The Responsible Data for Children (RD4C) Case Studies


Andrew Young at Datastewards.net: “This week, as part of the Responsible Data for Children initiative (RD4C), the GovLab and UNICEF launched a new case study series to provide insights on promising practice as well as barriers to realizing responsible data for children.

Drawing upon field-based research and established good practice, RD4C aims to highlight and support responsible handling of data for and about children; identify challenges and develop practical tools to assist practitioners in evaluating and addressing them; and encourage a broader discussion on actionable principles, insights, and approaches for responsible data management.

RD4C launched in October 2019 with the release of the RD4C Synthesis ReportSelected Readings, and the RD4C Principles: Purpose-Driven, People-Centric, Participatory, Protective of Children’s Rights, Proportional, Professionally Accountable, and Prevention of Harms Across the Data Lifecycle.

The RD4C Case Studies analyze data systems deployed in diverse country environments, with a focus on their alignment with the RD4C Principles. This week’s release includes case studies arising from field missions to Romania, Kenya, and Afghanistan in 2019. The data systems examined are:

The potential of Data Collaboratives for COVID19


Blog post by Stefaan Verhulst: “We live in almost unimaginable times. The spread of COVID-19 is a human tragedy and global crisis that will impact our communities for many years to come. The social and economic costs are huge and mounting, and they are already contributing to a global slowdown. Every day, the emerging pandemic reveals new vulnerabilities in various aspects of our economic, political and social lives. These include our vastly overstretched public health services, our dysfunctional political climate, and our fragile global supply chains and financial markets.

The unfolding crisis is also making shortcomings clear in another area: the way we re-use data responsibly. Although this aspect of the crisis has been less remarked upon than other, more obvious failures, those who work with data—and who have seen its potential to impact the public good—understand that we have failed to create the necessary governance and institutional structures that would allow us to harness data responsibly to halt or at least limit this pandemic. A recent article in Stat, an online journal dedicated to health news, characterized the COVID-19 outbreak as “a once-in-a-century evidence fiasco.” The article continues: 

“At a time when everyone needs better information, […] we lack reliable evidence on how many people have been infected with SARS-CoV-2 or who continue to become infected. Better information is needed to guide decisions and actions of monumental significance and to monitor their impact.” 

It doesn’t have to be this way, and these data challenges are not an excuse for inaction. As we explain in what follows, there is ample evidence that the re-use of data can help mitigate health pandemics. A robust (if somewhat unsystematized) body of knowledge could direct policymakers and others in their efforts. In the second part of this article, we outline eight steps that key stakeholders can and should take to better re-use data in the fight against COVID-19. In particular, we argue that more responsible data stewardship and increased use of data collaboratives are critical….(More)”. 

Ask a Scientist


NYU Press Release: “Unreliable tips on how to protect oneself from the novel coronavirus and fake news about the COVID-19 pandemic are spreading as quickly as the virus itself.

The Governance Lab (The GovLab) at the New York University Tandon School of Engineering has collaborated with the Federation of American Scientists (FAS) and the State of New Jersey Office of Innovation to launch a free, interactive tool aimed at cutting through the noise and presenting clear, scientist-led, and evidence-based information and advice to the public.

Available in English and Spanish, “Ask a Scientist,” allows users to find answers to a wide range of commonly asked questions about the virus, the severity of the outbreak, best methods of prevention, and steps to take in the event you fall ill. All posted content is obtained from the World Health Organization, the Centers for Disease Control and Prevention, and other rigorously verified sources.

screenshot of website that allows users to type in questions about COVID-19

“Ask a Scientist” features a free, interactive tool allowing users to submit questions to a team of FAS researchers and a crowdsourced network of vetted science experts. In English and Spanish, the site also includes top articles and the latest information, and answers to a wide range of commonly asked questions about the COVID-19 epidemic, the severity of the outbreak, best methods of prevention, and steps to take in the event you fall ill.

If users do not find an answer to their specific questions, they have the option of submitting them to a team of FAS researchers and a crowdsourced network of vetted science experts led by the National Science Policy Network. Users can expect an answer within an hour, although that timeframe is expected to shorten as the network increases in size. Every answer is reviewed to ensure accuracy and timeliness, then added to the knowledge base for the benefit of others….(More)”.

The world after coronavirus


Yuval Noah Harari at the Financial Times: “Humankind is now facing a global crisis. Perhaps the biggest crisis of our generation. The decisions people and governments take in the next few weeks will probably shape the world for years to come. They will shape not just our healthcare systems but also our economy, politics and culture. We must act quickly and decisively. We should also take into account the long-term consequences of our actions.

