Google’s ‘Project Nightingale’ Gathers Personal Health Data on Millions of Americans


Rob Copeland at Wall Street Journal: “Google is engaged with one of the U.S.’s largest health-care systems on a project to collect and crunch the detailed personal-health information of millions of people across 21 states.

The initiative, code-named “Project Nightingale,” appears to be the biggest effort yet by a Silicon Valley giant to gain a toehold in the health-care industry through the handling of patients’ medical data. Amazon.com Inc., Apple Inc.  and Microsoft Corp. are also aggressively pushing into health care, though they haven’t yet struck deals of this scope.

Google began Project Nightingale in secret last year with St. Louis-based Ascension, a Catholic chain of 2,600 hospitals, doctors’ offices and other facilities, with the data sharing accelerating since summer, according to internal documents.

The data involved in the initiative encompasses lab results, doctor diagnoses and hospitalization records, among other categories, and amounts to a complete health history, including patient names and dates of birth….

Neither patients nor doctors have been notified. At least 150 Google employees already have access to much of the data on tens of millions of patients, according to a person familiar with the matter and the documents.

In a news release issued after The Wall Street Journal reported on Project Nightingale on Monday, the companies said the initiative is compliant with federal health law and includes robust protections for patient data….(More)”.

Angela Merkel urges EU to seize control of data from US tech titans


Guy Chazan at the Financial Times: “Angela Merkel has urged Europe to seize control of its data from Silicon Valley tech giants, in an intervention that highlights the EU’s growing willingness to challenge the US dominance of the digital economy.

The German chancellor said the EU should claim “digital sovereignty” by developing its own platform to manage data and reduce its reliance on the US-based cloud services run by Amazon, Microsoft and Google. “So many companies have just outsourced all their data to US companies,” Ms Merkel told German business leaders. “I’m not saying that’s bad in and of itself — I just mean that the value-added products that come out of that, with the help of artificial intelligence, will create dependencies that I’m not sure are a good thing.”

Her speech, at an employers’ conference in Berlin, shows the extent to which the information economy is emerging as a battleground in the EU-US trading relationship. It also highlights the concern in European capitals that the EU could be weakened by the market dominance of the big US tech companies, particularly in the business of storing, processing and analysing data.

Margrethe Vestager, the EU’s powerful competition chief who is now also to oversee EU digital policy, last month told the Financial Times that she was examining whether large internet companies could be held to higher standards of proof in competition cases, as part of a tougher line on dominant companies, such as Google.

Ms Merkel was speaking just two weeks after Berlin unveiled plans for a European cloud computing initiative, dubbed Gaia-X, which it has described as a “competitive, safe and trustworthy data infrastructure for Europe”.

At the conference on Tuesday, Peter Altmaier, economy minister, said the data of companies such as Volkswagen, and that of the German interior ministry and social security system, were increasingly stored on the servers of Microsoft and Amazon. “And in this we are losing part of our sovereignty,” he added….(More)”.

Retrofitting Social Science for the Practical & Moral


Kenneth Prewitt at Issues: “…We cannot reach this fresh thinking without first challenging two formulations that today’s social science considers settled. First, social science should not assume that the “usefulness of useless knowledge” works as our narrative. Yes, it works for natural sciences. But the logic doesn’t translate. Second, we should back off from exaggerated promises about “evidence-based policy,” perhaps terming it “evidence-influenced politics,” a framing that is more accurate descriptively (what happens) and prescriptively (what should happen). The prominence given to these two formulations gets in the way of an alternative positioning of social science as an agent of improvement. I discuss this alternative below, under the label of the Fourth Purpose….

…the “Fourth Purpose.” This joins the three purposes traditionally associated with American universities and colleges: Education, Research, and Public Service. The latter is best described as being “a good citizen,” engaged in volunteer work; it is an attractive feature of higher education, but not in any substantial manner present in the other two core purposes.

