Crowd diagnosis could spot rare diseases doctors miss

New Scientist: “Diagnosing rare illnesses could get easier, thanks to new web-based tools that pool information from a wide variety of sources…CrowdMed, launched on 16 April at the TedMed conference in Washington DC, uses crowds to solve tough medical cases.

Anyone can join CrowdMed and analyse cases, regardless of their background or training. Participants are given points that they can then use to bet on the correct diagnosis from lists of suggestions. This creates a prediction market, with diagnoses falling and rising in value based on their popularity, like stocks in a stock market. Algorithms then calculate the probability that each diagnosis will be correct. In 20 initial test cases, around 700 participants identified each of the mystery diseases as one of their top three suggestions….

Frustrated patients and doctors can also turn to FindZebra, a recently launched search engine for rare diseases. It lets users search an index of rare disease databases looked after by a team of researchers. In initial trials, FindZebra returned more helpful results than Google on searches within this same dataset.”