IRS Unleashes Flood of Searchable Charity Data


Peter Olsen-Phillips in the Chronicle of Philanthropy: “The Internal Revenue Service opened a gusher of information on nonprofits Wednesday by making electronically filed Form 990s available in bulk and in a machine-friendly format.

The material will be available through the Public Data Sets area of Amazon Web Services. It will also include information from digital versions of the 990-EZ form filed by smaller nonprofits and form 990-PFs filed by private foundations.

The change means the public will have quicker and more in-depth access to the 990, the primary disclosure document for and main source of information on tax-exempt organizations. The form includes data on groups’ finances, board members, executive pay, fundraising expenses, and other aspects of their operations.

The filings were previously made public as PDF documents, requiring costly manual entry or imprecise character-recognition technology to extract the data in bulk and make it searchable. Now the information can be downloaded and parsed for free by anyone with a computer.

“With e-file data, you can easily and precisely extract individual items on the form,” Carl Malamud, an open-government advocate and the president of Public.Resource.org, wrote in an email. The nonprofit works to make public information more accessible, and Mr. Malamud has been at the forefront of efforts to liberate data on the nonprofit sector.

…Despite the enhanced transparency, much nonprofit data will remain hard to find and laborious to analyze, as nearly a third of all 990s were filed on paper in 2015.

Mr. McLean said it’s mainly smaller nonprofits that opt to file a paper 990 with the IRS, adding that he hopes recent legislative efforts to require mandatory electronic filing gain traction….(More)”.

Evolving the IRB: Building Robust Review for Industry Research


Molly Jackman & Lauri Kanerva at Wash. & Lee L. Rev. Online : “Increasingly, companies are conducting research so that they can make informed decisions about what products to build and what features to change.These data-driven insights enable companies to make responsible decisions that will improve peoples’ experiences with their products. Importantly, companies must also be responsible in how they conduct research. Existing ethical guidelines for research do not always robustly address the considerations that industry researchers face. For this reason, companies should develop principles and practices around research that are appropriate to the environments in which they operate,taking into account the values set out in law and ethics. This paper describes the research review process designed and implemented at Facebook, including the training employees receive, and the steps involved in evaluating proposed research. We emphasize that there is no one-size-fits-all model of research review that can be applied across companies, and that processes should be designed to fit the contexts in which the research is taking place. However, we hope that general principles can be extracted from Facebook’s process that will inform other companies as they develop frameworks for research review that serve their needs….(More)”.

Revealing Cultural Ecosystem Services through Instagram Images


Paper by Paulina Guerrero, Maja Steen Møller, Anton Stahl Olafsson, and Bernhard Snizek on “The Potential of Social Media Volunteered Geographic Information for Urban Green Infrastructure Planning and Governance”: “With the prevalence of smartphones, new ways of engaging citizens and stakeholders in urban planning and governance are emerging. The technologies in smartphones allow citizens to act as sensors of their environment, producing and sharing rich spatial data useful for new types of collaborative governance set-ups. Data derived from Volunteered Geographic Information (VGI) can support accessible, transparent, democratic, inclusive, and locally-based governance situations of interest to planners, citizens, politicians, and scientists. However, there are still uncertainties about how to actually conduct this in practice. This study explores how social media VGI can be used to document spatial tendencies regarding citizens’ uses and perceptions of urban nature with relevance for urban green space governance. Via the hashtag #sharingcph, created by the City of Copenhagen in 2014, VGI data consisting of geo-referenced images were collected from Instagram, categorised according to their content and analysed according to their spatial distribution patterns. The results show specific spatial distributions of the images and main hotspots. Many possibilities and much potential of using VGI for generating, sharing, visualising and communicating knowledge about citizens’ spatial uses and preferences exist, but as a tool to support scientific and democratic interaction, VGI data is challenged by practical, technical and ethical concerns. More research is needed in order to better understand the usefulness and application of this rich data source to governance….(More)”

Customers, Users or Citizens? Inclusion, Spatial Data and Governance in the Smart City


Paper by Linnet Taylor, Christine Richter, Shazade Jameson and Carmen Perez de Pulgar: “This report discusses the use and governance of spatial data in Amsterdam’s smart city projects. How much does spatial data tell the city about its people, and how is that likely to change in the next decade? The project focuses especially on those who may be marginalised or challenged by increasing visibility due to the use of big data in the future smart city: various groups were interviewed including immigrants, children, sex workers, opt-outs of smart technologies, and technology developers. They were asked how they felt about their personal ‘data-sphere’, the level of data-awareness and the kind of consultation they would like to see as citizens of a smart city, and how they felt about increasing interaction between the city and private-sector partners around digital data. The report presents a social roadmap for the datafied city’s future, and addresses the question of how the city can build an inclusive and responsive spatial data governance infrastructure….(More)”

Digital Government: overcoming the systemic failure of transformation


Paul Waller and Vishanth Weerakkody: “This Working Paper contains propositions regarding the use of digital technology to “transform” government that significantly conflict with received wisdom in academia and governments across the world. It counters assertions made in countless political, official and commercial statements and reports produced over past decades….

