PEOPLE

Navigating the Health Data Ecosystem

Curated on May 27, 2015August 3, 2018 by Stefaan Verhulst

New book on O’Reilly Media on “The “Six C’s”: Understanding the Health Data Terrain in the Era of Precision Medicine”: “Data-driven technologies are now being adopted, developed, funded, and deployed throughout the health care market at an unprecedented scale. But, as this O’Reilly report reveals, health care innovation contains more hurdles and requires more finesse than many tech startups expect. By paying attention to the lessons from the report’s findings, innovation teams can better anticipate what they’ll face, and plan accordingly.

Simply put, teams looking to apply collective intelligence and “big data” platforms to health and health care problems often don’t appreciate the messy details of using and making sense of data in the heavily regulated hospital IT environment. Download this report today and learn how it helps prepare startups in six areas:

Complexity: An enormous domain with noisy data not designed for machine consumption
Computing: Lack of standard, interoperable schema for documenting human health in a digital format
Context: Lack of critical contextual metadata for interpreting health data
Culture: Startup difficulties in hospital ecosystems: why innovation can be a two-edged sword
Contracts: Navigating the IRB, HIPAA, and EULA frameworks
Commerce: The problem of how digital health startups get paid

This report represents the initial findings of a study funded by a grant from the Robert Wood Johnson Foundation. Subsequent reports will explore the results of three deep-dive projects the team pursued during the study. (More)”

Platform helps displaced families in Haiti crowdfund new homes

Curated on May 27, 2015October 23, 2018 by Stefaan Verhulst

Springwise: “We have seen a number of products — such as HUSH2 — which aim to provide short-term housing for the displaced or homeless in the wake of conflicts or natural disasters. These shelters are undoubtedly vital but they are essentially temporary, so New Story — a non profit based in Haiti — has another solution. New Story is a crowdfunding platform which enables families to raise the USD 6,000 necessary to finance building a new, long-term home.

New Story has partnered with Mission of Hope, which sources families in need and helps them to launch a crowdfunding campaign via the platform. Potential donors can read the family’s story and see a breakdown of expenses — including materials and labor — before choosing to donate. All the money raised goes directly to each project, which is then carried out by local contractors in Haiti. The houses, which are three room block homes, are usually completed within two months, after which families post video updates for their donors….(More)”

Citizen Science in the Unexplored Terrain of the Brain

Curated on May 14, 2015May 29, 2019 by Stefaan Verhulst

Aaron Krol at BioITWorld: “The game is simple. On the left-hand side of the screen you see a cube containing a misshapen 3D figure, a bit like a tree branch with a gall infestation. To the right is a razor-thin cross-section of the cube, a grainy image of overlapping gray blobs. Clicking on a blob colors it in, like using the paint bucket tool in MS Paint, while also sending colorful extensions out from the branch to the left. Working your way through 256 of these cross-sections, your job is to extend the branch through the cube, identifying which blobs are continuous with the branch and which are nearby distractions.
It hardly sounds like a game at all, but strange to say, there’s something very compelling about playing EyeWire. Maybe it’s watching the branches grow and fork as you discover new connections. Maybe it’s how quickly you can rack up progress, almost not noticing time go by as you span your branches through cube after cube.
“It draws you in,” says Nikitas Serafetinidis ― or Nseraf, as he’s known in-game. “There’s an unexplained component that makes this game highly addictive.”
Serafetinidis is the world record holder in EyeWire, a game whose players are helping to build a three-dimensional map of brain cells in the retina. The images in EyeWire are in fact photos taken with an electron microscope at the Max Planck Institute of Medical Research in Heidelberg: each one represents a tiny sliver of a mouse’s retina, just 20 nanometers thick. The “blobs” are thin slices of closely adjoined neurons, and the “branch” shows the path of a single cell, which can cross through hundreds of thousands of those images….(More)”

Slacktivism and the social benefits of social video: Sharing a video to ‘help’ a cause

Curated on May 14, 2015October 23, 2018 by Stefaan Verhulst

Cat Jones at FirstMonday: “Interest in online ‘slacktivism’ is high both within and outside academia, and the online sharing of cause-related campaigns is increasing, but research into the extent to which ‘slacktivism’ applies to the act of sharing online content to ‘help’ a cause is limited. Slacktivism, as used in much of today’s popular discourse, is defined as ‘feel-good online activism [with] zero political or social impact’ (Morozov, 2009). Here, a survey-based analysis investigates social videos’ impacts on U.K. and U.S. viewers. Results show that the stronger viewers’ motivations are to share to help a cause, the stronger their motivations are to find out more afterwards. Further, a case study shows that social videos that motivate viewers to share the video ‘because it’s for a good cause, and I want to help’ (cause-related sharing versus, for example, to appear knowledgeable about a subject), can also prompt real-life actions, including donations. These results indicate that cause-related video sharing does have an impact, and therefore is not slacktivism by Morozov’s definition. Preliminary analysis suggests that of viewers sharing to ‘help’ causes, those discriminating in their choice of sharing audience (narrow vs. broad) are more likely to further engage than indiscriminate sharers. Result patterns from U.S. narrowcast sharers differ from those of other groups, indicating that tie strength and cultural differences may play a role in modifying slacktivist behaviors….(More)”

India asks its citizens: please digitise our files

Curated on May 11, 2015August 15, 2018 by Stefaan Verhulst

Joshua Chambers in FutureGov: “India has asked its citizens to help digitise records so that it can move away from paper processes.

