Governments could track COVID-19 lockdowns through social media posts


Alfred Ng at CNET: “Your posts on social media have been harvested for advertising. They’ve been taken to build up a massive facial recognition database. Now that same data could be used by companies and governments to help maintain quarantines during the coronavirus outbreak. 

Ghost Data, a research group in Italy and the US, collected more than half a million Instagram posts in March, targeting regions in Italy where residents were supposed to be on lockdown. It provided those images and videos to LogoGrab, an image recognition company that can automatically identify people and places. The company found at least 33,120 people violated Italy’s quarantine orders. 

Andrea Stroppa, the founder of Ghost Data, said his group has offered its research to the Italian government. Stroppa doesn’t consider the social media scraping to be a privacy concern because researchers anonymized the data by removing profile and specific location data before analyzing it. He also has public health on his mind. 

“In our view, privacy is very important. It’s a fundamental human right,” Stroppa said. “However, it’s important to give our support to help the government and the authorities. Hundreds of people are dying every day.”…(More)” .

The world after coronavirus


Yuval Noah Harari at the Financial Times: “Humankind is now facing a global crisis. Perhaps the biggest crisis of our generation. The decisions people and governments take in the next few weeks will probably shape the world for years to come. They will shape not just our healthcare systems but also our economy, politics and culture. We must act quickly and decisively. We should also take into account the long-term consequences of our actions.

When choosing between alternatives, we should ask ourselves not only how to overcome the immediate threat, but also what kind of world we will inhabit once the storm passes. Yes, the storm will pass, humankind will survive, most of us will still be alive — but we will inhabit a different world.  Many short-term emergency measures will become a fixture of life. That is the nature of emergencies. They fast-forward historical processes.

Decisions that in normal times could take years of deliberation are passed in a matter of hours. Immature and even dangerous technologies are pressed into service, because the risks of doing nothing are bigger. Entire countries serve as guinea-pigs in large-scale social experiments. What happens when everybody works from home and communicates only at a distance? What happens when entire schools and universities go online? In normal times, governments, businesses and educational boards would never agree to conduct such experiments. But these aren’t normal times. 

In this time of crisis, we face two particularly important choices. The first is between totalitarian surveillance and citizen empowerment. The second is between nationalist isolation and global solidarity. 

Under-the-skin surveillance

In order to stop the epidemic, entire populations need to comply with certain guidelines. There are two main ways of achieving this. One method is for the government to monitor people, and punish those who break the rules. Today, for the first time in human history, technology makes it possible to monitor everyone all the time. Fifty years ago, the KGB couldn’t follow 240m Soviet citizens 24 hours a day, nor could the KGB hope to effectively process all the information gathered. The KGB relied on human agents and analysts, and it just couldn’t place a human agent to follow every citizen. But now governments can rely on ubiquitous sensors and powerful algorithms instead of flesh-and-blood spooks. 

In their battle against the coronavirus epidemic several governments have already deployed the new surveillance tools. The most notable case is China. By closely monitoring people’s smartphones, making use of hundreds of millions of face-recognising cameras, and obliging people to check and report their body temperature and medical condition, the Chinese authorities can not only quickly identify suspected coronavirus carriers, but also track their movements and identify anyone they came into contact with. A range of mobile apps warn citizens about their proximity to infected patients…

If I could track my own medical condition 24 hours a day, I would learn not only whether I have become a health hazard to other people, but also which habits contribute to my health. And if I could access and analyse reliable statistics on the spread of coronavirus, I would be able to judge whether the government is telling me the truth and whether it is adopting the right policies to combat the epidemic. Whenever people talk about surveillance, remember that the same surveillance technology can usually be used not only by governments to monitor individuals — but also by individuals to monitor governments. 

The coronavirus epidemic is thus a major test of citizenship….(More)”.

The US lacks health information technologies to stop COVID-19 epidemic


Niam Yaraghi at Brookings: “The COVID-19 pandemic highlights the crucial importance of health information technology and data interoperability. The pandemic has shattered our common beliefs about the type and scope of health information exchange. It has shown us that the definition of health data should no longer be limited to medical data of patients and instead should encompass a much wider variety of data types from individuals’ online and offline activity. Moreover, the pandemic has proven that healthcare is not local. In an interconnected world, with more individuals traveling long distances than ever before, it is naïve to look at regions in isolation from each other and try to manage public health independently. To efficiently manage a pandemic like this, the scope of health information exchange efforts should not be limited to small geographical regions and instead should be done at least nationally, if not internationally.

