Mobility Data Sharing: Challenges and Policy Recommendations

Curated on Posted on by Stefaan Verhulst

Paper by Mollie D’Agostino, Paige Pellaton, and Austin Brown: “Dynamic and responsive transportation systems are a core pillar of equitable and sustainable communities. Achieving such systems requires comprehensive mobility data, or data that reports the movement of individuals and vehicles. Such data enable planners and policymakers to make informed decisions and enable researchers to model the effects of various transportation solutions. However, collecting mobility data also raises concerns about privacy and proprietary interests.

This issue paper provides an overview of the top needs and challenges surrounding mobility data sharing and presents four relevant policy strategies: (1) Foster voluntary agreement among mobility providers for a set of standardized data specifications; (2) Develop clear data-sharing requirements designed for transportation network companies and other mobility providers; (3) Establish publicly held big-data repositories, managed by third parties, to securely hold mobility data and provide structured access by states, cities, and researchers; (4) Leverage innovative land-use and transportation-planning tools….(More)”.

Traffic Data Is Good for More than Just Streets, Sidewalks

Curated on Posted on by Stefaan Verhulst

Skip Descant at Government Technology: “The availability of highly detailed daily traffic data is clearly an invaluable resource for traffic planners, but it can also help officials overseeing natural lands or public works understand how to better manage those facilities.

The Natural Communities Coalition, a conservation nonprofit in southern California, began working with the traffic analysis firm StreetLight Data in early 2018 to study the impacts from the thousands of annual visitors to 22 parks and natural lands. StreetLight Data’s use of de-identified cellphone data held promise for the project, which will continue into early 2020.

“You start to see these increases,” Milan Mitrovich, science director for the Natural Communities Coalition, said of the uptick in visitor activity the data showed. “So being able to have this information, and share it with our executive committee… these folks, they’re seeing it for the first time.”…

Officials with the Natural Communities Coalition were able to use the StreetLight data to gain insights into patterns of use not only per day, but at different times of the day. The data also told researchers where visitors were traveling from, a detail park officials found “jaw-dropping.”

“What we were able to see is, these resources, these natural areas, cast an incredible net across southern California,” said Mitrovich, noting visitors come from not only Orange County, but Los Angeles, San Bernardino and San Diego counties as well, a region of more than 20 million residents.

The data also allows officials to predict traffic levels during certain parts of the week, times of day or even holidays….(More)”.

Gender Gaps in Urban Mobility

Curated on Posted on by Stefaan Verhulst

Brief of the Data 2X Big Data and Gender Brief Series by The GovLab, UNICEF, Universidad Del Desarrollo, Telefónica R&D Center, ISI Foundation, and DigitalGlobe: “Mobility is gendered. For example, the household division of labor in many societies leads women and girls to take more multi-purpose, multi-stop trips than men. Women-headed households also tend to work more in the informal sector, with limited access to transportation subsidies, and use of public transit is further reduced by the risk of violence in public spaces.

This brief summarizes a recent analysis of gendered urban mobility in 51 (out of 52) neighborhoods of Santiago, Chile, relying on the call detail records (CDRs) of a large sample of mobile phone users over a period of three months. We found that: 1) women move less overall than men; 2) have a smaller radius of movement; and 3) tend to concentrate their time in a smaller set of locations. These mobility gaps are linked to lower average incomes and fewer public and private transportation options. These insights, taken from large volumes of passively generated, inexpensive data streaming in realtime, can help policymakers design more gender inclusive urban transit systems….(More)”.

Guide to Mobile Data Analytics in Refugee Scenarios

Curated on Posted on by Stefaan Verhulst

Book edited Albert Ali Salah, Alex Pentland, Bruno Lepri and Emmanuel Letouzé: “After the start of the Syrian Civil War in 2011–12, increasing numbers of civilians sought refuge in neighboring countries. By May 2017, Turkey had received over 3 million refugees — the largest r efugee population in the world. Some lived in government-run camps near the Syrian border, but many have moved to cities looking for work and better living conditions. They faced problems of integration, income, welfare, employment, health, education, language, social tension, and discrimination. In order to develop sound policies to solve these interlinked problems, a good understanding of refugee dynamics is necessary.

This book summarizes the most important findings of the Data for Refugees (D4R) Challenge, which was a non-profit project initiated to improve the conditions of the Syrian refugees in Turkey by providing a database for the scientific community to enable research on urgent problems concerning refugees. The database, based on anonymized mobile call detail records (CDRs) of phone calls and SMS messages of one million Turk Telekom customers, indicates the broad activity and mobility patterns of refugees and citizens in Turkey for the year 1 January to 31 December 2017. Over 100 teams from around the globe applied to take part in the challenge, and 61 teams were granted access to the data.

