Come to Finland if you want to glimpse the future of health data!

Curated on Posted on by Stefaan Verhulst

Jukka Vahti at Sitra: “The Finnish tradition of establishing, maintaining and developing data registers goes back to the 1600s, when parish records were first kept.

When this old custom is combined with the opportunities afforded by digitisation, the positive approach Finns have towards research and technology, and the recently updated legislation enabling the data economy, Finland and the Finnish people can lead the way as Europe gradually, or even suddenly, switches to a fair data economy.

The foundations for a fair data economy already exist

The fair data economy is a natural continuation of the former projects promoting e-services that were undertaken in Finland.

For example, the Data Exchange Layer is already speeding up the transfer of data from one system to another in Finland and in Estonia, the country where the system originated, and a system unique to just these two countries.

In May 2019 Finland also saw the entry into force of the Act on the Secondary Use of Health and Social Data, according to which the information on social welfare and healthcare held in registers may be used for purposes of statistics, research, education, knowledge management, control and supervision conducted by authorities, and development and innovation activity.

The new law will make the work of researchers and service developers more effective, as the business of acquiring a permit will take place through a one-stop-shop principle and it will be possible to use data from more than one source more readily than before….(More)”.

The Geopolitics of Information

Curated on Posted on by Stefaan Verhulst

Paper by Eric Rosenbach and Katherine Mansted: “Information is now the world’s most consequential and contested geopolitical resource. The world’s most profitable businesses have asserted for years that data is the “new oil.” Political campaigns—and foreign intelligence operatives—have shown over the past two American presidential elections that data-driven social media is the key to public opinion. Leading scientists and technologists understand that good datasets, not just algorithms, will give them a competitive edge.

Data-driven innovation is not only disrupting economies and societies; it is reshaping relations between nations. The pursuit of information power—involving states’ ability to use information to influence, decide, create and communicate—is causing states to rewrite their terms of engagement with markets and citizens, and to redefine national interests and strategic priorities. In short, information power is altering the nature and behavior of the fundamental building block of international relations, the state, with potentially seismic consequences.

Authoritarian governments recognize the strategic importance of information and over the past five years have operationalized powerful domestic and international information strategies. They are cauterizing their domestic information environments and shutting off their citizens from global information flows, while weaponizing information to attack and destabilize democracies. In particular, China and Russia believe that strategic competition in the 21st century is characterized by a zero-sum contest for control of data, as well as the technology and talent needed to convert data into useful information.

Democracies remain fundamentally unprepared for strategic competition in the Information Age. For the United States in particular, as the importance of information as a geopolitical resource has waxed, its information dominance has waned. Since the end of the Cold War, America’s supremacy in information technologies seemed unassailable—not least because of its central role in creating the Internet and overall economic primacy. Democracies have also considered any type of information strategy to be largely unneeded: government involvement in the domestic information environment feels Orwellian, while democracies believed that their “inherently benign” foreign policy didn’t need extensive influence operations.

However, to compete and thrive in the 21st century, democracies, and the United States in particular, must develop new national security and economic strategies that address the geopolitics of information. In the 20th century, market capitalist democracies geared infrastructure, energy, trade, and even social policy to protect and advance that era’s key source of power—manufacturing. In this century, democracies must better account for information geopolitics across all dimensions of domestic policy and national strategy….(More)”.

So­cial me­dia data re­veal where vis­it­ors to nature loca­tions provide po­ten­tial be­ne­fits or threats to biodiversity

Curated on Posted on by Stefaan Verhulst

University of Helsinki: “In a new article published in the journal Science of the Total Environment, a team of researchers assessed global patterns of visitation rates, attractiveness and pressure to more than 12,000 Important Bird and Biodiversity Areas (IBAs), which are sites of international significance for nature conservation, by using geolocated data mined from social media (Twitter and Flickr).