HEALTH DATA SHOULD GO BEYOND MEDICAL RECORDS

A wide variety of factors affect one’s overall well-being, a very small fraction of which could be quantified via medical records. We tend to ignore this fact, and try to explain and predict a patient’s condition only based on medical data. Previously, we did not have the technology and knowledge to collect huge amounts of non-medical data and analyze it for healthcare purposes. Now, privacy concerns and outdated regulations have exacerbated the situation and has led to a fragmented data ecosystem. Interoperability, even among healthcare providers, remains a major challenge where exchange and analysis of non-medical data for healthcare purposes almost never happens….(More)”.

Commission tells carriers to hand over mobile data in coronavirus fight


Mark Scott, Laurens Cerulus and Laura Kayali at Politico: “The European Commission on Monday urged Europe’s telecoms giants including Deutsche Telekom and Orange to share reams of people’s mobile data from across the region to help predict the spread of the coronavirus.

In a conference call with telecoms executives, Thierry Breton, Europe’s internal market commissioner, called on the companies to hand over anonymized and aggregated data from people’s mobile phones to track how the virus was spreading, according to three people with direct knowledge of the matter who spoke on the condition of anonymity because they were not authorized to speak publicly.

The draft plans would allow the Commission — and not the carriers — to manage how the data was used, and give EU officials control over so-called metadata on hundreds of millions of people’s mobile phones. That represents a significant step for Brussels as it would make the EU executive liable for any hefty fines if the digital information was hacked or misused.

Speaking to POLITICO, Breton confirmed the request to carriers, adding that the Commission needed such aggregated metadata to track the spread of the virus and determine where people’s need for medical supplies was the most pressing.

“We will select one big operator by country,” Breton said. “We want to be very fast and follow this on a daily basis.”

The Commission insisted the operation would respect the bloc’s privacy rules, known as the General Data Protection Regulation, and e-privacy legislation. The European Data Protection Supervisor would also be involved, the EU executive added. ..

In recent weeks, mobile operators have started to share anonymized data with EU governments in response to the spread of COVID-19. Carriers involved in the discussions with the Commission said Breton’s request would likely include providing the same type of data, and would have to respect the region’s tough privacy rules….

By aiming to pool large amounts of European mobile data, the Commission is following in the footsteps of national agencies, many of which are already working with carriers to track the spread of the virus through such anonymized digital information.

In Norway, local researchers saw a 60 percent decline in people traveling between cities after a countrywide lockdown was introduced — figures that were taken from people’s mobile phone data provided by Telenor, the national carrier.

Yet as the crisis has continued, countries such as Spain and Poland have gone a step further by creating smartphone apps, which offer an even greater ability to track and monitor people’s movements compared to anonymized mobile data. In the U.K., an app is in the works but has not yet launched….(More)”.

Data Reveals the True Impact of the Coronavirus Outbreak


Gian Volpicelli at Wired: “Something was wrong with Malaysia’s internet. It was March 13, and the more Simon Angus looked at the data, the more he suspected that the country might be in the midst of a coronavirus crisis.

Angus is an academic at Monash University and the cofounder of Kaspr Datahaus, a Melbourne-based company that analyses the quality of global internet connection to glean economic and social insights. The company monitors millions of internet-connected devices to gauge internet speed across the world. For them, a sudden deterioration in a country’s internet speed means that something is putting the network under strain. In recent weeks Kaspr’s theory is that the “something” is linked to the Covid-19 epidemics – as people who are working from home, or quarantining, or staying home as a precaution start using the internet more intensely than usual.

“For people who are in lockdown, or in panic mode, or in self-isolation, the internet has become a fundamentally important part of their information source, and of their consumption of entertainment,” Angus says.

To put it bluntly, when millions more turn on Netflix, scroll through TikTok, start a Zoom call, play Fortnite, or simply scroll idly through Twitter, that has repercussions on the quality of the country’s internet. (That is why EU commissioner Thierry Breton asked Netflix to restrict high-definition streaming until the emergency is over.)

Now, Angus’ scanning had detected that Malaysia’s internet had become over five percent slower in the March 12 to 13 timespan—worse even than in locked-down Italy. Officially, though, Malaysia had only 129 confirmed coronavirus cases—a relatively low number, although it had been inching up for a week.

What was happening, though, was that the population was cottoning on to the government’s sloppy handling of the pandemic. In late February, in what would turn out to be a monumental blunder, authorities had allowed a religious mass gathering to go ahead in Kuala Lumpur. Once Covid-19 cases linked to the event started to emerge, the government scrambled to find all the attendees, but got the numbers wrong—first saying that only 5,000 people at the gathering were Malaysia residents, then updating the figure to 10,000 and then 14,500. With the mess laid bare, many Malaysians seemed to have decided to stay at home out of sheer self-preservation…(More)”.

