Article by Miriam van der Sangen at CBS: “In 2018, Statistics Estonia launched a new strategy for the period 2018-2022. This strategy addresses the organisation’s aim to produce statistics more quickly while minimising the response burden on both businesses and citizens. Another element in the strategy is addressing the high expectations in Estonian society regarding the use of data. ‘We aim to transform Statistics Estonia into a national data agency,’ says Director General Mägi. ‘This means our role as a producer of official statistics will be enlarged by data governance responsibilities in the public sector. Taking on such responsibilities... (More >)
Big Data Applications in Governance and Policy
Introduction to Special Issue of Politics and Governance by Sarah Giest and Reuben Ng: ” Recent literature has been trying to grasp the extent as to which big data applications affect the governance and policymaking of countries and regions (Boyd & Crawford, 2012; Giest, 2017; Höchtl, Parycek, & Schöllhammer, 2015; Poel, Meyer, & Schroeder, 2018). The discussion includes the comparison to e-government and evidence-based policymaking developments that existed long before the idea of big data entered the policy realm. The theoretical extent of this discussion however lacks some of the more practical consequences that come with the active use... (More >)
Platform Surveillance
Editorial by David Murakami Wood and Torin Monahan of Special Issue of Surveillance and Society: “This editorial introduces this special responsive issue on “platform surveillance.” We develop the term platform surveillance to account for the manifold and often insidious ways that digital platforms fundamentally transform social practices and relations, recasting them as surveillant exchanges whose coordination must be technologically mediated and therefore made exploitable as data. In the process, digital platforms become dominant social structures in their own right, subordinating other institutions, conjuring or sedimenting social divisions and inequalities, and setting the terms upon which individuals, organizations, and governments... (More >)
Responsible Data Governance of Neuroscience Big Data
Paper by B. Tyr Fothergill et al: “Current discussions of the ethical aspects of big data are shaped by concerns regarding the social consequences of both the widespread adoption of machine learning and the ways in which biases in data can be replicated and perpetuated. We instead focus here on the ethical issues arising from the use of big data in international neuroscience collaborations. Neuroscience innovation relies upon neuroinformatics, large-scale data collection and analysis enabled by novel and emergent technologies. Each step of this work involves aspects of ethics, ranging from concerns for adherence to informed consent or animal... (More >)
Know-how: Big Data, AI and the peculiar dignity of tacit knowledge
Essay by Tim Rogan: “Machine learning – a kind of sub-field of artificial intelligence (AI) – is a means of training algorithms to discern empirical relationships within immense reams of data. Run a purpose-built algorithm by a pile of images of moles that might or might not be cancerous. Then show it images of diagnosed melanoma. Using analytical protocols modelled on the neurons of the human brain, in an iterative process of trial and error, the algorithm figures out how to discriminate between cancers and freckles. It can approximate its answers with a specified and steadily increasing degree of... (More >)
What you don’t know about your health data will make you sick
Jeanette Beebe at Fast Company: “Every time you shuffle through a line at the pharmacy, every time you try to get comfortable in those awkward doctor’s office chairs, every time you scroll through the web while you’re put on hold with a question about your medical bill, take a second to think about the person ahead of you and behind you. Chances are, at least one of you is being monitored by a third party like data analytics giant Optum, which is owned by UnitedHealth Group, Inc. Since 1993, it’s captured medical data—lab results, diagnoses, prescriptions, and more—from 150... (More >)
Nearly Half of Canadian Consumers Willing to Share Significant Personal Data with Banks and Insurers in Exchange for Lower Pricing, Accenture Study Finds
Press Release: “Nearly half of Canadian consumers would be willing to share significant personal information, such as location data and lifestyle information, with their bank and insurer in exchange for lower pricing on products and services, according to a new report from Accenture (NYSE: ACN). Consumers willing to share personal data in select scenarios. (CNW Group/Accenture) Accenture’s global Financial Services Consumer Study, based on a survey of 47,000 consumers in 28 countries which included 2,000 Canadians, found that more than half of consumers would share that data for benefits including more-rapid loan approvals, discounts on gym memberships and personalized... (More >)
Our data, our society, our health: a vision for inclusive and transparent health data science in the UK and Beyond
Paper by Elizabeth Ford et al in Learning Health Systems: “The last six years have seen sustained investment in health data science in the UK and beyond, which should result in a data science community that is inclusive of all stakeholders, working together to use data to benefit society through the improvement of public health and wellbeing. However, opportunities made possible through the innovative use of data are still not being fully realised, resulting in research inefficiencies and avoidable health harms. In this paper we identify the most important barriers to achieving higher productivity in health data science. We... (More >)
The Governance of Digital Technology, Big Data, and the Internet: New Roles and Responsibilities for Business
Introduction to Special Issue of Business and Society by Dirk Matten, Ronald Deibert & Mikkel Flyverbom: “The importance of digital technologies for social and economic developments and a growing focus on data collection and privacy concerns have made the Internet a salient and visible issue in global politics. Recent developments have increased the awareness that the current approach of governments and business to the governance of the Internet and the adjacent technological spaces raises a host of ethical issues. The significance and challenges of the digital age have been further accentuated by a string of highly exposed cases of... (More >)
Invisible Women: Exposing Data Bias in a World Designed for Men
Book by Caroline Criado Perez: “Imagine a world where your phone is too big for your hand, where your doctor prescribes a drug that is wrong for your body, where in a car accident you are 47% more likely to be seriously injured, where every week the countless hours of work you do are not recognised or valued. If any of this sounds familiar, chances are that you’re a woman. Invisible Women shows us how, in a world largely built for and by men, we are systematically ignoring half the population. It exposes the gender data gap – a... (More >)
