Science Alone Can’t Solve Covid-19. The Humanities Must Help

Curated on Posted on by Stefaan Verhulst

Article by Anna Magdalena Elsner and Vanesa Rampton: “…To judge by news reports, the humanities are “nice to have” — think of the entertainment value of balcony music or an online book club — but not essential for helping resolve the crisis. But as the impacts of public health measures ripple through societies, languages, and cultures, thinking critically about our reaction to SARS-CoV-2 is as important as new scientific findings about the virus. The humanities can contribute to a deeper understanding of the entrenched mentalities and social dynamics that have informed society’s response to this crisis. And by encouraging us to turn a mirror on our own selves, they prompt us to question whether we are the rational individuals that we aspire to be, and whether we are sufficiently equipped, as a society, to solve our own problems.

WE ARE CREATURES of stories. Scholarship in the medical humanities has persistently emphasized that narratives are crucial for how humans experience illness. For instance, Felicity Callard, a professor of human geography, has written about how a lack of “narrative anchors” during the early days of the Covid-19 pandemic led to confusion over what counts as a “mild” symptom and what the “normal” course of the disease looks like, ultimately heightening the suffering the disease caused. Existing social conditions, previous illnesses and disabilities, a sense of precarity — all of these factors influence our attitude toward disease and how it affects the way we exist in the world.

We are entangled with nature. We tend to imagine a human world separate from natural laws, but the novel coronavirus reminds us of the extent to which we are intricately bound up with the life around us. As philosopher David Benatar has noted, the emergence of the new coronavirus is most likely a result of our treatment of nonhuman animals. The virus has forced us to alter our behavior, likely triggering higher rates of anxiety, depression, and other stress-related responses. In essence, it has shown how what we think of as “non-human” can become a fundamental part of our lives in unexpected ways.

We react to crises in predictable fashion, and with foreseeable cognitive and moral failings. A growing body of work suggests that, although we want to act on knowledge, it is our nature to react instinctively and short-sightedly. Images of overcapacity intensive care units, for example, galvanize us to comply with lockdown restrictions, even as we have much more difficulty acting prudentially to prevent the emergence of such viruses. The desire for a quick solution has fueled a race for a vaccine, even though — as historian of science David Jones has noted — failures and false starts have been recurring themes in past attempts to handle epidemics. Even if a vaccine were available, it wouldn’t erase the striking disparities in health outcomes across class, race, and gender…(More)”.

Technical Excellence and Scale

Curated on Posted on by Stefaan Verhulst

Cory Doctorow at EFF: “In America, we hope that businesses will grow by inventing amazing things that people love – rather than through deep-pocketed catch-and-kill programs in which every competitor is bought and tamed before it can grow to become a threat. We want vibrant, competitive, innovative markets where companies vie to create the best products. Growth solely through merger-and-acquisition helps create a world in which new firms compete to be bought up and absorbed into the dominant players, and customers who grow dissatisfied with a product or service and switch to a “rival” find that they’re still patronizing the same company—just another division.

To put it bluntly: we want companies that are good at making things as well as buying things.

This isn’t the whole story, though.

Small companies with successful products can become victims of their own success. As they are overwhelmed by eager new customers, they are strained beyond their technical and financial limits – for example, they may be unable to buy server hardware fast enough, and unable to lash that hardware together in efficient ways that let them scale up to meet demand.

When we look at the once small, once beloved companies that are now mere divisions of large, widely mistrusted ones—Instagram and Facebook; YouTube and Google; Skype and Microsoft; DarkSkies and Apple—we can’t help but notice that they are running at unimaginable scale, and moreover, they’re running incredibly well.

These services were once plagued with outages, buffering delays, overcapacity errors, slowdowns, and a host of other evils of scale. Today, they run so well that outages are newsworthy events.

There’s a reason for that: big tech companies are really good at being big. Whatever you think of Amazon, you can’t dispute that it gets a lot of parcels from A to B with remarkably few bobbles. Google’s search results arrive in milliseconds, Instagram photos load as fast as you can scroll them, and even Skype is far more reliable than in the pre-Microsoft days. These services have far more users than they ever did as independents, and yet, they are performing better than they did in those early days.

Can we really say that this is merely “buying things” and not also “making things?” Isn’t this innovation? Isn’t this technical accomplishment? It is. Does that mean big = innovative? It does not….(More)”.

The technology of witnessing brutality

Curated on Posted on by Stefaan Verhulst

Axios: “The ways Americans capture and share records of racist violence and police misconduct keep changing, but the pain of the underlying injustices they chronicle remains a stubborn constant.

