At MIT’s health-hack, physicians, researchers, students and a smattering of people wearing Google Glass sprawled on the floor of MIT’s Media Lab and at tables with a view of the Boston skyline. At one table, a group of college students, laptops plastered with stickers, pulled juice boxes and snacks out of backpacks, trash piling up next to them as they feverishly wrote code.
Nupur Garg, an emergency-room physician and one of the eventual winners, finished her hospital shift at 2 a.m. Saturday in New York, drove to Boston and arrived at MIT in time to pitch the need for a way to capture images of patients’ ears and throats that can be shared with specialists to help make diagnoses. She and her team immediately started working on a prototype for the device, testing early versions on anyone who stopped by their table.
Dr. Garg and teammate Nancy Liang, who runs a company that makes Web apps for 3-D printers, caught a few hours of sleep in a dorm room Saturday night. They came up with the idea for their product’s name—MedSnap—later that night while watching students use cellphone cameras to send SnapChats to one another. “There was no time to conduct surveys on what was the best name,” said Ms. Liang. “Many ideas happen after midnight.”
Winning teams in each category won $1,000, as well as access to the hackathons sponsors for advice and pilot projects.
Yet even supporters say hackathons can’t solve medicine’s challenges overnight. Harlan Krumholz, a professor at Yale School of Medicine who ran a many-months trial that found telemonitoring didn’t reduce hospitalizations or deaths of cardiology patients, said he supports the problem-solving ethos of hackathons. But he added that “improvements require a long-term commitment, not just a weekend.”
Ned McCague, a data scientist at Blue Cross Blue Shield of Massachusetts, served as a mentor at the hackathon. He said he wasn’t representing his employer, but he used his professional experiences to push groups to think about the potential customer. “They have a good idea and are excited about it, but they haven’t thought about who is paying for it,” he said.
Zen Chu, a senior lecturer in health-care innovation and entrepreneur-in-residence at MIT, and one of the founders of Hacking Medicine, said more than a dozen startups conceived since the first hackathon, in 2011, are still in operation. Some received venture-capital funding.
The upsides of hackathons were made clear to Sharon Moalem, a physician who studies rare diseases. He had spent years developing a mobile app that can take pictures of faces to help diagnose rare genetic conditions, but was stumped on how to give the images a standard size scale to make comparisons. At the hackathon, Dr. Moalem said he was approached by an MIT student who suggested sticking a coin on the subjects’ forehead. Since quarters have a standard measurement, it “creates a scale,” said Dr. Moalem.
Dr. Moalem said he had never considered such a simple, elegant solution. The team went on to write code to help standardize facial measurements based on the dimensions of a coin and a credit card.
“Sometimes when you are too close to something, you stop seeing solutions, you only see problems,” Dr. Moalem said. “I needed to step outside my own silo.”
Book Review: 'The Rule of Nobody' by Philip K. Howard
Stuart Taylor Jr in the Wall Street Journal: “Amid the liberal-conservative ideological clash that paralyzes our government, it’s always refreshing to encounter the views of Philip K. Howard, whose ideology is common sense spiked with a sense of urgency. In “The Rule of Nobody,” Mr. Howard shows how federal, state and local laws and regulations have programmed officials of both parties to follow rules so detailed, rigid and, often, obsolete as to leave little room for human judgment. He argues passionately that we will never solve our social problems until we abandon what he calls a misguided legal philosophy of seeking to put government on regulatory autopilot. He also predicts that our legal-governmental structure is “headed toward a stall and then a frightening plummet toward insolvency and political chaos.”
Mr. Howard, a big-firm lawyer who heads the nonpartisan government-reform coalition Common Good, is no conventional deregulator. But he warns that the “cumulative complexity” of the dense rulebooks that prescribe “every nuance of how law is implemented” leaves good officials without the freedom to do what makes sense on the ground. Stripped of the authority that they should have, he adds, officials have little accountability for bad results. More broadly, he argues that the very structure of our democracy is so clogged by deep thickets of dysfunctional law that it will only get worse unless conservatives and liberals alike cast off their distrust of human discretion.
The rulebooks should be “radically simplified,” Mr. Howard says, on matters ranging from enforcing school discipline to protecting nursing-home residents, from operating safe soup kitchens to building the nation’s infrastructure: Projects now often require multi-year, 5,000-page environmental impact statements before anything can begin to be constructed. Unduly detailed rules should be replaced by general principles, he says, that take their meaning from society’s norms and values and embrace the need for official discretion and responsibility.