The “transformation of government” has often been proposed as an objective of e-government; frequently presented as a phase in stage models following the provision online of information and transactions. Yet in literature or official documents there is no established definition of transformation as applied to government. Implicitly or explicitly, it mostly refers to a change in organisational form, signalled by the terms “joining-up” or “integration”, of government. In some work,

In some work, transformation is limited to changing processes or “services”— though “services” is a term unhelpfully applied to a multitude of entities. There is in academic or other literature little evidence of any type of “transformation” achieved beyond a change in an administrative process, nor a robust framework of benefits one might deliver. This begs the questions of what it actually means in reality and why it might be a desired goal.

In essence, what we aim to do in this paper is to develop a structured frame of reference for making sense of how information and communications technologies (ICT), in all their forms, really fit within the world of government and public administration — exactly the challenge set by Professor Christopher Hood in his 2007 paper:

“But we need to have a way of assessing current developments in administrative technologies with those of other eras, such as development of telephones, cars, radios, and fingerprinting in police work in the early part of the twentieth century, or of exact methods of measurement on excise tax collection in the eighteenth century. And if the analysis of the changes such developments bring is to amount to anything more than a breathless tour d’horizon of the latest technological gizmos in public policy (much though governments themselves have a liking for that sort of approach), it needs to be related to some foundational analysis that is, in some way, technology-free and rooted in the nature of government as a social and legal phenomenon.”

After a brief historical review, the paper starts by considering what governments and public administrations actually do: specifically, policy design and implementation through policy instruments. It redefines transformation in terms of changing the policy instrument set chosen to implement policy and sets out broad rationales for how and why ICT can enable this. It proposes a frame of reference of terminology, concepts and objects that enable the examination of not only such transformation, but e-government in general as it has developed over two decades. …(More)”

Selected Readings on Data Collaboratives


By Neil Britto, David Sangokoya, Iryna Susha, Stefaan Verhulst and Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of data collaboratives was originally published in 2017.

The term data collaborative refers to a new form of collaboration, beyond the public-private partnership model, in which participants from different sectors (including private companies, research institutions, and government agencies ) can exchange data to help solve public problems. Several of society’s greatest challenges — from addressing climate change to public health to job creation to improving the lives of children — require greater access to data, more collaboration between public – and private-sector entities, and an increased ability to analyze datasets. In the coming months and years, data collaboratives will be essential vehicles for harnessing the vast stores of privately held data toward the public good.

Selected Reading List (in alphabetical order)

Annotated Selected Readings List (in alphabetical order)

Agaba, G., Akindès, F., Bengtsson, L., Cowls, J., Ganesh, M., Hoffman, N., . . . Meissner, F. “Big Data and Positive Social Change in the Developing World: A White Paper for Practitioners and Researchers.” 2014. http://bit.ly/25RRC6N.

  • This white paper, produced by “a group of activists, researchers and data experts” explores the potential of big data to improve development outcomes and spur positive social change in low- and middle-income countries. Using examples, the authors discuss four areas in which the use of big data can impact development efforts:
    • Advocating and facilitating by “opening[ing] up new public spaces for discussion and awareness building;
    • Describing and predicting through the detection of “new correlations and the surfac[ing] of new questions;
    • Facilitating information exchange through “multiple feedback loops which feed into both research and action,” and
    • Promoting accountability and transparency, especially as a byproduct of crowdsourcing efforts aimed at “aggregat[ing] and analyz[ing] information in real time.
  • The authors argue that in order to maximize the potential of big data’s use in development, “there is a case to be made for building a data commons for private/public data, and for setting up new and more appropriate ethical guidelines.”
  • They also identify a number of challenges, especially when leveraging data made accessible from a number of sources, including private sector entities, such as:
    • Lack of general data literacy;
    • Lack of open learning environments and repositories;
    • Lack of resources, capacity and access;
    • Challenges of sensitivity and risk perception with regard to using data;
    • Storage and computing capacity; and
    • Externally validating data sources for comparison and verification.

Ansell, C. and Gash, A. “Collaborative Governance in Theory and Practice.” Journal of Public Administration Research and  Theory 18 (4), 2008. http://bit.ly/1RZgsI5.

  • This article describes collaborative arrangements that include public and private organizations working together and proposes a model for understanding an emergent form of public-private interaction informed by 137 diverse cases of collaborative governance.
  • The article suggests factors significant to successful partnering processes and outcomes include:
    • Shared understanding of challenges,
    • Trust building processes,
    • The importance of recognizing seemingly modest progress, and
    • Strong indicators of commitment to the partnership’s aspirations and process.
  • The authors provide a ‘’contingency theory model’’ that specifies relationships between different variables that influence outcomes of collaborative governance initiatives. Three “core contingencies’’ for successful collaborative governance initiatives identified by the authors are:
    • Time (e.g., decision making time afforded to the collaboration);
    • Interdependence (e.g., a high degree of interdependence can mitigate negative effects of low trust); and
    • Trust (e.g. a higher level of trust indicates a higher probability of success).