The Fourth Purpose is an altogether different vision. It institutionalizes what Ross characterized as a social science being in the “broadest sense practical and moral.” It succeeds only by being fully present in education and research, for instance, including experiential learning in the curriculum and expanding processes that convert research findings into social benefits. This involves more than scattered centers across the university working on particular social problems. As Bollinger puts it, the university itself becomes a hybrid actor, at once academic and practical. “A university,” he says, “is more than simply an infrastructure supporting schools, departments, and faculty in their academic pursuits. As research universities enter into the realm or realms of the outside world, the ‘university’ (i.e., the sum of its parts/constituents) is going to have capacities far beyond those of any segment, as well as effects (hopefully generally positive) radiating back into the institution.”

To oversimplify a bit, the Fourth Purpose has three steps. The first occurs in the lab, library, or field—resulting in fundamental findings. The second ventures into settings where nonacademic players and judgment come into play, actions are taken, and ethical choices confronted, that is, practices of the kind mentioned earlier: translation research, knowledge brokers, boundary organizations, coproduction. Academic and nonacademic players should both come away from these settings with enriched understanding and capabilities. For academics, the skills required for this step differ from, but complement, the more familiar skills of teacher and researcher. The new skills will have to be built into the fabric of the university if the Fourth Purpose is to succeed.

The third step cycles back to the campus. It involves scholarly understandings not previously available. It requires learning something new about the original research findings as a result of how they are interpreted, used, rejected, modified, or ignored in settings that, in fact, are controlling whether the research findings will be implemented as hoped. This itself is new knowledge. If paid attention to, and the cycle is repeated, endlessly, a new form of scholarship is added to our tool kit….(More)”.

Delivery-Driven Policy: Policy designed for the digital age


Report by Code for America: “Policymaking is in a quiet crisis. Too often, government policies do not live up to their intent due to a key disconnect between policymakers and government delivery.

How might the shift to a digital world affect government’s ability to implement policy?

Practicing delivery-driven policymaking means bringing user-centered, iterative, and data-driven practices to bear from the start and throughout. It means getting deep into the weeds of implementation in ways that the policy world has traditionally avoided, iterating both on policy and delivery.

By tightly coupling policy and delivery, governments can use data about how people actually experience government services to narrow the implementation gap and help policies get the outcome they intend….(More)”

Digital human rights are next frontier for fund groups


Siobhan Riding at the Financial Times: “Politicians publicly grilling technology chiefs such as Facebook’s Mark Zuckerberg is all too familiar for investors. “There isn’t a day that goes by where you don’t see one of the tech companies talking to Congress or being highlighted for some kind of controversy,” says Lauren Compere, director of shareholder engagement at Boston Common Asset Management, a $2.4bn fund group that invests heavily in tech stocks.

Fallout from the Cambridge Analytica scandal that engulfed Facebook was a wake-up call for investors such as Boston Common, underlining the damaging social effects of digital technology if left unchecked. “These are the red flags coming up for us again and again,” says Ms Compere.

Digital human rights are fast becoming the latest front in the debate around fund managers’ ethical investments efforts. Fund managers have come under pressure in recent years to divest from companies that can harm human rights — from gun manufacturers or retailers to operators of private prisons. The focus is now switching to the less tangible but equally serious human rights risks lurking in fund managers’ technology holdings. Attention on technology groups began with concerns around data privacy, but emerging focal points are targeted advertising and how companies deal with online extremism.

Following a terrorist attack in New Zealand this year where the shooter posted video footage of the incident online, investors managing assets of more than NZ$90bn (US$57bn) urged Facebook, Twitter and Alphabet, Google’s parent company, to take more action in dealing with violent or extremist content published on their platforms. The Investor Alliance for Human Rights is currently co-ordinating a global engagement effort with Alphabet over the governance of its artificial intelligence technology, data privacy and online extremism.

Investor engagement on the topic of digital human rights is in its infancy. One roadblock for investors has been the difficulty they face in detecting and measuring what the actual risks are. “Most investors do not have a very good understanding of the implications of all of the issues in the digital space and don’t have sufficient research and tools to properly assess them — and that goes for companies too,” said Ms Compere.

One rare resource available is the Ranking Digital Rights Corporate Accountability Index, established in 2015, which rates tech companies based on a range of metrics. The development of such tools gives investors more information on the risk associated with technological advancements, enabling them to hold companies to account when they identify risks and questionable ethics….(More)”.

