Using Big Data to Understand the Human Condition: The Kavli HUMAN Project


Azmak Okan et al in the Journal “Big Data”: “Until now, most large-scale studies of humans have either focused on very specific domains of inquiry or have relied on between-subjects approaches. While these previous studies have been invaluable for revealing important biological factors in cardiac health or social factors in retirement choices, no single repository contains anything like a complete record of the health, education, genetics, environmental, and lifestyle profiles of a large group of individuals at the within-subject level. This seems critical today because emerging evidence about the dynamic interplay between biology, behavior, and the environment point to a pressing need for just the kind of large-scale, long-term synoptic dataset that does not yet exist at the within-subject level. At the same time that the need for such a dataset is becoming clear, there is also growing evidence that just such a synoptic dataset may now be obtainable—at least at moderate scale—using contemporary big data approaches. To this end, we introduce the Kavli HUMAN Project (KHP), an effort to aggregate data from 2,500 New York City households in all five boroughs (roughly 10,000 individuals) whose biology and behavior will be measured using an unprecedented array of modalities over 20 years. It will also richly measure environmental conditions and events that KHP members experience using a geographic information system database of unparalleled scale, currently under construction in New York. In this manner, KHP will offer both synoptic and granular views of how human health and behavior coevolve over the life cycle and why they evolve differently for different people. In turn, we argue that this will allow for new discovery-based scientific approaches, rooted in big data analytics, to improving the health and quality of human life, particularly in urban contexts….(More)”

TurboVote


TurboVote is a software platform and an implementation program developed by Democracy Works, a nonpartisan, nonprofit 501(c)(3) organization that works to simplify the voting process.

The TurboVote tool is an online service that helps students vote in every election — local, state, and national — by helping them register where they want to vote, and by keeping them engaged with the elections in their local communities.

What does TurboVote give students?

  • helps them register to vote
  • helps them vote by sending election reminders via text and via email – that way they can stay in touch with local elections even from away
  • helps them vote by mail via absentee ballot request forms

What benefits are there for administrators, faculty, and other implementers?
TurboVote makes it possible for colleges and universities to conduct voter engagement efforts efficiently. Students have an array of personalized voting needs, from registration to ballot request requirements to deadlines – and it’s logistically prohibitive for an institution to meet these needs for every student. With TurboVote you can promote and monitor student registration and engagement by encouraging students to complete a short online process. ….(More)”

Open data is not just for startups


Mike Altendorf at CIO: “…Surely open data is just for start-ups, market research companies and people that want to save the world? Well there are two reasons why I wanted to dedicate a bit of time to the subject of open data. First, one of the major barriers to internal innovation that I hear about all the time is the inability to use internal data to inform that innovation. This is usually because data is deemed too sensitive, too complex, too siloed or too difficult to make usable. Leaving aside the issues that any of those problems are going to cause for the organisation more generally, it is easy to see how this can create a problem. So why not use someone else’s data?

The point of creating internal labs and innovation centres is to explore the art of the possible. I quite agree that insight from your own data is a good place to start but it isn’t the only place. You could also argue that by using your own data you are restricting your thinking because you are only looking at information that already relates to your business. If the point of a lab is to explore ideas for supporting the business then you may be better off looking outwards at what is happening in the world around you rather than inwards into the constrained world of the industry you already inhabit….

The fact is there is vast amounts of data sets that are freely available that can be made to work for you if you can just apply the creativity and technical smarts to them.

My second point is less about open data than about opening up data. Organisations collect information on their business operations, customers and suppliers all the time. The smart ones know how to use it to build competitive advantage but the really smart ones also know that there is significant extra value to be gained from sharing that data with the customer or supplier that it relates to. The customer or supplier can then use it to make informed decisions themselves. Some organisations have been doing this for a while. Customers of First Direct have been able to analyse their own spending patterns for years (although the data has been somewhat limited). The benefit to the customer is that they can make informed decisions based on actual data about their past behaviours and so adapt their spending habits accordingly (or put their head firmly in the sand and carry on as before in my case!). The benefit to the bank is that they are able to suggest ideas for how to improve a customer’s financial health alongside the data. Others have looked at how they can help customers by sharing (anonymised) information about what people with similar lifestyles/needs are doing/buying so customers can learn from each other. Trials have shown that customers welcomed the insight….(More)”

