Research reveals de-identified patient data can be re-identified


Vanessa Teague, Chris Culnane and Ben Rubinstein in PhysOrg: “In August 2016, Australia’s federal Department of Health published medical billing records of about 2.9 million Australians online. These records came from the Medicare Benefits Scheme (MBS) and the Pharmaceutical Benefits Scheme (PBS) containing 1 billion lines of historical health data from the records of around 10 per cent of the population.

These longitudinal records were de-identified, a process intended to prevent a person’s identity from being connected with information, and were made public on the government’s open data website as part of its policy on accessible public 

We found that patients can be re-identified, without decryption, through a process of linking the unencrypted parts of the  with known information about the individual.

Our findings replicate those of similar studies of other de-identified datasets:

  • A few mundane facts taken together often suffice to isolate an individual.
  • Some patients can be identified by name from publicly available information.
  • Decreasing the precision of the data, or perturbing it statistically, makes re-identification gradually harder at a substantial cost to utility.

The first step is examining a patient’s uniqueness according to medical procedures such as childbirth. Some individuals are unique given public information, and many patients are unique given a few basic facts, such as year of birth or the date a baby was delivered….

The second step is examining uniqueness according to the characteristics of commercial datasets we know of but cannot access directly. There are high uniqueness rates that would allow linking with a commercial pharmaceutical dataset, and with the billing data available to a bank. This means that ordinary people, not just the prominent ones, may be easily re-identifiable by their bank or insurance company…

These de-identification methods were bound to fail, because they were trying to achieve two inconsistent aims: the protection of individual privacy and publication of detailed individual records. De-identification is very unlikely to work for other rich datasets in the government’s care, like census data, tax records, mental health records, penal information and Centrelink data.

While the ambition of making more data more easily available to facilitate research, innovation and sound public policy is a good one, there is an important technical and procedural problem to solve: there is no good solution for publishing sensitive complex individual records that protects privacy without substantially degrading the usefulness of the data.

Some data can be safely published online, such as information about government, aggregations of large collections of material, or data that is differentially private. For sensitive, complex data about individuals, a much more controlled release in a secure research environment is a better solution. The Productivity Commission recommends a “trusted user” model, and techniques like dynamic consent also give patients greater control and visibility over their personal information….(More).

Disrupting Democracy: Point. Click. Transform.


Book edited by Anthony T. Silberfeld: “In January 2017, the Bertelsmann Foundation embarked on a nine-month journey to explore how digital innovation impacts democracies and societies around the world. This voyage included more than 40,000 miles in the air, thousands of miles on the ground and hundreds of interviews.

From the rival capitals of Washington and Havana to the bustling streets of New Delhi; the dynamic tech startups in Tel Aviv to the efficient order of Berlin, this book focuses on key challenges that have emerged as a result of technological disruption and offers potential lessons to other nations situated at various points along the technological and democratic spectra.

Divided into six chapters, this book provides two perspectives on each of our five case studies (India, Cuba, the United States, Israel and Germany) followed by polling data collected on demographics, digital access and political engagement from four of these countries.

The global political environment is constantly evolving, and it is clear that technology is accelerating that process for better and, in some cases, for worse. Disrupting Democracy attempts to sort through these changes to give policymakers and citizens information that will help them navigate this increasingly volatile world….(More)”.

‘Big Data’ Tells Thailand More About Jobs Than Low Unemployment


Suttinee Yuvejwattana at Bloomberg: “Thailand has one of the lowest unemployment rates in the world, which doesn’t always fit the picture of an emerging-market economy that’s struggling to get growth going.

 To get a fuller picture of what’s happening in the labor market — as well as in other under-reported industries in the economy, like the property market — the central bank is increasingly turning to “big data” sources drawn from social media and online stores to supplement official figures.

The Bank of Thailand is building its own employment index based on data from online jobs-search portals and is also creating a property indicator to give it a better sense of supply and demand in the housing market.