Ballivian A, Hoffman W. “Public-Private Partnerships for Data: Issues Paper for Data Revolution Consultation.” World Bank, 2015. Available from: http://bit.ly/1ENvmRJ

  • This World Bank report provides a background document on forming public-prviate partnerships for data with the private sector in order to inform the UN’s Independent Expert Advisory Group (IEAG) on sustaining a “data revolution” in sustainable development.
  • The report highlights the critical position of private companies within the data value chain and reflects on key elements of a sustainable data PPP: “common objectives across all impacted stakeholders, alignment of incentives, and sharing of risks.” In addition, the report describes the risks and incentives of public and private actors, and the principles needed to “build[ing] the legal, cultural, technological and economic infrastructures to enable the balancing of competing interests.” These principles include understanding; experimentation; adaptability; balance; persuasion and compulsion; risk management; and governance.
  • Examples of data collaboratives cited in the report include HP Earth Insights, Orange Data for Development Challenges, Amazon Web Services, IBM Smart Cities Initiative, and the Governance Lab’s Open Data 500.

Brack, Matthew, and Tito Castillo. “Data Sharing for Public Health: Key Lessons from Other Sectors.” Chatham House, Centre on Global Health Security. April 2015. Available from: http://bit.ly/1DHFGVl

  • The Chatham House report provides an overview on public health surveillance data sharing, highlighting the benefits and challenges of shared health data and the complexity in adapting technical solutions from other sectors for public health.
  • The report describes data sharing processes from several perspectives, including in-depth case studies of actual data sharing in practice at the individual, organizational and sector levels. Among the key lessons for public health data sharing, the report strongly highlights the need to harness momentum for action and maintain collaborative engagement: “Successful data sharing communities are highly collaborative. Collaboration holds the key to producing and abiding by community standards, and building and maintaining productive networks, and is by definition the essence of data sharing itself. Time should be invested in establishing and sustaining collaboration with all stakeholders concerned with public health surveillance data sharing.”
  • Examples of data collaboratives include H3Africa (a collaboration between NIH and Wellcome Trust) and NHS England’s care.data programme.

de Montjoye, Yves-Alexandre, Jake Kendall, and Cameron F. Kerry. “Enabling Humanitarian Use of Mobile Phone Data.” The Brookings Institution, Issues in Technology Innovation. November 2014. Available from: http://brook.gs/1JxVpxp

  • Using Ebola as a case study, the authors describe the value of using private telecom data for uncovering “valuable insights into understanding the spread of infectious diseases as well as strategies into micro-target outreach and driving update of health-seeking behavior.”
  • The authors highlight the absence of a common legal and standards framework for “sharing mobile phone data in privacy-conscientious ways” and recommend “engaging companies, NGOs, researchers, privacy experts, and governments to agree on a set of best practices for new privacy-conscientious metadata sharing models.”

Eckartz, Silja M., Hofman, Wout J., Van Veenstra, Anne Fleur. “A decision model for data sharing.” Vol. 8653 LNCS. Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics). 2014. http://bit.ly/21cGWfw.

  • This paper proposes a decision model for data sharing of public and private data based on literature review and three case studies in the logistics sector.
  • The authors identify five categories of the barriers to data sharing and offer a decision model for identifying potential interventions to overcome each barrier:
    • Ownership. Possible interventions likely require improving trust among those who own the data through, for example, involvement and support from higher management
    • Privacy. Interventions include “anonymization by filtering of sensitive information and aggregation of data,” and access control mechanisms built around identity management and regulated access.  
    • Economic. Interventions include a model where data is shared only with a few trusted organizations, and yield management mechanisms to ensure negative financial consequences are avoided.
    • Data quality. Interventions include identifying additional data sources that could improve the completeness of datasets, and efforts to improve metadata.
    • Technical. Interventions include making data available in structured formats and publishing data according to widely agreed upon data standards.

Hoffman, Sharona and Podgurski, Andy. “The Use and Misuse of Biomedical Data: Is Bigger Really Better?” American Journal of Law & Medicine 497, 2013. http://bit.ly/1syMS7J.

  • This journal articles explores the benefits and, in particular, the risks related to large-scale biomedical databases bringing together health information from a diversity of sources across sectors. Some data collaboratives examined in the piece include:
    • MedMining – a company that extracts EHR data, de-identifies it, and offers it to researchers. The data sets that MedMining delivers to its customers include ‘lab results, vital signs, medications, procedures, diagnoses, lifestyle data, and detailed costs’ from inpatient and outpatient facilities.
    • Explorys has formed a large healthcare database derived from financial, administrative, and medical records. It has partnered with major healthcare organizations such as the Cleveland Clinic Foundation and Summa Health System to aggregate and standardize health information from ten million patients and over thirty billion clinical events.
  • Hoffman and Podgurski note that biomedical databases populated have many potential uses, with those likely to benefit including: “researchers, regulators, public health officials, commercial entities, lawyers,” as well as “healthcare providers who conduct quality assessment and improvement activities,” regulatory monitoring entities like the FDA, and “litigants in tort cases to develop evidence concerning causation and harm.”
  • They argue, however, that risks arise based on:
    • The data contained in biomedical databases is surprisingly likely to be incorrect or incomplete;
    • Systemic biases, arising from both the nature of the data and the preconceptions of investigators are serious threats the validity of research results, especially in answering causal questions;
  • Data mining of biomedical databases makes it easier for individuals with political, social, or economic agendas to generate ostensibly scientific but misleading research findings for the purpose of manipulating public opinion and swaying policymakers.