Driving the news: After George Floyd’s death at the hands of Minneapolis police sparked wide protests, Minnesota Gov. Tim Walz said, “Thank God a young person had a camera to video it.”

Why it matters: From news photography to TV broadcasts to camcorders to smartphones, improvements in the technology of witness over the past century mean we’re more instantly and viscerally aware of each new injustice.

  • But unless our growing power to collect and distribute evidence of injustice can drive actual social change, the awareness these technologies provide just ends up fueling frustration and despair.

For decades, still news photography was the primary channel through which the public became aware of incidents of racial injustice.

  • A horrific 1930 photo of the lynching of J. Thomas Shipp and Abraham S. Smith, two black men in Marion, Indiana, brought the incident to national attention and inspired the song “Strange Fruit.” But the killers were never brought to justice.
  • Photos of the mutilated body of Emmett Till catalyzed a nationwide reaction to his 1955 lynching in Mississippi.

In the 1960s, television news footage brought scenes of police turning dogs and water cannons on peaceful civil rights protesters in Birmingham and Selma, Alabama into viewers’ living rooms.

  • The TV coverage was moving in both senses of the word.

In 1991, a camcorder tape shot by a Los Angeles plumber named George Holliday captured images of cops brutally beating Rodney King.

  • In the pre-internet era, it was only after the King tape was broadcast on TV that Americans could see it for themselves.

Over the past decade, smartphones have enabled witnesses and protesters to capture and distribute photos and videos of injustice quickly — sometimes, as it’s happening.

  • This power helped catalyze the Black Lives Matter movement beginning in 2013 and has played a growing role in broader public awareness of police brutality.

Between the lines: For a brief moment mid-decade, some hoped that the combination of a public well-supplied with video recording devices and requirements that police wear bodycams would introduce a new level of accountability to law enforcement.

The bottom line: Smartphones and social media deliver direct accounts of grief- and rage-inducing stories…(More)”.

Permanent joint committees in Belgium: involving citizens in parliamentary debate

Curated on Posted on by Stefaan Verhulst

Article by Elisa Minsart and Vincent Jacquet: “Amidst wide public disillusionment with the institutions of representative democracy, political scientists, campaigners and politicians have intensified efforts to find an effective mechanism to narrow the gap between citizens and those who govern them. One of the most popular remedies in recent years – and one frequently touted as a way to break the Brexit impasse encountered by the UK political class in 2016-19 – is that of citizens’ assemblies. These deliberative forums gather diversified samples of the population, recruited through a process of random selection. Citizens who participate meet experts, deliberate on a specific public issue and make a range of recommendations for policy-making. Citizens’ assemblies are flourishing in many representative democracies – not least in the UK, with the current Climate Assembly UK and Citizens’ Assembly of Scotland. They show that citizens are able to deliberate on complex political issues and to deliver original proposals. 

For several years now, some public leaders, scholars and politicians have sought to integrate these democratic innovations into more traditional political structures. Belgium recently made a step in this direction. Each of Belgium’s three regions has its own parliament, with full legislative powers: on 13 November 2019, a proposition was approved to modify how the Parliament of the Brussels Region operates. The reform mandates the establishment of joint deliberative committees, on which members of the public will serve alongside elected representatives. This will enable ordinary people to deliberate with MPs on preselected themes and to formulate recommendations. The details of the process are currently still being drafted and the first commission is expected to launch at the end of 2020. Despite the COVID-19 crisis, drafting and negotiations with other parties have not been interrupted thanks to an online platform and a videoconference facility.

This experience has been inspired by other initiatives organised in Belgium. In 2011, the G1000 initiative brought together more than 700 randomly selected citizens to debate on different topics. This grassroots experiment attracted lots of public attention. In its aftermath, the different parliaments of the country launched their own citizens’ assemblies, designed to tackle specific local issues. Some international experiences also inspired the Brussels Region, in particular the first Irish Constitutional Convention (2012–2014). This assembly was composed of both elected representatives and randomly selected citizens, and led directly to a referendum that approved the legalisation of same-sex marriage. However, the present joint committees go well beyond these initiatives. Whereas both of these predecessors were ad hoc initiatives designed to resolve particular problems, the Brussels committees will be permanent and hosted at the heart of the parliament. Both of these aspects make the new committees a major innovation and entirely different from the predecessors that helped inspire them…(More)”.