 

Sustainable Value of Open Government Data


Phd Thesis from Thorhildur Jetzek: “The impact of the digital revolution on our societies can be compared to the ripples caused by a stone thrown in water: spreading outwards and affecting a larger and larger part of our lives with every year that passes. One of the many effects of this revolution is the emergence of an already unprecedented amount of digital data that is accumulating exponentially. Moreover, a central affordance of digitization is the ability to distribute, share and collaborate, and we have thus seen an “open theme” gaining currency in recent years. These trends are reflected in the explosion of Open Data Initiatives (ODIs) around the world. However, while hundreds of national and local governments have established open data portals, there is a general feeling that these ODIs have not yet lived up to their true potential. This feeling is not without good reason; the recent Open Data Barometer report highlights that strong evidence on the impacts of open government data is almost universally lacking (Davies, 2013). This lack of evidence is disconcerting for government organizations that have already expended money on opening data, and might even result in the termination of some ODIs. This lack of evidence also raises some relevant questions regarding the nature of value generation in the context of free data and sharing of information over networks. Do we have the right methods, the right intellectual tools, to understand and reflect the value that is generated in such ecosystems?

This PhD study addresses the question of How is value generated from open data? through a mixed methods, macro-level approach. For the qualitative analysis, I have conducted two longitudinal case studies in two different contexts. The first is the case of the Basic Data Program (BDP), which is a Danish ODI. For this case, I studied the supply-side of open data publication, from the creation of open data strategy towards the dissemination and use of data. The second case is a demand-side study on the energy tech company Opower. Opower has been an open data user for many years and have used open data to create and disseminate personalized information on energy use. This information has already contributed to a measurable world-wide reduction in CO2 emissions as well as monetary savings. Furthermore, to complement the insights from these two cases I analyzed quantitative data from 76 countries over the years 2012 and 2013. I have used these diverse sources of data to uncover the most important relationships or mechanisms, that can explain how open data are used to generate sustainable value….(More)”

Flutrack.org: Open-source and linked data for epidemiology


Chorianopoulos K, and Talvis K at Health Informatics Journal: “Epidemiology has made advances, thanks to the availability of real-time surveillance data and by leveraging the geographic analysis of incidents. There are many health information systems that visualize the symptoms of influenza-like illness on a digital map, which is suitable for end-users, but it does not afford further processing and analysis. Existing systems have emphasized the collection, analysis, and visualization of surveillance data, but they have neglected a modular and interoperable design that integrates high-resolution geo-location with real-time data. As a remedy, we have built an open-source project and we have been operating an open service that detects flu-related symptoms and shares the data in real-time with anyone who wants to built upon this system. An analysis of a small number of precisely geo-located status updates (e.g. Twitter) correlates closely with the Google Flu Trends and the Centers for Disease Control and Prevention flu-positive reports. We suggest that public health information systems should embrace an open-source approach and offer linked data, in order to facilitate the development of an ecosystem of applications and services, and in order to be transparent to the general public interest…(More)” See also http://www.flutrack.org/

 

How Morocco Formed a Citizen Powered Constitution and Now Everyone Can Too


Jocelyn Fong at FeedbackLabs: “What if citizens could write the constitution for the society in which they live?

Legislation Lab — a new product of GovRight launched this spring — asks just this question. Dedicated to increasing public awareness and discussion of upcoming legislation, the platform offers citizens easy access to legislation and provides a participatory model to collect their feedback. Citizens can read through drafted legislation, compare it internationally, and then vote, comment, and propose changes to the very language itself — citizens can re-write the fundamental systems and laws that govern their lives.

The world of feedback sees new tools emerging all the time, with only some built to address an actual need. The makers of Legislation Lab are building on years of experience and know that the demand for such radical, open governance not only exists, it thrives.

