Come to Finland if you want to glimpse the future of health data!


Jukka Vahti at Sitra: “The Finnish tradition of establishing, maintaining and developing data registers goes back to the 1600s, when parish records were first kept.

When this old custom is combined with the opportunities afforded by digitisation, the positive approach Finns have towards research and technology, and the recently updated legislation enabling the data economy, Finland and the Finnish people can lead the way as Europe gradually, or even suddenly, switches to a fair data economy.

The foundations for a fair data economy already exist

The fair data economy is a natural continuation of the former projects promoting e-services that were undertaken in Finland.

For example, the Data Exchange Layer is already speeding up the transfer of data from one system to another in Finland and in Estonia, the country where the system originated, and a system unique to just these two countries.

In May 2019 Finland also saw the entry into force of the Act on the Secondary Use of Health and Social Data, according to which the information on social welfare and healthcare held in registers may be used for purposes of statistics, research, education, knowledge management, control and supervision conducted by authorities, and development and innovation activity.

The new law will make the work of researchers and service developers more effective, as the business of acquiring a permit will take place through a one-stop-shop principle and it will be possible to use data from more than one source more readily than before….(More)”.

The 100 Questions Initiative: Sourcing 100 questions on key societal challenges that can be answered by data insights


100Q Screenshot

Press Release: “The Governance Lab at the NYU Tandon School of Engineering announced the launch of the 100 Questions Initiative — an effort to identify the most important societal questions whose answers can be found in data and data science if the power of data collaboratives is harnessed.

The initiative, launched with initial support from Schmidt Futures, seeks to address challenges on numerous topics, including migration, climate change, poverty, and the future of work.

For each of these areas and more, the initiative will seek to identify questions that could help unlock the potential of data and data science with the broader goal of fostering positive social, environmental, and economic transformation. These questions will be sourced by leveraging “bilinguals” — practitioners across disciplines from all over the world who possess both domain knowledge and data science expertise.

The 100 Questions Initiative starts by identifying 10 key questions related to migration. These include questions related to the geographies of migration, migrant well-being, enforcement and security, and the vulnerabilities of displaced people. This inaugural effort involves partnerships with the International Organization for Migration (IOM) and the European Commission, both of which will provide subject-matter expertise and facilitation support within the framework of the Big Data for Migration Alliance (BD4M).

“While there have been tremendous efforts to gather and analyze data relevant to many of the world’s most pressing challenges, as a society, we have not taken the time to ensure we’re asking the right questions to unlock the true potential of data to help address these challenges,” said Stefaan Verhulst, co-founder and chief research and development officer of The GovLab. “Unlike other efforts focused on data supply or data science expertise, this project seeks to radically improve the set of questions that, if answered, could transform the way we solve 21st century problems.”

In addition to identifying key questions, the 100 Questions Initiative will also focus on creating new data collaboratives. Data collaboratives are an emerging form of public-private partnership that help unlock the public interest value of previously siloed data. The GovLab has conducted significant research in the value of data collaboration, identifying that inter-sectoral collaboration can both increase access to information (e.g., the vast stores of data held by private companies) as well as unleash the potential of that information to serve the public good….(More)”.

So­cial me­dia data re­veal where vis­it­ors to nature loca­tions provide po­ten­tial be­ne­fits or threats to biodiversity


University of Helsinki: “In a new article published in the journal Science of the Total Environment, a team of researchers assessed global patterns of visitation rates, attractiveness and pressure to more than 12,000 Important Bird and Biodiversity Areas (IBAs), which are sites of international significance for nature conservation, by using geolocated data mined from social media (Twitter and Flickr).

The study found that Important Bird and Biodiversity Areas located in Europe and Asia, and in temperate biomes, had the highest density of social media users. Results also showed that sites of importance for congregatory species, which were also more accessible, more densely populated and provided more tourism facilities, received higher visitation than did sites richer in bird species.

 “Resources in biodiversity conservation are woefully inadequate and novel data sources from social media provide openly available user-generated information about human-nature interactions, at an unprecedented spatio-temporal scale”, says Dr Anna Hausmann from the University of Helsinki, a conservation scientist leading the study. “Our group has been exploring and validating data retrieved from social media to understand people´s preferences for experiencing nature in national parks at a local, national and continental scale”, she continues, “in this study, we expand our analyses at a global level”. …

“Social media content and metadata contain useful information for understanding human-nature interactions in space and time”, says Prof. Tuuli Toivonen, another co-author in the paper and the leader of the Digital Geography Lab at the University of Helsinki. “Social media data can also be used to cross-validate and enrich data collected by conservation organizations”, she continues. The study found that the 17 percent of all Important Bird and Biodiversity Areas (IBA) that were assessed by experts to be under greater human disturbance also had higher density of social media users….(More)”.