Krumholz, Harlan M., et al. “Sea Change in Open Science and Data Sharing Leadership by Industry.” Circulation: Cardiovascular Quality and Outcomes 7.4. 2014. 499-504. http://1.usa.gov/1J6q7KJ

  • This article provides a comprehensive overview of industry-led efforts and cross-sector collaborations in data sharing by pharmaceutical companies to inform clinical practice.
  • The article details the types of data being shared and the early activities of GlaxoSmithKline (“in coordination with other companies such as Roche and ViiV”); Medtronic and the Yale University Open Data Access Project; and Janssen Pharmaceuticals (Johnson & Johnson). The article also describes the range of involvement in data sharing among pharmaceutical companies including Pfizer, Novartis, Bayer, AbbVie, Eli Llly, AstraZeneca, and Bristol-Myers Squibb.

Mann, Gideon. “Private Data and the Public Good.” Medium. May 17, 2016. http://bit.ly/1OgOY68.

    • This Medium post from Gideon Mann, the Head of Data Science at Bloomberg, shares his prepared remarks given at a lecture at the City College of New York. Mann argues for the potential benefits of increasing access to private sector data, both to improve research and academic inquiry and also to help solve practical, real-world problems. He also describes a number of initiatives underway at Bloomberg along these lines.    
  • Mann argues that data generated at private companies “could enable amazing discoveries and research,” but is often inaccessible to those who could put it to those uses. Beyond research, he notes that corporate data could, for instance, benefit:
      • Public health – including suicide prevention, addiction counseling and mental health monitoring.
    • Legal and ethical questions – especially as they relate to “the role algorithms have in decisions about our lives,” such as credit checks and resume screening.
  • Mann recognizes the privacy challenges inherent in private sector data sharing, but argues that it is a common misconception that the only two choices are “complete privacy or complete disclosure.” He believes that flexible frameworks for differential privacy could open up new opportunities for responsibly leveraging data collaboratives.

Pastor Escuredo, D., Morales-Guzmán, A. et al, “Flooding through the Lens of Mobile Phone Activity.” IEEE Global Humanitarian Technology Conference, GHTC 2014. Available from: http://bit.ly/1OzK2bK

  • This report describes the impact of using mobile data in order to understand the impact of disasters and improve disaster management. The report was conducted in the Mexican state of Tabasco in 2009 as a multidisciplinary, multi-stakeholder consortium involving the UN World Food Programme (WFP), Telefonica Research, Technical University of Madrid (UPM), Digital Strategy Coordination Office of the President of Mexico, and UN Global Pulse.
  • Telefonica Research, a division of the major Latin American telecommunications company, provided call detail records covering flood-affected areas for nine months. This data was combined with “remote sensing data (satellite images), rainfall data, census and civil protection data.” The results of the data demonstrated that “analysing mobile activity during floods could be used to potentially locate damaged areas, efficiently assess needs and allocate resources (for example, sending supplies to affected areas).”
  • In addition to the results, the study highlighted “the value of a public-private partnership on using mobile data to accurately indicate flooding impacts in Tabasco, thus improving early warning and crisis management.”

* Perkmann, M. and Schildt, H. “Open data partnerships between firms and universities: The role of boundary organizations.” Research Policy, 44(5), 2015. http://bit.ly/25RRJ2c

  • This paper discusses the concept of a “boundary organization” in relation to industry-academic partnerships driven by data. Boundary organizations perform mediated revealing, allowing firms to disclose their research problems to a broad audience of innovators and simultaneously minimize the risk that this information would be adversely used by competitors.
  • The authors identify two especially important challenges for private firms to enter open data or participate in data collaboratives with the academic research community that could be addressed through more involvement from boundary organizations:
    • First is a challenge of maintaining competitive advantage. The authors note that, “the more a firm attempts to align the efforts in an open data research programme with its R&D priorities, the more it will have to reveal about the problems it is addressing within its proprietary R&D.”
    • Second, involves the misalignment of incentives between the private and academic field. Perkmann and Schildt argue that, a firm seeking to build collaborations around its opened data “will have to provide suitable incentives that are aligned with academic scientists’ desire to be rewarded for their work within their respective communities.”

Robin, N., Klein, T., & Jütting, J. “Public-Private Partnerships for Statistics: Lessons Learned, Future Steps.” OECD. 2016. http://bit.ly/24FLYlD.

  • This working paper acknowledges the growing body of work on how different types of data (e.g, telecom data, social media, sensors and geospatial data, etc.) can address data gaps relevant to National Statistical Offices (NSOs).
  • Four models of public-private interaction for statistics are describe: in-house production of statistics by a data-provider for a national statistics office (NSO), transfer of data-sets to NSOs from private entities, transfer of data to a third party provider to manage the NSO and private entity data, and the outsourcing of NSO functions.
  • The paper highlights challenges to public-private partnerships involving data (e.g., technical challenges, data confidentiality, risks, limited incentives for participation), suggests deliberate and highly structured approaches to public-private partnerships involving data require enforceable contracts, emphasizes the trade-off between data specificity and accessibility of such data, and the importance of pricing mechanisms that reflect the capacity and capability of national statistic offices.
  • Case studies referenced in the paper include:
    • A mobile network operator’s (MNO Telefonica) in house analysis of call detail records;
    • A third-party data provider and steward of travel statistics (Positium);
    • The Data for Development (D4D) challenge organized by MNO Orange; and
    • Statistics Netherlands use of social media to predict consumer confidence.