Now Is the Time for Open Access Policies—Here’s Why



Victoria Heath and Brigitte Vézina at Creative Commons: “Over the weekend, news emerged that upset even the most ardent skeptics of open access. Under the headline, “Trump vs Berlin” the German newspaper Welt am Sonntag reported that President Trump offered $1 billion USD to the German biopharmaceutical company CureVac to secure their COVID-19 vaccine “only for the United States.”

In response, Jens Spahn, the German health minister said such a deal was completely “off the table” and Peter Altmaier, the German economic minister replied, “Germany is not for sale.” Open science advocates were especially infuriated. Professor Lorraine Leeson of Trinity College Dublin, for example, tweeted, “This is NOT the time for this kind of behavior—it flies in the face of the #OpenScience work that is helping us respond meaningfully right now. This is the time for solidarity, not exclusivity.” The White House and CureVac have since denied the report. 

Today, we find ourselves at a pivotal moment in history—we must cooperate effectively to respond to an unprecedented global health emergency. The mantra, “when we share, everyone wins” applies now more than ever. With this in mind, we felt it imperative to underscore the importance of open access, specifically open science, in times of crisis.

Why open access matters, especially during a global health emergency 

One of the most important components of maintaining global health, specifically in the face of urgent threats, is the creation and dissemination of reliable, up-to-date scientific information to the public, government officials, humanitarian and health workers, as well as scientists.

Several scientific research funders like the Gates Foundation, the Hewlett Foundation, and the Wellcome Trust have long-standing open access policies and some have now called for increased efforts to share COVID-19 related research rapidly and openly to curb the outbreak. By licensing material under a CC BY-NC-SA license, the World Health Organization (WHO) is adopting a more conservative approach to open access that falls short of what the scientific community urgently needs in order to access and build upon critical information….(More)”.

Privacy and Pandemics


Emily Benson at the Bertelsmann Foundation: “In bucolic China, a child has braved cold temperatures for some fresh outdoors air. Overhead, a drone hovers. Its loudspeaker, a haunting combination of human direction in the machine age, chides him for being outdoors. “Hey kid! We’re in unusual times… The coronavirus is very serious… run!!” it barks. “Staying at home is contributing to society.”

The ferocious spread of COVID-19 in 2020 has revealed stark policy differences among governments. The type of actions and degrees of severity with which governments have responded varies widely, but one pressing issue the crisis raises is how COVID-19 will affect civil liberties in the digital age.

The Chinese Approach

Images of riot gear with heat-sensing cameras and temperature gun checks in metro stations have been plastered in the news since the beginning of 2020, when the Chinese government undertook drastic measures to contain the spread of COVID-19. The government quickly set about enacting strict restraints on society that dictated where people went and what they could do.

In China, Alipay, an Alibaba subsidiary and equivalent of Elon Musk’s PayPal, joined forces with Ant Financial to launch Alipay Health Code, a software for smart phones. It indicates individuals’ health in green, yellow, and red, ultimately determining where citizens can and cannot go. The government has since mandated that citizens use this software, despite inaccuracies of temperature-reading technology that has led to the confinement of otherwise healthy individuals. It also remains unclear how this data will be used going forward–whether it will be stored indefinitely or used to augment civilians’ social scores. As the New York Times noted, this Chinese gathering of data would be akin to the Centers for Disease Control (CDC) using data from Amazon, Facebook, and Google to track citizens and then share that data with law enforcement–something that no longer seems so far-fetched.

An Evolving EU

The European Union is home to what is arguably the most progressive privacy regime in the world. In May 2018, the EU implemented the General Data Protection Regulation (GDPR). While processing personal data is generally permitted in cases in which individuals have provided explicit consent to the use of their data, several exceptions to these mining prohibitions are proving problematic in the time of COVID-19. For example, GDPR Article 9 provides an exception for public interest, permitting the processing of personal data when it is necessary for reasons of substantial public interest, and on the basis of Union or Member State law which must be proportionate to the aim pursued…(More)”.

Will This Year’s Census Be the Last?


Jill Lepore at The New Yorker: “People have been counting people for thousands of years. Count everyone, beginning with babies who have teeth, decreed census-takers in China in the first millennium B.C.E., under the Zhou dynasty. “Take ye the sum of all the congregation of the children of Israel, after their families, by the house of their fathers, with the number of their names, every male by their polls,” God commands Moses in the Book of Numbers, describing a census, taken around 1500 B.C.E., that counted only men “twenty years old and upward, all that are able to go forth to war in Israel”—that is, potential conscripts.