In the wake of mass demonstrations calling for political reform in Morrocco, Tarik Nesh-Nash (Ashoka Fellow and GovRight co-founder/CEO) launched Reforme.ma to collect the opinions of average Moroccan citizens on proposed changes to the constitution. Little did he know that he would be tapping into a groundswell of citizens eager and determined to share their voices. Within two months, Reforme.ma had over 200,000 visitors from diverse backgrounds, representing all regions of the country. Those 200,000 visitors made over 10,000 comments and proposals to the constitution — 40% of which were included in the new, official draft. In July 2011, Moroccan citizens voted in a referendum and overwhelmingly approved the new constitution.

But Legislation Lab is only GovRight’s latest of many efforts to create channels for better e-governance. Previous endeavors have focused on open legal text, open budgeting, corruption reporting, and citizen-government direct communication — all of which have primarily focused on improving governance in North Africa.

In regions that do not have the history of vibrant democracy, Tariq believes these platforms all work together to create a more informed, engaged, and empowered citizenry–one who is able to participate fully in its government. “Including voice in our laws takes three steps. First, there’s access to information. Then, citizens have the capacity to monitor their government. The last tier is citizen participation in government.” It’s a step-by-step process of building transparency, and then accountability, such that citizens can be involved in the very decision-making that structures their day-to-day lives.

But Legislation Lab is not only relevant for countries transitioning to more democratic styles of governance. Though still in beta, the platform has been asked to replicate its model in Chile for an open consultation on the constitution; New York City has recently approached the organization to help include public opinion in the city’s upcoming housing policy changes. Especially with the platform’s real-time, automated data analysis broken down by demographics, both governments and civil society organizations are yearning to see what the platform can enable.

While global clients may be clammering to use the platform, Legislation Lab is finding that it’s more difficult to get other local citizens as engaged. “In Kurdistan, people are just excited this platform exists. In a more mature democracy, people don’t care,” Tarik explains. When citizens feel political fatigue from false promises and continued negligence, an online platform isn’t going to be a comprehensive fix….(More)”

Revolution Delayed: The Impact of Open Data on the Fight against Corruption


Report by RiSSC – Research Centre on Security and Crime (Italy): “In the recent years, the demand for Open Data picked up stream among stakeholders to increasing transparency and accountability of the Public Sector. Governments are supporting Open Data supply, to achieve social and economic benefits, return on investments, and political consensus.

While it is self-evident that Open Data contributes to greater transparency – as it makes data more available and easy to use by the public and governments, its impact on fighting corruption largely depends on the ability to analyse it and develop initiatives that trigger both social accountability mechanisms, and government responsiveness against illicit or inappropriate behaviours.

To date, Open Data Revolution against corruption is delayed. The impact of Open Data on the prevention and repression of corruption, and on the development of anti- corruption tools, appears to be limited, and the return on investments not yet forthcoming. Evidence remains anecdotal, and a better understanding on the mechanisms and dynamics of using Open Data against corruption is needed.

The overall objective of this exploratory study is to provide evidence on the results achieved by Open Data, and recommendations for the European Commission and Member States’ authorities, for the implementation of effective anti-corruption strategies based on transparency and openness, to unlock the potential impact of “Open Data revolution” against Corruption.

The project has explored the legal framework and the status of implementation of Open Data policies in four EU Countries – Italy, United Kingdom, Spain, and Austria. TACOD project has searched for evidence on Open Data role on law enforcement cooperation, anti-corruption initiatives, public campaigns, and investigative journalism against corruption.

RiSSC – Research Centre on Security and Crime (Italy), the University of Oxford and the University of Nottingham (United Kingdom), Transparency International (Italy and United Kingdom), the Institute for Conflict Resolution (Austria), and Blomeyer&Sanz (Spain), have carried out the research between January 2014 and February 2015, under an agreement with the European Commission – DH Migration and Home Affairs. The project has been coordinated by RiSSC, with the support of a European Working Group of Experts, chaired by prof. Richard Rose, and an external evaluator, Mr. Andrea Menapace, and it has benefited from the contribution of many experts, activists, representatives of Institutions in the four Countries….(More)