The study found that Important Bird and Biodiversity Areas located in Europe and Asia, and in temperate biomes, had the highest density of social media users. Results also showed that sites of importance for congregatory species, which were also more accessible, more densely populated and provided more tourism facilities, received higher visitation than did sites richer in bird species.

 “Resources in biodiversity conservation are woefully inadequate and novel data sources from social media provide openly available user-generated information about human-nature interactions, at an unprecedented spatio-temporal scale”, says Dr Anna Hausmann from the University of Helsinki, a conservation scientist leading the study. “Our group has been exploring and validating data retrieved from social media to understand people´s preferences for experiencing nature in national parks at a local, national and continental scale”, she continues, “in this study, we expand our analyses at a global level”. …

“Social media content and metadata contain useful information for understanding human-nature interactions in space and time”, says Prof. Tuuli Toivonen, another co-author in the paper and the leader of the Digital Geography Lab at the University of Helsinki. “Social media data can also be used to cross-validate and enrich data collected by conservation organizations”, she continues. The study found that the 17 percent of all Important Bird and Biodiversity Areas (IBA) that were assessed by experts to be under greater human disturbance also had higher density of social media users….(More)”.

Commission publishes guidance on free flow of non-personal data

Curated on Posted on by Stefaan Verhulst

European Commission: “The guidance fulfils an obligation in the Regulation on the free flow of non-personal data (FFD Regulation), which requires the Commission to publish a guidance on the interaction between this Regulation and the General Data Protection Regulation (GDPR), especially as regards datasets composed of both personal and non-personal data. It aims to help users – in particular small and medium-sized enterprises – understand the interaction between the two regulations.

In line with the existing GDPR documents, prepared by the European Data Protection Board, this guidance document aims to clarify which rules apply when processing personal and non-personal data. It gives a useful overview of the central concepts of the free flow of personal and non-personal data within the EU, while explaining the relation between the two Regulations in practical terms and with concrete examples….

Non-personal data are distinct from personal data, as laid down in the GDPR Regulation. The non-personal data can be categorised in terms of origin, namely:

  • data which originally did not relate to an identified or identifiable natural person, such as data on weather conditions generated by sensors installed on wind turbines, or data on maintenance needs for industrial machines; or
  • data which was initially personal data, but later made anonymous.

While the guidance refers to more examples of non-personal data, it also explains the concept of personal data, anonymised and pseudonymised, to provide a better understanding as well describes the limitations between personal and non-personal data.

What are mixed datasets?

In most real-life situations, a dataset is very likely to be composed of both personal and non-personal data. This is often referred to as a “mixed dataset”. Mixed datasets represent the majority of datasets used in the data economy and commonly gathered thanks to technological developments such as the Internet of Things (i.e. digitally connecting objects), artificial intelligence and technologies enabling big data analytics.

Examples of mixed datasets include a company’s tax records, mentioning the name and telephone number of the managing director of the company. This can also include a company’s knowledge of IT problems and solutions based on individual incident reports, or a research institution’s anonymised statistical data and the raw data initially collected, such as the replies of individual respondents to statistical survey questions….(More)”.

Open Data and the Private Sector

Curated on Posted on by Stefaan Verhulst

Chapter by Joel Gurin, Carla Bonini and Stefaan Verhulst in State of Open Data: “The open data movement launched a decade ago with a focus on transparency, good governance, and citizen participation. As other chapters in this collection have documented in detail, those critical uses of open data have remained paramount and are continuing to grow in importance at a time of fake news and increased secrecy. But the value of open data extends beyond transparency and accountability – open data is also an important resource for business and economic growth.

The past several years have seen an increased focus on the value of open data to the private sector. In 2012, the Open Data Institute (ODI) was founded in the United Kingdom (UK) and backed with GBP 10 million by the UK government to maximise the value of open data in business and government. A year later, McKinsey released a report suggesting open data could help unlock USD 3 to 5 trillion in economic value annually. At around the same time, Monsanto acquired the Climate Corporation, a digital agriculture company that leverages open data to inform farmers for approximately USD 1.1 billion. In 2014, the GovLab launched the Open Data 500,2the first national study of businesses using open government data (now in six countries), and, in 2015, Open Data for Development (OD4D) launched the Open Data Impact Map, which today contains more than 1 100 examples of private sector companies using open data. The potential business applications of open data continue to be a priority for many governments around the world as they plan and develop their data programmes.

