Crowdsourcing a crisis response for COVID-19 in oncology


Aakash Desai et al in Nature Medicine: “Crowdsourcing efforts are currently underway to collect and analyze data from patients with cancer who are affected by the COVID-19 pandemic. These community-led initiatives will fill key knowledge gaps to tackle crucial clinical questions on the complexities of infection with the causative coronavirus SARS-Cov-2 in the large, heterogeneous group of vulnerable patients with cancer…(More)”

Doctors Turn to Social Media to Develop Covid-19 Treatments in Real Time


Michael Smith and Michelle Fay Cortez at Bloomberg: “There is a classic process for treating respiratory problems: First, give the patient an oxygen mask, or slide a small tube into the nose to provide an extra jolt of oxygen. If that’s not enough, use a “Bi-Pap” machine, which pushes air into the lungs more forcefully. If that fails, move to a ventilator, which takes over the patient’s breathing.

But these procedures tend to fail With Covid-19 patients. Physicians found that by the time they reached that last step, it was often too late; the patient was already dying.

In past pandemics like the 2003 global SARS outbreak, doctors sought answers to such mysteries from colleagues in hospital lounges or maybe penned articles for medical journals. It could take weeks or months for news of a breakthrough to reach the broader community.

For Covid-19, a kind of medical hive mind is on the case. By the tens of thousands, doctors are joining specialized social media groups to develop answers in real time. One of them, a Facebook group called the PMG COVID19 Subgroup, has 30,000 members worldwide….

Doctors are trying to fill an information void online. Sabry, an emergency-room doctor in two hospitals outside Los Angeles, found that the 70,000-strong, Physician Moms Group she started five years ago on Facebook was so overwhelmed by coronavirus threads that she created the Covid-19 offshoot. So many doctors tried to join the new subgroup that Facebook’s click-to-join code broke. Some 10,000 doctors waited in line as the social media company’s engineers devised a fix.

She’s not alone. The topic also consumed two Facebook groups started by Dr. Nisha Mehta, a 38-year-old radiologist from Charlotte, North Carolina. The 54,000-member Physician Side Gigs, intended for business discussions, and an 11,000-person group called Physician Community for more general topics, are also all coronavirus, all the time, with thousands waiting to join…(More)”.

Crowdsourcing hypothesis tests: making transparent how design choices shape research results


Paper by J.F. Landy and Leonid Tiokhin: “To what extent are research results influenced by subjective decisions that scientists make as they design studies?

Fifteen research teams independently designed studies to answer five original research questions related to moral judgments, negotiations, and implicit cognition. Participants from two separate large samples (total N > 15,000) were then randomly assigned to complete one version of each study. Effect sizes varied dramatically across different sets of materials designed to test the same hypothesis: materials from different teams rendered statistically significant effects in opposite directions for four out of five hypotheses, with the narrowest range in estimates being d = -0.37 to +0.26. Meta-analysis and a Bayesian perspective on the results revealed overall support for two hypotheses, and a lack of support for three hypotheses.

Overall, practically none of the variability in effect sizes was attributable to the skill of the research team in designing materials, while considerable variability was attributable to the hypothesis being tested. In a forecasting survey, predictions of other scientists were significantly correlated with study results, both across and within hypotheses. Crowdsourced testing of research hypotheses helps reveal the true consistency of empirical support for a scientific claim….(More)”.

Crowdsourcing Geographic Information


Paper by Dieter Pfoser: “The crowdsourcing of geographic information addresses the collection of geospatial data contributed by non-expert users and the aggregation of these data into meaningful geospatial datasets. While crowdsourcing generally implies a coordinated bottom-up
grass-roots effort to contribute information, in the context of geospatial data the term volunteered geographic information (VGI) specifically refers to a dedicated collection effort inviting non-expert users to contribute. A prominent example here is the OpenStreetMap effort focusing on map datasets. Crowdsourcing geospatial data is an evolving research area that covers efforts ranging from mining GPS tracking data to using social media content to profile population dynamics…(More)”.

Mapping Wikipedia


Michael Mandiberg at The Atlantic: “Wikipedia matters. In a time of extreme political polarization, algorithmically enforced filter bubbles, and fact patterns dismissed as fake news, Wikipedia has become one of the few places where we can meet to write a shared reality. We treat it like a utility, and the U.S. and U.K. trust it about as much as the news.

