privacy

Methods to Protect and Secure “Big Data” May Be Unknowingly Corrupting Research

Curated on March 23, 2015August 15, 2018 by Stefaan Verhulst

New paper by John M. Abowd and Ian M. Schmutte: “…As the government and private companies increase the amount of data made available for public use (e.g. Census data, employment surveys, medical data), efforts to protect privacy and confidentiality (through statistical disclosure limitation or SDL) can often cause misleading and compromising effects on economic research and analysis, particularly in cases where data properties are unclear for the end-user.

Data swapping is a particularly insidious method of SDL and is frequently used by important data aggregators like the Census Bureau, the National Center for Health Statistics and others, which interferes with the results of empirical analysis in ways that few economists and other social scientists are aware of.

To encourage more transparency, the authors call for both government statistical agencies as well as the private sector (Amazon, Google, Microsoft, Netfix, Yahoo!, etc.) to release more information about parameters used in SDL methods, and insist that journals and editors publishing such research require documentation of the author’s entire methodological process….(More)

VIDEO:

Turning Government Data into Better Public Service

Curated on March 21, 2015May 29, 2019 by Stefaan Verhulst

OMB Blog: “Every day, millions of people use their laptops, phones, and tablets to check the status of their tax refund, get the latest forecast from the National Weather Service, book a campsite at one of our national parks, and much more. There were more than 1.3 billion visits to websites across the Federal Government in just the past 90 days.

Today, during Sunshine Week when we celebrate openness and transparency in government, we are pleased to release the Digital Analytics Dashboard, a new window into the way people access the government online. For the first time, you can see how many people are using a Federal Government website, which pages are most popular, and which devices, browsers, and operating systems people are using. We’ll use the data from the Digital Analytics Program to focus our digital service teams on the services that matter most to the American people, and analyze how much progress we are making. The Dashboard will help government agencies understand how people find, access, and use government services online to better serve the public – all while protecting privacy. The program does not track individuals. It anonymizes the IP addresses of all visitors and then uses the resulting information in the aggregate….(More)

Big Data Is an Economic Justice Issue, Not Just a Privacy Problem

Curated on March 17, 2015October 9, 2018 by Stefaan Verhulst

Nathan Newman in the Huffington Post: “The control of personal data by “big data” companies is not just an issue of privacy but is becoming a critical issue of economic justice, argues a new report issued by the organization Data Justice>, which itself is being publicly launched in conjunction with the report. ..

At the same time, big data is fueling economic concentration across our economy. As a handful of data platforms generate massive amounts of user data, the barriers to entry rise, since potential competitors have little data themselves to entice advertisers compared with the incumbents, who have both the concentrated processing power and the supply of user data to dominate particular sectors. With little competition, companies end up with little incentive to either protect user privacy or share the economic value of that user data with the consumers generating those profits.

The report argues for a threefold approach to making big data work for everyone in the economy, not just for the big data platforms’ shareholders:

First, regulators need to strengthen user control of their own data by both requiring explicit consent for all uses of the data and better informing users of how it’s being used and how companies profit from that data.
Second, regulators need to factor control of data into merger review, and to initiate antitrust actions against companies like Google where monopoly control of a sector like search advertising has been established.
Third, policymakers should restrict practices that harm consumers, including banning price discrimination where consumers are not informed of all discount options available and bringing the participation of big data platforms in marketing financial services under the regulation of the Consumer Financial Protection Bureau.

Data Justice itself has been founded as an organization “to promote public education and new alliances to challenge the danger of big data to workers, consumers and the public.” It will work to educate the public, policymakers and organizational allies on how big data is contributing to economic inequality in the economy. Its new website at datajustice.org is intended to bring together a wide range of resources highlighting the economic justice aspects of big data.”

Netpolitik: What the Emergence of Networks Means for Diplomacy and Statecraft

Curated on March 2, 2015July 18, 2019 by Stefaan Verhulst

Charlie Firestone and Leshuo Dong at the Aspen Journal of Ideas: “…The network is emerging as a dominant form of organization for our age of complexity. This is supported by technological and economic trends. Furthermore, enemies are networks, players are networks, even governments are becoming networks. It makes sense to understand network principles and apply them for use in the world of diplomacy. Accordingly, governments, organizations and individuals should heed these recommendations:

Understand and apply two-way communications and network principles to all forms of diplomacy with the aim of earning the sympathy, empathy and where applicable, the loyalty of future generations. This is a mindset shift for governments, diplomats and citizens around the world.
This means engaging the world’s populations to communicate with each other. That will entail physical connections to the global common medium, an ability to have what you send be received by others in the form you send it, end to end, and literacy in the communications methods of the day. The world’s population should have a meaningful right to connect.
Of course, if there is to be a global communications network, it needs to be safe, so governments remain in the role of protector of the environment needed for users to trust in their networks. States have a role to protect against cyberwar, cybercrimes, and loss of a person’s identity, i.e., security and privacy online. But these protections cannot be a screen for illegitimate governmental controls over or unwarranted surveillance of its citizens. Nor can governments be expected to shoulder that burden alone. Everyone will need to practice a basic level of Net hygiene and literacy as an element of their digital citizenship.

As networks proliferate, principles of netpolitik will emerge. Governments, businesses, non-governmental organizations, and every citizen would be well advised to be thinking in these terms in the years ahead….(More).”

Data-Driven Development Pathways for Progress

Curated on February 24, 2015August 15, 2018 by Stefaan Verhulst

Report from the World Economic Forum: “Data is the lifeblood of sustainable development and holds tremendous potential for transformative positive change particularly for lower- and middle-income countries. Yet despite the promise of a “Data Revolution”, progress is not a certainty. Lack of clarity on privacy and ethical issues, asymmetric power dynamics and an array of entangled societal and commercial risks threaten to hinder progress.
Written by the World Economic Forum Global Agenda Council on Data-Driven Development, this report serves to clarify how big data can be leveraged to address the challenges of sustainable development. Providing a blueprint for balancing competing tensions, areas of focus include: addressing the data deficit of the Global South, establishing resilient governance and strengthening capacities at the community and individual level. (PDF)”

One State Wants To Let You Carry Your Driver’s License On Your Phone

Curated on February 19, 2015November 15, 2018 by Stefaan Verhulst

Tarun Wadhwa at Singularity Hub: “There’s now a technology to replace almost everything in your wallet. Your cash, credit cards, and loyalty programs are all on their way to becoming obsolete. Money can now be sent via app, text, e-mail — it can even be sent via Snapchat. But you can’t leave your wallet home just yet. That’s because there is one item that remains largely unchanged: your driver’s license.

If the Iowa Department of Motor Vehicles has its way, that may no longer be the case. According to an article in the Des Moines Register, the agency is in the early stages of developing mobile software for just this purpose. The app would store a resident’s personal information, whatever is already on the physical licenses, and also include a scannable bar code. The plans are for the app to include a two-step verification process including some type of biometric or pin code. At this time, it appears that specific implementation details are still being worked out.

The governments of the United Kingdom and United Arab Emirates had both previously announced their own attempts to experiment with the concept. It’s becoming increasingly common to see mobile versions of other documents. Over 30 states now allow motorists to show electronic proof of insurance. It only follows that the driver’s license would be next. But the considerations around that document are different — it is perhaps the most regulated and important document that a person carries….(More)”

Big Data and Discriminatory Pricing

Curated on February 7, 2015August 15, 2018 by Stefaan Verhulst

White House: “In response to the big data and privacy report’s finding that these technologies and tools can enable new forms of discrimination, the White House Council of Economic Advisers conducted a study examining whether and how companies may use big data technologies to offer different prices to different consumers — a practice known as “discriminatory pricing.” The CEA found that many companies already use big data for targeted marketing, and others are experimenting in a limited way with personalized pricing, but this practice is not yet widespread. While the economic literature contends that discriminatory pricing will often, though not always, be welfare-enhancing for businesses and consumers, the CEA concludes that policymakers should be vigilant against the potential for discriminatory outcomes, particularly in cases where prices are not transparent and could give rise to fraud or scams….To read the Council of Economic Advisers report on discriminatory pricing, click here.“

The Precision Medicine Initiative: Data-Driven Treatments as Unique as Your Own Body

Curated on February 1, 2015August 3, 2018 by Stefaan Verhulst

White House Press Release: “…the Precision Medicine Initiative will pioneer a new model of patient-powered research that promises to accelerate biomedical discoveries and provide clinicians with new tools, knowledge, and therapies to select which treatments will work best for which patients.

Most medical treatments have been designed for the “average patient.” As a result of this “one-size-fits-all-approach,” treatments can be very successful for some patients but not for others. This is changing with the emergence of precision medicine, an innovative approach to disease prevention and treatment that takes into account individual differences in people’s genes, environments, and lifestyles. Precision medicine gives clinicians tools to better understand the complex mechanisms underlying a patient’s health, disease, or condition, and to better predict which treatments will be most effective….