Mr. Howard serves up a rich menu of anecdotes, including both the small-scale activities of a neighborhood and the vast administrative structures that govern national life. After a tree fell into a stream and caused flooding during a winter storm, Franklin Township, N.J., was barred from pulling the tree out until it had spent 12 days and $12,000 for the permits and engineering work that a state environmental rule required for altering any natural condition in a “C-1 stream.” The “Volcker Rule,” designed to prevent banks from using federally insured deposits to speculate in securities, was shaped by five federal agencies and countless banking lobbyists into 963 “almost unintelligible” pages. In New York City, “disciplining a student potentially requires 66 separate steps, including several levels of potential appeals”; meanwhile, civil-service rules make it virtually impossible to terminate thousands of incompetent employees. Children’s lemonade stands in several states have been closed down for lack of a vendor’s license.
Conservatives as well as liberals like detailed rules—complete with tedious forms, endless studies and wasteful legal hearings—because they don’t trust each other with discretion. Corporations like them because they provide not only certainty but also “a barrier to entry for potential competitors,” by raising the cost of doing business to prohibitive levels for small businesses with fresh ideas and other new entrants to markets. Public employees like them because detailed rules “absolve them of responsibility.” And, adds Mr. Howard, “lawsuits [have] exploded in this rules-based regime,” shifting legal power to “self-interested plaintiffs’ lawyers,” who have learned that they “could sue for the moon and extract settlements even in cases (as with some asbestos claims) that were fraudulent.”
So habituated have we become to such stuff, Mr. Howard says, that government’s “self-inflicted ineptitude is accepted as a state of nature, as if spending an average of eight years on environmental reviews—which should be a national scandal—were an unavoidable mountain range.” Common-sensical laws would place outer boundaries on acceptable conduct based on reasonable norms that are “far better at preventing abuse of power than today’s regulatory minefield.”
“As Mr. Howard notes, his book is part of a centuries-old rules-versus-principles debate. The philosophers and writers whom he quotes approvingly include Aristotle, James Madison, Isaiah Berlin and Roscoe Pound, a prominent Harvard law professor and dean who condemned “mechanical jurisprudence” and championed broad official discretion. Berlin, for his part, warned against “monstrous bureaucratic machines, built in accordance with the rules that ignore the teeming variety of the living world, the untidy and asymmetrical inner lives of men, and crush them into conformity.” Mr. Howard juxtaposes today’s roughly 100 million words of federal law and regulations with Madison’s warning that laws should not be “so voluminous that they cannot be read, or so incoherent that they cannot be understood.”…
Let’s get geeks into government
Gillian Tett in the Financial Times: “Fifteen years ago, Brett Goldstein seemed to be just another tech entrepreneur. He was working as IT director of OpenTable, then a start-up website for restaurant bookings. The company was thriving – and subsequently did a very successful initial public offering. Life looked very sweet for Goldstein. But when the World Trade Center was attacked in 2001, Goldstein had a moment of epiphany. “I spent seven years working in a startup but, directly after 9/11, I knew I didn’t want my whole story to be about how I helped people make restaurant reservations. I wanted to work in public service, to give something back,” he recalls – not just by throwing cash into a charity tin, but by doing public service. So he swerved: in 2006, he attended the Chicago police academy and then worked for a year as a cop in one of the city’s toughest neighbourhoods. Later he pulled the disparate parts of his life together and used his number-crunching skills to build the first predictive data system for the Chicago police (and one of the first in any western police force), to indicate where crime was likely to break out.
This was such a success that Goldstein was asked by Rahm Emanuel, the city’s mayor, to create predictive data systems for the wider Chicago government. The fruits of this effort – which include a website known as “WindyGrid” – went live a couple of years ago, to considerable acclaim inside the techie scene.
This tale might seem unremarkable. We are all used to hearing politicians, business leaders and management consultants declare that the computing revolution is transforming our lives. And as my colleague Tim Harford pointed out in these pages last week, the idea of using big data is now wildly fashionable in the business and academic worlds….
In America when top bankers become rich, they often want to “give back” by having a second career in public service: just think of all those Wall Street financiers who have popped up at the US Treasury in recent years. But hoodie-wearing geeks do not usually do the same. Sure, there are some former techie business leaders who are indirectly helping government. Steve Case, a co-founder of AOL, has supported White House projects to boost entrepreneurship and combat joblessness. Tech entrepreneurs also make huge donations to philanthropy. Facebook’s Mark Zuckerberg, for example, has given funds to Newark education. And the whizz-kids have also occasionally been summoned by the White House in times of crisis. When there was a disastrous launch of the government’s healthcare website late last year, the Obama administration enlisted the help of some of the techies who had been involved with the president’s election campaign.