Using Data for COVID-19 Requires New and Innovative Governance Approaches

Curated on Posted on by Stefaan Verhulst

Stefaan G. Verhulst and Andrew Zahuranec at Data & Policy blog: “There has been a rapid increase in the number of data-driven projects and tools released to contain the spread of COVID-19. Over the last three months, governments, tech companies, civic groups, and international agencies have launched hundreds of initiatives. These efforts range from simple visualizations of public health data to complex analyses of travel patterns.

When designed responsibly, data-driven initiatives could provide the public and their leaders the ability to be more effective in addressing the virus. The Atlantic andNew York Times have both published work that relies on innovative data use. These and other examples, detailed in our #Data4COVID19 repository, can fill vital gaps in our understanding and allow us to better respond and recover to the crisis.

But data is not without risk. Collecting, processing, analyzing and using any type of data, no matter how good intention of its users, can lead to harmful ends. Vulnerable groups can be excluded. Analysis can be biased. Data use can reveal sensitive information about people and locations. In addressing all these hazards, organizations need to be intentional in how they work throughout the data lifecycle.

Decision Provenance: Documenting decisions and decision makers across the Data Life Cycle

Unfortunately the individuals and teams responsible for making these design decisions at each critical point of the data lifecycle are rarely identified or recognized by all those interacting with these data systems.

The lack of visibility into the origins of these decisions can impact professional accountability negatively as well as limit the ability of actors to identify the optimal intervention points for mitigating data risks and to avoid missed use of potentially impactful data. Tracking decision provenance is essential.

As Jatinder Singh, Jennifer Cobbe, and Chris Norval of the University of Cambridge explain, decision provenance refers to tracking and recording decisions about the collection, processing, sharing, analyzing, and use of data. It involves instituting mechanisms to force individuals to explain how and why they acted. It is about using documentation to provide transparency and oversight in the decision-making process for everyone inside and outside an organization.

Toward that end, The GovLab at NYU Tandon developed the Decision Provenance Mapping. We designed this tool for designated data stewards tasked with coordinating the responsible use of data across organizational priorities and departments….(More)”

How Covid-19 Is Accelerating the Rise of Digital Democracy

Curated on Posted on by Stefaan Verhulst

Blog post by Rosie Beacon: “Covid-19 has created an unprecedented challenge for parliaments and legislatures. Social distancing and restrictions on movement have forced parliaments to consider new methods of scrutiny, debate, and voting. The immediate challenge was simply to replicate existing procedures remotely, but the crisis has presented a unique window of opportunity to innovate.

As policymakers slowly transition back to “normal”, they should not easily dismiss the potential of this new relationship between democracy and technology. Parliamentarians should use what they’ve learned and the expertise of the democracy tech and deliberative democracy community to build greater trust in public institutions and open up traditional processes to wider deliberation, bringing people closer to the source of democratic power.

This note sets out some of the most interesting examples of crisis-led parliamentary innovation from around the world and combines it with some of the lessons we already know from democracy and deliberative tech to chart a way forward.

There are five core principles political leaders should embrace from this great experiment in digital parliamentary democracy:

  1. Discover and adopt: The world’s parliaments and legislatures have been through the same challenge. This is an opportunity to learn and improve democratic engagement in the long-term.
  2. Experiment with multiple tools: There is no one holistic approach to applying digital tools in any democracy. Some will work, others will fail – technology does not promise infallibility.
  3. Embrace openness: Where things can be open, experiment with using this to encourage open dialogue and diversify ideas in the democratic and representative process.
  4. Don’t start from scratch: Learn how the deliberative democracy community is already using technology to help remake representative systems and better connect to communities.
  5. Use multi-disciplinary approaches: Create diverse teams, with diverse skill sets. Build flexible tools that meet today’s needs of democracies, citizens and representatives.

Approaches From Around the World

The approaches globally to Covid-19 continuity have been varied depending on the geographical, political and social context, but they generally follow one of these scenarios:

  1. Replicating everything using digital tools – Welsh Assembly, Crown dependencies (Jersey, Isle of Man),Brazil
    • Using technology in every way possible to continue the current parliamentary agenda online.
  2. Moving priority processes online, deprioritising the rest – France National Assembly,New Zealand, Canada
    • No physical presence in parliaments and prioritising the most important elements of the current parliamentary agenda, usually Covid-19-related legislation, to adapt for online continuation.
  3. Shifting what you can online while maintaining a minimal physical parliament – Denmark, Germany, UK
    • Hybrid parliaments appear to be a popular choice for larger parliaments. This generally allows for the parliamentary agenda to continue with amendments to how certain procedures are conducted.
  4. Reducing need for physical attendance and moving nothing online – Ireland, Sweden
    • Houses can continue to sit in quorum (an agreed proportion of MPs representative of overall party representation), but certain parts of legislative agenda have been suspended for the time being….(More)”.