This book describes the challenge, and presents selected and revised project reports on the five major themes: unemployment, health, education, social integration, and safety, respectively. These are complemented by additional invited chapters describing related projects from international governmental organizations, technological infrastructure, as well as ethical aspects. The last chapter includes policy recommendations, based on the lessons learned.

The book will serve as a guideline for creating innovative data-centered collaborations between industry, academia, government, and non-profit humanitarian agencies to deal with complex problems in refugee scenarios. It illustrates the possibilities of big data analytics in coping with refugee crises and humanitarian responses, by showcasing innovative approaches drawing on multiple data sources, information visualization, pattern analysis, and statistical analysis.It will also provide researchers and students working with mobility data with an excellent coverage across data science, economics, sociology, urban computing, education, migration studies, and more….(More)”.

Data-Sharing in IoT Ecosystems From a Competition Law Perspective: The Example of Connected Cars

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Paper by Wolfgang Kerber: “…analyses whether competition law can help to solve problems of access to data and interoperability in IoT ecosystems, where often one firm has exclusive control of the data produced by a smart device (and of the technical access to this device). Such a gatekeeper position can lead to the elimination of competition for aftermarket and other complementary services in such IoT ecosystems. This problem is analysed both from an economic and a legal perspective, and also generally for IoT ecosystems as well as for the much discussed problems of “access to in-vehicle data and re-sources” in connected cars, where the “extended vehicle” concept of the car manufacturers leads to such positions of exclusive control. The paper analyses, in particular, the competition rules about abusive behavior of dominant firms (Art. 102 TFEU) and of firms with “relative market power” (§ 20 (1) GWB) in German competition law. These provisions might offer (if appropriately applied and amended) at least some solutions for these data access problems. Competition law, however, might not be sufficient for dealing with all or most of these problems, i.e. that also additional solutions might be needed (data portability, direct data (access) rights, or sector-specific regulation)….(More)”.

How Should Scientists’ Access To Health Databanks Be Managed?

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Richard Harris at NPR: “More than a million Americans have donated genetic information and medical data for research projects. But how that information gets used varies a lot, depending on the philosophy of the organizations that have gathered the data.

Some hold the data close, while others are working to make the data as widely available to as many researchers as possible — figuring science will progress faster that way. But scientific openness can be constrained b y both practical and commercial considerations.

Three major projects in the United States illustrate these differing philosophies.

VA scientists spearhead research on veterans database

The first project involves three-quarters of a million veterans, mostly men over age 60. Every day, 400 to 500 blood samples show up in a modern lab in the basement of the Veterans Affairs hospital in Boston. Luis Selva, the center’s associate director, explains that robots extract DNA from the samples and then the genetic material is sent out for analysis….

Intermountain Healthcare teams with deCODE genetics

Our second example involves what is largely an extended family: descendants of settlers in Utah, primarily from the Church of Jesus Christ of Latter-day Saints. This year, Intermountain Healthcare in Utah announced that it was going to sequence the complete DNA of half a million of its patients, resulting in what the health system says will be the world’s largest collection of complete genomes….

NIH’s All of Us aims to diversify and democratize research

Our third and final example is an effort by the National Institutes of Health to recruit a million Americans for a long-term study of health, behavior and genetics. Its philosophy sharply contrasts with that of Intermountain Health.

“We do have a very strong goal around diversity, in making sure that the participants in the All of Us research program reflect the vast diversity of the United States,” says Stephanie Devaney, the program’s deputy director….(More)”.

Raw data won’t solve our problems — asking the right questions will

Curated on Posted on by Stefaan Verhulst

Stefaan G. Verhulst in apolitical: “If I had only one hour to save the world, I would spend fifty-five minutes defining the questions, and only five minutes finding the answers,” is a famous aphorism attributed to Albert Einstein.

Behind this quote is an important insight about human nature: Too often, we leap to answers without first pausing to examine our questions. We tout solutions without considering whether we are addressing real or relevant challenges or priorities. We advocate fixes for problems, or for aspects of society, that may not be broken at all.

This misordering of priorities is especially acute — and represents a missed opportunity — in our era of big data. Today’s data has enormous potential to solve important public challenges.

However, policymakers often fail to invest in defining the questions that matter, focusing mainly on the supply side of the data equation (“What data do we have or must have access to?”) rather than the demand side (“What is the core question and what data do we really need to answer it?” or “What data can or should we actually use to solve those problems that matter?”).

As such, data initiatives often provide marginal insights while at the same time generating unnecessary privacy risks by accessing and exploring data that may not in fact be needed at all in order to address the root of our most important societal problems.