Stuart, Elizabeth, Samman, Emma, Avis, William, Berliner, Tom. “The data revolution: finding the missing millions.” Overseas Development Institute, 2015. Available from: http://bit.ly/1bPKOjw

  • The authors of this report highlight the need for good quality, relevant, accessible and timely data for governments to extend services into underrepresented communities and implement policies towards a sustainable “data revolution.”
  • The solutions focused on this recent report from the Overseas Development Institute focus on capacity-building activities of national statistical offices (NSOs), alternative sources of data (including shared corporate data) to address gaps, and building strong data management systems.

Taylor, L., & Schroeder, R. “Is bigger better? The emergence of big data as a tool for international development policy.” GeoJournal, 80(4). 2015. 503-518. http://bit.ly/1RZgSy4.

  • This journal article describes how privately held data – namely “digital traces” of consumer activity – “are becoming seen by policymakers and researchers as a potential solution to the lack of reliable statistical data on lower-income countries.
  • They focus especially on three categories of data collaborative use cases:
    • Mobile data as a predictive tool for issues such as human mobility and economic activity;
    • Use of mobile data to inform humanitarian response to crises; and
    • Use of born-digital web data as a tool for predicting economic trends, and the implications these have for LMICs.
  • They note, however, that a number of challenges and drawbacks exist for these types of use cases, including:
    • Access to private data sources often must be negotiated or bought, “which potentially means substituting negotiations with corporations for those with national statistical offices;”
    • The meaning of such data is not always simple or stable, and local knowledge is needed to understand how people are using the technologies in question
    • Bias in proprietary data can be hard to understand and quantify;
    • Lack of privacy frameworks; and
    • Power asymmetries, wherein “LMIC citizens are unwittingly placed in a panopticon staffed by international researchers, with no way out and no legal recourse.”

van Panhuis, Willem G., Proma Paul, Claudia Emerson, John Grefenstette, Richard Wilder, Abraham J. Herbst, David Heymann, and Donald S. Burke. “A systematic review of barriers to data sharing in public health.” BMC public health 14, no. 1 (2014): 1144. Available from: http://bit.ly/1JOBruO

  • The authors of this report provide a “systematic literature of potential barriers to public health data sharing.” These twenty potential barriers are classified in six categories: “technical, motivational, economic, political, legal and ethical.” In this taxonomy, “the first three categories are deeply rooted in well-known challenges of health information systems for which structural solutions have yet to be found; the last three have solutions that lie in an international dialogue aimed at generating consensus on policies and instruments for data sharing.”
  • The authors suggest the need for a “systematic framework of barriers to data sharing in public health” in order to accelerate access and use of data for public good.

Verhulst, Stefaan and Sangokoya, David. “Mapping the Next Frontier of Open Data: Corporate Data Sharing.” In: Gasser, Urs and Zittrain, Jonathan and Faris, Robert and Heacock Jones, Rebekah, “Internet Monitor 2014: Reflections on the Digital World: Platforms, Policy, Privacy, and Public Discourse (December 15, 2014).” Berkman Center Research Publication No. 2014-17. http://bit.ly/1GC12a2

  • This essay describe a taxonomy of current corporate data sharing practices for public good: research partnerships; prizes and challenges; trusted intermediaries; application programming interfaces (APIs); intelligence products; and corporate data cooperatives or pooling.
  • Examples of data collaboratives include: Yelp Dataset Challenge, the Digital Ecologies Research Partnerhsip, BBVA Innova Challenge, Telecom Italia’s Big Data Challenge, NIH’s Accelerating Medicines Partnership and the White House’s Climate Data Partnerships.
  • The authors highlight important questions to consider towards a more comprehensive mapping of these activities.

Verhulst, Stefaan and Sangokoya, David, 2015. “Data Collaboratives: Exchanging Data to Improve People’s Lives.” Medium. Available from: http://bit.ly/1JOBDdy

  • The essay refers to data collaboratives as a new form of collaboration involving participants from different sectors exchanging data to help solve public problems. These forms of collaborations can improve people’s lives through data-driven decision-making; information exchange and coordination; and shared standards and frameworks for multi-actor, multi-sector participation.
  • The essay cites four activities that are critical to accelerating data collaboratives: documenting value and measuring impact; matching public demand and corporate supply of data in a trusted way; training and convening data providers and users; experimenting and scaling existing initiatives.
  • Examples of data collaboratives include NIH’s Precision Medicine Initiative; the Mobile Data, Environmental Extremes and Population (MDEEP) Project; and Twitter-MIT’s Laboratory for Social Machines.

Verhulst, Stefaan, Susha, Iryna, Kostura, Alexander. “Data Collaboratives: matching Supply of (Corporate) Data to Solve Public Problems.” Medium. February 24, 2016. http://bit.ly/1ZEp2Sr.

