Paper by Alberto Alemanno: “Petitioning represents the oldest, most accessible, permanent and general-purpose participatory mechanism for any individual who intends to enter into contact with the EU institutional apparatus. As such, the right to petition provides EU citizens and residents with a simple means of contacting the European institutions with complaints or requests for action in relation to “orphan” or “dormant” issues that fail to get the attention and action of other European Parliament committees or EU institutions, in particular concerning problems related to the application of EU law at the national and local level. The right to petition plays different and complementary functions, from administrative and political oversight over the EU Commission and the Member States to legislative agenda-setting, while offering a unique mechanism of representation for individuals and minorities – such as non-EU citizens, migrants and minors – who currently lack such representation. There are, however, still some major structural issues over effectively ensuring the exercise of the right to petition and the full realisation of its multiple democratic functions within the current EU participatory infrastructure. It does so at time the EU undergoes a major democratic exercise – the Conference on the Future of Europe – that, for the first time since 2007, may lead to institutional reform and put to test democratic innovations, such as citizens’ assemblies at the transnational level. Against this background, this study identifies and systematises the EU petition system’s major flaws – focusing on its design, accountability and actual practice – in order to provide a set of recommendations on how to strengthen the role and impact of the right of petition as the privileged instrument of EU participatory democracy…(More)”.
An ad hoc army of volunteers assembles to help Ukrainian refugees
Eric Westervelt at NPR: “Russia’s invasion of Ukraine has sparked the fastest-growing refugee crisis in Europe since World War II as the U.N. refugee agency says more than 1.5 million Ukrainians have fled their homeland in just the first 12 days of fighting.
The bulk of the refugees — more than 1 million — have left Ukraine through one of eight border crossings in Poland. At more than 20 reception centers along the Polish border, NGOs, charities and the U.N. refugee agency are being aided by an ad hoc army of volunteers from Poland and across Europe who are playing a vital support role serving food, directing donations and helping to drive refugees to friends and family across the continent.
“This is not job for me. If I can help, I can help,” says Krstaps Naymanes, a deliveryman from Liepaja, Latvia, who hit pause on his day job to aid Ukrainians. With friends and a charity, he helped organize cars, RVs and a large bus to take refugees anywhere in Latvia, where others on the ground there are ready to help.”We have flats, houses, food, everything,” he says. “Don’t charge, like, money for this. Peoples want help, and can help. This time need to do! That’s it.”…(More)”.
Crowdsourcing and COVID-19: How public administrations mobilize crowds to find solutions to problems posed by the pandemic
Paper by Ana Colovic, Annalisa Caloffi, and Federica Rossi: “We discuss how public administrations have used crowdsourcing to find solutions to specific problems posed by the COVID-19 pandemic, and to what extent crowdsourcing has been instrumental in promoting open innovation and service co-creation. We propose a conceptual typology of crowdsourcing challenges based on the degree of their openness and collaboration with the crowd that they establish. Using empirical evidence collected in 2020 and 2021, we examine the extent to which these types have been used in practice. We discuss each type of crowdsourcing challenge identified and draw implications for public policy…(More)”.
“Medical Matchmaking” provides personalized insights
Matthew Hempstead at Springwise: “Humanity is a collection of unique individuals who represent a complex mixture of medical realities. Yet traditional medicine is based on a ‘law of averages’ – treating patients based on generalisations about the population as a whole. This law of averages can be misleading, and in a world where the average American spends 52 hours looking for health information online each year, generalisations create misunderstandings. Information provided by ‘Dr. Google’ or Facebook is inadequate and doesn’t account for the specific characteristics of each individual.
Israeli startup Alike has come up with a novel multidisciplinary solution to this problem – using health data and machine learning to match people who are alike on a holistic level. The AI’s matchmaking takes into account considerations such as co-morbidities, lifestyle factors, age, and gender.
Patients are then put into contact with an anonymised community of ‘Alikes’ – people who share their exact clinical journey, lifestyle, and interests. Members of this community can share or receive relevant and personalised insights that help them to better manage their conditions.
The new technology is possible due to regulatory changes that make it possible for everyone to gain instant electronic access to their personal health records. The app allows users to automatically create a health profile through a direct connection with their health provider.
Given the sensitive nature of medical information, Alike has put in place stringent privacy controls. The data shared on the app is completely de-identified, which means all personal identifiers are removed. Every user is verified by their healthcare provider, and further measures including data encryption and data fuzzing are employed. This means that patients can benefit from the insights of other patients while maintaining their privacy…(More)”.