“We want to do evidence-based policy so big data is useful,” Jaturong Jantarangs, an assistant governor at the Bank of Thailand, said in an interview in Bangkok. “It’s not only a benefit to monetary policy but financial policy as well.”…

“Official data can’t capture the whole picture of the economy,” said Somprawin Manprasert, Bangkok-based head of research at Bank of Ayudhya Pcl. “We have a big informal sector. Many people are self-employed. This leads to a low unemployment rate.”

“The big data can show all aspects, so it can help us to solve the problems where they are,” he said…

Thailand’s military administration is also trying to harness big data to improve policy decisions, Digital Economy and Society Minister Pichet Durongkaveroj said in an interview last month. Pichet said he’s been tasked to look into digitizing, integrating and analyzing information across more than 200 government departments.

Santitarn Sathirathai, head of emerging Asia economics at Credit Suisse Group AG in Singapore, said big data analytics can be used to better target policy responses as well as allow timely evaluation of past programs. At the same time, he called on authorities to make their data more readily available to the public.

“The government should not just view big data analytics as being solely about it using richer data but also about creating a more open data environment,” he said. That’s to ensure “people can have better access to many government non-sensitive datasets and help conduct analysis that could complement the policy makers,” he said….(More)”.

How Blockchain Technology Is Helping Syrian Refugees


Siobhan Kenna at the Huffpost: “Azraq Refugee Camp is a 15 kilometre-wide sea of corrugated aluminium houses in the heart of the vast Jordanian desert. The people that live there are detained by the barbed wire that surrounds the entire complex which is located an hour and a half from the country’s capital city, Amman….

From within the strange environment of the camp and the indistinct future, lies a bastion of normalcy for these people — the supermarket.

In the refugee camp the supermarket is much more than a place to shop or purchase food though: Here it is a vital fibre in the social fabric of a makeshift community….

It’s unbelievable to think then, that a place that is so remote and isolated could be home to a world first initiative involving the emerging Blockchain technology.

The Building Blocks Project is the brain child of Houman Haddad, Regional CBT Advisor for United Nations World Food Programme (WFP). The project aims to make cash-based transactions between the WFP and the beneficiary faster, cheaper and more secure.

Prior to the project’s launch at the Azraq Refugee Camp in Jordan in May 2017, it was first trialled in Pakistan and also in King Abduallah Park Refugee Camp as a means of testing the robustness of the technology. On May 31st 2017 the pilot in Azraq was extended indefinitely.

Traditionally, payments are made to refugees from the WFP via a third party financial service provider. The entity could be a bank, mobile monetary company or something similar and the WFP instructs the financial service provider to credit some of the funds to the refugee so they can spend it at the supermarket or elsewhere.

On top of that, the WFP also needs to transfer the funds to the third party so they can actually pay the beneficiary. Sounds complicated right? Well, the Building Blocks Project aims to eliminate reliance on a third party and with this comes plenty of savings.

“So, what we have done is essentially replaced that financial service provider with the Blockchain,” Houman Haddad told HuffPost Australia.

“So instead of having someone else create virtual accounts and credit functions and so on and so forth, we create the virtual account on the Blockchain for beneficiaries, we upload entitlements to them, and currently in the supermarket where they go, the supermarket requests an authorisation code for transactions from the Blockchain as opposed to the bank….(More)”.

Democracy is dead: long live democracy!


Helen Margetts in OpenDemocracy: “In the course of the World Forum for Democracy 2017, and in political commentary more generally, social media are blamed for almost everything that is wrong with democracy. They are held responsible for pollution of the democratic environment through fake news, junk science, computational propaganda and aggressive micro-targeting. In turn, these phenomena have been blamed for the rise of populism, political polarization, far-right extremism and radicalisation, waves of hate against women and minorities, post-truth, the end of representative democracy, fake democracy and ultimately, the death of democracy. It feels like the tirade of relatives of the deceased at the trial of the murderer. It is extraordinary how much of this litany is taken almost as given, the most gloomy prognoses as certain visions of the future.

Yet actually we know rather little about the relationship between social media and democracy. Because ten years of the internet and social media have challenged everything we thought we knew.  They have injected volatility and instability into political systems, bringing a continual cast of unpredictable events. They bring into question normative models of democracy – by which we might understand the macro-level shifts at work  – seeming to make possible the highest hopes and worst fears of republicanism and pluralism.