But what you do not see is many tech entrepreneurs doing what Goldstein did: deciding to spend a few years in public service, as a government employee. There aren’t many Zuckerberg types striding along the corridors of federal or local government.
. . .
It is not difficult to work out why. To most young entrepreneurs, the idea of working in a state bureaucracy sounds like utter hell. But if there was ever a time when it might make sense for more techies to give back by doing stints of public service, that moment is now. The civilian public sector badly needs savvier tech skills (just look at the disaster of that healthcare website for evidence of this). And as the sector’s founders become wealthier and more powerful, they need to show that they remain connected to society as a whole. It would be smart political sense.
So I applaud what Goldstein has done. I also welcome that he is now trying to persuade his peers to do the same, and that places such as the University of Chicago (where he teaches) and New York University are trying to get more young techies to think about working for government in between doing those dazzling IPOs. “It is important to see more tech entrepreneurs in public service. I am always encouraging people I know to do a ‘stint in government”. I tell them that giving back cannot just be about giving money; we need people from the tech world to actually work in government, “ Goldstein says.
But what is really needed is for more technology CEOs and leaders to get involved by actively talking about the value of public service – or even encouraging their employees to interrupt their private-sector careers with the occasional spell as a government employee (even if it is not in a sector quite as challenging as the police). Who knows? Maybe it could be Sheryl Sandberg’s next big campaigning mission. After all, if she does ever jump back to Washington, that could have a powerful demonstration effect for techie women and men. And shake DC a little too.”
Effective metrics for measurement and target setting in online citizen engagement
In building the latest version of the EngagementHQ software we not only thought about new tools and ways to engage the community, we also watched the ways our clients had been using the reports and set ourselves to thinking about how we could build a set of metrics for target setting and the measurement of results that will remain relevant as we add more and more functionality to EngagementHQ.
Things have changed a lot since we designed our old reports. You can now get information from your community using forums, guestbooks, a story tool, interactive mapping, surveys, quick polls, submission forms, a news feed with discussions or the QandA tool. You can provide information to the community not just through library, dates, photos and FAQs but also using videos, link boxes and embedded content from all over the web.
Our old reports could tell you that 600 people had viewed the documents and it could tell you that 70 people had read the FAQs but you could not tell if they were the same people so you didn’t really know how many people had accessed information through your site. Generally we used those who had viewed documents in the library as a proxy but as time goes on our more engaging clients are communicating less and less through documents and more through other channels.
Similarly, whilst registrations were a good proxy for engagement (why else would you sign up?), it was failing to keep pace with the technology. You can now configure all our tools to require sign up or to be exempt from it these days so the proxy doesn’t hold. Moreover, many of our clients bulk load groups into the database and therefore inflate the registrations number.
What we came up with was a simple solution. We would calculate Aware, Informed and Engaged cohorts in the reports.
Aware – a measure of the number of people who have visited your project;
Informed – a measure of the visitors who have clicked to access further information resources, to learn more;
Engaged – a measure of the number of people who have given you feedback using any of the means available on the site.”
Facebook’s Connectivity Lab will develop advanced technology to provide internet across the world
Signe Brewster and Lauren Hockenson at GigaOm: “The Internet.org initiative will rely on a new team at Facebook called the Connectivity Lab, based at the company’s Menlo Park campus, to develop technology on the ground, in the air and in space, CEO Mark Zuckerberg announced Thursday. The team will develop technology like drones and satellites to expand access to the internet across the world.
“The team’s approach is based on the principle that different sized communities need different solutions and they are already working on new delivery platforms—including planes and satellites—to provide connectivity for communities with different population densities,” a post on Internet.org says.
Internet.org, which is backed by companies like Facebook, Samsung and Qualcomm, wants to provide internet to the two thirds of the world that remains disconnected due to cost, lack of infrastructure or remoteness. While many companies are developing business models and partnerships in areas that lack internet, the Connectivity Lab will focus on sustainable technology that will transmit the signals. Facebook envisions using drones that could fly for months to connect suburban areas, while more rural areas would rely on satellites. Both would use infrared lasers to blanket whole areas with connectivity.