Repeat photos show change in southern African landscapes: a citizen science project
Paper by Timm Hoffman and Hana Petersen: “Every place in the world has a history. To understand it in the present you need some knowledge of its past. The history of the earth can be read from its rocks; the history of life, from the evolutionary histories and relationships of its species. But what of the history of modern landscapes and the many benefits we derive from them, such as water and food? What are their histories – and how are they shifting in response to the intense pressures they face from climate change and from people?
Historical landscape photographs provide one way of measuring this. They capture the way things were at a moment in time. By standing at the same place and re-photographing the same scene, it is possible to document the nature of change. Sometimes researchers can even measure the extent and rate of change for different elements in the landscape.
Reasons for the change can also sometimes be observed from this and other historical information, such as the climate or fire record. All of these data can then be related to what has been written about environmental change using other approaches and models. Researchers can ascertain whether the environment has reached a critical threshold and consider how to respond to the changes.
This is what repeat photography is all about…
The rePhotoSA project was launched in August 2015. The idea is to involve interested members of the public in re-photographing historical locations. This has two benefits. First, participants add to the number of repeated images. Second, public awareness of landscape change is raised.
The project website has over 6,000 historical images from ten primary photographic collections of southern African landscapes, dating from the late 1800s to the early 2000s. The geographic spread of the photographs is influenced largely by the interests of the original photographers. Often these photographs are donated to the project by family members, or institutions to which the original photographers belonged – and sometimes by the photographers themselves….(More)
User-Centric Services Repository
Repository by UserCentriCities: “…Including world-class innovative services such as Rotterdam’s Digitale Balie, a digital counter for public-service delivery through video calling; Madrid’s Madrid Te Acompaña, a mobile application for the elderly to find accompanying volunteers; Tallinn’s AvaLinn mobile application where citizens give feedback on city development plans; Milano Partecipa, Milan’s citizen participation platform, the User-Centric Services Repository will serve as a place for inspiration, knowledge-exchange and for highlighting genuinely user-centric digital services in Europe….(More)”.
Tracking symptoms of respiratory diseases online can give a picture of community health
Article by Mvuyo Makhasi, Cheryl Cohen and Sibongile Walaza: “Participatory surveillance has not yet been implemented in African countries. There has only ever been one pilot study, in Tanzania. In 2016, a pilot study of a mobile app called AfyaData was implemented for participatory surveillance in Tanzania. The aim was to establish a platform where members of the community could report any symptoms they encountered. Based on the clinical data provided these would be grouped into categories of diseases. In the pilot study most of the reported cases were related to the digestive system. The second most frequently reported cases were related to the respiratory system. This demonstrated the potential of obtaining close to real-time data on diseases directly from the community….
Participatory surveillance is in place in 11 European countries that form part of the InfluenzaNet network. Here it’s been shown to address some of the limitations of traditional facility-based systems. For example, it can detect the start of the flu season up to two weeks earlier than traditional facility-based surveillance. This allows public health officials to plan and respond earlier to seasonal outbreaks.
Self-reporting systems provide similar and complementary data to facility-based surveillance. They show:
- variations over time in cases of acute respiratory tract infection
- time to peak of incidence of acute cases
- the peak intensity of acute cases
- a comparison between participatory and facility-based surveillance trends.
The same analysis can now be done for COVID-19 cases, which were previously not included in participatory surveillance platforms.
The systems enable analysis of health-seeking behaviour in people who don’t see a doctor or nurse. For example, people may use home-based remedies, search for guidelines on the internet or consult traditional healers. Health-seeking surveys are often conducted in research studies for a defined period of time, but data is not routinely collected. Participatory surveillance is a longitudinal and systematic way of collecting information about health-seeking behaviour related to respiratory diseases.
Vaccine effectiveness estimates can also be determined through participatory surveillance data. This includes vaccine coverage for seasonal influenza and COVID-19 and information on how these vaccines perform in preventing illness. These data can be compared with vaccine effectiveness estimates from facility-based surveillance…(More)”.
Amateur open-source researchers went viral unpacking the war in Ukraine
Article by Meaghan Tobin: “Under the pseudonym Intel Crab, University of Alabama sophomore Justin Peden has become an unlikely source of information about the unfolding Ukraine-Russia war. From his dorm room, the 20-year-old sifts through satellite images, TikTok videos, and security feeds, sharing findings like troop movements and aircraft models with more than 220,000 followers on Twitter. Peden said that his posts have reached 20 million people and his follower count has increased by over 50,000 people over the past month, according to his Twitter analytics.
Today, Peden is one of the most prominent open-source intelligence (OSINT) figures on Twitter.