New platforms for public imagination


Kathy Peach at NESTA: “….The practice of thinking about the future is currently dominated by a small group of academics, consultants, government foresight teams, and large organisations. The ability to influence the future has been cornered by powerful special interests and new tech monopolies who shape our views of what is possible. While the entrepreneurs, scientists and tech developers building the future are not much more diverse. Overall, the future is dominated by privileged white men.

Democratising futures means creating new capacity among many more diverse people to explore and articulate their alternative and desirable visions of the future. It must create hope – enabling people to co-diagnose the issues and opportunities, build common ground and collectively imagine preferred futures. Investment, policy and collective civic action should then be aligned to help deliver these common visions. This is anticipatory democracy, not the extractive surveying of needs and wants against a narrow prescribed set of options that characterises many ‘public engagement’ exercises. Too often these are little more than PR activities conducted relatively late in the decision-making process.

Participatory futures

The participation of citizens in futures exercises is not new. From Hawaii in the 1970s to Newcastle more recently, cities, regions and small nations have at times explored these methods as a way of deepening civic engagement. But this approach has so far failed to achieve mainstream adoption.

The zeitgeist, however, may be changing. Political paralysis has led to growing calls for citizens assemblies on climate change and resolving the Brexit deadlock – demonstrating increasing enthusiasm for involving citizens in complex deliberations. The appointment of the world’s first Commissioner for Future Generations in Wales and its People’s Platform, as well as the establishment of the UK’s all-party parliamentary group on future generations are also signals of democracies grappling to find ways of bringing long-term thinking and people back into political decision-making.

And while interest in mini-publics such as citizens’ assemblies has grown, there has been a much broader expansion of participatory methods for thinking about the future….

Anecdotal evidence from participatory futures exercises suggests they can lead to significantchange for communities. But rigorous or longitudinal evaluations of these approaches are relatively few, so the evidence base is sketchy. The reasons for this are not clear. Perhaps it is the eclecticism of the field, the lack of clarity on how to evaluate these methods, or the belief of its supporters that the impact is self-evidentiary.

As part of our new research agenda into participatory futures, we want to address this challenge. We hope to identify how newer and more traditional futures methods can practically be combined to greatest effect. We want to understand the impact on the individuals and groups involved, as well as on the wider community. We want to know whether platforms for public imagination can help nurture more of the things we need: more inclusive economies and innovation, healthier community relationships, greater personal agency for individuals, and more effective civic society.

We know many local authorities, public and civil society institutions are recognising the need to reimagine their roles and their services, and recast their relationships with citizens for our changing world….(More)”.

What can we learn from billions of food purchases derived from fidelity cards?


Daniele Quercia at Medium: “By combining 1.6B food item purchases with 1.1B medical prescriptions for the entire city of London for one year, we discovered that, to predict health outcomes, socio-economic conditions matter less than what previous research has shown: despite being of lower-income, certain areas are healthy, and that is because of what their residents eat!

This result comes from our latest project “Poor but Healthy”, which was published in the Springer European Physical Journal (EPJ) of Data Science this month, and comes with a @tobi_vierzwo’s stunningly beautiful map of London I invite all of you to explore.

Why are we interested in urban health? In our cities, food is cheap and exercise discretionary, and health takes its toll. Half of European citizens will be obese by 2050, and obesity and its diseases are likely to reach crisis proportions. In this project, we set out to show that fidelity cards of grocery stores represent a treasure trove of health data — they can be used not only to (e)mail discount coupons to customers but also to effectively track a neighbourhood’s health in real-time for an entire city or even an entire country.

In research circles, the impact of eating habits on people’s health has mostly been studied using dietary surveys, which are costly and of limited scale.

To complement these surveys, we have recently resorted to grocery fidelity cards. We analyzed the anonymized records of 1.6B grocery items purchased by 1.6M grocery store customers in London over one whole year, and combined them with 1.1B medical prescriptions.

In so doing, we found that, as one expects, the “trick” to not being associated with chronic diseases is eating less what we instinctively like (e.g., sugar, carbohydrates), balancing all the nutrients, and avoiding the (big) quantities that are readily available. These results come as no surprise yet speak to the validity of using fidelity cards to capture health outcomes…(More)”.


Microsoft’s Open Notre Dame initiative calls for sharing of open data in restoration effort


Hamza Jawad at Neowin: “On April 15, a disastrous fire ravaged the famous Notre-Dame cathedral in France. In the wake of the episode, tech companies, such as Apple, announced that they would be donating to help in rebuilding efforts. On the other hand, some companies, like Ubisoft, took a different approach to support the restorations that followed.

