Book edited by Maria Tzanou: “The growth of data collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms have spawned a big data revolution that has reshaped how we understand and approach health data. Recently the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination,... (More >)
COVID Data Failures Create Pressure for Public Health System Overhaul
Kaiser Health News: “After terrorists slammed a plane into the Pentagon on 9/11, ambulances rushed scores of the injured to community hospitals, but only three of the patients were taken to specialized trauma wards. The reason: The hospitals and ambulances had no real-time information-sharing system. Nineteen years later, there is still no national data network that enables the health system to respond effectively to disasters and disease outbreaks. Many doctors and nurses must fill out paper forms on COVID-19 cases and available beds and fax them to public health agencies, causing critical delays in care and hampering the effort... (More >)
TraceTogether
Case Notes by Mitchell B. Weiss and Sarah Mehta: “By April 7, 2020, over 1.4 million people worldwide had contracted the novel coronavirus (COVID-19). Governments raced to curb the spread of COVID-19 by scaling up testing, quarantining those infected, and tracing their possible contacts. It had taken Singapore’s Government Technology Agency (GovTech) and Ministry of Health (MOH) all of eight weeks to develop the world’s first nationwide deployment of a Bluetooth-based contact tracing system, TraceTogether, and deploy it in an attempt to slow the spread of COVID-19. From late January to mid-March 2020, GovTech’s Jason Bay and his team... (More >)
A need for open public data standards and sharing in light of COVID-19
Lauren Gardner, Jeremy Ratcliff, Ensheng Dong and Aaron Katz at the Lancet: “The disjointed public health response to the COVID-19 pandemic has demonstrated one clear truth: the value of timely, publicly available data. The John Hopkins University (JHU) Center for Systems Science and Engineering’s COVID-19 dashboard exists to provide this information. What grew from a modest effort to track a novel cause of pneumonia in China quickly became a mainstay symbol of the pandemic, receiving over 1 billion hits per day within weeks of its creation, primarily driven by the general public seeking information on the emerging health crisis.... (More >)
Coronavirus Compels Congress to Modernize Communication Techniques
Congressional Management Foundation: “The Future of Citizen Engagement: Coronavirus, Congress, and Constituent Communications” explores how Members of Congress and their staff engaged with citizens while navigating the constraints posed by COVID-19, and offers examples of how Congress can substantively connect with constituents using modern technology against the backdrop of a global pandemic. The report addresses the following questions: How did congressional offices adapt their communications strategies to meet the immediate needs of their constituents during the onset of COVID-19?What techniques did Members use to diversify their constituent outreach?What methods of engagement is Congress using now, and likely to use... (More >)
Journalists’ guide to COVID data
Guide by RTDNA: “Watch a press conference, turn on a newscast, or overhear just about any phone conversation these days and you’ll hear mayors discussing R values, reporters announcing new fatalities and separated families comparing COVID case rolling averages in their counties. As coronavirus resurges across the country, medical data is no longer just the purview of epidemiologists (though a quick glance at any social media comments section shows an unlikely simultaneous surge in the number of virology experts and statisticians). Journalists reporting on COVID, however, have a particular obligation to understand the data, to add context and to... (More >)
Genomic Epidemiology Data Infrastructure Needs for SARS-CoV-2
Report by the National Academies of Sciences, Engineering, and Medicine: “In December 2019, new cases of severe pneumonia were first detected in Wuhan, China, and the cause was determined to be a novel beta coronavirus related to the severe acute respiratory syndrome (SARS) coronavirus that emerged from a bat reservoir in 2002. Within six months, this new virus—SARS coronavirus 2 (SARS-CoV-2)—has spread worldwide, infecting at least 10 million people with an estimated 500,000 deaths. COVID-19, the disease caused by SARS-CoV-2, was declared a public health emergency of international concern on January 30, 2020 by the World Health Organization (WHO)... (More >)
Strengthening Privacy Protections in COVID-19 Mobile Phone–Enhanced Surveillance Programs
Rand Report: “Dozens of countries, including the United States, have been using mobile phone tools and data sources for COVID-19 surveillance activities, such as tracking infections and community spread, identifying populated areas at risk, and enforcing quarantine orders. These tools can augment traditional epidemiological interventions, such as contact tracing with technology-based data collection (e.g., automated signaling and record-keeping on mobile phone apps). As the response progresses, other beneficial technologies could include tools that authenticate those with low risk of contagion or that build community trust as stay-at-home orders are lifted. However, the potential benefits that COVID-19 mobile phone–enhanced public... (More >)
Digital technologies in the public-health response to COVID-19
Paper by Jobie Budd et al in Nature Medicine: “Digital technologies are being harnessed to support the public-health response to COVID-19 worldwide, including population surveillance, case identification, contact tracing and evaluation of interventions on the basis of mobility data and communication with the public. These rapid responses leverage billions of mobile phones, large online datasets, connected devices, relatively low-cost computing resources and advances in machine learning and natural language processing. This Review aims to capture the breadth of digital innovations for the public-health response to COVID-19 worldwide and their limitations, and barriers to their implementation, including legal, ethical and... (More >)
The Ethics of Pandemics
Book edited by Meredith Celene Schwartz: “The rapid spread of COVID-19 has had an unprecedented impact on modern health-care systems and has given rise to a number of complex ethical issues. This collection of readings and case studies offers an overview of some of the most pressing of these issues, such as the allocation of ventilators and other scarce resources, the curtailing of standard privacy measures for the sake of public health, and the potential obligations of health-care professionals to continue operating in dangerous work environments….(More)“. ... (More >)