They have transformed the ecology of interest groups and mobilizations. They have challenged élites and ruling institutions, bringing regulatory decay and policy sclerosis. They create undercurrents of political life that burst to the surface in seemingly random ways, making fools of opinion polls and pollsters. And although the platforms themselves generate new sources of real-time transactional data that might be used to understand and shape this changed environment, most of this data is proprietary and inaccessible to researchers, meaning that the revolution in big data and data science has passed by democracy research.

What do we know? The value of tiny acts

Certainly digital media are entwined with every democratic institution and the daily lives of citizens. When deciding whether to vote, to support, to campaign, to demonstrate, to complain – digital media are with us at every step, shaping our information environment and extending our social networks by creating hundreds or thousands of ‘weak ties’, particularly for users of social media platforms such as Facebook or Instagram….(More)”.

Manipulating Social Media to Undermine Democracy


Freedom of the Net 2017 Report by the Freedom House: “Governments around the world have dramatically increased their efforts to manipulate information on social media over the past year. The Chinese and Russianregimes pioneered the use of surreptitious methods to distort online discussions and suppress dissent more than a decade ago, but the practice has since gone global. Such state-led interventions present a major threat to the notion of the internet as a liberating technology.

Online content manipulation contributed to a seventh consecutive year of overall decline in internet freedom, along with a rise in disruptions to mobile internet service and increases in physical and technical attacks on human rights defenders and independent media.

Nearly half of the 65 countries assessed in Freedom on the Net 2017 experienced declines during the coverage period, while just 13 made gains, most of them minor. Less than one-quarter of users reside in countries where the internet is designated Free, meaning there are no major obstacles to access, onerous restrictions on content, or serious violations of user rights in the form of unchecked surveillance or unjust repercussions for legitimate speech.

The use of “fake news,” automated “bot” accounts, and other manipulation methods gained particular attention in the United States. While the country’s online environment remained generally free, it was troubled by a proliferation of fabricated news articles, divisive partisan vitriol, and aggressive harassment of many journalists, both during and after the presidential election campaign.

Russia’s online efforts to influence the American election have been well documented, but the United States was hardly alone in this respect. Manipulation and disinformation tactics played an important role in elections in at least 17 other countries over the past year, damaging citizens’ ability to choose their leaders based on factual news and authentic debate. Although some governments sought to support their interests and expand their influence abroad—as with Russia’s disinformation campaigns in the United States and Europe—in most cases they used these methods inside their own borders to maintain their hold on power.

Venezuela, the Philippines, and Turkey were among 30 countries where governments were found to employ armies of “opinion shapers” to spread government views, drive particular agendas, and counter government critics on social media. The number of governments attempting to control online discussions in this manner has risen each year since Freedom House began systematically tracking the phenomenon in 2009. But over the last few years, the practice has become significantly more widespread and technically sophisticated, with bots, propaganda producers, and fake news outlets exploiting social media and search algorithms to ensure high visibility and seamless integration with trusted content.

Unlike more direct methods of censorship, such as website blocking or arrests for internet activity, online content manipulation is difficult to detect. It is also more difficult to combat, given its dispersed nature and the sheer number of people and bots employed for this purpose… (More)”.

Smart Cities, Smarter Citizens


Free eBook courtesy of PTC.com: “The smart city movement is on a roll. Technology leaders are looking to transform major cities through advanced computer technologies, sensors, high-speed data networks, predictive analytics, big data, and IoT. But, as Mike Barlow explains in this O’Reilly report, the story goes beyond technology. Citizens, too, will need to play a large role in turning cities into smart, livable environments.

According to a United Nations report, by 2050 two-thirds of humanity will live in more than 40 mega-cities of 10 million people each. All of them will need to determine how to deliver more services with fewer resources. Cities will have to improve efficiency and reduce expenditures wherever possible, through new technologies and other means.