  • This piece articulates a set of key lessons learned during a session at the International Data Responsibility Conference focused on identifying emerging practices, opportunities and challenges confronting data collaboratives.
  • The authors list a number of privately held data sources that could create positive public impacts if made more accessible in a collaborative manner, including:
    • Data for early warning systems to help mitigate the effects of natural disasters;
    • Data to help understand human behavior as it relates to nutrition and livelihoods in developing countries;
    • Data to monitor compliance with weapons treaties;
    • Data to more accurately measure progress related to the UN Sustainable Development Goals.
  • To the end of identifying and expanding on emerging practice in the space, the authors describe a number of current data collaborative experiments, including:
    • Trusted Intermediaries: Statistics Netherlands partnered with Vodafone to analyze mobile call data records in order to better understand mobility patterns and inform urban planning.
    • Prizes and Challenges: Orange Telecom, which has been a leader in this type of Data Collaboration, provided several examples of the company’s initiatives, such as the use of call data records to track the spread of malaria as well as their experience with Challenge 4 Development.
    • Research partnerships: The Data for Climate Action project is an ongoing large-scale initiative incentivizing companies to share their data to help researchers answer particular scientific questions related to climate change and adaptation.
    • Sharing intelligence products: JPMorgan Chase shares macro economic insights they gained leveraging their data through the newly established JPMorgan Chase Institute.
  • In order to capitalize on the opportunities provided by data collaboratives, a number of needs were identified:
    • A responsible data framework;
    • Increased insight into different business models that may facilitate the sharing of data;
    • Capacity to tap into the potential value of data;
    • Transparent stock of available data supply; and
    • Mapping emerging practices and models of sharing.

Vogel, N., Theisen, C., Leidig, J. P., Scripps, J., Graham, D. H., & Wolffe, G. “Mining mobile datasets to enable the fine-grained stochastic simulation of Ebola diffusion.” Paper presented at the Procedia Computer Science. 2015. http://bit.ly/1TZDroF.

  • The paper presents a research study conducted on the basis of the mobile calls records shared with researchers in the framework of the Data for Development Challenge by the mobile operator Orange.
  • The study discusses the data analysis approach in relation to developing a situation of Ebola diffusion built around “the interactions of multi-scale models, including viral loads (at the cellular level), disease progression (at the individual person level), disease propagation (at the workplace and family level), societal changes in migration and travel movements (at the population level), and mitigating interventions (at the abstract government policy level).”
  • The authors argue that the use of their population, mobility, and simulation models provide more accurate simulation details in comparison to high-level analytical predictions and that the D4D mobile datasets provide high-resolution information useful for modeling developing regions and hard to reach locations.

Welle Donker, F., van Loenen, B., & Bregt, A. K. “Open Data and Beyond.” ISPRS International Journal of Geo-Information, 5(4). 2016. http://bit.ly/22YtugY.

  • This research has developed a monitoring framework to assess the effects of open (private) data using a case study of a Dutch energy network administrator Liander.
  • Focusing on the potential impacts of open private energy data – beyond ‘smart disclosure’ where citizens are given information only about their own energy usage – the authors identify three attainable strategic goals:
    • Continuously optimize performance on services, security of supply, and costs;
    • Improve management of energy flows and insight into energy consumption;
    • Help customers save energy and switch over to renewable energy sources.
  • The authors propose a seven-step framework for assessing the impacts of Liander data, in particular, and open private data more generally:
    • Develop a performance framework to describe what the program is about, description of the organization’s mission and strategic goals;
    • Identify the most important elements, or key performance areas which are most critical to understanding and assessing your program’s success;
    • Select the most appropriate performance measures;
    • Determine the gaps between what information you need and what is available;
    • Develop and implement a measurement strategy to address the gaps;
    • Develop a performance report which highlights what you have accomplished and what you have learned;
    • Learn from your experiences and refine your approach as required.
  • While the authors note that the true impacts of this open private data will likely not come into view in the short term, they argue that, “Liander has successfully demonstrated that private energy companies can release open data, and has successfully championed the other Dutch network administrators to follow suit.”

World Economic Forum, 2015. “Data-driven development: pathways for progress.” Geneva: World Economic Forum. http://bit.ly/1JOBS8u

  • This report captures an overview of the existing data deficit and the value and impact of big data for sustainable development.
  • The authors of the report focus on four main priorities towards a sustainable data revolution: commercial incentives and trusted agreements with public- and private-sector actors; the development of shared policy frameworks, legal protections and impact assessments; capacity building activities at the institutional, community, local and individual level; and lastly, recognizing individuals as both produces and consumers of data.

Can You Really Spot Cancer Through a Search Engine?


Michael Reilly at MIT Technology Review: “In the world of cancer treatment, early diagnosis can mean the difference between being cured and being handed a death sentence. At the very least, catching a tumor early increases a patient’s chances of living longer.

Researchers at Microsoft think they may know of a tool that could help detect cancers before you even think to go to a doctor: your search engine.