Using its crowdsourcing web site MyGov, the government wrote that “we cannot talk of Digital India and transforming India into a knowledge society if most of the transactions continue to be physical.”

It is “essential” that paper records are converted into machine readable digital versions, the government added, but “the cost of such digitisation is very large and existing budgetary constraints of government and many other organisations do not allow such lavish digitisation effort.”

Consequently, the government is asking citizens for advice on how to build a cheap content management system and tools that will allow it to crowdsource records transcriptions. Citizens would be rewarded for every word that they transcribe through a points system, which can then be recouped into cash prizes.

“The proposed platform will create earning and income generation opportunities for our literate rural and urban citizens, develop digital literacy and IT skills and include them in the making of Digital India,” the government added.

The announcement also noted the importance of privacy, suggesting that documents are split so that no portion gives any clue regarded the overall content of the document.

Instead, two people will be given the same words to transcribe, and the software will compare their statements to ensure accuracy. Only successful transcription will be rewarded with points….(More)”

Cops Increasingly Use Social Media to Connect, Crowdsource

Curated on May 7, 2015August 3, 2018 by Stefaan Verhulst

Sara E. Wilson at GovTech: “Law enforcement has long used public tip lines and missing persons bulletins to recruit citizens in helping solve crime and increasing public safety. Though the need for police departments to connect with their communities is nothing new, the array of technologies available to do so is growing all the time — as are the ways in which departments use those technologies.

In fact, 81 percent of law enforcement professionals use sites such as Facebook and Twitter on the job. And 25 percent use it daily.

Much of law enforcement is crowdsourced — Amber alerts are pushed to smartphones, seeking response from citizens; officers push wanted information and crime tips to users on Facebook and Twitter in the hopes they can help; and some departments create apps to streamline the information sharing.

Take the Johns Creek, Ga., Police Department, which has deployed a tool that allows additional citizen engagement and crowdsourcing…..Using a mobile app — the SunGard Public Sector P2C Converge app, which is branded specifically for Johns Creek PD as JCPD4Me — the department can more smoothly manage public safety announcements and other social media interactions….

Another tool cops use for communicating with citizens is Nixle, which lets agencies publish alerts, advisories, community information and traffic news. Citizens register for free and receive credible, neighborhood-level public safety information via text message and email in real time.

The Oakland, Calif., Police Department (OPD) uses the platform to engage with citizens — an April 17, 2015 post on Oakland PD’s Nixle Community feed informs readers that the department’s Special Victims Section, which is working to put an end to sex trafficking in the city, arrested five individuals for solicitation of prostitution. Since Jan. 1, 2015, OPD has arrested 70 individuals from 27 cities across the state for solicitation of prostitution.

Nixle allows two-way communication as well — the Tip Watch function allows anonymous tipsters to send information to Oakland PD in three ways (text, phone, Web). Now OPD can issue a passcode to tipsters for two-way, anonymous communication to help gather more information.

On the East Coast, the Peabody, Mass., Police Department has used the My Police Department (MyPD) app by WiredBlue, which lets citizens submit tips and feedback directly to the department, since its creation….

During the high-profile manhunt for the Boston Marathon bombers in 2013, the FBI asked the public for eyewitness photo and video evidence. The response from the public was so overwhelming that the server infrastructure couldn’t handle the massive inflow of data.

This large-scale crowdsourcing and data dilemma inspired a new product: the Los Angeles Sheriff’s Department’s Large Emergency Event Digital Information Repository (LEEDIR). Developed by CitizenGlobal Inc. and Amazon Web Services, LEEDIR pairs an app with cloud storage to help police use citizens’ smartphones as tools to gather and investigate evidence. Since its creation, the repository was used in Santa Barbara, Calif., in 2014 to investigate riots in Isla Vista.

Proponents of LEEDIR say the crowdsourcing system gives authorities a secure, central repository for the countless electronic tips that can come in during a crisis. Critics, however, claim that privacy issues come into play with this kind of policing. …(More)”

Delhi trials participatory budget initiative

Curated on May 6, 2015October 23, 2018 by Stefaan Verhulst

Medha Basu in FutureGov: “The Delhi government is running a participatory budget exercise to involve citizens in deciding priorities for the 2015 Budget.