According to analysts, OSINT researchers have existed on the fringes of conflicts since at least 2014, working collaboratively across the world to comb through freely available resources like Google Maps and the satellite imagery service Maxar Technologies. They publicly conduct the type of work that intelligence agencies do behind closed doors.
As Russia continues its invasion of Ukraine, amateur OSINT researchers have gained a particular mainstream traction. Specialized social media accounts on Twitter, like Intel Crab, Calibre Obscura, and Aurora Intel, have transfixed an information-hungry public with an analysis of key movements in Russia’s invasion, using newly available technologies to provide real-time analysis of key activities, like the supposed withdrawal of Russian troops along the Ukrainian border or the 40-mile Russian convoy outside of Ukraine’s capital, Kyiv….(More)”.
Archivists Make Sure the Internet Doesn’t Forget Russia’s War on Ukraine
Karl Bode at VICE: “As the Russian invasion of Ukraine accelerates, professional and hobbyist archivists alike are rushing to preserve Ukraine’s online history, cataloging and storing everything from Ukrainian government and university websites, to the torrent of news and social media posts related to the accelerating conflict.
The Internet Archive has been archiving the broader conflict in Ukraine since 2014. But as Ukraine government websites face prolonged outages due to sustained cyber attack—as well as the looming risk of defacement or deletion—the organization has taken on another monumental task: backing up the entirety of the Ukrainian Internet.
Using the crowdsourced auto-archiving software running on a virtual machine they’ve dubbed Archive Team Warrior, the organization has leveraged volunteers around the world, many of whom have donated countless terabytes of storage capacity for the project. These volunteers have been steadily backing up the Ukrainian Internet since before the war began.
All told, 68 million items (web pages, documents, and other files) comprising more than 2.5 TB of data have already been hoovered up from various websites across the .ua top level Ukrainian domain. A second project dubbed Ukr-net aims to preserve tens of millions of additional items and terabytes of additional data across the Ukrainian Internet.
Elsewhere, organizations like the Center For Information Resilience have built a crowdsourced map attempting to document every single war-related post to social media made in the region, ranging from civilian photos of the movement of heavy Russian weaponry, to Ukranian government claims of alleged bombing raids on kindergardens…(More)”.
Can Ukraine’s Experiments in Local Democracy Survive the Invasion?
Joe Mathews at Zocolo: “As I write this, Russian troops reportedly are moving north through the Odesa oblast, or region, toward the river Kodyma, along which sits a town called Balta.
This is not new territory for Balta, which like much of Ukraine has been contested over centuries of wars. But in recent years, Balta has actually broken a lot of new ground, at least when it comes to the practice of citizen-centered democracy. In 2016, Balta adopted participatory budgeting, an innovative process—originated in Brazil—in which citizens rather than officials determine their local budget. Balta also gave its young people their own governing council and a decision-making process to influence local policies.
Democracy, in its essence, is everyday people governing themselves. Such self-government happens most often at the local level, which is why countries tend to get more democratic when they decentralize.
Since the 2014 Maidan revolution, Ukraine has been among the more rapidly decentralizing, and democratizing, countries on Earth….
In a politically divided Ukraine, this devolution of local power had support across the spectrum, for a couple reasons.
The first was positive and driven by economics. Putting more money and power in localities was seen as the best bet for addressing poverty and inequality, and developing Ukraine in a balanced way that would make it a better fit with the rest of Europe, which has strong local governments. Since the 2014 Maidan revolution, Ukraine has been among the more rapidly decentralizing, and democratizing, countries on Earth.
The second reason, however, was defensive: the threat of separatism. In a country the size of Texas, greater local control was seen as the best way to placate localities and regions that might think of leaving—especially Donetsk and Luhansk, two Russian-speaking Ukrainian oblasts where Russia would make incursions (and which Putin would declare “independent” as a pretext for his new invasion).
“The path of decentralization was an asymmetrical response to the aggressor,” said Andriy Parubiy, a former speaker of Ukraine’s parliament, in 2017. “The process of the formation of capable communities was a kind of sewing of the Ukrainian space.”
Many of these newly empowered Ukrainian local governments have seized the opportunity, and not just for economic development. Municipalities have embraced political reforms—adopting ethics codes, making their records and decision-making transparent, establishing citizen-directed processes like participatory budgeting, and adding new guarantees for representation and participation of women, men, and underrepresented groups in local politics.
Just this past December, two Ukrainian cities, Khmelnytskyi and Vinnytsia, finished first and third, respectively, in a global contest for innovation in government transparency. Mariupol, a city in the southeast reportedly under siege by the Russian military, has won international praise for its model of sharing governance power with local organizations….(More)”.