When choosing between alternatives, we should ask ourselves not only how to overcome the immediate threat, but also what kind of world we will inhabit once the storm passes. Yes, the storm will pass, humankind will survive, most of us will still be alive — but we will inhabit a different world.  Many short-term emergency measures will become a fixture of life. That is the nature of emergencies. They fast-forward historical processes.

Decisions that in normal times could take years of deliberation are passed in a matter of hours. Immature and even dangerous technologies are pressed into service, because the risks of doing nothing are bigger. Entire countries serve as guinea-pigs in large-scale social experiments. What happens when everybody works from home and communicates only at a distance? What happens when entire schools and universities go online? In normal times, governments, businesses and educational boards would never agree to conduct such experiments. But these aren’t normal times. 

In this time of crisis, we face two particularly important choices. The first is between totalitarian surveillance and citizen empowerment. The second is between nationalist isolation and global solidarity. 

Under-the-skin surveillance

In order to stop the epidemic, entire populations need to comply with certain guidelines. There are two main ways of achieving this. One method is for the government to monitor people, and punish those who break the rules. Today, for the first time in human history, technology makes it possible to monitor everyone all the time. Fifty years ago, the KGB couldn’t follow 240m Soviet citizens 24 hours a day, nor could the KGB hope to effectively process all the information gathered. The KGB relied on human agents and analysts, and it just couldn’t place a human agent to follow every citizen. But now governments can rely on ubiquitous sensors and powerful algorithms instead of flesh-and-blood spooks. 

In their battle against the coronavirus epidemic several governments have already deployed the new surveillance tools. The most notable case is China. By closely monitoring people’s smartphones, making use of hundreds of millions of face-recognising cameras, and obliging people to check and report their body temperature and medical condition, the Chinese authorities can not only quickly identify suspected coronavirus carriers, but also track their movements and identify anyone they came into contact with. A range of mobile apps warn citizens about their proximity to infected patients…

If I could track my own medical condition 24 hours a day, I would learn not only whether I have become a health hazard to other people, but also which habits contribute to my health. And if I could access and analyse reliable statistics on the spread of coronavirus, I would be able to judge whether the government is telling me the truth and whether it is adopting the right policies to combat the epidemic. Whenever people talk about surveillance, remember that the same surveillance technology can usually be used not only by governments to monitor individuals — but also by individuals to monitor governments. 

The coronavirus epidemic is thus a major test of citizenship….(More)”.

Statement of the EDPB Chair on the processing of personal data in the context of the COVID-19 outbreak


European Data Protection Board: “Governments, public and private organisations throughout Europe are taking measures to contain and mitigate COVID-19. This can involve the processing of different types of personal data.  

Andrea Jelinek, Chair of the European Data Protection Board (EDPB), said: “Data protection rules (such as GDPR) do not hinder measures taken in the fight against the coronavirus pandemic. However, I would like to underline that, even in these exceptional times, the data controller must ensure the protection of the personal data of the data subjects. Therefore, a number of considerations should be taken into account to guarantee the lawful processing of personal data.”

The GDPR is a broad legislation and also provides for the rules to apply to the processing of personal data in a context such as the one relating to COVID-19. Indeed, the GDPR provides for the legal grounds to enable the employers and the competent public health authorities to process personal data in the context of epidemics, without the need to obtain the consent of the data subject. This applies for instance when the processing of personal data is necessary for the employers for reasons of public interest in the area of public health or to protect vital interests (Art. 6 and 9 of the GDPR) or to comply with another legal obligation.

For the processing of electronic communication data, such as mobile location data, additional rules apply. The national laws implementing the ePrivacy Directive provide for the principle that the location data can only be used by the operator when they are made anonymous, or with the consent of the individuals. The public authorities should first aim for the processing of location data in an anonymous way (i.e. processing data aggregated in a way that it cannot be reversed to personal data). This could enable to generate reports on the concentration of mobile devices at a certain location (“cartography”).  

When it is not possible to only process anonymous data, Art. 15 of the ePrivacy Directive enables the member states to introduce legislative measures pursuing national security and public security *. This emergency legislation is possible under the condition that it constitutes a necessary, appropriate and proportionate measure within a democratic society. If such measures are introduced, a Member State is obliged to put in place adequate safeguards, such as granting individuals the right to judicial remedy….(More)”.