But we know very little about who is writing the world’s encyclopedia. We do know that just because anyone can edit, doesn’t mean that everyone does: The site’s editors are disproportionately cis white men from the global North. We also know that, as with most of the internet, a small number of the editors do a large amount of the editing. But that’s basically it: In the interest of improving retention, the Wikimedia Foundation’s own research focuses on the motivations of people who do edit, not on those who don’t. The media, meanwhile, frequently focus on Wikipedia’s personality stories, even when covering the bigger questions. And Wikipedia’s own culture pushes back against granular data harvesting: The Wikimedia Foundation’s strong data-privacy rules guarantee users’ anonymity and limit the modes and duration of their own use of editor data.

But as part of my research in producing Print Wikipedia, I discovered a data set that can offer an entry point into the geography of Wikipedia’s contributors. Every time anyone edits Wikipedia, the software records the text added or removed, the time of the edit, and the username of the editor. (This edit history is part of Wikipedia’s ethos of radical transparency: Everyone is anonymous, and you can see what everyone is doing.) When an editor isn’t logged in with a username, the software records that user’s IP address. I parsed all of the 884 million edits to English Wikipedia to collect and geolocate the 43 million IP addresses that have edited English Wikipedia. I also counted 8.6 million username editors who have made at least one edit to an article.

The result is a set of maps that offer, for the first time, insight into where the millions of volunteer editors who build and maintain English Wikipedia’s 5 million pages are—and, maybe more important, where they aren’t….

Like the Enlightenment itself, the modern encyclopedia has a history entwined with colonialism. Encyclopédie aimed to collect and disseminate all the world’s knowledge—but in the end, it could not escape the biases of its colonial context. Likewise, Napoleon’s Description de l’Égypte augmented an imperial military campaign with a purportedly objective study of the nation, which was itself an additional form of conquest. If Wikipedia wants to break from the past and truly live up to its goal to compile the sum of all human knowledge, it requires the whole world’s participation….(More)”.

Wisdom or Madness? Comparing Crowds with Expert Evaluation in Funding the Arts


Paper by Ethan R. Mollick and Ramana Nanda: “In fields as diverse as technology entrepreneurship and the arts, crowds of interested stakeholders are increasingly responsible for deciding which innovations to fund, a privilege that was previously reserved for a few experts, such as venture capitalists and grant‐making bodies. Little is known about the degree to which the crowd differs from experts in judging which ideas to fund, and, indeed, whether the crowd is even rational in making funding decisions. Drawing on a panel of national experts and comprehensive data from the largest crowdfunding site, we examine funding decisions for proposed theater projects, a category where expert and crowd preferences might be expected to differ greatly.

We instead find significant agreement between the funding decisions of crowds and experts. Where crowds and experts disagree, it is far more likely to be a case where the crowd is willing to fund projects that experts may not. Examining the outcomes of these projects, we find no quantitative or qualitative differences between projects funded by the crowd alone, and those that were selected by both the crowd and experts. Our findings suggest that crowdfunding can play an important role in complementing expert decisions, particularly in sectors where the crowds are end users, by allowing projects the option to receive multiple evaluations and thereby lowering the incidence of “false negatives.”…(More)”.

Hyperconnected, receptive and do-it-yourself city. An investigation into the European imaginary of crowdsourcing for urban governance


Paper by Chiara Certoma, Filippo Corsini and MarcoFrey: “This paper critically explores the construction and diffusion of the socio-technical imaginary of crowdsourcing for public governance in Europe via a quali-quantitative analysis of academic publications, research and innovation projects funded by the European Commission (EC) and local initiatives. Building upon the increasing narrative of digital social participation that describes crowdsourcing processes as short ways towards democratisation of public decision-making processes, our research describes the trends and threats associated with the “hyperconnected city” imaginary advanced by (part of) scholarly research and EC policy documents and projects.

We show how, while these last describe digital-supported participation processes as (at least potentially) able to bootstrap an open governance agenda, local urban initiatives suggest the need to question this technology-optimistic imaginary.