In a study published Tuesday in the Journal of Oncology Practice, the Microsoft team showed that it was able to mine the anonymized search queries of 6.4 million Bing users to find searches that indicated someone had been diagnosed with pancreatic cancer (such as “why did I get cancer in pancreas,” and “I was told I have pancreatic cancer what to expect”). Then, looking at people’s search patterns before their diagnosis, they identified patterns of search that indicated they had been experiencing symptoms before they ever sought medical treatment.

Pancreatic cancer is a particularly deadly form of the disease. It’s the fourth-leading cause of cancer death in the U.S., and three-quarters of people diagnosed with it die within a year. But catching it early still improves the odds of living longer.

By looking for searches for symptoms—which include yellowing, itchy skin, and abdominal pain—and checking the user’s search history for signs of other risk factors like alcoholism and obesity, the team was often able to identify searches for symptoms up to five months before they were diagnosed.

In their paper, the team acknowledged the limitations of the work, saying that it is not meant to provide people with a diagnosis. Instead they suggested that it might one day be turned into a tool that warns users whose searches indicate they may have symptoms of cancer.

“The goal is not to perform the diagnosis,” said Ryen White, one of the researchers, on a post on Microsoft’s blog. “The goal is to help those at highest risk to engage with medical professionals who can actually make the true diagnosis.”…(More)”

Searching for Someone: From the “Small World Experiment” to the “Red Balloon Challenge,” and beyond


Essay by Manuel Cebrian, Iyad Rahwan, Victoriano Izquierdo, Alex Rutherford, Esteban Moro and Alex (Sandy) Pentland: “Our ability to search social networks for people and information is fundamental to our success. We use our personal connections to look for new job opportunities, to seek advice about what products to buy, to match with romantic partners, to find a good physician, to identify business partners, and so on.

Despite living in a world populated by seven billion people, we are able to navigate our contacts efficiently, only needing a handful of personal introductions before finding the answer to our question, or the person we are seeking. How does this come to be? In folk culture, the answer to this question is that we live in a “small world.” The catch-phrase was coined in 1929 by the visionary author Frigyes Karinthy in his Chain-Links essay, where these ideas are put forward for the first time.

Let me put it this way: Planet Earth has never been as tiny as it is now. It shrunk — relatively speaking of course — due to the quickening pulse of both physical and verbal communication. We never talked about the fact that anyone on Earth, at my or anyone’s will, can now learn in just a few minutes what I think or do, and what I want or what I would like to do. Now we live in fairyland. The only slightly disappointing thing about this land is that it is smaller than the real world has ever been. — Frigyes Karinthy, Chain-Links, 1929

Then, it was just a dystopian idea reflecting the anxiety of living in an increasingly more connected world. But there was no empirical evidence that this was actually the case, and it took almost 30 years to find any.

Six Degrees of Separation

In 1967, legendary psychologist Stanley Milgram conducted a ground-breaking experiment to test this “small world” hypothesis. He started with random individuals in the U.S. midwest, and asked them to send packages to people in Boston, Massachusetts, whose address was not given. They must contribute to this “search” only by sending the package to individuals known on a first-name basis. Milgram expected that successful searches (if any!) would require hundreds of individuals along the chain from the initial sender to the final recipient.

Surprisingly, however, Milgram found that the average path length was somewhere between five point five and six individuals, which made social search look astonishingly efficient. Although the experiment raised some methodological criticisms, its findings were profound. However, what it did not answer is why social networks have such short paths in the first place. The answer was not obvious. In fact, there were reasons to suspect that short paths were just a myth: social networks are very cliquish. Your friends’ friends are likely to also be your friends, and thus most social paths are short and circular. This “cliquishness” suggests that our search through the social network can easily get “trapped” within our close social community, making social search highly inefficient.

Architectures for Social Search

Again, it took a long time — more than 40 years — before this riddle was solved. In a 1998 seminal paper in Nature, Duncan Watts & Steven Strogatzcame up with an elegant mathematical model to explain the existence of these short paths. They started from a social network that is very cliquish, i.e., most of your friends are also friends of one another. In this model, the world is “large” since the social distance among individuals is very long. However, if we take only a tiny fraction of these connections (say one out of every hundred links), and rewire them to random individuals in the network, that same world suddenly becomes “small.” These random connections allow individuals to jump to faraway communities very quickly — using them as social network highways — thus reducing average path length in a dramatic fashion.

While this theoretical insight suggests that social networks are searchable due to the existence of short paths, it does not yet say much about the “procedure” that people use to find these paths. There is no reason, a priori, that we should know how to find these short chains, especially since there are many chains, and no individuals have knowledge of the network structure beyond their immediate communities. People do not know how the friends of their friends are connected among themselves, and therefore it is not obvious that they would have a good way of navigating their social network while searching.

Soon after Watts and Strogatz came up with this model at Cornell University, a computer scientist across campus, Jon Kleinberg, set out to investigate whether such “small world” networks are searchable. In a landmark Nature article, “Navigation in a Small World,” published in 200o, he showed that social search is easy without global knowledge of the network, but only for a very specific value of the probability of long-range connectivity (i.e., the probability that we know somebody far removed from us, socially, in the social network). With the advent of a publicly available social media dataset such as LiveJournal, David Liben-Nowell and colleagues showed that real-world social networks do indeed have these particular long-range ties. It appears the social architecture of the world we inhabit is remarkably fine-tuned for searchability….