The use of open data has become part of the broader business practice of using data and data science to inform business decisions, ranging from launching new products and services to optimising processes and outsmarting the competition. In this chapter, we take stock of the state of open data and the private sector by analysing how the private sector both leverages and contributes to the open data ecosystem….(More)”.

MegaPixels

Curated on Posted on by Stefaan Verhulst

About: “…MegaPixels is an art and research project first launched in 2017 for an installation at Tactical Technology Collective’s GlassRoom about face recognition datasets. In 2018 MegaPixels was extended to cover pedestrian analysis datasets for a commission by Elevate Arts festival in Austria. Since then MegaPixels has evolved into a large-scale interrogation of hundreds of publicly-available face and person analysis datasets, the first of which launched on this site in April 2019.

MegaPixels aims to provide a critical perspective on machine learning image datasets, one that might otherwise escape academia and industry funded artificial intelligence think tanks that are often supported by the several of the same technology companies who have created datasets presented on this site.

MegaPixels is an independent project, designed as a public resource for educators, students, journalists, and researchers. Each dataset presented on this site undergoes a thorough review of its images, intent, and funding sources. Though the goals are similar to publishing an academic paper, MegaPixels is a website-first research project, with an academic publication to follow.

One of the main focuses of the dataset investigations presented on this site is to uncover where funding originated. Because of our emphasis on other researcher’s funding sources, it is important that we are transparent about our own….(More)”.

Principles and Policies for “Data Free Flow With Trust”

Curated on Posted on by Stefaan Verhulst

Paper by Nigel Cory, Robert D. Atkinson, and Daniel Castro: “Just as there was a set of institutions, agreements, and principles that emerged out of Bretton Woods in the aftermath of World War II to manage global economic issues, the countries that value the role of an open, competitive, and rules-based global digital economy need to come together to enact new global rules and norms to manage a key driver of today’s global economy: data. Japanese Prime Minister Abe’s new initiative for “data free flow with trust,” combined with Japan’s hosting of the G20 and leading role in e-commerce negotiations at the World Trade Organization (WTO), provides a valuable opportunity for many of the world’s leading digital economies (Australia, the United States, and European Union, among others) to rectify the gradual drift toward a fragmented and less-productive global digital economy. Prime Minister Abe is right in proclaiming, “We have yet to catch up with the new reality, in which data drives everything, where the D.F.F.T., the Data Free Flow with Trust, should top the agenda in our new economy,” and right in his call “to rebuild trust toward the system for international trade. That should be a system that is fair, transparent, and effective in protecting IP and also in such areas as e-commerce.”

The central premise of this effort should be a recognition that data and data-driven innovation are a force for good. Across society, data innovation—the use of data to create value—is creating more productive and innovative economies, transparent and responsive governments, better social outcomes (improved health care, safer and smarter cities, etc.).3But to maximize the innovative and productivity benefits of data, countries that support an open, rules-based global trading system need to agree on core principles and enact common rules. The benefits of a rules-based and competitive global digital economy are at risk as a diverse range of countries in various stages of political and economic development have policy regimes that undermine core processes, especially the flow of data and its associated legal responsibilities; the use of encryption to protect data and digital activities and technologies; and the blocking of data constituting illegal, pirated content….(More)”.

A Symphony, Not a Solo: How Collective Management Organisations Can Embrace Innovation and Drive Data Sharing in the Music Industry

Curated on Posted on by Stefaan Verhulst

Paper by David Osimo, Laia Pujol Priego, Turo Pekari and Ano Sirppiniemi: “…data is becoming a fundamental source of competitive advantage in music, just as in other sectors, and streaming services in particular are generating large volume of new data offering unique insight around customer taste and behavior. (As Financial Times recently put it, the music
industry is having its “moneyball” moment) But how are the different players getting ready for this change?