Open governance systems: Doing more with more


Paper by Jeremy Millard in Government Information Quarterly: “This paper tackles many of the important issues and discussions taking place in Europe and globally about the future of the public sector and how it can use Information and Communication Technology (ICT) to respond innovatively and effectively to some of the acute societal challenges arising from the financial crisis as well as other deeper rooted global problems. These include inequality, poverty, corruption and migration, as well as climate change, loss of habitat and the ageing society. A conceptual framework for open governance systems enabled by ICT is proposed, drawing on evidence and examples from around the world as well as a critical appraisal of both academic and grey literature. The framework constructs a system of open assets, open services and open engagement, and this is used to move the e-government debate forward from a preoccupation with lean and small governments which ‘do more with less’ to examine the potential for open governance systems to also ‘do more with more’. This is achieved by enabling an open government and open public sector, as part of this open governance system, to ‘do more by leveraging more’ of the existing assets and resources across the whole of society, and not just within the public sector, many of which are unrealised and untapped, so in effect are ‘wasted’. The paper argues that efficiencies and productivity improvements are essential at all levels and across all actors, as is maximising both public and private value, but that they must also be seen at the societal level where trade-offs and interactions are required, and not only at the individual actor level….(More)”

Making Open Innovation Ecosystems Work: Case Studies in Healthcare


New paper by Donald E. Wynn, Jr.Renee M. E. Pratt and Randy V. Bradley for the Business of Government Center: “In the mist of tightening budgets, many government agencies are being asked to deliver innovative solutions to operational and strategic problems. One way to address this dilemma is to participate in open innovation. This report addresses two key components of open innovation:

  • Adopting external ideas from private firms, universities, and individuals into the agency’s innovation practices
  • Pushing innovations developed internally to the public by reaching out to external channels

To illustrate how open innovation can work, the authors employ the concept of the technological ecosystem to demonstrate that fostering innovations cannot be done alone.

Successful technological ecosystems create innovation through the combination of five key elements:

  1. Resources – the contribution made and exchanged among the participants of an ecosystem
  2. Participants – the characteristics of the participants
  3. Relationships – the relationships and interaction among the participants
  4. Organization –of the ecosystem as a whole
  5. External environment in which the ecosystem operates

This report examines both strategies by studying two cases of government-sponsored participation in technological ecosystems in the health care industry:

  • The U.S. Department of Veterans Affairs (VA) built a new ecosystem around its VistA electronic health records software in order to better facilitate the flow of innovation practices and processes between the VA and external agencies and private firms.
  • The state of West Virginia selected a variant of the VistA software for deployment in its hospital system, saving a significant amount of money while introducing a number of new features and functionality for the seven medical facilities.

As a result of these studies, the authors have identified 10 best practices for agencies seeking to capi­talize on open innovation.  These best practices include encouraging openness and transparency, minimizing internal friction and bureaucracy, and continuously monitoring external conditions….(More)”

What should governments require for their open data portals?


Luke Fretwell at GovFresh: “Johns Hopkins University’s new Center for Government Excellence is developing a much-needed open data portal requirements resource to serve as a “set of sample requirements to help governments evaluate, develop (or procure), deploy, and launch an open data web site (portal).”

As many governments ramp up their open data initiatives, this is an important project in that we often see open data platform decisions being made without a holistic approach and awareness of what government should purchase (or have the flexibility to develop on its own).

“The idea here is that any interested city can use this as a baseline and make their own adjustments before proceeding,” said GovEx Director of Open Data Andrew Nicklin via email. “Perhaps with this we can create some common denominators amongst open data portals and eventually push the whole movement forwards.”

My fundamental suggestion is that government-run open data platforms be fully open source. There are a number of technical and financial reasons for this, which I will address in the future, but I believe strongly that if the platform you’re hosting data on doesn’t adhere to the same licensing standards you hold for your data, you’re only doing open data half right.

With both CKAN and DKAN continuing to grow in adoption, we’re seeing an emergence of reliable solutions that adequately meet the same technical and procurement requirements as propriety options (full disclosure: I work with NuCivic on DKAN and NuCivic Data).

Learn more about the GovEx open data portal standards project”