The Tragedy of the Crowdsourcers

Some recent efforts have been made to try and disincentivize sabotage. If verification is also rewarded along the recruitment tree, then the individuals who recruited the saboteurs would have a clear incentive to verify, halt, and punish the saboteurs. This theoretical solution is yet to be tested in practice, and it is conjectured that a coalition of saboteurs, where saboteurs recruit other saboteurs pretending to “vet” them, would make recursive verification futile.

If we are to believe in theory, theory does not shed a promising light on reducing sabotage in social search. We recently proposed the “Crowdsourcing Dilemma.” In it, we perform a game-theoretic analysis of the fundamental tradeoff between the potential for increased productivity of social search and the possibility of being set back by malicious behavior, including misinformation. Our results show that, in competitive scenarios, such as those with multiple social searches competing for the same information, malicious behavior is the norm, not an anomaly — a result contrary to conventional wisdom. Even worse: counterintuitively, making sabotage more costly does not deter saboteurs, but leads all the competing teams to a less desirable outcome, with more aggression, and less efficient collective search for talent.

These empirical and theoretical findings have cautionary implications for the future of social search, and crowdsourcing in general. Social search is surprisingly efficient, cheap, easy to implement, and functional across multiple applications. But there are also surprises in the amount of evildoing that the social searchers will stumble upon while recruiting. As we get deeper and deeper into the recruitment tree, we stumble upon that evil force lurking in the dark side of the network.

Evil mutates and regenerates in the crowd in new forms impossible to anticipate by the designers or participants themselves. Crowdsourcing and its enemies will always be engaged in an co-evolutionary arms race.

Talent is there to be searched and recruited. But so are evil and malice. Ultimately, crowdsourcing experts need to figure out how to recruit more of the former, while deterring more of the later. We might be living on a small world, but the cost and fragility of navigating it could harm any potential strategy to leverage the power of social networks….

Being searchable is a way of being closely connected to everyone else, which is conducive to contagion, group-think, and, most crucially, makes it hard for individuals to differentiate from each other. Evolutionarily, for better or worse, our brain makes us mimic others, and whether this copying of others ends up being part of the Wisdom of the Crowds, or the “stupidity of many,” it is highly sensitive to the scenario at hand.

Katabasis, or the myth of the hero that descends to the underworld and comes back stronger, is as old as time and pervasive across ancient cultures. Creative people seem to need to “get lost.” Grigori Perelman, Shinichi Mochizuki, and Bob Dylan all disappeared for a few years to reemerge later as more creative versions of themselves. Others like J. D. Salinger and Bobby Fisher also vanished, and never came back to the public sphere. If others cannot search and find us, we gain some slack, some room to escape from what we are known for by others. Searching for our true creative selves may rest on the difficulty of others finding us….(More)”

The Perils of Experimentation


Paper by Michael A. Livermore: “More than eighty years after Justice Brandeis coined the phrase “laboratories of democracy,” the concept of policy experimentation retains its currency as a leading justification for decentralized governance. This Article examines the downsides of experimentation, and in particular the potential for decentralization to lead to the production of information that exacerbates public choice failures. Standard accounts of experimentation and policy learning focus on information concerning the social welfare effects of alternative policies. But learning can also occur along a political dimension as information about ideological preferences, campaign techniques, and electoral incentives is revealed. Both types of information can be put to use in the policy arena by a host of individual and institutional actors that have a wide range of motives, from public-spirited concern for the general welfare to a desire to maximize personal financial returns. In this complex environment, there is no guarantee that the information that is generated by experimentation will lead to social benefits. This Article applies this insight to prior models of federalism developed in the legal and political science literature to show that decentralization can lead to the over-production of socially harmful information. As a consequence, policy makers undertaking a decentralization calculation should seek a level of decentralization that best balances the costs and benefits of information production. To illustrate the legal and policy implications of the arguments developed here, this Article examines two contemporary environmental rulemakings of substantial political, legal, and economic significance: a rule to define the jurisdictional reach of the Clean Water Act; and a rule to limit greenhouse gas emissions from the electricity generating sector….(More)”.

 

Combatting Police Discrimination in the Age of Big Data


Paper by Sharad Goel, Maya Perelman, Ravi Shroff and David Alan Sklansky: “The exponential growth of available information about routine police activities offers new opportunities to improve the fairness and effectiveness of police practices. We illustrate the point by showing how a particular kind of calculation made possible by modern, large-scale datasets — determining the likelihood that stopping and frisking a particular pedestrian will result in the discovery of contraband or other evidence of criminal activity — could be used to reduce the racially disparate impact of pedestrian searches and to increase their effectiveness. For tools of this kind to achieve their full potential in improving policing, though, the legal system will need to adapt. One important change would be to understand police tactics such as investigatory stops of pedestrians or motorists as programs, not as isolated occurrences. Beyond that, the judiciary will need to grow more comfortable with statistical proof of discriminatory policing, and the police will need to be more receptive to the assistance that algorithms can provide in reducing bias….(More)”