A few days ago, Microsoft and Iconem announced the “Open Notre Dame” initiative to contribute towards the restoration of the ‘Lady of Paris’. The open data project is said to help gather and analyze existing documents on the monument, while simultaneously producing and sharing its 3D models. Today, the company has once again detailed the workings of this initiative, along with a call for the sharing of open data to help quicken the restoration efforts….

GitHub will host temporal models of the building, which can then be easily shared to and accessed by various other initiatives in a concerted effort to maintain accuracy as much as possible. Many companies, including Ubisoft, have already provided data that will help form the foundation for these open source models. More details regarding the project can be obtained on the original blog post….(More)”.

Government support is a key factor for civic technology


Blog Post by Rebecca Rumbul: “Civic tech is on a huge growth curve. There is much more of it about now than there was ten years ago. At the same time, it is changing the scope and reach, and becoming much more mainstream. Ten years ago civic tech was hardly spoken about by anyone. It was largely the domain of ‘outsiders’, by which I mean campaigners and data specialists working outside the mainstream. Today civic tech is an accepted, respected and widely used form of engaging citizens.

The movement over that ten years has mostly been gradual, but over the last couple of years, there has been a really significant shift in how civic tech is viewed both by those within and outside the sector. A wider range of funders are more interested in supporting projects, government seems to have woken up to how civic tech can really be a spur to public engagement, and the word is getting out there to people on the street. Quite literally. At mySociety our FixMyStreet app now garners in the region of six thousand citizen reports of things like potholes and fly-tipping every week.

This maturing of attitudes towards and use of civic tech is wonderful to see. Those pioneers who saw a problem wrote a bit of code and put it online as a way of immediately finding a way to fix the problem have seen their often locally focused efforts contribute to the growth of a global phenomenon in a really short space of time.  And we are in a process here. There is no doubt that civic tech continues to grow and continues to make an impact way beyond its humble beginnings.

But the way civic tech develops is not uniform around the world, and it does need a number of circumstances to converge to make it really sing. That coming together of citizen awareness, government buy-in and funding support is crucial to its success. And there are other important factors too.

We’ve been researching the impact of civic tech around the world, and one of the most interesting things we’ve learned is that the movement is working with institutions much more today than it did five or ten years ago…(More)“.

Living Labs As A Collaborative Framework For Changing Perceptions And Goals


Co-Val: “In the…Report on cross-country comparison on existing innovation and living labsLars Fuglsang and Anne Vorre Hansen from Roskilde University describe various applications of living labs to decision-making. The basic two examples are living labs as a collaborative framework for changing perceptions and goals and living labs as an ecosystem for policy innovation.

Living labs can involve a change in mindset and goals as expressed in one paper on public sector innovation labs (Carstensen & Bason, 2012). Carstensen and Bason (2012) report the important story of the Danish Mindlab (2002-2018) – a cross-governmental innovation lab involving public sector organisations, citizens and businesses in creating new solutions for society. They argue that innovation labs are designed to foster collaboration since labs are platforms where multiple stakeholders can engage in interaction, dialogue, and development activities.  Innovation needs a different approach than everyday activities and a change in mindset and culture shift of employees towards thinking more systematically about innovation. Mindlab’s methodologies are anchored in design thinking, qualitative research and policy development, with the aim of capturing the subjective reality experienced by both citizens and businesses in the development of new solutions. Carstensen and Bason (2012) list the following key principles of Mindlab: take charge of on-going renewal, maintain top management backing, create professional empathy, insist on collaboration, do – don’t just think, recruit and develop likeable people, don’t be too big, communicate.

Also, Buhr et al. (2016) show how living labs can be important for developing and implementing collective goals and creating new opportunities for citizens to influence public affairs. They describe two cases in two suburban areas (located in Sweden and Finland), where the living lab approach was used to improve the feeling of belonging in a community. In one of the two suburbs studied, a living lab approach was used to change the lightning on a pathway that seemed unsafe; and in the other case, a living lab approach was used to strengthen the social community by renovating a kiosk and organizing varied activities for the citizens. Both living labs motivated the residents to work on societal goals for sustainability and choose solutions. The study indicates that a living lab approach can be used for gaining support for change and thereby increasing the citizens’ appreciation of a local area. Further, living labs may give citizens a feeling that they are being listened to. Living labs can thus create opportunities for citizens to develop the city together with municipal policy-makers and other stakeholders and enable policy-makers to respond to the expressed needs of the citizens….(More)”

Collab: A new digital tool for community participation


Sidewalk Labs: “The long-term success of a neighborhood is predicated on its community members feeling a sense of ownership and belonging — of believing that, together, they are the stewards of their community. But it’s increasingly rare for 21st century city residents to join in the shared project of shaping their neighborhoods. Stop to consider: when was the last time you attended a community meeting? Volunteered at a neighborhood charity? Called your local representative? For many of us, the answer is never.