A new science of questions

So what are the truly vexing questions that deserve attention and investment today? Toward what end should we strategically seek to leverage data and AI?

The truth is that policymakers and other stakeholders currently don’t have a good way of defining questions or identifying priorities, nor a clear framework to help us leverage the potential of data and data science toward the public good.

This is a situation we seek to remedy at The GovLab, an action research center based at New York University.

Our most recent project, the 100 Questions Initiative, seeks to begin developing a new science and practice of questions — one that identifies the most urgent questions in a participatory manner. Launched last month, the goal of this project is to develop a process that takes advantage of distributed and diverse expertise on a range of given topics or domains so as to identify and prioritize those questions that are high impact, novel and feasible.

Because we live in an age of data and much of our work focuses on the promises and perils of data, we seek to identify the 100 most pressing problems confronting the world that could be addressed by greater use of existing, often inaccessible, datasets through data collaboratives – new forms of cross-disciplinary collaboration beyond public-private partnerships focused on leveraging data for good….(More)”.

How Tulsa is Preserving Privacy and Sharing Data for Social Good

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Data across Sectors for Health: “Data sharing between organizations addressing social risk factors has the potential to amplify impact by increasing direct service capacity and efficiency. Unfortunately, the risks of and restrictions on sharing personal data often limit this potential, and adherence to regulations such as HIPAA and FERPA can make data sharing a significant challenge.

DASH CIC-START awardee Restore Hope Ministries worked with Asemio to utilize technology that allows for the analysis of personally identifiable information while preserving clients’ privacy. The collaboration shared their findings in a new white paper that describes the process of using multi-party computation technology to answer questions that can aid service providers in exploring the barriers that underserved populations may be facing. The first question they asked: what is the overlap of populations served by two distinct organizations? The results of the overlap analysis confirmed that a significant opportunity exists to increase access to services for a subset of individuals through better outreach…(More)”

Sharing Private Data for Public Good

Curated on Posted on by Stefaan Verhulst

Stefaan G. Verhulst at Project Syndicate: “After Hurricane Katrina struck New Orleans in 2005, the direct-mail marketing company Valassis shared its database with emergency agencies and volunteers to help improve aid delivery. In Santiago, Chile, analysts from Universidad del Desarrollo, ISI Foundation, UNICEF, and the GovLab collaborated with Telefónica, the city’s largest mobile operator, to study gender-based mobility patterns in order to design a more equitable transportation policy. And as part of the Yale University Open Data Access project, health-care companies Johnson & Johnson, Medtronic, and SI-BONE give researchers access to previously walled-off data from 333 clinical trials, opening the door to possible new innovations in medicine.

These are just three examples of “data collaboratives,” an emerging form of partnership in which participants exchange data for the public good. Such tie-ups typically involve public bodies using data from corporations and other private-sector entities to benefit society. But data collaboratives can help companies, too – pharmaceutical firms share data on biomarkers to accelerate their own drug-research efforts, for example. Data-sharing initiatives also have huge potential to improve artificial intelligence (AI). But they must be designed responsibly and take data-privacy concerns into account.

Understanding the societal and business case for data collaboratives, as well as the forms they can take, is critical to gaining a deeper appreciation the potential and limitations of such ventures. The GovLab has identified over 150 data collaboratives spanning continents and sectors; they include companies such as Air France, Zillow, and Facebook. Our research suggests that such partnerships can create value in three main ways….(More)”.

How does Finland use health and social data for the public benefit?

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Karolina Mackiewicz at ICT & Health: “…Better innovation opportunities, quicker access to comprehensive ready-combined data, smoother permit procedures needed for research – those are some of the benefits for society, academia or business announced by the Ministry of Social Affairs and Health of Finland when the Act on the Secondary Use of Health and Social Data was introduced.

It came into force on 1st of May 2019. According to the Finnish Innovation Fund SITRA, which was involved in the development of the legislation and carried out the pilot projects, it’s a ‘groundbreaking’ piece of legislation. It’ not only effectively introduces a one-stop-shop for data but it’s also one of the first, if not the first, implementations of the GDPR (the EU’s General Data Protection Regulation) for the secondary use of data in Europe. 

The aim of the Act is “to facilitate the effective and safe processing and access to the personal social and health data for steering, supervision, research, statistics and development in the health and social sector”. A second objective is to guarantee an individual’s legitimate expectations as well as their rights and freedoms when processing personal data. In other words, the Ministry of Health promises that the Act will help eliminate the administrative burden in access to the data by the researchers and innovative businesses while respecting the privacy of individuals and providing conditions for the ethically sustainable way of using data….(More)”.