To create a thriving environment where innovation can blossom, citizens will not only be called upon to generate much of the data, but they’ll also need to be at the center of decision-making, based on what that data reveals.

Download this report today, and learn about the progress that various groups and organizations have already made in major cities around the world, and what lies ahead for all of us….(More)”.

Most of the public doesn’t know what open data is or how to use it


Jason Shueh at Statescoop: “New survey results show that despite the aggressive growth of open data, there is a drastic need for greater awareness and accessibility.

Results of a global survey published last month by Singapore’s Government Technology agency (GovTech) and the Economist Intelligence Unit, a British forecasting and advisory firm, show that open data is not being utilized as effectively as it could be. Researchers surveyed more than 1,000 residents in the U.S. and nine other leading open data counties and found that “an overwhelming” number of respondents say the primary barrier to open data’s use and effectiveness is a lack of public awareness.

The study reports that 50 percent of respondents said that national and local governments need to expand their civic engagements efforts on open data.

“Half of respondents say there is not enough awareness in their country about open government data initiatives and their benefits or potential uses,” the reports notes. “This is seen as the biggest barrier to more open government data use, particularly by citizens in India and Mexico.”

Accessibility is named as the second largest hurdle, with 31 percent calling for more relevant data. Twenty-five percent say open data is difficult to use due to a lack of standardized formats and another 25 percent say they don’t have the skills to understand open data.

Those calling for more relevant data say they wanted to see more information on crime, the economy and the environment, yet report they are happy with the availability and use of open data related to transportation….

When asked to name the main benefit of open data, 70 percent say greater transparency, 78 percent say to drive a better quality of life, and 53 percent cite better decision making….(More)”.

The Pnyx and the Agora


Richard Sennett at ReadingDesign: “I am not going to speak about the present, but about the past: about the foundations on which our democracy is based. These foundations were rooted in cities, in their civic spaces. We need to remember this history to think about how democratic cities should be made today.

A democracy supposes people can consider views other than their own. This was Aristotle’s notion in the Politics. He thought the awareness of difference occurs only in cities, since the every city is formed by synoikismos, a drawing together of different families and tribes, of competing economic interests, of natives with foreigners.

“Difference” today seems about identity — we think of race, gender, or class. Aristotle’s meant something more by difference; he included also the experience of doing different things, of acting in divergent ways which do not neatly fit together. The mixture in a city of action as well as identity is the foundation of its distinctive politics. Aristotle’s hope was that when a person becomes accustomed to a diverse, complex milieu he or she will cease reacting violently when challenged by something strange or contrary. Instead, this environment should create an outlook favourable to discussion of differing views or conflicting interests. Almost all modern urban planners subscribe to this Aristotelian principle. But if in the same space different persons or activities are merely concentrated, but each remains isolated and segregated, diversity loses its force. Differences have to interact.

Classical urbanism imagines two kinds of spaces in which this interaction could occur. One was the pnyx, an ampitheatre in which citizens listed to debates and took collective decisions; the other was the agora, the town square in which people were exposed to difference in a more raw, unmediated form….(More)”

Smart contracts: terminology, technical limitations and real world complexity


Eliza Mik at Law, Innovation and Technology: “If one is to believe the popular press and many “technical writings,” blockchains create not only a perfect transactional environment but also obviate the need for banks, lawyers and courts. The latter will soon be replaced by smart contracts: unbiased and infallible computer programs that form, perform and enforce agreements. Predictions of future revolutions must, however, be distinguished from the harsh reality of the commercial marketplace and the technical limitations of blockchains. The fact that a technological solution is innovative and elegant need not imply that it is commercially useful or legally viable. Apart from attempting a terminological “clean-up” surrounding the term smart contract, this paper presents some technological and legal constraints on their use. It confronts the popular claims concerning their ability to automate transactions and to ensure perfect performance. It also examines the possibility of reducing contractual relationships to code and the ability to integrate smart contracts with the complexities of the real world. A closer analysis reveals that smart contracts can hardly be regarded as a semi-mythical technology liberating the contracting parties from the shackles of traditional legal and financial institutions….(More)”.