Research methods to consider in a pandemic

Curated on Posted on by Stefaan Verhulst

Blog by Helen Kara: “Since lockdown began, researchers have been discussing how best to change our methods. Of the ‘big three’ – questionnaires, interviews, and focus groups – only questionnaires are still being used in much the same way. There are no face-to-face interviews or focus groups, though interviews can still be held by telephone and both can be done online. However, doing research online comes with new ethical problems. Some organisations are forbidding the use of Zoom because it has had serious security problems, others are promoting the use of Jitsi because it is open source.

I’ve been thinking about appropriate methods and I have come up with three options I think are particularly worth considering at this time: documentary research, autoethnography, and digital methods. These are all comparatively new approaches and each offers scope for considerable creativity. Documentary research seems to be the oldest; I understand that its first textbook, A Matter of Record by UK academic John Scott, was published in 1990. Autoethnography was devised by US academic Carolyn Ellis in the 1990s, and digital methods have developed as technological devices have become more available to more people through the 21st century….

Doing research in a pandemic also requires considerable thought about ethics. I have long argued that ethical considerations should start at the research question, and I believe that is even more crucial at present. Does this research need doing – or does it need doing now, in the middle of a global collective trauma? If not, then don’t do that research, or postpone it until life is easier. Alternatively, you may be doing urgent research to help combat COVID19, or important research that will go towards a qualification, or have some other good reason. In which case, fine, and the next ethical question is: how can my research be done in a way that places the least burden on others? The methods introduced above all offer scope for conducting empirical research without requiring much input from other people. Right now, everyone is upset; many are worried about their health, income, housing, and/or loved ones; increasing numbers are recently bereaved. Therefore everyone is vulnerable, and so needs more care and kindness than usual. This includes potential participants and it also includes researchers. We need to choose our methods with great care for us all….(More)”.

Stay alert, infodemic, Black Death: the fascinating origins of pandemic terms

Curated on Posted on by Stefaan Verhulst

Simon Horobin at The Conversation: “Language always tells a story. As COVID-19 shakes the world, many of the words we’re using to describe it originated during earlier calamities – and have colourful tales behind them.

In the Middle Ages, for example, fast-spreading infectious diseases were known as plagues – as in the Bubonic plague, named for the characteristic swellings (or buboes) that appear in the groin or armpit. With its origins in the Latin word plaga meaning “stroke” or “wound”, plague came to refer to a wider scourge through its use to describe the ten plagues suffered by the Egyptians in the biblical book of Exodus.

An alternative term, pestilence, derives from Latin pestis (“plague”), which is also the origin of French peste, the title of the 1947 novel by Albert Camus (La Peste, or The Plague) which has soared up the bestseller charts in recent weeks. Latin pestis also gives us pest, now used to describe animals that destroy crops, or any general nuisance or irritant. Indeed, the bacterium that causes Bubonic plague is called Yersinia pestis….

The later plagues of the 17th century led to the coining of the word epidemic. This came from a Greek word meaning “prevalent”, from epi “upon” and demos “people”. The more severe pandemic is so called because it affects everyone (from Greek pan “all”).

A more recent coinage, infodemic, a blend of info and epidemic, was introduced in 2003 to refer to the deluge of misinformation and fake news that accompanied the outbreak of SARS (an acronym formed from the initial letters of “severe acute respiratory syndrome”).

The 17th-century equivalent of social distancing was “avoiding someone like the plague”. According to Samuel Pepys’s account of the outbreak that ravaged London in 1665, infected houses were marked with a red cross and had the words “Lord have mercy upon us” inscribed on the doors. Best to avoid properties so marked….(More)”.

Open science: after the COVID-19 pandemic there can be no return to closed working

Curated on Posted on by Stefaan Verhulst

Article by Virginia Barbour and Martin Borchert: “In the few months since the first case of COVID-19 was identified, the underlying cause has been isolated, its symptoms agreed on, its genome sequenced, diagnostic tests developed, and potential treatments and vaccines are on the horizon. The astonishingly short time frame of these discoveries has only happened through a global open science effort.

