Washington Post: “The White House launched the We The People petition site in 2011 as a way for Americans to get their government to respond to their calls for action. On the digital platform, people can create and sign petitions seeking specific action on an issue from the federal government. In theory, once a petition has garnered a certain number of signatures within a certain time frame, it is reviewed by White House staff and receives an official response.
But that’s not always what happens.
Now a new site, www.whpetitions.info, takes its own tally and highlights petitions that have received enough signatures but have not received responses. By its count, the White House has responded to 87 percent of petitions that have met their signature thresholds with an average response time of 61 days. But the average waiting time so far for the 30 unanswered petitions is 240 days. And six of them have been waiting for over a year.”
Behold: A Digital Bill of Rights for the Internet, by the Internet
Mashable: “The digital rights conversation was thrust into the mainstream spotlight after news of ongoing, widespread mass surveillance programs leaked to the public. Always a hot topic, these revelations sparked a strong online debate among the Internet community.
It also made us here at Mashable reflect on the digital freedoms and protections we feel each user should be guaranteed as a citizen of the Internet. To highlight some of the great conversations taking place about digital rights online, we asked the digital community to collaborate with us on the creation of a crowdsourced Digital Bill of Rights.
After six weeks of public discussions, document updates and changes, as well as incorporating input from digital rights experts, Mashable is pleased to unveil its first-ever Digital Bill of Rights, made for the Internet, by the Internet.”
Data is Inert — It’s What You Do With It That Counts
Kevin Merritt, CEO and Founder, Socrata, in NextGov: “In its infancy, the open data movement was mostly about offering catalogs of government data online that concerned citizens and civic activists could download. But now, a wide variety of external stakeholders are using open data to deliver new applications and services. At the same time, governments themselves are harnessing open data to drive better decision-making.
In a relatively short period of time, open data has evolved from serving as fodder for data publishing to fuel for open innovation.
One of the keys to making this transformation truly work, however, is our ability to re-instrument or re-tool underlying business systems and processes so managers can receive open data in consumable forms on a regular, continuous basis in real-time….”
Social Influence Bias: A Randomized Experiment
New paper in Science: “Our society is increasingly relying on the digitized, aggregated opinions of others to make decisions. We therefore designed and analyzed a large-scale randomized experiment on a social news aggregation Web site to investigate whether knowledge of such aggregates distorts decision-making. Prior ratings created significant bias in individual rating behavior, and positive and negative social influences created asymmetric herding effects. Whereas negative social influence inspired users to correct manipulated ratings, positive social influence increased the likelihood of positive ratings by 32% and created accumulating positive herding that increased final ratings by 25% on average. This positive herding was topic-dependent and affected by whether individuals were viewing the opinions of friends or enemies. A mixture of changing opinion and greater turnout under both manipulations together with a natural tendency to up-vote on the site combined to create the herding effects. Such findings will help interpret collective judgment accurately and avoid social influence bias in collective intelligence in the future.”
See also: ‘Like’ This Article Online? Your Friends Will Probably Approve, Too, Scientists Say
A Videogame That Recruits Players to Map the Brain
Wired: “I’m no neuroscientist, and yet, here I am at my computer attempting to reconstruct a neural circuit of a mouse’s retina. It’s not quite as difficult and definitely not as boring as it sounds. In fact, it’s actually pretty fun, which is a good thing considering I’m playing a videogame.
Called EyeWire, the browser-based game asks players to map the connections between retinal neurons by coloring in 3-D slices of the brain. Much like any other game out there, being good at EyeWire earns you points, but the difference is that the data you produce during gameplay doesn’t just get you on a leader board—it’s actually used by scientists to build a better picture of the human brain.
Created by neuroscientist Sebastian Seung’s lab at MIT, EyeWire basically gamifies the professional research Seung and his collaborators do on a daily basis. Seung is studying the connectome, the hyper-complex tangle of connections among neurons in the brain.”
Big data, crowdsourcing and machine learning tackle Parkinson’s
Successful Workingplace: “Parkinson’s is a very tough disease to fight. People suffering from the disease often have significant tremors that keep them from being able to create accurate records of their daily challenges. Without this information, doctors are unable to fine tune drug dosages and other treatment regimens that can significantly improve the lives of sufferers.