Ancient rulers took censuses to measure and gather their strength: to muster armies and levy taxes. Who got counted depended on the purpose of the census. In the United States, which counts “the whole number of persons in each state,” the chief purpose of the census is to apportion representation in Congress. In 2018, Secretary of Commerce Wilbur Ross sought to add a question to the 2020 U.S. census that would have read, “Is this person a citizen of the United States?” Ross is a banker who specialized in bankruptcy before joining the Trump Administration; earlier, he had handled cases involving the insolvency of Donald Trump’s casinos. The Census Bureau objected to the question Ross proposed. Eighteen states, the District of Columbia, fifteen cities and counties, the United Conference of Mayors, and a coalition of non-governmental organizations filed a lawsuit, alleging that the question violated the Constitution.

Last year, United States District Court Judge Jesse Furman, in an opinion for the Southern District, found Ross’s attempt to add the citizenship question to be not only unlawful, and quite possibly unconstitutional, but also, given the way Ross went about trying to get it added to the census, an abuse of power. Furman wrote, “To conclude otherwise and let Secretary Ross’s decision stand would undermine the proposition—central to the rule of law—that ours is a ‘government of laws, and not of men.’ ” There is, therefore, no citizenship question on the 2020 census.

All this, though, may be by the bye, because the census, like most other institutions of democratic government, is under threat. Google and Facebook, after all, know a lot more about you, and about the population of the United States, or any other state, than does the U.S. Census Bureau or any national census agency. This year may be the last time that a census is taken door by door, form by form, or even click by click….

In the ancient world, rulers counted and collected information about people in order to make use of them, to extract their labor or their property. Facebook works the same way. “It was the great achievement of eighteenth- and nineteenth-century census-takers to break that nexus and persuade people—the public on one side and their colleagues in government on the other—that states could collect data on their citizens without using it against them,” Whitby writes. It is among the tragedies of the past century that this trust has been betrayed. But it will be the error of the next if people agree to be counted by unregulated corporations, rather than by democratic governments….(More)”.

Global Data Access for Solving Rare Disease: A Health Economics Value Framework


WEF Report: “…The genomic nature of rare disease suggests an opportunity. By bringing together genomic, phenotypic, and clinical data at a global scale, individual countries and hospitals carrying out genomics research could come up with more answers both to diagnose currently undiagnosed or misdiagnosed people with rare disease and to develop treatments.

With an estimated 15.2 million individuals expected to have clinical genomic testing for a rare condition within the next five years, it is time to evaluate the economic and societal benefits of developing a system that can share this data without compromising privacy.

The answer is a technical solution called a “federated data system”. This is a data superstructure that can aggregate remote data sets for querying while still allowing for localized, data control and security. The groupings are independent, but interoperable. They have their own governance and the information inside them is protected, but they offer evidence – conclusions gathered from the data – that can be used to feed a much larger, global data engine.

The result is a robust and well-annotated dataset that in the case of rare diseases can be added to and then used by different countries to enable global and country-specific solutions to diagnosis, treatment, patient trial recruitment and management of rare diseases. Developing federated data systems is one of the many investments countries are currently considering. Yet since its implementation can be costly (about half a million US dollars) is it the right solution?…(More)”.

Using Technology to ‘Co-Create’ EU Policies


Paper by Gianluca Sgueo: “What will European Union (EU) decision-making look like in the next decade and beyond? Is technological progress promoting more transparent, inclusive and participatory decision-making at EU level?

Technology has dramatically changed both the number and quality of connections between citizens and public administrations. With technological progress, citizens have gained improved access to public authorities through new digital communication channels. Innovative, tech-based, approaches to policy-making have become the subject of a growing debate between academics and politicians. Theoretical approaches such as ‘CrowdLaw’, ‘Policy-Making 3.0’, ‘liquid’, ‘do-it- yourself’ or ‘technical’ democracy and ‘democratic innovations’ share the positive outlook towards technology; and technology is seen as the medium through which policies can be ‘co-created’ by decision-makers and stakeholders. Co-creation is mutually beneficial. Decision-makers gain legitimacy by incorporating the skills, knowledge and expertise of citizens, who in turn have the opportunity to shape new policies according to their needs and expectations.

EU institutions are at the forefront of experimentation with technologically innovative approaches to make decision-making more transparent and accessible to stakeholders. Efforts in modernising EU participatory channels through technology have evolved over time: from redressing criticism on democratic deficits, through fostering digital interactions with stakeholders, up to current attempts at designing policy-making in a friendly and participative manner.

While technological innovation holds the promise of making EU policy-making even more participatory, it is not without challenges. To begin with, technology is resource consuming. There are legal challenges associated with both over- and under-regulation of the use of technology in policy-making. Furthermore, technological innovation raises ethical concerns. It may increase inequality, for instance, or infringe personal privacy… (More)“.