The principles and practices underpinning open science are what underpin good research—research that is reliable, reproducible, and has the broadest impact possible. It specifically requires the application of principles and practices that make research FAIR (Findable, Accessible, Interoperable, Reusable); researchers are making their data and preliminary publications openly accessible, and then publishers are making the peer-reviewed research immediately and freely available to all. The rapid dissemination of research—through preprints in particular as well as journal articles—stands in contrast to what happened in the 2003 SARS outbreak when the majority of research on the disease was published well after the outbreak had ended.

Many outside observers might reasonably assume, given the digital world we all now inhabit, that science usually works like this. Yet this is very far from the norm for most research. Science is not something that just happens in response to emergencies or specific events—it is an ongoing, largely publicly funded, national and international enterprise….

Sharing of the underlying data that journal articles are based on is not yet a universal requirement for publication, nor are researchers usually recognised for data sharing.

There are many benefits associated with an open science model. Image adapted from: Gaelen Pinnock/UCT; CC-BY-SA 4.0 .

Once published, even access to research is not seamless. The majority of academic journals still require a subscription to access. Subscriptions are expensive; Australian universities alone currently spend more than $300 million per year on subscriptions to academic journals. Access to academic journals also varies between universities with varying library budgets. The main markets for subscriptions to the commercial journal literature are higher education and health, with some access to government and commercial….(More)”.

Smart cities during COVID-19: How cities are turning to collective intelligence to enable smarter approaches to COVID-19.

Curated on Posted on by Stefaan Verhulst

Article by Peter Baeck and Sophie Reynolds: One of the most prominent examples of how technology and data is being used to empower citizens is happening in Seoul. Here the city has used its ‘citizens as mayors’ philosophy for smart cities; an approach which aims to equip citizens with the same real-time access to information as the mayor. Seoul has gone further than most cities in making information about the COVID-19 outbreak in the city accessible to citizens. Its dashboard is updated multiple times daily and allows citizens to access the latest anonymised information on confirmed patients’ age, gender and dates of where they visited and when, after developing symptoms. Citizens can access even more detailed information; down to visited restaurants and cinema seat numbers.

The goal is to provide citizens with the information needed to take precautionary measures, self-monitor and report if they start showing symptoms after visiting one of the “infection points.” To help allay people’s fears and reduce the stigma associated with businesses that have been identified as “infection points”, the city government also provides citizens with information about the nearest testing clinics and makes “clean zones” (places that have been disinfected after visits by confirmed patients) searchable for users.

In addition to national and institutional responses there are (at least) five ways collective intelligence approaches are helping city governments, companies and urban communities in the fight against COVID-19:

1. Open sharing with citizens about the spread and management of COVID-19:

Based on open data provided by public agencies, private sector companies are using the city as a platform to develop their own real-time dashboards and mobile apps to further increase public awareness and effectively disseminate disease information. This has been the case with Corona NOW, Corona Map, Corona 100m in Seoul, Korea – which allow people to visualise data on confirmed coronavirus patients, along with patients’ nationality, gender, age, which places the patient has visited, and how close citizens are to these coronavirus patients. Developer Lee Jun-young who created the Corona Map app, said he built it because he found that the official government data was too difficult to understand.

Meanwhile in city state Singapore, the dashboard developed by UpCode scrapes data provided by the Singapore Ministry of Health’s own dashboard (which is exceptionally transparent about coronavirus case data) to make it cleaner and easier to navigate, and vastly more insightful. For instance, it allows you to learn about the average recovery time for those infected.

UpCode is making its platform available for others to re-use in other contexts.

2. Mobilising community-led responses to tackle COVID-19

Crowdfunding is being used in a variety of ways to get short-term targeted funding to a range of worthy causes opened up by the COVID-19 crisis. Examples include helping to fundraise for community activities for those directly affected by the crisis, backing tools and products that can address the crisis (such as buying PPE) and pre-purchasing products and services from local shops and artists. A significant proportion of the UK’s 1,000 plus mutual aid initiatives are now turning to crowdfunding as a way to rapidly respond to the new and emerging needs occurring at the city-wide and hyperlocal (i.e. streets and neighbourhood) levels.

Aberdeen City Mutual Aid group set up a crowdfunded community fund to cover the costs of creating a network of volunteers across the city, as well as any expenses incurred at food shops, fuel costs for deliveries and purchasing other necessary supplies. Similarly, the Feed the Heroes campaign was launched with an initial goal of raising €250 to pay for food deliveries for frontline staff who are putting in extra hours at the Mater Hospital, Dublin during the coronavirus outbreak….(More)”.