While there are many reasons for this decline in civic participation, one contributing factor is transparency. It’s not always clear how input will be used or if the organizations charged with community decisions are able to receive and act on that feedback. Another factor is that people may not always feel they are sufficiently knowledgeable on certain issues to meaningfully contribute.

To help address these challenges, governments and companies around the world have begun building tools that leverage technology to make participation more informed, transparent, and relevant to people’s daily lives.

The City of Barcelona is at the forefront of this trend, having created Decidim, an open-source digital tool inspired by social media that keeps residents up to date on processes and garners their input (the tool has since spread globally). The City of Bologna recently launched an Office of Civic Imaginationdesigned specifically to build greater participation through regulation, engagement labs throughout the city, and digital tools. Startups are also getting into the mix, such as Neighborland, which offers a customizable platform for engagement between city planners and communities. And some communities have even started creating their own tools, such as YouthScore, which allows youth to rate their neighborhoods based on their youth friendliness.

These examples are part of a promising trajectory towards inclusive digital participation that could enable people to engage with and enhance the places where they live, work, and visit. We’re excited by the idea of a future where community members can easily influence the decisions, spaces, and technologies that impact them — and where decision-making entities can be even more responsive to community input.

Our hope is that these tools kickstart a virtuous cycle: the more community members feel empowered to shape their communities, the more they will participate. The more they participate, the more decision-makers can be enabled to be more inclusive and responsive to community voices, inspiring more community members to participate. And so on.

As Barcelona, Bologna, and Neighborland show, there are many different ways that digital tools — in coordination with strong in-person and more traditional approaches — can unlock civic participation. One promising approach is leveraging technology to bring transparency into processes and decision points that could allow community members to better understand the issues at hand, provide input, and, hopefully, feel satisfied that their voices have been heard. What’s more, we believe that by providing community members with an informed, nuanced understanding of the required trade-offs of a decision, digital tools could even encourage more decisions that put collective good ahead of individual interests.

So we decided to create a prototype — one small contribution towards a more civically-engaged urban future.

Creating Collab

As a first step, we partnered with Digital Public Square, a Toronto-based non-profit that works globally to rethink and redesign how to leverage technology to support communities. Together, we came up with the idea for Collab, a digital tool that could support communities hoping to increase participation and make more inclusive, collaborative decisions….(More)”.

The death of the literature review and the rise of the dynamic knowledge map


Gorgi Krlev at LSE Impact Blog: “Literature reviews are a core part of academic research that are loathed by some and loved by others. The LSE Impact Blog recently presented two proposals on how to deal with the issues raised by literature reviews: Richard P. Phelps argues, due to their numerous flaws, we should simply get rid of them as a requirement in scholarly articles. In contrast, Arnaud Vaganay proposes, despite their flaws, we can save them by means of standardization that would make them more robust. Here, I put forward an alternative that strikes a balance between the two: Let’s build databases that help systemize academic research. There are examples of such databases in evidence-based health-care, why not replicate those examples more widely?

The seed of the thought underlying my proposition of building dynamic knowledge maps in the social sciences and humanities was planted in 2014. I was attending a talk within Oxford’s evidence-based healthcare programme. Jon Brassey, the main speaker of the event and founder of the TRIP database, was explaining his life goal: making systematic reviews and meta-analyses in healthcare research redundant! His argument was that a database containing all available research on treatment of a symptom, migraine for instance, would be able to summarize and display meta-effects within seconds, whereas a thorough meta-analysis would require weeks, if not months, if done by a conventional research team.

Although still imperfect, TRIP has made significant progress in realizing this vision. The most recent addition to the database are “evidence maps” that visualize what we know about effective treatments. Evidence maps compare alternative treatments based on all available studies. They indicate effectiveness of a treatment, the “size” of evidence underscoring the claim and the risk of bias contained in the underlying studies. Here and below is an example based on 943 studies, as of today, dealing with effective treatment of migraine, indicating aggregated study size and risk of bias.

Source: TRIP database

There have been heated debates about the value and relevance of academic research (propositions have centred on intensifying research on global challenges or harnessing data for policy impact), its rigor (for example reproducibility), and the speed of knowledge production, including the “glacial pace of academic publishing”. Literature reviews, for the reasons laid out by Phelps and Vaganay, suffer from imperfections that make them: time consuming, potentially incomplete or misleading, erratic, selective, and ultimately blurry rather than insightful. As a result, conducting literature reviews is arguably not an effective use of research time and only adds to wider inefficiencies in research….(More)”.