A critical analysis of crowdsourcing for public governance prototyped and piloted in some European cities makes it evident that at local level, alternative imaginaries are emerging. We describe them in this paper as the “receptive city” (often adopted by public institutions and administration), and the “do-it-yourself city” (referring to the critical perspective of (digital) social activists) imaginaries, both emerging from local-based experiences and debates; and clarify their convergence and divergence how these differs from the above-mentioned “hyperconnected city” imaginary prefigured by EC guidelines.

The conclusive section further expands the analysis prefiguring future research possibilities promises in terms of local experiences influencing the future internet for society and digital agenda for Europe….(More)”.

Incentive Competitions and the Challenge of Space Exploration


Article by Matthew S. Williams: “Bill Joy, the famed computer engineer who co-founded Sun Microsystems in 1982, once said, “No matter who you are, most of the smartest people work for someone else.” This has come to be known as “Joy’s Law” and is one of the inspirations for concepts such as “crowdsourcing”.

Increasingly, government agencies, research institutions, and private companies are looking to the power of the crowd to find solutions to problems. Challenges are created and prizes offered – that, in basic terms, is an “incentive competition.”

The basic idea of an incentive competition is pretty straightforward. When confronted with a particularly daunting problem, you appeal to the general public to provide possible solutions and offer a reward for the best one. Sounds simple, doesn’t it?

But in fact, this concept flies in the face of conventional problem-solving, which is for companies to recruit people with knowledge and expertise and solve all problems in-house. This kind of thinking underlies most of our government and business models, but has some significant limitations….

Another benefit to crowdsourcing is the way it takes advantage of the exponential growth in human population in the past few centuries. Between 1650 and 1800, the global population doubled, to reach about 1 billion. It took another one-hundred and twenty years (1927) before it doubled again to reach 2 billion.

However, it only took fifty-seven years for the population to double again and reach 4 billion (1974), and just fifteen more for it to reach 6 billion. As of 2020, the global population has reached 7.8 billion, and the growth trend is expected to continue for some time.

This growth has paralleled another trend, the rapid development of new ideas in science and technology. Between 1650 and 2020, humanity has experienced multiple technological revolutions, in what is a comparatively very short space of time….(More)”.

The Role of Crowdsourcing in the Healthcare Industry


Chapter by Kabir C. Sen: “The twenty first century has seen the advent of technical advances in storage, transmission and analysis of information. This has had a profound impact on the field of medicine. However, notwithstanding these advances, various obstacles remain in the world regarding the improvement of human lives through the provision of better health care. The obstacles emanate from the demand (i.e., the problem) as well as the supply (i.e., the solution) side. In some cases, the nature of the problems might not have been correctly identified. In others, a solution to a problem could be known only to a small niche of the global population. Thus, from the demand perspective, the variety of health care issues can range from the quest for a cure for a rare illness to the inability to successfully implement verifiable preventive measures for a disease that affects pockets of the global population. Alternatively, from the supply perspective, the approach to a host of health issues might vary because of fundamental differences in both medical philosophies and organizational policies.

In many instances, effective solutions to health care problems are lacking because of inadequate global knowledge about the particular disease. Alternatively, in other cases, a solution might exist but the relevant knowledge about it might only be available to selected pockets of the global medical community. Sometimes, the barriers to the transfer of knowledge might have their root causes in ignorance or prejudice about the initiator of the cure or solution. However, the advent of information technology has now provided an opportunity for individuals located at different geographical locations to collaborate on solutions to various problems. These crowdsourcing projects now have the potential to extract the “wisdom of crowds” for tackling problems which previously could not be solved by a group of experts (Surowiecki, 2014). Anecdotal evidence suggests that crowdsourcing has achieved some success in providing solutions for a rare medical disease (Arnold, 2014). This chapter discusses crowdsourcing’s potential to solve medical problems by designing a framework to evaluate its promises and suggest recommended future paths of actions….(More)”.

Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations


Paper by Mark A. Rothstein et al: “Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of researchers. Independent researchers, citizen scientists, patient-directed researchers, self-experimenters, and others are not covered by federal research regulations because they are not recipients of federal financial assistance or conducting research in anticipation of a submission to the FDA for approval of a new drug or medical device. This article addresses the difficult policy challenge of promoting the welfare and interests of research participants, as well as the public, in the absence of regulatory requirements and without discouraging independent, innovative scientific inquiry. The article recommends a series of measures, including education, consultation, transparency, self-governance, and regulation to strike the appropriate balance….(More)”.