It was a perfect catch-22 situation until recently, when the Michael J. Fox Foundation announced that LIONsolver, a company specializing in machine learning software, was able to differentiate Parkinson’s patients from healthy individuals and to also show the trend in symptoms of the disease over time.…
To set up the competition, the Foundation worked with Kaggle, an organization that specializes in crowdsourced big data analysis competitions. The use of crowdsourcing as a way to get to the heart of very difficult Big Data problems works by allowing people the world over from a myriad of backgrounds and with diverse experiences to devote time on personally chosen challenges where they can bring the most value. It’s a genius idea for bringing some of the scarcest resources together with the most intractable problems.”
Can We Build A Kickstarter For Cancer?
Paul Howard in Forbes: “tarting you own band, writing your first novel, or re-publishing your favorite ‘80s tabletop RPG are all cool goals. You can do them all on Kickstarter. What would be cooler?
How about funding a virtual biotech company with one goal: Saving or extending the life of a cancer patient who doesn’t respond to “standard of care” treatments….
The Cancer Commons approach – a distributed framework for empowering patients and learning from every patient/treatment combination – breaks down traditional distinctions between clinical trials and patient treatment in the “real world.” Instead of developing treatments in a lab and then testing them on randomized patients in clinical trials (designed to benefit future patients), researchers would apply the latest scientific knowledge and tools to help each patient achieve the best possible outcome today based on what we know – or think we can predict – about a molecular subtype of cancer….
We’ll need more than money to power a Kickstarter-for-cancer movement. We’ll need to encourage companies – from Big Pharma to “small” biotechs – to participate in distributed, Bayesian trials where new biomarkers or combinations of biomarkers are tested in patients with particular molecular profiles. And the FDA is going to have to be convinced that the system is going to generate high quality data that benefits patients, not sell them snake-oil cures.
In return for companies making their compound libraries and experimental drugs available for the “virtual biotechs” launched by cancer patients and their families, there should be a regulatory path established to take the most promising drugs and drug combinations to market.”
How to do scientific research without even trying (much)
Ars Technica: “To some extent, scientific research requires expensive or specialized equipment—some work just requires a particle accelerator or a virus containment facility. But plenty of other research has very simple requirements: a decent camera, a bit of patience, or being in the right place at the right time. Since that sort of work is open to anyone, getting the public involved can be a huge win for scientists, who can then obtain much more information than they could have gathered on their own.
A group of Spanish researchers has now written an article that is a mixture of praise for this sort of citizen science, a resource list for people hoping to get involved, and a how-to guide for anyone inspired to join in. The researchers focus on their own area of interest—insects, specifically the hemiptera or “true bugs”—but a lot of what they say applies to other areas of research.
…
The paper also lists a variety of regional-specific sites that focus on insect identification and tracking, such as ones for the UK, Belgium, and Slovenia. But a dedicated system isn’t required for this sort of resource. In the researchers’ home base on the Iberian Peninsula, insects are tracked via a Flickr group. (If you’re interested in insect research and based in the US, you can also find dozens of projects at the SciStarter site.) We’ve uploaded some of the most amazing images into a gallery that accompanies this article.
ZooKeys, 2013. DOI: 10.3897/zookeys.319.4342 “
The Power of Hackathons
Woodrow Wilson International Center for Scholars: “The Commons Lab of the Science and Technology Innovation Program is proud to announce the release of The Power of Hackathons: A Roadmap for Sustainable Open Innovation. Hackathons are collaborative events that have long been part of programmer culture, where people gather in person, online or both to work together on a problem. This could involve creating an application, improving an existing one or testing a platform.
In recent years, government agencies at multiple levels have started holding hackathon events of their own. For this brief, author Zachary Bastian interviewed agency staff, hackathon planners and hackathon participants to better understand how these events can be structured. The fundamental lesson was that a hackathon is not a panacea, but instead should be part of a broader open data and innovation centric strategy.
The full brief can be found here”
The Charitable-Industrial Complex
Peter Buffett in the New York Times: “It’s time for a new operating system. Not a 2.0 or a 3.0, but something built from the ground up. New code.
What we have is a crisis of imagination. Albert Einstein said that you cannot solve a problem with the same mind-set that created it. Foundation dollars should be the best “risk capital” out there.
There are people working hard at showing examples of other ways to live in a functioning society that truly creates greater prosperity for all (and I don’t mean more people getting to have more stuff).
Money should be spent trying out concepts that shatter current structures and systems that have turned much of the world into one vast market. Is progress really Wi-Fi on every street corner? No. It’s when no 13-year-old girl on the planet gets sold for sex. But as long as most folks are patting themselves on the back for charitable acts, we’ve got a perpetual poverty machine.
It’s an old story; we really need a new one.”