Objectives of the Precision Medicine Initiative:

More and better treatments for cancer: NCI will accelerate the design and testing of effective, tailored treatments for cancer by expanding genetically based clinical cancer trials, exploring fundamental aspects of cancer biology, and establishing a national “cancer knowledge network” that will generate and share new knowledge to fuel scientific discovery and guide treatment decisions.
Creation of a voluntary national research cohort: NIH, in collaboration with other agencies and stakeholders, will launch a national, patient-powered research cohort of one million or more Americans who volunteer to participate in research. Participants will be involved in the design of the Initiative and will have the opportunity to contribute diverse sources of data—including medical records; profiles of the patient’s genes, metabolites (chemical makeup), and microorganisms in and on the body; environmental and lifestyle data; patient-generated information; and personal device and sensor data. Privacy will be rigorously protected. This ambitious project will leverage existing research and clinical networks and build on innovative research models that enable patients to be active participants and partners. The cohort will be broadly accessible to qualified researchers and will have the potential to inspire scientists from multiple disciplines to join the effort and apply their creative thinking to generate new insights. The ONC will develop interoperability standards and requirements to ensure secure data exchange with patients’ consent, to empower patients and clinicians and advance individual, community, and population health.
Commitment to protecting privacy: To ensure from the start that this Initiative adheres to rigorous privacy protections, the White House will launch a multi-stakeholder process with HHS and other Federal agencies to solicit input from patient groups, bioethicists, privacy, and civil liberties advocates, technologists, and other experts in order to identify and address any legal and technical issues related to the privacy and security of data in the context of precision medicine.
Regulatory modernization: The Initiative will include reviewing the current regulatory landscape to determine whether changes are needed to support the development of this new research and care model, including its critical privacy and participant protection framework. As part of this effort, the FDA will develop a new approach for evaluating Next Generation Sequencing technologies — tests that rapidly sequence large segments of a person’s DNA, or even their entire genome. The new approach will facilitate the generation of knowledge about which genetic changes are important to patient care and foster innovation in genetic sequencing technology, while ensuring that the tests are accurate and reliable.
Public-private partnerships: The Obama Administration will forge strong partnerships with existing research cohorts, patient groups, and the private sector to develop the infrastructure that will be needed to expand cancer genomics, and to launch a voluntary million-person cohort. The Administration will call on academic medical centers, researchers, foundations, privacy experts, medical ethicists, and medical product innovators to lay the foundation for this effort, including developing new approaches to patient participation and empowerment. The Administration will carefully consider and develop an approach to precision medicine, including appropriate regulatory frameworks, that ensures consumers have access to their own health data – and to the applications and services that can safely and accurately analyze it – so that in addition to treating disease, we can empower individuals and families to invest in and manage their health.”

(More).

With a Few Bits of Data, Researchers Identify ‘Anonymous’ People

Curated on January 30, 2015August 3, 2018 by Stefaan Verhulst

Natasha Singer in the New York Times: “Even when real names and other personal information are stripped from big data sets, it is often possible to use just a few pieces of the information to identify a specific person, according to a study to be published Friday in the journal Science.

In the study, titled “Unique in the Shopping Mall: On the Reidentifiability of Credit Card Metadata,” a group of data scientists analyzed credit card transactions made by 1.1 million people in 10,000 stores over a three-month period. The data set contained details including the date of each transaction, amount charged and name of the store.

Although the information had been “anonymized” by removing personal details like names and account numbers, the uniqueness of people’s behavior made it easy to single them out.

In fact, knowing just four random pieces of information was enough to reidentify 90 percent of the shoppers as unique individuals and to uncover their records, researchers calculated. And that uniqueness of behavior — or “unicity,” as the researchers termed it — combined with publicly available information, like Instagram or Twitter posts, could make it possible to reidentify people’s records by name.

“The message is that we ought to rethink and reformulate the way we think about data protection,” said Yves-Alexandre de Montjoye, a graduate student in computational privacy at the M.I.T. Media Lab who was the lead author of the study. “The old model of anonymity doesn’t seem to be the right model when we are talking about large-scale metadata.”

The analysis of large data sets containing details on people’s behavior holds great potential to improve public health, city planning and education.

But the study calls into question the standard methods many companies, hospitals and government agencies currently use to anonymize their records. It may also give ammunition to some technologists and privacy advocates who have challenged the consumer-tracking processes used by advertising software and analytics companies to tailor ads to so-called anonymous users online….(More).”