Members of the Connectivity Lab have backgrounds at NASA’s Jet Propulsion Laboratory, NASA’s Ames Research Center and the National Optical Astronomy Observatory. Facebook also confirmed today that it acquired five employees from Ascenta, a U.K.-based company that worked on the Zephyr–a solar-powered drone capable of flying for two weeks straight.
The lab’s work will build on work the company has already done in the Philippines and Paraguay, Zuckerberg said in a Facebook post. And, like the company’s Open Compute project, there is a possibility that the lab will seek partnerships with outside countries once the bulk of the technology has been developed.”
Public interest labs to test open governance solutions
Kathleen Hickey in GCN: “The Governance Lab at New York University (GovLab) and the MacArthur Foundation Research Network have formed a new network, Open Governance, to study how to enhance collaboration and decision-making in the public interest.
The MacArthur Foundation provided a three-year grant of $5 million for the project; Google’s philanthropic arm, Google.org, also contributed. Google.org’s technology will be used to develop platforms to solve problems more openly and to run agile, real-world experiments with governments and NGOs to discover ways to enhance decision-making in the public interest, according to the GovLab announcement.
Network members include 12 experts in computer science, political science, policy informatics, social psychology and philosophy, law, and communications. This group is supported by an advisory network of academics, technologists, and current and former government officials. The network will assess existing government programs and experiment with ways to improve decision-making at the local, national and international government levels.
The Network’s efforts focus on three areas that members say have the potential to make governance more effective and legitimate: getting expertise in, pushing data out and distributing responsibility.
Through smarter governance, they say, institutions can seek input from lay and expert citizens via expert networking, crowdsourcing or challenges. With open data governance, institutions can publish machine-readable data so that citizens can easily analyze and use this information to detect and solve problems. And by shared governance, institutions can help citizens develop solutions through participatory budgeting, peer production or digital commons.
“Recognizing that we cannot solve today’s challenges with yesterday’s tools, this interdisciplinary group will bring fresh thinking to questions about how our governing institutions operate and how they can develop better ways to help address seemingly intractable social problems for the common good,” said MacArthur Foundation President Robert Gallucci.
GovLab’s mission is to study and launch “experimental, technology-enabled solutions that advance a collaborative, networked approach to re-invent existing institutions and processes of governance to improve people’s lives.” Earlier this year GovLab released a preview of its Open Data 500 study of 500 companies using open government data as a key business resource.”
Coke Creates Volunteering App For Local Do-Gooders
PSFK: “If you’ve ever wanted to volunteer some time but didn’t know where to look, Coke Romania has the app for you. After teaming up with digital marketing company McCann Bucharest, Coke just created a new app that shows good Samaritans local volunteer opportunities. ‘Radar For Good‘ scans your location and brings up NGO’s, soup kitchens, orphanages, or libraries that want help right now.
Any opportunity that “Radar For Good’ discovers is a site that is definitely looking for volunteers at that moment. The app shows company names, websites, and contact information, as well as directions from where you are. It even allows you to save your favorite organizations for future reference, and has options to receive notifications from those companies.
Coca-Cola has numerous iOS apps, most of which deal with their soda products, but ‘Radar For Good’ is the first of its kind. While the app currently only works in Romania, Coke’s innovative creation has opened doors for similar mobile apps to get started in the United States.”
“Government Entrepreneur” is Not an Oxymoron
But imagine if the road that led to the Seattle City Council ridesharing hearings this month — with rulings that sharply curtail UberX, Lyft, and Sidecar’s operations there — had been a vastly different one. Imagine that public leaders had conceived and built a platform to provide this new, shared model of transit. Or at the very least, that instead of having a revolution of the current transit regime done to Seattle public leaders, it was done with them. Amidst the acrimony, it seems hard to imagine that public leaders could envision and operate such a platform, or that private innovators could work with them more collaboratively on it — but it’s not impossible. What would it take? Answer: more public entrepreneurs.
The idea of ”public entrepreneurship” may sound to you like it belongs on a list of oxymorons right alongside “government intelligence.” But it doesn’t. Public entrepreneurs around the world are improving our lives, inventing entirely new ways to serve the public. They are using sensors to detect potholes; word pedometers to help students learn; harnessing behavioral economics to encourage organ donation; crowdsourcing patent review; and transforming Medellin, Colombia with cable cars. They are coding in civic hackathons and competing in the Bloomberg challenge. They are partnering with an Office of New Urban Mechanics in Boston or in Philadelphia, co-developing products in San Francisco’s Entrepreneurship-in-Residence program, or deploying some of the more than $430 million invested into civic-tech in the last two years.