This policy brief aims to look at the question from the perspective of CMOs, the organisations charged with redistributing royalties from music users to music rightsholders (such as musical authors and publishers).

The paper is divided in three sections. Part I will look at the current positioning of CMOs in this new data-intensive ecosystem. Part II will discuss how greater data sharing and reuse can maximize innovation, comparing the music industries with other industries. Part III will make policy and business-model reform recommendations for CMOs to stimulate data-driven innovation, internally and in the industry as a whole….(More)”

Democracy in Retreat: Freedom in the World 2019

Curated on Posted on by Stefaan Verhulst

Freedom House: “In 2018, Freedom in the World recorded the 13th consecutive year of decline in global freedom. The reversal has spanned a variety of countries in every region, from long-standing democracies like the United States to consolidated authoritarian regimes like China and Russia. The overall losses are still shallow compared with the gains of the late 20th century, but the pattern is consistent and ominous. Democracy is in retreat.

In states that were already authoritarian, earning Not Free designations from Freedom House, governments have increasingly shed the thin façade of democratic practice that they established in previous decades, when international incentives and pressure for reform were stronger. More authoritarian powers are now banning opposition groups or jailing their leaders, dispensing with term limits, and tightening the screws on any independent media that remain. Meanwhile, many countries that democratized after the end of the Cold War have regressed in the face of rampant corruption, antiliberal populist movements, and breakdowns in the rule of law. Most troublingly, even long-standing democracies have been shaken by populist political forces that reject basic principles like the separation of powers and target minorities for discriminatory treatment.

Some light shined through these gathering clouds in 2018. Surprising improvements in individual countries—including Malaysia, Armenia, Ethiopia, Angola, and Ecuador—show that democracy has enduring appeal as a means of holding leaders accountable and creating the conditions for a better life. Even in the countries of Europe and North America where democratic institutions are under pressure, dynamic civic movements for justice and inclusion continue to build on the achievements of their predecessors, expanding the scope of what citizens can and should expect from democracy. The promise of democracy remains real and powerful. Not only defending it but broadening its reach is one of the great causes of our time….(More)”.

What can we learn from billions of food purchases derived from fidelity cards?

Curated on Posted on by Stefaan Verhulst

Daniele Quercia at Medium: “By combining 1.6B food item purchases with 1.1B medical prescriptions for the entire city of London for one year, we discovered that, to predict health outcomes, socio-economic conditions matter less than what previous research has shown: despite being of lower-income, certain areas are healthy, and that is because of what their residents eat!

This result comes from our latest project “Poor but Healthy”, which was published in the Springer European Physical Journal (EPJ) of Data Science this month, and comes with a @tobi_vierzwo’s stunningly beautiful map of London I invite all of you to explore.

Why are we interested in urban health? In our cities, food is cheap and exercise discretionary, and health takes its toll. Half of European citizens will be obese by 2050, and obesity and its diseases are likely to reach crisis proportions. In this project, we set out to show that fidelity cards of grocery stores represent a treasure trove of health data — they can be used not only to (e)mail discount coupons to customers but also to effectively track a neighbourhood’s health in real-time for an entire city or even an entire country.

In research circles, the impact of eating habits on people’s health has mostly been studied using dietary surveys, which are costly and of limited scale.

To complement these surveys, we have recently resorted to grocery fidelity cards. We analyzed the anonymized records of 1.6B grocery items purchased by 1.6M grocery store customers in London over one whole year, and combined them with 1.1B medical prescriptions.

In so doing, we found that, as one expects, the “trick” to not being associated with chronic diseases is eating less what we instinctively like (e.g., sugar, carbohydrates), balancing all the nutrients, and avoiding the (big) quantities that are readily available. These results come as no surprise yet speak to the validity of using fidelity cards to capture health outcomes…(More)”.