Unleashing the Crowd: Collaborative Solutions to Wicked Business and Societal Problems


Book by Ann Majchrzak and Arvind Malhotra: “This book disrupts the way practitioners and academic scholars think about crowds, crowdsourcing, innovation, and new organizational forms in this emerging period of ubiquitous access to the internet. The authors argue that the current approach to crowdsourcing unnecessarily limits the crowd to offering ideas, locking out those of us with knowledge about a problem.  They use data from 25 case studies of flash crowds — anonymous strangers answering online announcements to participate in a 7-10 day innovation challenge — half of whom were unleashed from the limitations of focusing on ideas.  Yet, these crowds were able to develop new business models, new product lines, and offer useful solutions to global problems in fields as diverse as health care insurance, software development, and societal change. This book, which offers a theory of collective production of innovative solutions explaining the practices that the crowds organically followed, will revolutionize current assumptions about how innovation and crowdsourcing should be managed for commercial as well as societal purposes….(More)”.

Kenya passes data protection law crucial for tech investments


George Obulutsa and Duncan Miriri at Reuters: “Kenyan President Uhuru Kenyatta on Friday approved a data protection law which complies with European Union legal standards as it looks to bolster investment in its information technology sector.

The East African nation has attracted foreign firms with innovations such as Safaricom’s M-Pesa mobile money services, but the lack of safeguards in handling personal data has held it back from its full potential, officials say.

“Kenya has joined the global community in terms of data protection standards,” Joe Mucheru, minister for information, technology and communication, told Reuters.

The new law sets out restrictions on how personally identifiable data obtained by firms and government entities can be handled, stored and shared, the government said.

Mucheru said it complies with the EU’s General Data Protection Regulation which came into effect in May 2018 and said an independent office will investigate data infringements….

A lack of data protection legislation has also hampered the government’s efforts to digitize identity records for citizens.

The registration, which the government said would boost its provision of services, suffered a setback this year when the exercise was challenged in court.

“The lack of a data privacy law has been an enormous lacuna in Kenya’s digital rights landscape,” said Nanjala Nyabola, author of a book on information technology and democracy in Kenya….(More)”.

Voting could be the problem with democracy


Bernd Reiter at The Conversation: “Around the globe, citizens of many democracies are worried that their governments are not doing what the people want.

When voters pick representatives to engage in democracy, they hope they are picking people who will understand and respond to constituents’ needs. U.S. representatives have, on average, more than 700,000 constituents each, making this task more and more elusive, even with the best of intentions. Less than 40% of Americans are satisfied with their federal government.

Across Europe, South America, the Middle East and China, social movements have demanded better government – but gotten few real and lasting results, even in those places where governments were forced out.

In my work as a comparative political scientist working on democracy, citizenship and race, I’ve been researching democratic innovations in the past and present. In my new book, “The Crisis of Liberal Democracy and the Path Ahead: Alternatives to Political Representation and Capitalism,” I explore the idea that the problem might actually be democratic elections themselves.

My research shows that another approach – randomly selecting citizens to take turns governing – offers the promise of reinvigorating struggling democracies. That could make them more responsive to citizen needs and preferences, and less vulnerable to outside manipulation….

For local affairs, citizens can participate directly in local decisions. In Vermont, the first Tuesday of March is Town Meeting Day, a public holiday during which residents gather at town halls to debate and discuss any issue they wish.

In some Swiss cantons, townspeople meet once a year, in what are called Landsgemeinden, to elect public officials and discuss the budget.

For more than 30 years, communities around the world have involved average citizens in decisions about how to spend public money in a process called “participatory budgeting,” which involves public meetings and the participation of neighborhood associations. As many as 7,000 towns and cities allocate at least some of their money this way.

The Governance Lab, based at New York University, has taken crowd-sourcing to cities seeking creative solutions to some of their most pressing problems in a process best called “crowd-problem solving.” Rather than leaving problems to a handful of bureaucrats and experts, all the inhabitants of a community can participate in brainstorming ideas and selecting workable possibilities.