There is, however, a big problem with public entrepreneurs: there just aren’t enough of them. Without more public entrepreneurship, it’s hard to imagine meeting our public challenges or making the most of private innovation. One might argue that bungled healthcare website roll-outs or internet spying are evidence of too much activity on the part of public leaders, but I would argue that what they really show is too little entrepreneurial skill and judgment.
The solution to creating more public entrepreneurs is straightforward: train them. But, by and large, we don’t. Consider Howard Stevenson’s definition of entrepreneurship: “the pursuit of opportunity without regard to resources currently controlled.” We could teach that approach to people heading towards the public sector. But now consider the following list of terms: “acknowledgement of multiple constituencies,” “risk reduction,” “formal planning,” “coordination,” “efficiency measures,” “clearly defined responsibility,” and “organizational culture.” It reads like a list of the kinds of concepts we would want a new public official to know; like it might be drawn from an interview evaluation form or graduate school syllabus. In fact, it’s from Stevenson’s list of pressures that pull managers away from entrepreneurship and towards administration. Of course, that’s not all bad. We must have more great public administrators. But with all our challenges and amidst all the dynamism, we are going to need more than analysts and strategists in the public sector, we need inventors and builders, too.
Public entrepreneurship is not simply innovation in the public sector (though it makes use of innovation), and it’s not just policy reform (though it can help drive reform). Public entrepreneurs build something from nothing with resources — be they financial capital or human talent or new rules — they didn’t command. In Boston, I worked with many amazing public managers and a handful of outstanding public entrepreneurs. Chris Osgood and Nigel Jacob brought the country’s first major-city mobile 311 app to life, and they are public entrepreneurs. They created Citizens Connect in 2009 by bringing together iPhones on loan together with a local coder and the most under-tapped resource in the public sector: the public. They transformed the way basic neighborhood issues are reported and responded to (20% of all constituent cases in Boston are reported over smartphones now), and their model is now accessible to 40 towns in Massachusetts and cities across the country. The Mayor’s team in Boston that started-up the One Fund in the days after the Marathon bombings were public entrepreneurs. We built the organization from PayPal and a Post Office Box, and it went on to channel $61 million from donors to victims and survivors in just 75 days. It still operates today….
It’s worth noting that public entrepreneurship, perhaps newly buzzworthy, is not actually new. Elinor Ostrom (44 years before her Nobel Prize) observed public entrepreneurs inventing new models in the 1960s. Back when Ronald Reagan was president, Peter Drucker wrote that it was entrepreneurship that would keep public service “flexible and self-renewing.” And almost two decades have passed since David Osborne and Ted Gaebler’s “Reinventing Government” (the then handbook for public officials) carried the promising subtitle: “How the Entrepreneurial Spirit is Transforming the Public Sector”. Public entrepreneurship, though not nearly as widespread as its private complement, or perhaps as fashionable as its “social” counterpart (focussed on non-profits and their ecosystem), has been around for a while and so have those who practiced it.
But still today, we mostly train future public leaders to be public administrators. We school them in performance management and leave them too inclined to run from risk instead of managing it. And we communicate often, explicitly or not, to private entrepreneurs that government officials are failures and dinosaurs. It’s easy to see how that road led to Seattle this month, but hard see how it empowers public officials to take on the enormous challenges that still lie ahead of us, or how it enables the public to help them.”
Infomediary Business Models for Connecting Open Data Providers and Users
Paper by Marijn Janssen and Anneke Zuiderwijk in Social Science Computer Review: “Many public organizations are opening their data to the general public and embracing social media in order to stimulate innovation. These developments have resulted in the rise of new, infomediary business models, positioned between open data providers and users. Yet the variation among types of infomediary business models is little understood. The aim of this article is to contribute to the understanding of the diversity of existing infomediary business models that are driven by open data and social media. Cases presenting different modes of open data utilization in the Netherlands are investigated and compared. Six types of business models are identified: single-purpose apps, interactive apps, information aggregators, comparison models, open data repositories, and service platforms. The investigated cases differ in their levels of access to raw data and in how much they stimulate dialogue between different stakeholders involved in open data publication and use. Apps often are easy to use and provide predefined views on data, whereas service platforms provide comprehensive functionality but are more difficult to use. In the various business models, social media is sometimes used for rating and discussion purposes, but it is rarely used for stimulating dialogue or as input to policy making. Hybrid business models were identified in which both public and private organizations contribute to value creation. Distinguishing between different types of open data users was found to be critical in explaining different business models.”