International Humanitarian and Development Aid and Big Data Governance


Chapter by Andrej Zwitter: “Modern technology and innovations constantly transform the world. This also applies to humanitarian action and development aid, for example: humanitarian drones, crowd sourcing of information, or the utility of Big Data in crisis analytics and humanitarian intelligence. The acceleration of modernization in these adjacent fields can in part be attributed to new partnerships between aid agencies and new private stakeholders that increasingly become active, such as individual crisis mappers, mobile telecommunication companies, or technological SMEs.

These partnerships, however, must be described as simultaneously beneficial as well as problematic. Many private actors do not subscribe to the humanitarian principles (humanity, impartiality, independence, and neutrality), which govern UN and NGO operations, or are not even aware of them. Their interests are not solely humanitarian, but may include entrepreneurial agendas. The unregulated use of data in humanitarian intelligence has already caused negative consequences such as the exposure of sensitive data about aid agencies and of victims of disasters.

This chapter investigates the emergent governance trends around data innovation in the humanitarian and development field. It takes a look at the ways in which the field tries to regulate itself and the utility of the humanitarian principles for Big Data analytics and data-driven innovation. It will argue that it is crucially necessary to formulate principles for data governance in the humanitarian context in order to ensure the safeguarding of beneficiaries that are particularly vulnerable. In order to do that, the chapter proposes to reinterpret the humanitarian principles to accommodate the new reality of datafication of different aspects of society…(More)”.

Rheomesa. A New Global System for Catastrophe Prevention, Response & Recovery


Paper by Andrew Doss, Jonas Bedford-Strohm and Leanne Erdberg Steadman: “This paper identifies three structural vacuums in catastrophe governance today that allow for the greatest risks humanity faces to be externalized from decision-making. To mitigate the impact of these risks, The Rheomesa (“fluid table”) provides (1) a deliberative decision-making process between currently siloed entities in various sectors managing the outcome of catastrophes, including government, the private sector, NGOs, IGOs, and hybrid entities, with (2) a prospective, long-term accountability and incentive mechanism that (3) comprehensively addresses the three interdependent tasks societies face surrounding catastrophes – prevention, response, and recovery….(More)”.

The State of Open Humanitarian Data


Report by Centre for Humanitarian Data: “The goal of this report is to increase awareness of the data available for humanitarian response activities and to highlight what is missing, as measured through OCHA’s Humanitarian Data Exchange (HDX) platform. We want to recognize the valuable and long-standing contributions of data-sharing organizations. We also want to be more targeted in our outreach on what data is required to understand crises so that new actors might be compelled to join the platform. Data is not an end in itself but a critical ingredient to the analysis that informs decision making. With nearly 168 million people in need of humanitarian assistance in 2020 — the highest figure in decades — there is no time, or data, to lose…(More)”.

Data Protection in the Humanitarian Sector – A Blockchain Approach


Report by Andrej Verity and Irene Solaiman: “Data collection and storage are becoming increasingly digital. In the humanitarian sector, data motivates action, informing organizations who then determine priorities and resource allocation in crises.

“Humanitarians are dependent on technology and on the Internet. When life-saving aid isn’t delivered on time and to the right beneficiaries, people can die.” -Brookings

In the age of information and cyber warfare, humanitarian organizations must take measures to protect civilians, especially those in critical and vulnerable positions.

“Data privacy and ensuring protection from harm, including the provision of data security, are therefore fundamentally linked—and neither can be realized without the other.” -The Signal Code

Information in the wrong hands can risk lives or even force aid organizations to shut down. For example, in 2009, Sudan expelled over a dozen international nongovernmental organizations (NGOs) that were deemed key to maintaining a lifeline to 4.7 million people in western Darfur. The expulsion occurred after the Sudanese Government collected Internet-accessible information that made leadership fear international criminal charges. Responsible data protection is a crucial component of cybersecurity. As technology develops, so do threats and data vulnerabilities. Emerging technologies such as blockchain provide further security to sensitive information and overall data storage. Still, with new technologies come considerations for implementation…(More)”.

Responsible Data for Children


New Site and Report by UNICEF and The GovLab: “RD4C seeks to build awareness regarding the need for special attention to data issues affecting children—especially in this age of changing technology and data linkage; and to engage with governments, communities, and development actors to put the best interests of children and a child rights approach at the center of our data activities. The right data in the right hands at the right time can significantly improve outcomes for children. The challenge is to understand the potential risks and ensure that the collection, analysis and use of data on children does not undermine these benefits.

Drawing upon field-based research and established good practice, RD4C aims to highlight and support best practice data responsibility; identify challenges and develop practical tools to assist practitioners in evaluating and addressing them; and encourage a broader discussion on actionable principles, insights, and approaches for responsible data management.