The city government, which came into office in February, has set aside INR 5 million (US$78,598) for each neighbourhood and residents will decide what this money gets spent on.

The initiative, Janta Ka Budget (meaning ‘People’s Budget’), will be tested in 400 communities across the city, with the first one launched by Chief Minister Arvind Kejriwal last month.

….

Officials met with residents of the neighbourhood to hear what they would like to see improved in their area. Residents then voted in public meetings to decide the most popular ones.

Officials are expected to come up with cost estimates for the shortlisted projects within a week of the meeting and allocate money from the fund.

In the first session, the shortlisted projects were a library, dispensary, road repairs and CCTV cameras….(More)”

Worldwide accessibility map is crowdsourced by users

Curated on May 6, 2015October 23, 2018 by Stefaan Verhulst

Springwise: “There are a growing number of apps such as Handimap and Blue Badge Style which offer city guides for users in wheelchairs — informing them which venues are accessible and which do not have disabled facilities. AXS Map does the same, but utilizes crowdsourced information to cover a much wider range of places and venues.

AXS Map is a free app, hailing from Canada, which aims to make the world a more accessible place for those with mobility problems. Users can access the platform via smartphone or desktop: they can browse any given area for accessible restaurants, shops, public restrooms or anything else via the searchable map. The database is made up of crowdsourced reviews submitted by the users themselves and includes ratings and information about entryways and restrooms.

The organization also host Mapathons, which aim to get new communities in towns and cities which are not yet covered involved: participants are encouraged to form teams and compete to see who can rate the most venues in a given area. Mapathons have taken place all over the USA and there are upcoming events in New York and Istanbul. Where should the AXS Mappers head next?” (More: AXS Map)

Nepal Aid Workers Helped by Drones, Crowdsourcing

Curated on May 6, 2015August 3, 2018 by Stefaan Verhulst

Shirley Wang et al in the Wall Street Journal: “….It is too early to gauge the exact impact of the technology in Nepal relief efforts, which have just begun amid chaos on the ground. Aid organizations have reported hospitals are overstretched, a shortage of capacity at Katmandu’s airport is crippling aid distribution and damaged roads and the mountainous country’s difficult terrain make reaching villages difficult.

Still, technology is playing an increasing role in the global response to humanitarian crises. Within hours of Saturday’s 7.8-magnitude temblor, U.S. giants such as Google Inc. and Facebook Inc. were offering their networks for use in verifying survivors and helping worried friends and relatives locate their loved ones.

Advances in online mapping—long used to calculate distances and plot driving routes—and the ability of camera-equipped drones are playing an increasingly important role in coordinating emergency responses at ground zero of any disaster.

A community of nonprofit groups uses satellite images, private images and open-source mapping technology to remap areas affected by the earthquake. They mark damaged buildings and roads so rescuers can identify the worst-hit areas and assess how accessible different areas are. The technology complements more traditional intelligence from aircraft.

Such crowdsourced real-time mapping technologies were first used in the 2010 Haiti earthquake, according to Chris Grundy, a professor in Geographical Information Systems at the London School of Hygiene and Tropical Medicine. The technology “has been advancing a little bit every time [every situation where it is used] as we start to see what works,” said Prof. Grundy.

The American Red Cross supplied its relief team on the Wednesday night flight to Nepal from Washington, D.C. with 50 digital maps and an inch-thick pile of paper maps that help identify where the needs are. The charity has a mapping project with the British Red Cross, Doctors Without Borders and the Humanitarian OpenStreetMap Team, a crowdsourced data-sharing group.

Almost a week after the Nepal earthquake, two more people have been pulled from the rubble in Katmandu by teams of international rescuers. But hope for finding more survivors is waning. Photo: Sean McLain/The Wall Street Journal.

Mapping efforts have grown substantially since Haiti, according to Dale Kunce, head of the geographic information systems team at the American Red Cross. In the two months after the Haiti temblor, 600 mapping contributors made 1.5 million edits, while in the first 48 hours after the Nepal earthquake, 2,000 mappers had already made three million edits, Mr. Kunce said.

Some 3,400 volunteers from around the world are now inspecting images of Nepal online to identify road networks and conditions, to assess the extent of damage and pinpoint open spaces where displaced persons tend to congregate, according to Nama Budhathoki, executive director of a nonprofit technology company called Katmandu Living Labs.

His group is operating from a cramped but largely undamaged meeting room in a central-Katmandu office building to help coordinate the global effort of various mapping organizations with the needs of agencies like Doctors Without Borders and the international Red Cross community.

In recent days the Nepal Red Cross and Nepalese army have requested and been supplied with updated maps of severely damaged districts, said Dr. Budhathoki….(More)”