Digital technology makes it easier for larger groups of people to inform themselves about, and participate in, potential solutions to public problems. In the Polish harbor city of Gdansk, for instance, citizens were able to help choose ways to reduce the harm caused by flooding….(More)”.

The Rising Threat of Digital Nationalism


Essay by Akash Kapur in the Wall Street Journal: “Fifty years ago this week, at 10:30 on a warm night at the University of California, Los Angeles, the first email was sent. It was a decidedly local affair. A man sat in front of a teleprinter connected to an early precursor of the internet known as Arpanet and transmitted the message “login” to a colleague in Palo Alto. The system crashed; all that arrived at the Stanford Research Institute, some 350 miles away, was a truncated “lo.”

The network has moved on dramatically from those parochial—and stuttering—origins. Now more than 200 billion emails flow around the world every day. The internet has come to represent the very embodiment of globalization—a postnational public sphere, a virtual world impervious and even hostile to the control of sovereign governments (those “weary giants of flesh and steel,” as the cyberlibertarian activist John Perry Barlow famously put it in his Declaration of the Independence of Cyberspace in 1996).

But things have been changing recently. Nicholas Negroponte, a co-founder of the MIT Media Lab, once said that national law had no place in cyberlaw. That view seems increasingly anachronistic. Across the world, nation-states have been responding to a series of crises on the internet (some real, some overstated) by asserting their authority and claiming various forms of digital sovereignty. A network that once seemed to effortlessly defy regulation is being relentlessly, and often ruthlessly, domesticated.

From firewalls to shutdowns to new data-localization laws, a specter of digital nationalism now hangs over the network. This “territorialization of the internet,” as Scott Malcomson, a technology consultant and author, calls it, is fundamentally changing its character—and perhaps even threatening its continued existence as a unified global infrastructure.

The phenomenon of digital nationalism isn’t entirely new, of course. Authoritarian governments have long sought to rein in the internet. China has been the pioneer. Its Great Firewall, which restricts what people can read and do online, has served as a model for promoting what the country calls “digital sovereignty.” China’s efforts have had a powerful demonstration effect, showing other autocrats that the internet can be effectively controlled. China has also proved that powerful tech multinationals will exchange their stated principles for market access and that limiting online globalization can spur the growth of a vibrant domestic tech industry.

Several countries have built—or are contemplating—domestic networks modeled on the Chinese example. To control contact with the outside world and suppress dissident content, Iran has set up a so-called “halal net,” North Korea has its Kwangmyong network, and earlier this year, Vladimir Putin signed a “sovereign internet bill” that would likewise set up a self-sufficient Runet. The bill also includes a “kill switch” to shut off the global network to Russian users. This is an increasingly common practice. According to the New York Times, at least a quarter of the world’s countries have temporarily shut down the internet over the past four years….(More)”

OMB rethinks ‘protected’ or ‘open’ data binary with upcoming Evidence Act guidance


Jory Heckman at Federal News Network: “The Foundations for Evidence-Based Policymaking Act has ordered agencies to share their datasets internally and with other government partners — unless, of course, doing so would break the law.

Nearly a year after President Donald Trump signed the bill into law, agencies still have only a murky idea of what data they can share, and with whom. But soon, they’ll have more nuanced options of ranking the sensitivity of their datasets before sharing them out to others.

Chief Statistician Nancy Potok said the Office of Management and Budget will soon release proposed guidelines for agencies to provide “tiered” access to their data, based on the sensitivity of that information….

OMB, as part of its Evidence Act rollout, will also rethink how agencies ensure protected access to data for research. Potok said agency officials expect to pilot a single application governmentwide for people seeking access to sensitive data not available to the public.

The pilot resembles plans for a National Secure Data Service envisioned by the Commission on Evidence-Based Policymaking, an advisory group whose recommendations laid the groundwork for the Evidence Act.

“As a state-of-the-art resource for improving government’s capacity to use the data it already collects, the National Secure Data Service will be able to temporarily link existing data and provide secure access to those data for exclusively statistical purposes in connection with approved projects,” the commission wrote in its 2017 final report.

In an effort to strike a balance between access and privacy, Potok said OMB has also asked agencies to provide a list of the statutes that prohibit them from sharing data amongst themselves….(More)”.